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  • 1.
    Benzein, Eva Gunilla
    et al.
    Ersta Sköndal University College, Department of palliative care research.
    Hagberg, Margaretha
    Saveman, Britt-Inger
    'Being appropriately unusual': a challenge for nurses in health-promoting conversations with families2008In: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800, Vol. 15, no 2, p. 106-15Article in journal (Refereed)
    Abstract [en]

    This study describes the theoretical assumptions and the application for health-promoting conversations, as a communication tool for nurses when talking to patients and their families. The conversations can be used on a promotional, preventive and healing level when working with family-focused nursing. They are based on a multiverse, salutogenetic, relational and reflecting approach, and acknowledge each person's experience as equally valid, and focus on families' resources, and the relationship between the family and its environment. By posing reflective questions, reflection is made possible for both the family and the nurses. Family members are invited to tell their story, and they can listen to and learn from each other. Nurses are challenged to build a co-creating partnership with families in order to acknowledge them as experts on how to lead their lives and to use their own expert knowledge in order to facilitate new meanings to surface. In this way, family health can be enhanced.

  • 2.
    Bergdahl, Elisabeth
    et al.
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Benzein, Eva
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Andershed, Birgitta
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Developing nurses’ way to reflect over caring relationships through clinical supervision with a structured reflection; an action research approach2011In: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800, Vol. 18, no 2, p. 111-122Article in journal (Refereed)
  • 3.
    Bergdahl, Elisabeth
    et al.
    Ersta Sköndal University College, Palliative Research Centre, PRC. FOU nu, Research and Development Centre, Jakobsbergs sjukhus, Järfälla, Sweden; Department of Medical and Health Sciences, Faculty of Health Sciences, Linköping University, Linköping, Sweden.
    Benzein, Eva
    Ersta Sköndal University College, Palliative Research Centre, PRC. School of Health and Caring Sciences, Linnaeus University, Kalmar, Sweden.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Palliative Research Centre, PRC. Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden; Stockholms Sjukhem Foundation, Research and Development Department, Stockhom, Sweden.
    Elmberger, Eva
    Ersta Sköndal University College, Department of Health Care Sciences.
    Andershed, Birgitta
    Ersta Sköndal University College, Palliative Research Centre, PRC. Department of Nursing, Gjøvik University College, Gjøvik, Norway.
    Co-creating possibilities for patients in palliative care to reach vital goals: A multiple case study of home-care nursing encounters2013In: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800, Vol. 20, no 4, p. 341-351Article in journal (Refereed)
    Abstract [en]

    The patient's home is a common setting for palliative care. This means that we need to understand current palliative care philosophy and how its goals can be realized in home-care nursing encounters (HCNEs) between the nurse, patient and patient's relatives. The existing research on this topic describes both a negative and a positive perspective. There has, however, been a reliance on interview and descriptive methods in this context. The aim of this study was to explore planned HCNEs in palliative care. The design was a multiple case study based on observations. The analysis includes a descriptive and an explanation building phase. The results show that planned palliative HCNEs can be described as a process of co-creating possibilities for the patient to reach vital goals through shared knowledge in a warm and caring atmosphere, based on good caring relations. However, in some HCNEs, co-creation did not occur: Wishes and needs were discouraged or made impossible and vital goals were not reached for the patients or their relatives. Further research is needed to understand why. The co-creative process presented in this article can be seen as a concretization of the palliative care ideal of working with a person-centered approach.

  • 4.
    Bäckström, Britt
    et al.
    Mittuniversitetet.
    Asplund, Kenneth
    Mittuniversitetet; Universitetet i Tromsø, Norge.
    Sundin, Karin
    Umeå universitet .
    The meaning of middle-aged female spouses' lived experience of the relationship with a partner who has suffered a stroke, during the first year postdischarge2010In: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800, Vol. 17, no 3, p. 257-268Article in journal (Refereed)
    Abstract [en]

    Stroke consequences present a great long-term challenge to the spouses of the stroke sufferer. A longitudinal study with a phenomenological hermeneutic approach was used to illuminate the meanings of middle-aged female spouses' lived experience of their relationship with a partner who has suffered a stroke, during the first year postdischarge. Four middle-aged female spouses of stroke sufferers participated in the study. Narrative interviews were conducted 1, 6 and 12 month postdischarge (total of 12 interviews), audio-taped and transcribed verbatim to a text and interpreted by a phenomenological hermeneutic method inspired by Ricoeur. The findings showed a process over time during which spouses come to know, recognize and acknowledge the residual changes in their partners' cognitive and emotional conditions and the impact on their relationship. Spouses showed grief due to the loss of the marital relationship they once had and anxiety that they would not be able to continue in an undesired relationship in the future. Even if the partner is still alive, there is a loss to grieve and to be understood, an important meaning of the transition process in the relationship during the first year after the partner's discharge.

