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  • 1.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Närståendes behov i palliativ vård2004Ingår i: Närståendes behov: Omvårdnad som akademiskt ämne III / [ed] Östlinder, Stockholm: Svensk sjuksköterskeförening , 2004Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 2.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Relatives in end-of-life care – part 1: a systematic review of the literature the five last years, January 1999–February 20042006Ingår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 15, nr 9, s. 1158-1169Artikel i tidskrift (Refereegranskat)
  • 3.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    The situation of relatives and their involvement in palliative care2003Ingår i: Australien-Asian Journal of Cancer, Vol. 2, nr 2, s. 174-181Artikel i tidskrift (Refereegranskat)
  • 4.
    Andershed, Birgitta
    et al.
    Ersta Sköndal högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Norwegian University of Science and Technology, Gjövik, Norway.
    Ewertzon, Mats
    Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Johansson, Anita
    Skaraborgs sjukhus.
    An isolated involvement in mental health care: Experiences of parents of young adults.2017Ingår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 26, nr 7-8, s. 1053-1065Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    AIM: The aim of this study was to explore parents' involvement in the informal and professional care of their young adult child with mental illness. A further aim was to examine concepts in the caring theory of "Involvement in the light - involvement in the dark" in the context of mental health care.

    BACKGROUND: Mental illness has increased among young people in high-income countries and suicide is now the leading cause of death for this group. Because of their disease, these young people may have difficulty in carrying out daily, taken-for-granted, tasks. Consequently, they often become dependent on their parents, and their parents shoulder a considerable responsibility.

    DESIGN AND METHODS: A secondary descriptive design with a deductive content analysis was used. Ten parents who have a son or daughter with long-term mental illness (aged 18 - 25) were interviewed. The deductive analysis was based on the caring theory of "Involvement in the light - Involvement in the dark".

    RESULTS: The results are described using the following concepts in the theory: "Knowing", "Doing", "Being" and "Attitude of the health professionals". The result are to a great extent consistent with the "Involvement in the dark" metaphor, which describes an isolated involvement in which the parents were not informed, seen or acknowledged by the health professionals. Continuous support by professionals with a positive attitude was described as being of decisive importance for meaningful involvement. This article is protected by copyright. All rights reserved.

  • 5.
    Andershed, Birgitta
    et al.
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Harstäde, Carina Werkander
    Next of kin's feelings of guilt and shame in end-of-life care.2007Ingår i: Contemporary nurse : a journal for the Australian nursing profession, ISSN 1037-6178, Vol. 27, nr 1, s. 61-72Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    In this study the aim was to explore and describe next of kin's feelings of guilt and shame in end-of-life care via secondary analysis of 47 qualitative interviews. In the analysis categories and subcategories emerged which conveyed how the next of kin experienced guilt; not having done or talked enough, being absent at important events or making errors of judgement. Categories conveying feelings of shame were situations where the next of kin felt inferior, was ashamed on behalf of the dying person and when family conflicts became apparent. Receiving help and support in order to make the remaining period as pleasant as possible can facilitate the next of kin's sense of having fulfilled their duties and responsibilities and therein reduce feelings of guilt and shame. It is apparent that these feelings should be taken into account and the next of kin should receive support to increase their well-being during the remaining time in end-of-life care and the grieving period.

  • 6.
    Andershed, Birgitta
    et al.
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Olsson, Kristina
    Review of research related to Kristen Swanson's middle-range theory of caring.2009Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 23, nr 3, s. 598-610Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The aim of this study was to identify and describe how Kristen Swanson's middle-range theory has been used in nursing practice/research presented in international journals. A total of 120 studies were included in the review and 23 were analysed further. An overview of the studies is presented, followed by four categories of how the theory has been used: referring to the theory (97 papers), applications of the theory to practice/research and/or theoretical discussions (nine papers), relating findings to and/or validation of the theory (eight papers), and development of measurements from and/or testing of the theory (six papers). The use of the theory and conclusions of the studies related to criteria for evaluation of theories were discussed.

