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Quality indicators for palliative and end of life care: a review of Swedish policy documents
Ersta Sköndal University College, Palliative Reserch Centre, PRC. Karolinska Institutet, Department of Neurobiology, Care Sciences and Society .
Karolinska Institutet, Department of Clinical Science, Intervention and Technology.
University of Umeå, Department of Radiation Sciences.
Lund University, Department of Clinical Sciences.
2013 (English)In: BMJ Supportive & Palliative Care, ISSN 2045-435X, Vol. 3, no 2, 174-180 p.Article in journal (Refereed) Published
Abstract [en]

Background All patients with palliative and end of life care needs should be guaranteed equal and safe treatment and care, regardless of their disease or site of care. The inclusion of quality indicators in national guidelines and other guiding documents supports quality assurance and improvement in provision of care. The aim of this paper was to review existing quality indicators in national Swedish policy documents relevant to palliative and end of life care.

Methods We reviewed existing guidelines for diseases expected to require palliative care issued by the National Board of Health and Welfare, existing regional clinical practice guidelines and the annual report of the Swedish Register of Palliative Care (SRPC) up until 2010.

Results We found 11 quality indicators pertinent to palliative and end of life care in the guidelines for cancer diseases and ‘The care and nursing of the elderly’. The indicators included assessment and treatment of pain, communication with the patient and the family, documentation in the patient record and registration in the SRPC. In the national guidelines for cardiology, pulmonary diseases, stroke, diabetes and dementia, there were no indicators relevant for palliative or end of life care.

Conclusions In the existing Swedish national guidelines for many different diseases, there is still a great need to define clinically relevant and feasible outcome measures of quality of palliative and end of life care.

Place, publisher, year, edition, pages
2013. Vol. 3, no 2, 174-180 p.
National Category
Medical and Health Sciences
Identifiers
URN: urn:nbn:se:esh:diva-2531DOI: 10.1136/bmjspcare-2012-000390OAI: oai:DiVA.org:esh-2531DiVA: diva2:672802
Available from: 2013-12-03 Created: 2013-12-03 Last updated: 2014-01-24Bibliographically approved

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CiteExportLink to record
Permanent link

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Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
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  • asciidoc
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