  • 5.
    Fläckman, Birgitta
    et al.
    Karolinska institutet; Högskolan i Gävle.
    Hansebo, Görel
    Ersta Sköndal University College, Department of Health Care Sciences. Karolinska institutet.
    Kihlgren, Annica
    Karolinska institutet; Örebro universitet.
    Struggling to adapt: caring for older persons while under threat of organizational change and termination notice2009In: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800, Vol. 16, no 1, p. 82-91Article in journal (Refereed)
    Abstract [en]

    Organizational changes are common in elder care today. Such changes affect caregivers, who are essential to providing good quality care. The aim of the present study was to illuminate caregivers' experiences of working in elder care while under threat of organizational change and termination notice. Qualitative content analysis was used to examine interview data from 11 caregivers. Interviews were conducted at three occasions during a two-year period. The findings show a transition in their experiences from 'having a professional identity and self-confidence', to 'being a professional in a threatening situation caused by someone else' and to 'struggling to adapt to a changed working environment as a person and a professional'. The caregivers experienced a loss of pride and satisfaction. Previous literature indicates that this may have consequences for the quality of care and that employees may be at risk of negative health effects. However, the caregivers continued to struggle, doing their best to complete their duties. The study has implications for high-level decision-makers, managers and caregivers in similar work-life situations in that it deals with factors that facilitate or impede similar transitions.

  • 6.
    Högberg, Cecilia
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Capio palliativ vård Dalen.
    Alvariza, Anette
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Capio palliativ vård Dalen.
    Beck, Ingela
    Lunds universitet; Region Skåne; Högskolan Kristianstad.
    Patients' experiences of using the Integrated Palliative care Outcome Scale for a person-centered care: A qualitative study in the specialized palliative home-care context2019In: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800, Vol. 26, no 4, article id e12297Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to explore patients' experiences of using the Integrated Palliative care Outcome Scale (IPOS) during specialized palliative home care. The study adopted a qualitative approach with an interpretive descriptive design. Interviews were performed with 10 patients, of whom a majority were diagnosed with incurable cancer. Our findings suggest that the use of IPOS as a basis for conversation promotes safe care by making the patients feel confident that the care provided was adapted to them which gives them a sense of safety. IPOS facilitated discussions between patients and nurses about care needs. The patients believed that using IPOS enabled reflection on their well-being and life situation. In conclusion, the study finds that using IPOS is beneficial and provide ways to enable person-centered care and with advantage could be used in specialized palliative home care. The results may help overcome barriers and facilitate the use of patient-reported outcome measures (PROMs). To enable the use of PROMs such as IPOS in palliative home care, nurses need education and opportunities to develop routines that enable patients' voice to be heard and thereby compose a basis for care.

  • 7.
    Kneck, Åsa
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Audulv, Åsa
    Mittuniversitetet.
    Analyzing variations in changes over time: development of the Pattern-Oriented Longitudinal Analysis approach.2019In: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800, Vol. 26, no 3, article id e12288Article in journal (Refereed)
    Abstract [en]

    Longitudinal qualitative research in nursing is rare but becoming more common. Data collection and analysis over time provide some intriguing possibilities to better understand processes, development, and change in illness experience, healthcare organizations, and self-management. This paper aims to present a process for analyzing qualitative longitudinal data material, namely the Pattern-Oriented Longitudinal Analysis approach (POLA). We developed this approach after synthesizing experiences from two longitudinal qualitative projects and comparing our procedures and reflections with the relevant literature. Using the POLA approach, researchers can describe complexity and variation in changes over time. During the analysis process, emphasis is put on visualizing and identifying change at both an individual and a group level. Ontological and epistemological assumptions for the approach are also described. The benefit of this approach is the possibility to describe complexity and diversity in processes over time, which is important for the development of nursing knowledge. The analysis approach can be further used and developed by researchers seeking to understand variance or contextual features in processes and changes over time.

  • 8. Sandvide, Åsa
    et al.
    Fahlgren, Siv
    Norberg, Astrid
    Ersta Sköndal University College, Department of palliative care research. Ersta Sköndal University College, Department of Health Care Sciences.
    Saveman, Britt-Inger
    From perpetrator to victim in a violent situation in institutional care for elderly persons: exploring a narrative from one involved care provider.2006In: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800, Vol. 13, no 3, p. 194-202Article in journal (Refereed)
    Abstract [en]

    In order to reach a more comprehensive understanding of the dynamics in violent situations in institutional care for elderly people the aim of this study was to explore involved parties' positions, and to illuminate forces and moves related to these positions. One involved care provider's narrative was analysed using narrative analysis and positioning theory. In the narrative the involved parties' positions were fluid and often overlapping, and not exclusively as victim or perpetrator. Across the narrative the narrator altered the involved parties' positions by using available discourses. We understand that the altered positions were a salient way for the care provider to make sense of her experiences. By reading the care provider's narrative we further understand that she was much more than just a perpetrator, which was the origin for her narrative. This study led us to two assumptions important for implications in nursing practice. First, it is of significance how we position ourselves and others in narratives and conversations. Second, there is a difference between being categorised in advance and getting the opportunity to narrate one's own story.

  • 9. Stajduhar, K
    et al.
    Funk, L
    Jakobsson, E
    Öhlén, Joakim
    Göteborgs universitet.
    A critical analysis of health promotion and 'empowerment' in the context of palliative family care-giving2010In: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800, Vol. 17, no 3, p. 221-30Article in journal (Refereed)
1 - 9 of 9
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  • ieee
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  • vancouver
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  • en-GB
  • en-US
  • fi-FI
  • nn-NO
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  • Other locale
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  • text
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