  • 7. Andershed, Birgitta
    et al.
    Ternestedt, Britt-Marie
    Being a close relative of a dying person. Development of the concepts: Involvement in the light and in the dark.2000Ingår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 23, s. 151-159Artikel i tidskrift (Refereegranskat)
  • 8.
    Andershed, Birgitta
    et al.
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Development of a theoretical framework of understanding about relatives´ involvement in palliative care.2001Ingår i: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 34, nr 4, s. 554-562Artikel i tidskrift (Refereegranskat)
  • 9. Andershed, Birgitta
    et al.
    Ternestedt, Britt-Marie
    Involvement of relatives in the care of the dying in different care cultures. Development of a theoretical understanding.1999Ingår i: Nursing Science Quarterly, ISSN 0894-3184, E-ISSN 1552-7409, Vol. 12, nr 1, s. 45-51Artikel i tidskrift (Refereegranskat)
  • 10. Andershed, Birgitta
    et al.
    Ternestedt, Britt-Marie
    Involvement of relatives in the care of the dying in different care cultures. Involvement in the dark or in the light?1998Ingår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 21, nr 2, s. 106-116Artikel i tidskrift (Refereegranskat)
  • 11. Andershed, Birgitta
    et al.
    Ternestedt, Britt-Marie
    Patterns of care for patients with cancer before and after the establishment of a hospice ward1997Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 11, nr 1, s. 44-52Artikel i tidskrift (Refereegranskat)
  • 12. Andershed, Birgitta
    et al.
    Ternestedt, Britt-Marie
    The illness trajectory - for patients with cancer in two different cultures of care.1998Ingår i: Omega, ISSN 0030-2228, E-ISSN 1541-3764, Vol. 37, nr 4, s. 251-272Artikel i tidskrift (Refereegranskat)
  • 13.
    Andershed, Birgitta
    et al.
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC.
    Ternestedt, Britt-MarieErsta Sköndal högskola, Palliativt forskningscentrum, PFC.Håkanson, CeciliaErsta Sköndal högskola, Palliativt forskningscentrum, PFC.
    Palliativ vård: begrepp & perspektiv i teori och praktik2013Samlingsverk (redaktörskap) (Övrigt vetenskapligt)
  • 14.
    Benzein, Eva
    et al.
    Linnéuniversitetet.
    Norberg, Astrid
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC.
    Sahlberg Blom, Eva
    Örebro Universitet.
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC.
    Andershed, Birgitta
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC.
    Ett vårdvetenskapligt perspektiv på forskning i livets slutskede: erfarenheter från Sverige2009Ingår i: Omsorg: Nordisk tidsskrift for Palliativ Medisin, ISSN 0800-7489, nr 4, s. 19-22Artikel i tidskrift (Övrigt vetenskapligt)
    Abstract [sv]

    Denna artikel belyser kortfattat utvecklingen av vårdvetenskaplig forskning om vård i livets slutskede i Sverige från 1970-talet fram till idag. Den visar en ökning av forskningen när det gäller den döende personens, närståendes och personalens perspektiv. Vidare beskrivs exempel på forskning som bedrivs vid Enheten för forskning om vård i livets slutskede vid Ersta Sköndal högskola; en forskningsmiljö som kunnat formaliseras till innehåll och struktur med hjälp av en donation. Exempel ges på projekt med beskrivande och intervenerande designer. Områden som behöver studeras ytterligare är individers/familjens situation i samband med döende och död, döende personer med demenssjukdom och döende och död ur ett mångkulturellt perspektiv och ur ett genusperspektiv. Större mångvetenskapliga forskningsprojekt behövs. En stor utmaning är också att överbrygga gapet mellan forskning och klinisk verksamhet.

  • 15.
    Bergdahl, Elisabeth
    et al.
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Benzein, Eva
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Developing nurses’ way to reflect over caring relationships through clinical supervision with a structured reflection; an action research approach2011Ingår i: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800, Vol. 18, nr 2, s. 111-122Artikel i tidskrift (Refereegranskat)
  • 16.
    Bergdahl, Elisabeth
    et al.
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC. Linköpings universitet.
    Benzein, Eva
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC. Linné universitetet.
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC.
    Elmberger, Eva
    Ersta Sköndal högskola, Institutionen för vårdvetenskap. Karolinska Institutet.
    Andershed, Birgitta
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC. Gjövik högskola.
    Co-creating possibilities for patients in palliative care to reach vital goals: A multiple case study of home-care nursing encounters2013Ingår i: Nursing Inquiry, ISSN 1320-7881, E-ISSN 1440-1800, Vol. 20, nr 4, s. 341-351Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The patient's home is a common setting for palliative care. This means that we need to understand current palliative care philosophy and how its goals can be realized in home-care nursing encounters (HCNEs) between the nurse, patient and patient's relatives. The existing research on this topic describes both a negative and a positive perspective. There has, however, been a reliance on interview and descriptive methods in this context. The aim of this study was to explore planned HCNEs in palliative care. The design was a multiple case study based on observations. The analysis includes a descriptive and an explanation building phase. The results show that planned palliative HCNEs can be described as a process of co-creating possibilities for the patient to reach vital goals through shared knowledge in a warm and caring atmosphere, based on good caring relations. However, in some HCNEs, co-creation did not occur: Wishes and needs were discouraged or made impossible and vital goals were not reached for the patients or their relatives. Further research is needed to understand why. The co-creative process presented in this article can be seen as a concretization of the palliative care ideal of working with a person-centered approach.

