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  • 1.
    Eilegård Wallin, Alexandra
    et al.
    Högskolan Dalarna.
    Udo, Camilla
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Dalarna högskola.
    Kreicbergs, Ulrika
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska institutet.
    Lövgren, Malin
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences. Karolinska institutet.
    Cancer-bereaved siblings’ advice to peers: A nationwide follow-up survey2019In: Death Studies, ISSN 0748-1187, E-ISSN 1091-7683Article in journal (Refereed)
    Abstract [en]

    The aim of this nationwide survey was to explore, based on an open-ended question, cancer-bereaved siblings’ advice to peers with a brother or sister with cancer. Half of the advice related to being with the ill sibling and cherishing the time together. Other advice related to the value of communicating about the situation, letting go of guilt, and living life as usual. The results highlight the importance of health care professionals, family, and others facilitating for siblings to spend time together and communicate openly.

  • 2.
    Holm, Maja
    et al.
    Sophiahemmet högskola.
    Årestedt, Kristofer
    Linnéuniversitetet, Region Kalmar län.
    Öhlen, Joakim
    Göteborgs universitet.
    Alvariza, Anette
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences. Capio Palliativ vård Dalen.
    Variations in grief, anxiety, depression, and health among family caregivers before and after the death of a close person in the context of palliative home care.2019In: Death Studies, ISSN 0748-1187, E-ISSN 1091-7683, p. 1-9Article in journal (Refereed)
    Abstract [en]

    This article investigates longitudinal variations in grief, self-rated health, and symptoms of anxiety and depression among family caregivers in palliative care. Data were taken from a randomized psycho-educational intervention trial and were collected at four time-points; at baseline, upon completion, 2 months later, and 6 months after the patient's death. In total, 117 family caregivers completed all questionnaires. The participants' grief was stable across the measurements, while anxiety, depression, and health varied significantly (p < 0.05). No significant differences were found between the intervention or control group. In conclusion, grief emerged as a constant phenomenon, distinct from symptoms of anxiety and depression.

  • 3.
    Jalmsell, Li
    et al.
    Uppsala universitet, Visby lasarett.
    Kontio, Taru
    Karolinska institutet.
    Stein, Maria
    Karolinska institutet.
    Henter, Jan-Inge
    Karolinska institutet.
    Kreicbergs, Ulrika
    Ersta Sköndal University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska institutet, Sophiahemmet.
    On the Child's Own Initiative: Parents Communicate with Their Dying Child About Death.2015In: Death Studies, ISSN 0748-1187, E-ISSN 1091-7683, Vol. 39, no 1-5, p. 111-117Article in journal (Refereed)
    Abstract [en]

    Open and honest communication has been identified as an important factor in providing good palliative care. However, there is no easy solution to if, when, and how parents and a dying child should communicate about death. This article reports how bereaved parents communicated about death with their child, dying from a malignancy. Communication was often initiated by the child and included communication through narratives such as fairy tales and movies and talking more directly about death itself. Parents also reported that their child prepared for death by giving instructions about his or her grave or funeral and giving away toys.

  • 4.
    Pettersen, Rossana
    et al.
    Karolinska institutet.
    Omerov, Pernilla
    Karolinska institutet.
    Steineck, Gunnar
    Karolinska institutet, Göteborgs universitet.
    Dyregrov, Atle
    Norge.
    Titelman, David
    Karolinska institutet.
    Dyregrov, Kari
    Norge.
    Nyberg, Ullakarin
    Karolinska institutet.
    Suicide-Bereaved Siblings' Perception of Health Services.2014In: Death Studies, ISSN 0748-1187, E-ISSN 1091-7683, Vol. 39, no 6, p. 323-331Article in journal (Refereed)
    Abstract [en]

    We investigated suicide-bereaved siblings' reported reasons for seeking or not seeking professional support, their reported satisfaction when receiving it, and their recommendations to health services when meeting suicide-bereaved siblings. Using qualitative content analysis of 18 interviews with suicide-bereaved siblings, we found that the perception of health services as being helpful was influenced by both the participants' and by the deceased siblings' experiences with health services. We conclude that own and the deceased sibling's unmet needs may generate negative attitudes towards health services, which reduces the likelihood of seeking professional help as well as medication acceptance in some cases.

1 - 4 of 4
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