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  • 1. Aléx, Lena
    et al.
    Hammarström, Anne
    Gustafson, Yngve
    Norberg, Astrid
    Ersta Sköndal University College, Department of palliative care research. Ersta Sköndal University College, Department of Health Care Sciences.
    Lundman, Berit
    Constructions of various femininities among the oldest old women.2006In: Health Care for Women International, ISSN 0739-9332, E-ISSN 1096-4665, Vol. 27, no 10, 853-72 p.Article in journal (Refereed)
    Abstract [en]

    This study forms part of the Umeå 85+ Study, and the aim was to explore various gendered constructions of femininities among the oldest old women. Femininities are seen as various ways of shaping oneself as a woman in relation to the impact of historical, social, and cultural circumstances. Thematic narratives were analyzed using qualitative content analysis. Through interpreting these narratives in the light of gender theories, we were able to discern four femininities: "being connected," "being an actor," "living in the shadow of others," and "being alienated." The oldest old women displayed complex outlooks on femininities, and no femininity was interpreted as being in the center related to the other femininities. Further research is needed in order to disclose the complexity of femininities related to factors such as social class, ethnicity, and financial situation among the oldest old, and to acquire a greater knowledge of various femininities.

  • 2. Aléx, Lena
    et al.
    Hammarström, Anne
    Norberg, Astrid
    Ersta Sköndal University College, Department of palliative care research. Ersta Sköndal University College, Department of Health Care Sciences.
    Lundman, Berit
    Balancing within various discourses--the art of being old and living as a Sami woman.2006In: Health Care for Women International, ISSN 0739-9332, E-ISSN 1096-4665, Vol. 27, no 10, 873-92 p.Article in journal (Refereed)
    Abstract [en]

    The aim of this part of the Umeå 85+ Study was to explore how indigenous women narrate their lives and their experience of being old as Sami women. Interviews with 9 old Sami women were analyzed using grounded theory. The categories identified were "reindeer as the basis of life," "longing for significant Sami values," "feeling valued as a Sami woman," and "changing for survival;" these evolved into the core category: "balancing within various discourses-the art of being old and living as a Sami woman." Knowing how to balance provided the ability to make use of available opportunities.

  • 3.
    Axberg, Thuy
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Kazemi, Fatemeh
    Ersta Sköndal University College, Department of Health Care Sciences.
    Ät- och sväljningsproblem efter stroke: En litteraturstudie om äldres upplevelser av matsituationen efter stroke2009Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 4.
    Berisha, Sanije
    et al.
    Ersta Sköndal University College, Department of Social Work.
    Wittrin, Sara
    Ersta Sköndal University College, Department of Social Work.
    ”Att tycka synd om de här barnen gagnar dom inte ett dugg”: en kvalitativ studie om barn som bevittnat våld i hemmet och deras särskilda behov av stöd2010Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 5.
    Brandsen, Taco
    et al.
    Radboud University Nijmegen, The Netherlands.
    Pestoff, Victor
    Ersta Sköndal University College, Department of Social Sciences, Avdelningen för forskning om det civila samhället.
    Verschuere, Bram
    Ghent University, Belgium.
    Co-production and the third sector: the state of the art in research2014In: Social enterprise and the third sector: changing European landscapes in a comparative perspective / [ed] Jacques Defourny, Lars Hulgård, Victor Pestoff, New York: Routledge, 2014, 231-249 p.Chapter in book (Other academic)
  • 6.
    Bullington, Jennifer
    Ersta Sköndal University College, Department of Health Care Sciences.
    Att vara kropp: värdigheten som mänskligt förkroppsligande2010In: Värdighet i vården av äldre personer / [ed] Lennart Nordenfelt, Lund: Studentlitteratur AB , 2010, 1, 105-137 p.Chapter in book (Other academic)
  • 7.
    Bullington, Jennifer
    Ersta Sköndal University College, Department of Health Care Sciences.
    Being body: the dignity of human embodiment2009In: Dignity in care for older people / [ed] Lennart Nordenfelt, Chichester, U.K.: Wiley-Blackwell , 2009, 54-76 p.Chapter in book (Other academic)
  • 8.
    Bullington, Jennifer
    Ersta Sköndal University College, Department of Health Care Sciences.
    Body and self: a phenomenological study on the ageing body and identity2006In: Journal of Medical Humanities, ISSN 1041-3545, E-ISSN 1573-3645, Vol. 32, no 1, 25-31 p.Article in journal (Refereed)
    Abstract [en]