  • 17.
    Bergdahl, Elisabeth
    et al.
    Norge.
    Ternestedt, Britt-Marie
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Berterö, Carina
    Linköpings universitet.
    Andershed, Birgitta
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Norge.
    The theory of a co-creative process in advanced palliative home care nursing encounters: A qualitative deductive approach over time.2019Ingår i: Nursing open, ISSN 2054-1058, Vol. 6, nr 1, s. 175-188Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Aims and objectives: The aim of this study was to test the theoretical conceptualization of the co-creative process in home care nursing encounters over time.

    Method and design: This was a multiple case study with a deductive analysis of qualitative data over time, using interviews and observations collected from three cases.

    Results: The co-creative process was complex and contained main, sub- and micro-processes. Time was important and valuable, giving the patient and relatives space to adjust the process to their own pace. Some processes were worked on more intensively in accordance with the patients' and relatives' needs, and these are considered the main-process. The further developed theory of the co-creative process and its main, sub- and microprocesses can be understood as a concretization of how good nursing care can be performed within caring relationships in the context of advanced palliative home care.

  • 18.
    Bergdahl, Elisabeth
    et al.
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Wikström, Britt-Maj
    Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Esthetic abilities: a way to describe abilities of expert nurses in palliative home care.2007Ingår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 16, nr 4, s. 752-60Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    AIM: The aim of this paper is to focus on the abilities needed to create the caring relation in palliative home care and to find ways to describe these abilities and skills from an esthetic perspective. BACKGROUND: Nurses in Palliative home care have to create a functioning relationship between themselves the patient and the patient's next of kin, this puts special demands on the nurse. A number of abilities, such as creativity, intuition, empathy and self-knowledge are mentioned in literature related to the caring relation. Many nursing theorists have referred to the art and esthetic of nursing when trying to describe these abilities. METHODS: Data were collected using semi-structured interviews with eight expert nurses in palliative home care. The transcribed interviews were analysed using qualitative content analyses. FINDINGS: Three main categories where found: The will to do good, Knowledge and Perceptiveness. Subcategories that can be seen as abilities where found in the main categories knowledge and perceptiveness. CONCLUSIONS: The main categories can be seen as expressions for abilities, personal qualities and skills needed to create the caring relation in palliative home care. We found interesting connections between the three main categories and the concepts of esthetics, ethics and science. We also found that nurses develop in a way, i.e. similar to an artist. RELEVANCE TO CLINICAL PRACTICE: The concepts brought forward in this paper could be used in clinical supervision and education as well as in clinical practice. If nurses think about the three aspects: Knowledge, the will to do good and perceptiveness, the chance for a positive relation between the nurse and the patient, and the patient's next of kin might increase. One could speculate that perceptiveness is a vital ability in order to achieve the expert level of nursing and that this perspective should be taken in consideration when recruiting nurses and in curriculum development.

  • 19.
    Dwyer, Lise-Lotte
    et al.
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede. Örebro universitet.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Nordenfelt, Lennart
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Dignity as experienced by nursing home staff2009Ingår i: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 4, nr 3, s. 185-193Artikel i tidskrift (Refereegranskat)
  • 20.
    Dwyer, Lise-Lotte
    et al.
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Nordenfelt, Lennart
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Nursing home staff's reasoning about death and dyingManuskript (preprint) (Övrigt vetenskapligt)
  • 21.
    Dwyer, Lise-Lotte
    et al.
    Ersta Sköndal högskola, Institutionen för vårdvetenskap. Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Hansebo, Görel
    Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Institutionen för vårdvetenskap. Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Nursing home residents’ views on dying and death: nursing home employee’s perspective2010Ingår i: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 6, nr 4, s. 251-260Artikel i tidskrift (Refereegranskat)
  • 22. Ek, K
    et al.
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC.
    Andershed, Birgitta
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC.
    Sahlberg-Blom, Eva
    Shifting life rhythms: Couples' stories about living together when one spouse has advanced chronic obstructive pulmonary disease2011Ingår i: Journal of Palliative Care, ISSN 0825-8597, Vol. 27, nr 3, s. 189-197Artikel i tidskrift (Refereegranskat)
  • 23. Ek, Kristina
    et al.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Sahlberg-Blom, Eva
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Struggling to retain the living space: Patients´ stories about their lives as living alone with severe chronic obstructive pulmonary disease2011Ingår i: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 67, nr 7, s. 1480-1490Artikel i tidskrift (Refereegranskat)
  • 24.
    Elmberger, Eva
    et al.
    Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Bolund, Christina
    Magnusson, Annabella
    Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Lützén, Kim
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Being a Mother With Cancer: achieving a Sense of Balance in the Transition Process2008Ingår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 31, nr 1, s. 58-66Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    For women with cancer and with children living at home, the demands of being a good mother while undergoing treatments and recovering from illness have been described as a difficult life process. The aim of this study was to further examine the transition process with focus on women's experience of their responsibility toward their children. Interviews from 2 previous studies investigating the transition process of women with cancer were gathered and were subjected to a qualitative secondary analysis, an analytic expansion of the transition process. The 3 phases in the transition process were used in an interpretive description: ending an earlier life situation, in-between, and new beginning. A main theme that integrated these phases was constructed: "the desire to manage ones responsibility as a parent," within the context of mothering. The women expressed moral concern about not being able to function as "good" mothers yet attempted to find a balance between experiences of exhaustion and other experiences that made it difficult to maintain their responsibility as parents. All of the women included in this study expressed the need for professional support to help them endure treatment procedures as well as to sustain their moral responsibility as good mothers.

