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Palliative Care Needs in Terms of Signs, Symptoms and Health Related Quality of Life (HRQoL) among Patients with Advanced Chronic Heart Failure
Ersta Sköndal University College, Palliative Research Centre, PRC.ORCID iD: 0000-0002-0961-5250
Ersta Sköndal University College, Palliative Research Centre, PRC.
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2014 (English)In: Palliative Medicine, Sage Publications, 2014, p. 697-697Conference paper, Poster (with or without abstract) (Refereed)
Abstract [en]

Purpose: Despite that chronic heart failure is associated with a poor prognosis, only few patients receive palliative care. Among patients with advanced stages of heart failure, previous studies have mainly focused on solitary specific signs or symptoms and few have described the patients’ situation from a more comprehensive perspective. The aim was therefore to undertake a comprehensive description of potential palliative care needs in terms of signs, symptoms and health related quality of life (HRQoL) among patients with advanced chronic heart failure. Methods: The study included 72 patients with advanced chronic heart failure (NYHA III and IV), taken from a larger multi-centre study. The study variables included demographic data, medical and nutritional status, sleeping disordered breathing, physical activity, self-perceived symptoms and HRQoL, and cognitive function. Results: A large number of the patients scored appetite levels at increased risk for weight loss (53%), scored mild or worse depressive symptoms (47%), was short of breath in rest (43%), and had moderate or worse pain (82%). Mobility problems were common ( 72%) as well as problems conducting usual activities (33%). Problems with low physical activity according to average number of steps (2691±2022) and METs (1.0±0.2), insomnia (64%), daytime sleepiness (44%) and sleep disordered breathing (AHI ≥ 15, 56%) were common. The mean BMI was high (30.2±5.7) and 18% had albumin levels ≤ 35 (mean 38.8±3.7). Impaired cognitive functioning was also common (MMSE ≤ 27, 54%). HRQoL was in general low, but with a great individual variance (EQ-index 0.65±0.22; EQ-VAS 50.8±17.6). Conclusion: Despite that none of the participants received palliative care, this comprehensive description shows that these patients with heart failure have complex health care needs. Therefore, health professional should focus on palliative care needs earlier in the disease trajectory.

Place, publisher, year, edition, pages
Sage Publications, 2014. p. 697-697
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Nursing
Identifiers
URN: urn:nbn:se:esh:diva-3925DOI: 10.1177/0269216314532748OAI: oai:DiVA.org:esh-3925DiVA, id: diva2:725719
Conference
8th World Research Congress of the European Association for Palliative Care, EAPC
Available from: 2014-06-17 Created: 2014-06-17 Last updated: 2021-03-30Bibliographically approved

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Årestedt, KristoferÖhlén, JoakimHenriksson (Alvariza), Anette

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