    The aim of the study was to investigate how older people (60+) experience the ageing body and how these experiences affect aged peoples’ sense of identity. Explorative, open ended, interviews were conducted with 13 respondents between the ages of 63 and 82, recruited from a retired peoples’ organisation, Church organisations, and from the working population. The qualitative data was analysed with a phenomenological method, the so called EPP method, the empirical phenomenological psychological method. The results showed that generally the experience of the ageing body has to do with a changed life world, reactions to this change in terms of body and self, and finding ways to feel at home in this changed situation. Results are presented as three typologies, reflecting the different ways in which the respondents described this general experience: existential awakening, making it good enough, and new possibilities. The results give support to the research that points out the importance of activity for the self esteem of the elderly. According to this study, however, the meaning of “activity” can vary and can have different sources of motivation. Respondents in only one typology expressed frustration over limitations of the ageing body. Respondents exhibited entirely different ways of relating to the fact that death was approaching, which raises questions about how the elderly experience this impending horizon. Finally, the gender differences in this small study were quite clear: all the male respondents belonged to the typology “New possibilities”, raising questions about gender aspects concerning the meaning of freedom, appearance, activity, and self esteem.

  • 9. Christine, Gustafsson
    et al.
    Asp, Margareta
    Fagerberg, Ingegerd
    Mälardalens högskola.
    Municipal night nurses' experience of the meaning of caring2009In: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 16, no 5, 599-612 p.Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to elucidate municipal night registered nurses’ (RNs) experiences of the meaning of caring in nursing. The research context involved all night duty RNs working in municipal care of older people in a medium-sized municipality located in central Sweden. The meaning of caring in nursing was experienced as: caring for by advocacy, superior responsibility in caring, and consultative nursing service. The municipal night RNs’ experience of caring is interpreted as meanings in paradoxes: ‘being close at distance’, the condition of ‘being responsible with insignificant control’, and ‘being interdependently independent’. The RNs’ experience of the meaning of caring involves focusing on the care recipient by advocating their perspectives. The meaning of caring in this context is an endeavour to grasp an overall caring responsibility by responding to vocational and personal demands regarding the issue of being a RN, in guaranteeing ethical, qualitative and competent care for older people.