  • 25. Eriksson, Monika
    et al.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Care dependence: a struggle toward moments of respite2008Ingår i: Clinical Nursing Research, ISSN 1054-7738, E-ISSN 1552-3799, Vol. 17, nr 3, s. 220-36Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The purpose of this study was to describe people's experiences of being dependent on others for care in their final stage of life, as well as what they felt made their experience of being dependent easier or more difficult. The phenomenological-hermeneutical method was chosen, where data collection consisted of open-ended interviews with nine people undergoing palliative care at a hospice unit or at home. The meaning of being care dependent is described via the following themes: changed relationship with oneself and with others, striving to adapt oneself to the situation, obstacles, and opportunities along the way while dependent. The result is described as an effort, a journey from independence to moments where it was possible to rest and recuperate while struggling with care dependency. Nursing staff require knowledge and understanding of experiences with care dependency to make life easier for people during increasing dependency in the final stage of life.

  • 26.
    Ewertzon, Mats
    et al.
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap.
    Alvariza, Anette
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Capio Palliativ vård Dalen, Stockholm.
    Winnberg, Elisabeth
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap.
    Leksell, Janeth
    Högskolan Dalarna, Uppsala universitet.
    Andershed, Birgitta
    Norge.
    Goliath, Ida
    Karolinska institutet, Ersta sjukhus.
    Momeni, Pardis
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap.
    Kneck, Åsa
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap.
    Skott, Maria
    Karolinska institutet, Norra Stockholms psykiatri Stockholms läns landsting.
    Årestedt, Kristofer
    Linnéuniversitetet, Linköpings universitet, Länssjukhuset i Kalmar.
    Adaptation and evaluation of the Family Involvement and Alienation Questionnaire for use in the care of older people, psychiatric care, palliative care and diabetes care.2018Ingår i: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 74, nr 8, s. 1839-1850Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    AIM: To adapt the Family Involvement and Alienation Questionnaire for use in the care of older people, psychiatric care, palliative care and diabetes care and to evaluate its validity and reliability.

    BACKGROUND: Involvement in the professional care has proven to be important for family members. However, they have described feelings of alienation in relation to how they experienced the professionals' approach. To explore this issue, a broad instrument that can be used in different care contexts is needed.

    DESIGN: A psychometric evaluation study, with a cross-sectional design.

    METHOD: The content validity of the Family Involvement and Alienation Questionnaire was evaluated during 2014 by cognitive interviews with 15 family members to adults in different care contexts. Psychometric evaluation was then conducted (2015-2016). A sample of 325 family members participated, 103 of whom in a test-retest evaluation. Both parametric and non-parametric methods were used.

    RESULTS: The content validity revealed that the questionnaire was generally understood and considered to be relevant and retrievable by family members in the contexts of the care of older people, psychiatric care, palliative care and diabetes care. Furthermore, the Family Involvement and Alienation Questionnaire (Revised), demonstrated satisfactory psychometric properties in terms of data quality, homogeneity, unidimensionality (factor structure), internal consistency and test-retest reliability.

    CONCLUSION: The study provides evidence that the Family Involvement and Alienation Questionnaire (Revised) is reliable and valid for use in further research and in quality assessment in the contexts of the care of older people, psychiatric care, palliative care and diabetes care. This article is protected by copyright. All rights reserved.

