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Children with cancer share their views: tell the truth but leave room for hope.
Uppsala universitet, Visby lasarett.
Karolinska Institutet.ORCID iD: 0000-0003-4736-500X
Ersta Sköndal University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska institutet.ORCID iD: 0000-0002-8185-781X
Karolinska institutet.
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2016 (English)In: Acta Paediatrica, ISSN 0803-5253, E-ISSN 1651-2227Article in journal (Refereed) Epub ahead of print
Abstract [en]

AIM: One in five children diagnosed with cancer will die from the disease. Few studies have focused on how children with cancer want to receive bad news, such as when no more treatment options are available, and that was the aim of this study.

METHODS: We conducted individual interviews with ten children with cancer, aged seven to 17 years, at a single paediatric oncology unit in central Sweden. Interviews were audiotaped and analysed with systematic text condensation. Bad news was defined as information about a potentially fatal outcome, such as a disease relapse, or information that the treatment administered was no longer working and that there was no more treatment possible.

RESULTS: All children expressed that they wanted truthful information, and they did not want to be excluded from bad news regarding their illness. They wanted to be informed as positively as possible, allowing them to maintain hope, and in words that they could understand. They also wanted to receive any bad news at the same time as their parents.

CONCLUSION: Children with cancer want to be fully informed about their disease, but they also wanted it to be relayed as positively as possible so that they could stay hopeful. This article is protected by copyright. All rights reserved.

Place, publisher, year, edition, pages
2016.
Keyword [en]
Communication, End-of-life care, Ethics, Paediatric oncology, Palliative care
National Category
Other Medical Sciences not elsewhere specified
Identifiers
URN: urn:nbn:se:esh:diva-5285DOI: 10.1111/apa.13496PubMedID: 27272911OAI: oai:DiVA.org:esh-5285DiVA: diva2:936476
Available from: 2016-06-14 Created: 2016-06-14 Last updated: 2017-01-26Bibliographically approved

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CiteExportLink to record
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Citation style
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