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  • 1.
    Juuso, Päivi
    et al.
    Luleå tekniska universitet.
    Skär, Lisa
    Luleå tekniska universitet.
    Olsson, Malin
    Luleå tekniska universitet.
    Söderberg, Siv
    Luleå tekniska universitet.
    Living with a double burden: Meanings of pain for women with fibromyalgia2011In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 6, no 3Article in journal (Refereed)
    Abstract [en]

    Living with fibromyalgia (FM) means living with a chronic pain condition that greatly influences daily life. The majority of people with FM are middle-aged women. The aim of this study was to elucidate meanings of pain for women with FM. Fifteen women with FM were interviewed about their pain experiences and a phenomenological hermeneutic interpretation was used to analyse the interview texts. The findings show that meanings of pain for women with FM can be understood as living with a double burden; living with an aggressive, unpredictable pain and being doubted by others in relation to the invisible pain. The ever-present pain was described as unbearable, overwhelming, and dominated the women’s whole existence. Nevertheless, all the women tried to normalize life by doing daily chores in an attempt to alleviate the pain. In order to support the women’s needs and help them to feel well despite their pain, it is important that nurses and health care personnel acknowledge and understand women with FM and their pain experiences.

  • 2.
    Juuso, Päivi
    et al.
    Luleå tekniska universitet.
    Skär, Lisa
    Luleå tekniska universitet.
    Olsson, Malin
    Luleå tekniska universitet.
    Söderberg, Siv
    Luleå tekniska universitet.
    Meanings of being received and met by others as experienced by women with fibromyalgia2014In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 24, no 10, p. 1381-1390Article in journal (Refereed)
    Abstract [en]

    Fibromyalgia (FM) is a common chronic pain syndrome that mostly affects middle-aged women. Our aim with this study was to elucidate meanings of being received and met by others as experienced by women with FM. Interviews with a narrative approach were conducted with 9 women. We analyzed the transcribed interviews with a phenomenological hermeneutical interpretation. The findings revealed two themes: being seen as a malingerer and being acknowledged. Meanings of being received and met by others, as experienced by women with FM, can be understood as a movement between the two perspectives. When they were acknowledged, their feelings of security and trust increased, but the women could not rely on this because others received and met them in such an unpredictable manner.

  • 3.
    Juuso, Päivi
    et al.
    Luleå tekniska universitet.
    Skär, Lisa
    Luleå tekniska universitet.
    Olsson, Malin
    Luleå tekniska universitet.
    Söderberg, Siv
    Luleå tekniska universitet.
    Meanings of feeling well for women with fibromyalgia2013In: Health Care for Women International, ISSN 0739-9332, E-ISSN 1096-4665, Vol. 34, no 8, p. 694-706Article in journal (Refereed)
    Abstract [en]

    The researchers focus in this study was to elucidate meanings of feeling well for women with fibromyalgia (FM). We obtained narrative interviews with thirteen women with FM and used a phenomenological-hermeneutic interpretation to analyse the interview texts. Our interpretation of the findings show that for women with FM meanings of feeling well can be understood as having strength to be involved. The women's experiences of feeling well meant being in control, having power, finding one's own pace and feelings of belonging.

  • 4.
    Juuso, Päivi
    et al.
    Luleå tekniska universitet.
    Söderberg, Siv
    Luleå tekniska universitet.
    Olsson, Malin
    Luleå tekniska universitet.
    Skär, Lisa
    Luleå tekniska universitet.
    The significance of Associations for women with FM2014In: Disability and Rehabilitation, ISSN 0963-8288, E-ISSN 1464-5165, Vol. 36, no 21, p. 1755-1761Article in journal (Refereed)
    Abstract [en]

    Purpose: Living with fibromyalgia (FM) means living with a long-term pain syndrome that is invisible to others. Support and understanding from others seem to be important to managing the affected daily life. The aim of this study was to describe the significance of FM associations for women with FM. Methods: Data collection was carried out through focus group discussions with seventeen women with FM. Data were analyzed through thematic content analysis. Results: The findings show that women experienced associations for people with FM as important as they gave access to contacts with others with similar experiences. Their need of togetherness was fulfilled at the association and they described being strengthened by the support received. Because of the lack of information and knowledge about FM, the association was described as an important venue for getting and mediating information about the illness. Conclusions: At the association the women seem to be empowered, which increases their ability to manage their daily lives despite the limitations imposed by FM. Healthcare personnel could not satisfy the women’s needs and to manage to support women with FM. There is a need for communication based on a shared understanding between the women and healthcare personnel.Implications for Rehabilitation Read More: http://informahealthcare.com/eprint/hxrQu88eIVBPKf48aBpd/full

  • 5.
    Nilsson, Carina
    et al.
    Luleå tekniska universitet.
    Lindberg, Birgitta
    Luleå tekniska universitet.
    Juuso, Päivi
    Luleå tekniska universitet.
    Olsson, Malin
    Luleå tekniska universitet.
    Experiences of striving to maintain daily life among women with osteoporosis2019In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 14, article id 1647402Article in journal (Refereed)
    Abstract [en]

    In order to describe how women with osteoporosis strive to maintain daily life we interviewed11 women using a reflective lifeworld approach based on phenomenological analysis.Osteoporosis is a major public health concern in the Western world, and is predominantamong women. Our findings indicated that meanings of striving to maintain daily life implya belief in oneself and one’s own capabilities. The women expressly speak out for themselvesas a way of finding reconciliation without giving in to the illness. Women with osteoporosisexpect to gain support early in the course of their illness. They require advice on how tomanage the disease as well as support for striving to maintain daily living. Therefore, it iscrucial that the women not only are given information about the disease. Equally important isto establish continuity in healthcare encounters, and that health care offers support foundedin the women’s lived experiences with focus on their capacities.

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