  • 10.
    Cronqvist, Agneta
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Sundh, Kenneth
    Ersta Sköndal University College, Department of Social Work.
    Första året för demensprojektet i skarpnäcks stadsdel2009Report (Other (popular science, discussion, etc.))
  • 11.
    Cronqvist, Agneta
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Sundh, Kenneth
    Ersta Sköndal University College, Department of Social Work.
    Första året för projektet förebyggande hembesök i Skarpnäcks stadsdel2009Report (Other (popular science, discussion, etc.))
  • 12.
    Cronqvist, Agneta
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Sundh, Kenneth
    Ersta Sköndal University College, Department of Social Work.
    Första året för projektet mötesplats servicehuset i Skarpnäcks stadsdel2009Report (Other (popular science, discussion, etc.))
  • 13.
    Cronqvist, Agneta
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Sundh, Kenneth
    Ersta Sköndal University College, Department of Social Work.
    Första året för projektet projektsamordnare i Skarpnäcks stadsdel2009Report (Other (popular science, discussion, etc.))
  • 14.
    Cronqvist, Agneta
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Sundh, Kenneth
    Ersta Sköndal University College, Department of Social Work.
    Projektet rehabilitering i vardagen i Skarpnäcks stadsdel2009Report (Other (popular science, discussion, etc.))
  • 15.
    Cronqvist, Agneta
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Sundh, Kenneth
    Ersta Sköndal University College, Department of Social Work.
    Slutrapport år 2 för äldreprojekten i Skarpnäcks stadsdel2010Report (Other (popular science, discussion, etc.))
  • 16.
    Defourny, Jacques
    et al.
    University of Leige, Belgium.
    Hulgård, Lars
    Roskilde university, Denmark.
    Pestoff, Victor
    Ersta Sköndal University College, Department of Social Sciences, Avdelningen för forskning om det civila samhället.
    Introduction to the "SE field"2014In: Social enterprise and the third sector: changing European landscapes in a comparative perspective / [ed] Jacques Defourny, Lars Hulgård, Victor Pestoff, New York: Routledge, 2014, 1-14 p.Chapter in book (Other academic)
  • 17.
    Defourny, Jacques
    et al.
    University of Liege, Belgium.
    Hulgård, LarsRoskilde University, Denmark.Pestoff, VictorErsta Sköndal University College, Department of Social Sciences, Avdelningen för forskning om det civila samhället.
    Social enterprise and the third sector: changing European landscapes in a comparative perspective2014Collection (editor) (Other academic)
  • 18.
    Dwyer, Lise-Lotte
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Hellström, Ingrid
    Ett värdigt möte i vardagen2010In: Äldres hälsa och ohälsa: en introduktion till geriatrisk omvårdnad / [ed] Anna Ekwall, Lund: Studentlitteratur , 2010, 1, 29-40 p.Chapter in book (Other academic)
  • 19. Einarsson, Torbjörn
    et al.
    Hvenmark, Johan
    Ersta Sköndal University College, Department of Social Sciences, Avdelningen för forskning om det civila samhället.
    Efter medlemskapet?: Engagemang och föreningsliv för en ny tid2012In: Civilsamhället i samhällskontraktet: en antologi om vad som står på spel / [ed] Wijkström, Filip, Stockholm: European Civil Society Press , 2012, 71-92 p.Chapter in book (Other academic)
  • 20.
    Ekström, Veronica
    Ersta Sköndal University College, Department of Social Sciences. Linköpings universitet.
    Det besvärliga våldet: Socialtjänstens stöd till kvinnor som utsatts för våld i nära relationer2016Doctoral thesis, comprehensive summary (Other academic)
  • 21.
    Engbo, Emilie
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Rydberg, Anna
    Ersta Sköndal University College, Department of Health Care Sciences.
    En studie om bevarandet av autonomi för äldre personer med demens diagnos2009Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 22. Eriksson, Susanne
    et al.
    Fagerberg, Ingegerd
    Mälardalens högskola.
    Supervisor experiences of supervising nursing staff in the care of older people2008In: Journal of Nursing Management, ISSN 0966-0429, E-ISSN 1365-2834, Vol. 16, no 7, 876-882 p.Article in journal (Refereed)
    Abstract [en]

    Aim To describe supervisors’ experiences of supervising nursing staff who care for older people in order to develop an understanding of the opportunities and limitations involved in supervision. Background Little is known of what group supervision of nursing staff means for the supervisor, particularly in regards to care of the old. Methods A reflective life-world research approach, based upon phenomenological epistemonology was used. Two supervisors with 2 years experience of supervising nursing staff caring for older people were interviewed. Conclusions Results point to the need for support for supervisors in order to enable them to develop their supervisory abilities and skills. Implications for nursing management Support is of crucial importance for both the ability to supervise and the quality of supervision.

  • 23.
    Fagerberg, Ingegerd
    Ersta Sköndal University College, Department of Health Care Sciences.
    Förvirringstillstånd2010In: Höftfraktur hos äldre: att bevara patientens förmåga / [ed] Jón Karlsson, Eric Olsson, Ewa Waern, Stockholm: Liber förlag , 2010, 157-165 p.Chapter in book (Other academic)
  • 24. Fagerberg, Ingegerd
    Kan utbildningen stärka sjuksköterskestudenters intresse för arbete i äldrevård?1999In: Klinisk Sygepleje, ISSN 0902-2767, Vol. 13, no 5, 279-283 p.Article in journal (Other academic)
  • 25.
    Fagerberg, Ingegerd
    et al.
    Mälardalens högskola.
    Ekman, Sirkka-Liisa
    Caring for elderly patients: a longitudinal study of Swedish nursing students' narratives1998In: Health care in later life, ISSN 1358-7390, Vol. 3, no 4, 258-271 p.Article in journal (Refereed)
    Abstract [en]

