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Victor and the Dragon: A Young Child’s Experiences of Discomfort and Comfort, From Diagnosis Until Death
Umeå universitet.
Ersta Sköndal University College, Department of Health Care Sciences.
Ersta Sköndal University College, Palliative Research Centre, PRC. Umeå universitet.ORCID iD: 0000-0001-5994-4012
2013 (English)In: Journal of Hospice and Palliative Nursing, ISSN 1522-2179, E-ISSN 1539-0705, Vol. 15, no 8, 464-470 p.Article in journal (Refereed) Published
Abstract [en]

Children with progressive cancer often suffer during treatment and at the end of their life, and they need comfort. This study's aim was to describe a child's experiences of being cared for until death, with a focus on discomfort and comfort. Conversations, field notes, drawings, and interviews with the child and his mother and nurse were content analyzed. The themes enduring unbearable situations, expressing emotional suffering, and finding comfort were constructed. The children's parents and other family members are often a significant source of help for the children to endure discomfort and find comfort. Emotional suffering can be expressed in drawing and crying, but sometimes, a child is inconsolable and must endure discomfort. Comfort for a dying child is enhanced by having the family close, experiencing normal daily activities such as drawing and playing, and feeling at home in life despite approaching death.

Place, publisher, year, edition, pages
2013. Vol. 15, no 8, 464-470 p.
Keyword [en]
Childhood cancer, Comfort, Discomfort, Drawing, Dying child
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-3039DOI: 10.1097/NJH.0b013e3182a412eaISI: 000327247900010OAI: oai:DiVA.org:esh-3039DiVA: diva2:705451
Available from: 2014-03-17 Created: 2014-03-17 Last updated: 2016-06-03Bibliographically approved

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Dahlqvist, VeraNorberg, Astrid
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