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Skuld och skam: Etiopiska sjuksköterskors erfarenheter av existentiella kval i palliativ hemsjukvård i Addis Ababa, Etiopien
Ersta Sköndal University College, Department of Health Care Sciences.
2014 (Swedish)Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesisAlternative title
Guilt and shame : Ethiopian nurses’ experiences of existential agony in palliative home care in Addis Ababa, Ethiopia (English)
Abstract [sv]

Bakgrund: Sjuksköterskor som vårdar svårt sjuka döende patienter konfronteras dagligen av sorg, frustration och svårvärderade symtom, där även etiska och kulturella aspekter ingår. I en allt mer personcentrerad och mångkulturell vårdmiljö ökar förväntningar och krav på sjuksköterskans yrkeskunskap.

Syfte: Syftet med studien är att belysa etiopiska sjuksköterskors erfarenheter av patienters uttryck för skuld och skam i palliativ hemsjukvård i Addis Ababa, Etiopien, samt illustrera efterföljande omvårdnadshandlingar.

Metod: Studien baseras på sjuksköterskors erfarenheter. Fokusgruppsdata insamlades under våren 2013, i Addis Ababa i Etiopien. Ljudinspelad data transkriberades och analyserades med stöd av kvalitativ systematisk textkondensering. 

Resultat: Sjuksköterskornas erfarenheter visar att skuld- och skamkänslor i samband med obotlig sjukdom hör nära samman med tidigare livshandlingar. Skuld-och skamkänslor kunde enligt sjuksköterskorna vara såväl kulturellt som individuellt betingat. Kval sågs ibland leda till social och existentiell isolering.  Sjuksköterskans roll var bekräftande och stödjande. 

Slutsats: I den här studien visar Etiopiska sjuksköterskors erfarenheter att svårt sjuka och döende patienter uttrycker skuld-och skamkänslor som kan leda till isolering. Sjuksköterskors medvetenhet om existentiella kval ur kulturella perspektiv kan främja en personcentrerad omvårdnad vid livets slut.

 

 

 

 

 

 

 

Abstract [en]

Background: Nurses who care for terminally ill and dying patients are daily confronted with underlying emotions such as grief and frustration including ethical and cultural dimensions. In a more person-centered, multicultural healthcare environment, the expectations and demands on nurses' professional knowledge increases.

Aim: The purpose of this study is to elucidate Ethiopian nurses' experiences of patients expressions of guilt and shame in palliative care in Addis Ababa, Ethiopia, and to illustrate subsequent nursing actions.

Methods: The study is based on nurses' experiences. Focus group data were collected during the spring of 2013, in Addis Ababa, Ethiopia. Recorded audio data was transcribed and analyzed in accordance with qualitative systematic text condensation.

Results: Nurses' experiences show that guilt and shame associated with incurable disease is closely related to past life deeds. Nurses' reported that patients often interpret diseases to their life choices and actions. Guilt and shame could, according to the nurses be both culturally and individually determined. The agony was sometimes seen to lead to social and existential isolation. The nurses’ role was confirmatory and supportive.

Conclusions: This study shows Ethiopian nurses' experiences to seriously ill and dying patients expressing guilt and shame that can lead to isolation. Nurses' awareness of existential agony from the cultural perspective can promote a person-centered care at the end of life.

Place, publisher, year, edition, pages
2014. , 36 p.
Keyword [en]
Palliative care, guilt, shame, nurses' experiences
Keyword [sv]
Palliativ vård, skuld, skam, sjuksköterskors erfarenheter
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-4121OAI: oai:DiVA.org:esh-4121DiVA: diva2:754793
Educational program
Master in Health Care Sciences - Palliative Care 120 ECTS
Uppsok
Medicine
Supervisors
Examiners
Available from: 2014-10-13 Created: 2014-10-12 Last updated: 2015-05-06Bibliographically approved

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