    Studied how Swedish nursing students developed their perceptions of caring for older adults during their 3 years in nursing education. Interviews were audiotaped at the end of each academic year with 27 students from three colleges of nursing. In addition, 26 of these students wrote diaries during the clinical part of the course, in the second and third years. The interviews and diaries were analyzed using the phenomenological hermeneutic method, which is based on the idea that an interpretation of people's narrated, lived experiences is focused on the utterance meaning (Ricoeur, 1976). Four themes of caring emerged: respect for individual patients, responsibility for patients' well-being, sympathy with patients, and empathy with patients. Three themes emerged that were connected with impediments to caring: students' vulnerability, frustration and powerlessness in difficult situations, and ethically difficult situations. Findings revealed a development in the students' perceptions of caring as they proceeded through their education, moving from a naive, caring perspective, via a second-year stage of deeper relationships with patients, into a third-year organizational perspective, where they used their gained knowledge and experiences in taking responsibility for providing optimum care. Two students' narratives are used to illustrate the interpretations.

  • 26.
    Fagerberg, Ingegerd
    et al.
    Mälardalens högskola.
    Gilje, Fredricka
    A comparison of curricular approaches of care of the aged in Swedish and US nursing programs2007In: Nurse Education in Practice, ISSN 1471-5953, E-ISSN 1873-5223, Vol. 7, no 6, 358-364 p.Article in journal (Refereed)
    Abstract [en]

    In an era of global aging, the steady increase in older people in Sweden and the United States is having a direct effect on nursing practice, presenting unprecedented opportunities and challenges in nursing education. The aim of this study was to highlight differences and similarities in curricular approaches to care of aged in Swedish and US baccalaureate nursing programs. The Swedish response rate was 100% (N=26); the US response rate was 36% (N=202). The results, which compare curricula approaches, have implications for nursing education in Sweden and the United States. Both include stand-alone and integrated courses on care of the aged, geriatrics and gerontology. Differences are noted in the percentage of programs that include care of the age in their curricula and the clinical education settings. Results of this study add to the sparse body of knowledge of cross-cultural nursing research on curricular approaches to geriatrics and gerontology, high-light similarities and differences in nursing education in two countries and invite dialogue among nurse educators. Future research is needed to address curricular issues on the aged population and cross cultural perspectives.

  • 27.
    Fagerberg, Ingegerd
    et al.
    Mälardalens högskola.
    Jönhagen, Maria Eriksdotter
    Temporary confusion: a fearful experience2002In: Journal of Psychiatric and Mental Health Nursing, ISSN 1351-0126, E-ISSN 1365-2850, Vol. 9, no 3, 339-346 p.Article in journal (Refereed)
    Abstract [en]

    Older people admitted to hospital often develop acute temporary confusion. Earlier studies have focused on problems in providing care to the confused, causes of the confusion and the key aspects of caring. The aims of this study were to describe, from a nursing perspective, how older people experienced the phenomenon of temporary confusion and to describe the older peoples’ reasoning when they described their experiences. Interviews with five older informants who had recovered from their confusional state were conducted and analysed using the phenomenological method. Two phenomena were studied, ‘being temporarily confused’ and ‘reasoning about experiences of temporary confusion’, each was found to be represented by four inter-related constituents. The phenomena can be understood as aspects of suffering and power imbalance between staff and older people.

  • 28.
    Fagerberg, Ingegerd
    et al.
    Mälardalens högskola.
    Kihlgren, Mona
    Registered nurses’ experiences of caring for the elderly in different health-care areas2001In: International Journal of Nursing Practice, ISSN 1322-7114, E-ISSN 1440-172X, Vol. 7, no 4, 229-236 p.Article in journal (Refereed)
    Abstract [en]

    Caring for elderly patients is an undertaking for a majority of Swedish nurses in different health-care sectors. The purpose of the study was to understand how nurses experienced the meaning of caring for elderly patients after 2 years as Registered Nurses. Interviews were conducted with 20 nurses 2 years after graduation. Data were analysed with a phenomenological–hermeneutic method and resulted in two themes: (i) providing the elderly with a sense of trust; and (ii) commitment to elderly patients. Each theme was made up of four subthemes, expressing both positive and negative aspects. Caring for the elderly means that the core of caring is in focus. Nurses need a supportive context for their care of the elderly, especially when they experience that they or their staff cannot provide the optimal quality of care for the patients.

