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Delivering and participating in a psycho-educational intervention for family caregivers during palliative home care: A qualitative study from the perspectives of health professionals and family caregivers
Ersta Sköndal University College, Palliative Research Centre, PRC. Karolinska institutet.
Ersta Sköndal University College, Palliative Research Centre, PRC. Karolinska institutet.
Lunds universitet.
Karolinska institutet, Örebro universitet.
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2015 (English)In: BMC Palliative Care, ISSN 1472-684X, E-ISSN 1472-684X, Vol. 14, no 16Article in journal (Refereed) Published
Abstract [en]

Background: Family caregivers in palliative care have a need for knowledge and practical support from health professionals, resulting in the need for educational and supportive interventions. However, research has mainly focused on the experiences of family caregivers taking part in interventions. To gain an increased understanding of complex interventions, it is necessary to integrate the perspectives of health professionals and family caregivers. Hence, the aim of this study is to explore the perspectives of health professionals and family caregivers of delivering and participating in a psycho-educational intervention in specialized palliative home care.

Methods: A psycho-educational intervention was designed for family caregivers based on a theoretical framework describing family caregiver’s educational, emotional and practical involvement as knowing, being and doing. The intervention was delivered over three sessions, each of which included a presentation to family caregivers by healthcare professionals from an intervention manual based on the theoretical framework. For the qualitative data collection, an interpretive descriptive design was chosen. Data were collected through focus group discussions with health professionals and individual interviews with family caregivers. Data were analysed using framework analysis.

Results: From the perspectives of both health professionals and family caregivers, the delivering and participating in the intervention was described as a positive experience. Although the content was not always adjusted to the family caregivers’ individual situation, it was perceived as valuable. Consistently, the intervention was regarded as something that could make family caregivers better prepared for caregiving. Health professionals found that the work with the intervention demanded time and engagement from them and that the manual needed to be adjusted to suit group characteristics, but the experience of delivering the intervention was still something that gave them satisfaction and contributed to them finding insights into their work.

Conclusions: The theoretical framework of knowing, being and doing used in this study seems appropriate to use for the design of interventions to support family caregivers. In the perspectives of health professionals and family caregivers, the psycho-educational intervention had important benefits and there was congruence between the two groups in that it provided reward and support. In order for health professionals to carry out psycho-educational interventions, they may be in need of support and supervision as well as securing appropriate time and resources in their everyday work.

Place, publisher, year, edition, pages
2015. Vol. 14, no 16
Keyword [en]
Family caregivers, Health professionals, Home care, Psycho-educational intervention, Palliative care, Support
National Category
Nursing
Identifiers
URN: urn:nbn:se:esh:diva-4600DOI: 10.1186/s12904-015-0015-1PubMedID: 25903781OAI: oai:DiVA.org:esh-4600DiVA: diva2:811165
Available from: 2015-05-11 Created: 2015-05-11 Last updated: 2017-01-12Bibliographically approved

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Holm, MajaCarlander, IdaÅrestedt, KristoferÖhlen, JoakimHenriksson (Alvariza), Anette
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