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Transition to noncurative end-of-life care in paediatric oncology: A nationwide follow-up in Sweden
Uppsala universitet, Visby lasarett.
Uppsala universitet.
Uppsala universitet.
Karolinska institutet.
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2013 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227, Vol. 102, no 7, p. 744-748Article in journal (Refereed) Published
Abstract [en]

AIM: To estimate whether and when children dying from a malignancy are recognized as being beyond cure and to study patterns of care the last weeks of life.

METHODS: A nationwide retrospective medical record review was conducted. Medical records of 95 children (60% of eligible children) who died from a malignancy 2007-2009 in Sweden were studied.

RESULTS: Eighty-three children (87%) were treated without curative intent at the time of death. Children with haematological malignancies were less likely to be recognized as being beyond cure than children with brain tumours [relative risks (RR) 0.7; 95% confidence interval (CI) 0.6-0.9] or solid tumours (RR 0.8; 0.6-1.0). The transition to noncurative care varied from the last day of life to over four years prior to death (median 60 days). Children with haematological malignancies were treated with a curative intent closer to death and were also given chemotherapy (RR 5.5; 1.3-22.9), transfusions (RR 2.0; 1.0-4.0) and antibiotics (RR 5.3; 1.8-15.5) more frequently than children with brain tumours the last weeks of life.

CONCLUSION: The majority of children dying from a malignancy were treated with noncurative intent at the time of death. The timing of a transition in care varied with the diagnoses, being closer to death in children with haematological malignancies.

Place, publisher, year, edition, pages
2013. Vol. 102, no 7, p. 744-748
Keywords [en]
Children with cancer, End-of-life, Paediatric oncology, Palliative care
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Other Medical Sciences not elsewhere specified
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URN: urn:nbn:se:esh:diva-5146DOI: 10.1111/apa.12242PubMedID: 23557514OAI: oai:DiVA.org:esh-5146DiVA, id: diva2:912870
Available from: 2016-03-18 Created: 2016-03-18 Last updated: 2020-06-03Bibliographically approved

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Jalmsell, LiKreicbergs, Ulrika

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