  • 29. Fischer, Regina Santamäki
    et al.
    Nygren, Björn
    Lundman, Berit
    Norberg, Astrid
    Ersta Sköndal University College, Department of palliative care research. Ersta Sköndal University College, Department of Health Care Sciences.
    Living Amidst Consolation in the Presence of God Perceptions of Consolation Among the Oldest Old: The Umeå 85+ Study.2007In: Journal of Religion, Spirituality & Aging, ISSN 1552-8030, Vol. 19, no 3, 3-20 p.Article in journal (Refereed)
    Abstract [en]

    This study describes how 90-year-olds and older people perceive consolation. Qualitative Content analysis of 49 interviews revealed four categories: consolation by God; consolation from others; consolation from self; and consolation from things, which were present in two themes. The theme "Living amidst consolation in the presence of God" was a core theme and expresses consolation as self-evident and based on a relation to God, others, self, and things. The theme "Seeking consolation," expresses consolation from self, others, things, or God. Interviewees in some cases regretted that they had no religious faith. Reasonably, most interviewees referred to religious consolation, as religion had been so closely connected with the word "consolation" all their lives. [ABSTRACT FROM AUTHOR]

  • 30.
    Forssell, Emilia
    Ersta Sköndal University College, Institute for Civil Society Studies.
    Anhörigomsorg i migrantfamiljer: integrationsprocesser och kulturalisering2010In: Invandrarskap, äldrevård och omsorg / [ed] Sandra Torres och Finnur Magnússon, Malmö: Gleerups , 2010Chapter in book (Other academic)
  • 31.
    Franklin, Lise-Lotte
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Samtal om värdighet2007In: Hemmets vårdetik: om vård av äldre i livets slutskede / [ed] Gunilla Silfverberg, Lund: Studentlitteratur , 2007, 1:1, 135-146 p.Chapter in book (Other academic)
  • 32.
    Gallagher, Bernard
    et al.
    England.
    Berman, Anne H.
    Karolinska Institutet.
    Bieganski, Justyna
    Tyskland.
    Jones, Adele D.
    England.
    Foca, Liliana
    Rumänien.
    Raikes, Ben
    England.
    Schiratzki, Johanna
    Ersta Sköndal University College, Department of Social Sciences.
    Urban, Mirjam
    Tyskland.
    Ullman, Sara
    Polismyndigheten.
    National Human Research Ethics: A Preliminary Comparative Case Study of Germany, Great Britain, Romania, and Sweden2016In: Ethics & Behavior, ISSN 1050-8422, ESSN: 1532-7019, Vol. 26, no 7, 586-606 p.Article in journal (Refereed)
    Abstract [en]

    Although international research is increasing in volume and importance, there remains a dearth of knowledge on similarities and differences in “national human research ethics” (NHREs), that is, national ethical guidelines (NEGs), Institutional Review Boards (IRBs), and research stakeholder’ ethical attitudes and behaviors (EABs). We begin to address this situation by reporting upon our experiences in conducting a multinational study into the mental health of children who had a parent/carer in prison. The study was conducted in 4 countries: Germany, Great Britain, Romania, and Sweden. Data on NHREs were gathered via a questionnaire survey, two ethics-related seminars, and ongoing contact between members of the research consortium. There was correspondence but even more so divergence between countries in the availability of NEGs and IRBs and in researcher’ EABs. Differences in NHREs have implications particularly in terms of harmonization but also for ethical philosophy and practice and for research integrity.

  • 33.
    Gavelin, Karin
    et al.
    Ersta Sköndal University College, Department of Social Sciences.
    Svedberg, Lars
    Ersta Sköndal University College, Department of Social Sciences.
    Pestoff, Victor
    Ersta Sköndal University College, Department of Social Sciences.
    Estimating the Scope and Magnitude of Volunteerism Worldwide: A review of multinational data on volunteering2011Report (Other academic)
  • 34. Gustafsson, Christine
    et al.
    Asp, Margareta
    Fagerberg, Ingegerd
    Mälardalens högskola.
    Reflective practice in nursing care: embedded assumptions in qualitative studies 2007In: International Journal of Nursing Practice, ISSN 1322-7114, E-ISSN 1440-172X, Vol. 13, no 3, 151-160 p.Article in journal (Refereed)
    Abstract [en]

