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Caring for people with dementia disease (DD) and working in a private not-for-profit residential care facility for people with DD
Umeå universitet.
Ersta Sköndal University College, Palliative Research Centre, PRC. Sophiahemmet högskola.
Ersta Sköndal University College, Palliative Research Centre, PRC. Umeå universitet.ORCID iD: 0000-0001-5994-4012
2014 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 28, no 2, p. 337-346Article in journal (Refereed) Published
Abstract [en]

Caring for people with dementia and working in dementia care is described as having both rewarding and unpleasant aspects and has been studied to a minor extent. This study aims to explore care providers' narrated experiences of caring for people with dementia disease (DD) and working in a private not-for-profit residential care facility for people with DD. Nine care providers were interviewed about their experiences, the interviews were recorded, transcribed and analysed using thematic analysis. The analysis revealed that participants were struggling to perform person-centred care, which meant trying to see the person behind the disease, dealing with troublesome situations in the daily care, a two-edged interaction with relatives, feelings of shortcomings and troubled conscience, and the need for improvements in dementia care. The analysis also revealed an ambiguous work situation, which meant a challenging value base, the differently judged work environment, feelings of job satisfaction and the need for a functional leadership and management. The results illuminate participants' positive as well as negative experiences and have identified areas requiring improvements. It seems of great importance to strive for a supportive and attendant leadership, a leadership which aims to empower care providers in their difficult work. Using conscience as a driving force together in the work group may benefit care providers' health.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2014. Vol. 28, no 2, p. 337-346
Keywords [en]
care of older people, dementia, private not-for-profit profile, care providers´ experiences, troubled conscience
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-3035DOI: 10.1111/scs.12063PubMedID: 23834127OAI: oai:DiVA.org:esh-3035DiVA, id: diva2:705498
Funder
Swedish Research CouncilAFA InsuranceForte, Swedish Research Council for Health, Working Life and WelfareAvailable from: 2014-03-17 Created: 2014-03-17 Last updated: 2024-02-23Bibliographically approved

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Franklin Larsson, Lise-LotteNorberg, Astrid

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