    Qualitative nursing researchers have long recognized that reflective practice (RP) seems to be a valuable tool in nursing care. The aim of the present meta-study was to analyse current qualitative research on RP in nursing care, in order to create and synthesize the knowledge and the understanding of registered nurses' RP. Using a meta-study synthesis approach, embedded assumptions were identified in qualitative studies that have influenced the way researchers have interpreted and made sense of RP in nursing care. Despite empirical focus in research on RP in nursing care, it was found that assumptions about RP were predominantly based on theory. The reflective movement within the practice of nursing care has mainly a constructivist epistemology, based on learning from experience. The individual nurse's RP capability is essential in providing and improving ethical and holistic nursing care.

  • 35. Gustafsson, Christine
    et al.
    Fagerberg, Ingegerd
    Ersta Sköndal University College, Department of Health Care Sciences.
    Asp, Margareta
    Supportive leadership in Swedish community night nursing2010In: Journal of Nursing Management, ISSN 0966-0429, E-ISSN 1365-2834, Vol. 18, no 7, 822-831 p.Article in journal (Refereed)
    Abstract [en]

    Aim The aim of the present study was to examine the support night nurses' give to staff in community night nursing. Background Studies have shown that support given to staff is one of night registered nurses' (RNs') experiences of the meaning of caring. This support, that community RNs display for staff in night-time care, is sparsely described. Methods All community night-duty nurses in a medium-sized municipal in Sweden participated in the present study. Thematic content analysis was used to analyse data from observations. Results The support given by RNs to staff is described using three themes: (1) a conditional supporting stance, (2) preparing propitious conditions for caring and (3) confidence in the abilities of individual staff members and adaptation to their individual needs. The results reveal that RNs consider support to staff in terms of nursing leadership . Conclusions Out of 'concern for the staff' the RNs try to be there for them, which corresponds to nursing leadership. Such concern also arises from the RNs' awareness that by giving support to staff this affects the staffs' caring for older people. Implications for nursing management The current municipal social care organization of community nursing of older people in which RNs have extensive responsibilities with insufficient control, is a working condition with a risk for decreased quality of care and a high risk for work-related stress syndrome.

  • 36.
    Hellström, Ingrid
    Ersta Sköndal University College, Department of palliative care research.
    Dignity and elderly spouses with dementia2009In: Dignity in care for older people / [ed] Lennart Nordenfelt, Chichester: Wiley-Blackwell , 2009, 99-116 p.Chapter in book (Other academic)
  • 37.
    Hellström, Ingrid
    Ersta Sköndal University College, Department of palliative care research.
    Värdighet och äldre makar med demens2010In: Värdighet i vården av äldre personer / [ed] Lennart Nordenfelt, Lund: Studentlitteratur , 2010, 1, 169-196 p.Chapter in book (Other academic)
  • 38.
    Hellström, Ingrid
    et al.
    Ersta Sköndal University College, Department of palliative care research.
    Lundh, Ulla
    Livet med demenssjukdom på äldre dagar2007In: Hemmets vårdetik: om vård av äldre i livets slutskede / [ed] Gunilla Silfverberg, Lund: Studentlitteratur , 2007, 1, 91-107 p.Chapter in book (Other academic)
  • 39.
    Hellström, Ingrid
    et al.
    Ersta Sköndal University College, Department of palliative care research.
    Nolan, M
    Time together2009In: Time for Dementia / [ed] Jane Gilliard and Mary Marshall, London: Hawker Publications , 2009Chapter in book (Other academic)
  • 40.
    Hellström, Ingrid
    et al.
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier ; Linköpings universitet, Hälsouniversitetet.
    Nolan, Mike
    University of Sheffield, UK.
    Lundh, Ulla
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier ; Linköpings universitet, Hälsouniversitetet.
    Awareness context theory and the dynamics of dementia: Improving understanding using emergent fit2005In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 4, no 2, 269-295 p.Article in journal (Refereed)
    Abstract [en]

    This article presents the initial results of an ongoing constructivistgrounded theory study (Charmaz, 2000) exploringthe impact of dementia on the everyday life and relationships of older spousal couples. Using a processof ‘emergent fit’ (Glaser, 1978)and drawing upon data from 74 interviews with 20 spouse couples living with dementia, it considers the relevanceof ‘awareness context theory’ (Glaser& Strauss, 1965) and the ‘dynamicsof dementia’ (Keady, 1999) to an understanding of interpersonal relationships among spouses. The combinationof existing literature and new data providefurther insights into how couples actively work to ‘construct’ awareness in a way that, forthe majority, maintains both a sense of ‘self’for the person with dementia (PWD) and the integrityof the relationship between couples. It is suggested that a‘mutual acknowledgement’ of thediagnosis and a subsequent focus on maintaininga meaningful life in the present combine to create a ‘nurturative relational context’ in whichliving with dementia unfolds.

  • 41.
    Hellström, Ingrid
    et al.
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier Linköpings universitet, Hälsouniversitetet.
    Nolan, Mike
    University of Sheffield, UK.
    Lundh, Ulla
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier ; Linköpings universitet, Hälsouniversitetet.
    Sustaining 'couplehood': spouses' strategies for living positively with dementia2007In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 6, no 3, 383-409 p.Article in journal (Refereed)
    Abstract [en]

    This article explores the strategies that spouses use in orderto live positively when one partner has dementia. Data werecollected from 152 interviews with 20 couples conducted overa period of five years. Using a constructivist grounded theorymethodology, data were analysed to capture the main processesinvolved and charted how these changed over time. Three mainphases were identified termed: `sustaining couplehood'; `maintaininginvolvement'; and `moving on', that operated in an iterativerather than linear fashion. The data highlight the very activerole played by both partners, especially in the early stagesof the disease, as they strive to maintain the quality and closenessof their relationship by creating what we term a `nurturativerelational context'. The diverse strategies that the couplesadopt are presented, and the gradual way in which the personwith dementia `hands over' or `let's go' of responsibility totheir partner is described. The article provides several newinsights into the nature of spousal relationships in dementiaand the ways in which they seek to maximize their quality oflife, and, wherever possible, sustain couplehood.

  • 42.
    Hellström, Ingrid
    et al.
    Linköpings universitet.
    Nolan, Mike
    University of Sheffield, UK.
    Lundh, Ulla
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier ; Linköpings universitet, Hälsouniversitetet.
    We do things together: A case study of couplehood2005In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 4, no 1, 7-22 p.Article in journal (Refereed)
    Abstract [en]

    The value of the single case study is well established in dementiacare with the seminal contributions of Alzheimerand Kitwood being based on the study of individuals.This article presents a case study of an elderly married coupleliving with dementia and explores how theirrelationship has continued to flourish. In drawingon their story we highlight ways in which both partners seekto ‘maintain involvement’ of theperson with dementia (PWD) (Keady, 1999), andconsider the various types of ‘work’ that is required. We suggest that whilst the ‘personhood’of the PWD as an individual has received muchrecent attention, a consideration of ‘couplehood’is also essential to a full understanding of how spouses live with and respond to the impact of dementia.

  • 43.
    Hvenmark, Johan
    Ersta Sköndal University College, Department of Social Sciences, Avdelningen för forskning om det civila samhället.
    Introduktion: om nytta generellt och om idrottens eventuella samhällsnytta specifikt2012In: Är idrott nyttigt?: en antologi om idrott och samhällsnytta / [ed] Hvenmark, Johan, Stockholm: SISU idrottsböcker , 2012Chapter in book (Other academic)
  • 44.
    Hvenmark, Johan
    et al.
    Ersta Sköndal University College, Department of Social Sciences, Avdelningen för forskning om det civila samhället.
    Wijkström, Filip
    Red Cross2012In: Encyclopedia of Global Studies / [ed] Helmut K. Anheier & Mark Juergensmeyer, Thousands Oaks: Sage Publications, 2012Chapter in book (Other academic)
  • 45.
    Högberg, Cecilia
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Nylander, Ida
    Ersta Sköndal University College, Department of Health Care Sciences.
    Autonomi hos äldre personer beroende av vård och omsorg2009Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 46.
    Jegermalm, Magnus
    Ersta Sköndal University College, Institute for Civil Society Studies.
    Direct and Indirect Support for Carers: patterns of Support for Informal Caregivers to Elderly People in Sweden2002In: Journal of gerontological social work, ISSN 0163-4372, Vol. 38, no 4, 67-84 p.Article in journal (Refereed)
    Abstract [en]

    This study examines what support services are offered to informal caregivers and whether the support is aimed directly or indirectly at the caters. Data were collected by means of two mail questionnaires in a Swedish county. The first questionnaire was aimed at each municipality in the region. The second questionnaire was sent to a random sample of 284 voluntary organizations in the region. Only the municipalities proved to have relief services, day care centers and two forms of payment for carers. The voluntary organizations' support for carers was focused on support groups and training as well as services for elderly care recipients. The results indicated that the support services for carers were both direct and indirect and that the municipalities and the voluntary organizations largely offer different kinds of support.

  • 47.
    Jegermalm, Magnus
    Ersta Sköndal University College, Institute for Civil Society Studies.
    Support for Carers of Older People: the Roles of the Public and Voluntary Sectors in Sweden2003In: Social Policy & Administration, ISSN 01445596, Vol. 37, no 7, 756-771 p.Article in journal (Refereed)
    Abstract [en]

    This study examines the support services offered to informal caregivers, whether directly or indirectly, in Sweden over the period of a special investment initiative between 1999 and 2001. Data were collected in a Swedish county using two separate mail questionnaires in 1999 and 2001. The first questionnaire was addressed to each municipality in the region. The second questionnaire was sent to a random sample of voluntary organizations in the area. The findings showed that only the municipalities provided direct forms of relief service, day care and financial support. The voluntary organizations’ support for carers focused on support groups and training as well as services for older care users themselves. There was a significant increase between 1999 and 2001 in the number of municipalities providing information material and training for carers and using professional caregiver consultants. On the one hand, the Swedish public social care system appears to be following the international pattern in paying more attention to informal caregivers and investing in support services for them. On the other hand the findings did not show any growth in support provided by the voluntary organizations. Here Swedish welfare is dissimilar to other European countries, where it is increasingly common for voluntary organizations to play an important role as providers of support for carers.

  • 48.
    Jegermalm, Magnus
    et al.
    Ersta Sköndal University College, Institute for Civil Society Studies.
    Jeppsson Grassman, Eva
    Caregiving and Volunteering Among Older People in Sweden—Prevalence and Profiles2009In: Journal of aging & social policy, ISSN 08959420, Vol. 21, no 4, 352-373 p.Article in journal (Refereed)
    Abstract [en]

    This study examines the role of older people in Swedish society by exploring the prevalence of their informal caregiving and volunteering and by analyzing the profiles of these contributors of unpaid work. Data were collected by means of telephone interviews in a Swedish representative survey conducted in 2005. Our analysis reveals three distinct profiles of people involved in unpaid activities. One of these consists of those involved both in informal helpgiving and volunteering, a group that has been labeled “super helpers” or “doers” in earlier research. It is important for social policy planners to recognize these groups of older people and better understand the dynamics of their unpaid work in order to ascertain whether they might need support as providers and to enhance their well-being. There does not seem to be any simple contradiction between the parallel existence of a universal welfare model of the Swedish kind and an extensive civil society in which older people play important roles as active citizens.

  • 49.
    Jegermalm, Magnus
    et al.
    Ersta Sköndal University College, Institute for Civil Society Studies.
    Jeppsson Grassman, Eva
    Äldres engagemang i civilsamhället: roller och profiler2011In: Tredje åldern: sociala aspekter och medborgarskap   / [ed] Kerstin Gynnerstedt & Maria Wolmesjö, Malmö: Gleerups utbildning , 2011, 81-96 p.Chapter in book (Other academic)
  • 50.
    Jegermalm, Magnus
    et al.
    Ersta Sköndal University College, Institute for Civil Society Studies.
    Renblad, Karin
    Henning, Cecilia
    Future Workshop as a Method to Create an Aging-friendly Community2009In: Perspectives on empowerment, social cohesion and democracy: an international anthology / [ed] Cecilia Henning & Karin Renblad, Jönköping: School of Health Sciences, Jönköping University , 2009Chapter in book (Other academic)
123 1 - 50 of 108
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