  • 27.
    Ewertzon, Mats
    et al.
    Örebro universitet. ; Högskolan Dalarna.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Svensson, E
    Lützén, Kim
    Family member’s expectations of the psychiatric health-care professionals´ approach towards them2011Ingår i: Journal of Psychiatric and Mental Health Nursing, ISSN 1351-0126, E-ISSN 1365-2850, Vol. 18, nr 2, s. 146-157Artikel i tidskrift (Refereegranskat)
  • 28.
    Ewertzon, Mats
    et al.
    Örebro universitet. ; Högskolan Dalarna.
    Cronqvist, Agneta
    Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Lützén, Kim
    Karolinska Institutet.
    Andershed, Birgitta
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC.
    A lonely life journey bordered with struggle: being a sibling of an individual with psychosis 2012Ingår i: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 33, nr 3, s. 157-164Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Research suggests that siblings of individuals with severe mental illness are affected by the situation of their affected sibling and that the health care services seem to partly fail in meeting their needs for support. The aim of this study was therefore to explore how siblings of individuals with a psychotic illness, and who have participated in a support group, experience their situation. Thirteen informants participated in focus group interviews, which were analysed by inductive content analysis. The findings were interpreted in an overall single theme: A lonely life journey bordered with struggle. This theme consists of three categories: facing existential thoughts, facing ambiguity in approach and engagement, and facing disparate attitudes and expectations.

  • 29.
    Ewertzon, Mats
    et al.
    Örebro universitet. ; Högskolan Dalarna.
    Lützén, Kim
    Svensson, Elisabeth
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Developing the concept of family involvement and the alienation questionnaire in the context of psychiatric care2008Ingår i: International Journal of Mental Health Nursing, ISSN 1445-8330, E-ISSN 1447-0349, Vol. 17, nr 6, s. 439-49Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Research shows that family members of people with a mental illness often experience a lack of involvement in the psychiatric care of their relative. An interpretation of the findings of these studies raises the question of whether the family members' experience of not being involved can be conceptualized in terms of alienation towards mental health services from their encounter with psychiatric care. In order to explore this possibility, the Family Involvement and Alienation Questionnaire (FIAQ) was constructed, guided by relevant theoretical frameworks and empirical research. The content validity of the questionnaire was evaluated by two groups of experienced researchers who had sound knowledge of the theoretical frameworks used. Validity based on the response process was evaluated by the parents of people with mental illness. The reliability of the questionnaire was evaluated by a test-retest design with a group of 15 family members. The data were analyzed by a non-parametric statistical method. The results of the validity and reliability evaluations showed that of the 46 original items in the questionnaire, 28 would be useful in exploring the concept of family involvement and alienation in the context of psychiatric care. Further, minor modifications could make the FIAQ useful in exploring these concepts in other settings.

  • 30.
    Ewertzon, Mats
    et al.
    Örebro universitet. ; Högskolan Dalarna.
    Lützén, Kim
    Högskolan Dalarna.
    Svensson, Elisabeth
    Örebro universitet.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Family members´ involvement in psychiatric care: experiences of the health-care professionals´ approach and feeling of alienation.2010Ingår i: Journal of Psychiatric and Mental Health Nursing, ISSN 1351-0126, E-ISSN 1365-2850, Vol. 17, s. 422-432-Artikel i tidskrift (Refereegranskat)
  • 31. Hellsing, AL
    et al.
    Linton, S
    Andershed, Birgitta
    et, al
    Ergonomic education for nursing students1993Ingår i: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 30, nr 6, s. 499-510Artikel i tidskrift (Refereegranskat)
  • 32.
    Henriksson (Alvariza), Anette
    et al.
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    A support group programme for relatives during the late palliative phase.2007Ingår i: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 13, nr 4, s. 175-83Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    This study describes an intervention where relatives were invited to take part in a support group programme during the late palliative phase of their family member. The purpose was to describe their experiences of the support group programme and the subsequent impact on their lives as relatives of a terminally ill person. Qualitative interviews were chosen as the data collection method. The analysis was inspired by the phenomenological method as described by Giorgi (1989). The relatives' experiences were categorised into six key constituents: confirmation; insight into the gravity of the illness; sense of belonging created by similar experiences; participation in the care system; being able to rest; and strength to provide support for the patient. These six constituents resulted in a sense of safety in relation to the patient, the illness, the nursing staff and the care unit. The study's findings show that interventions of this kind may be integral to the relatives' ability to handle their situation when caring for a terminally ill family member.

  • 33.
    Henriksson (Alvariza), Anette
    et al.
    Örebro universitet.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård. Gjövik University, Norway.
    Benzein, Eva
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård. Linnéuniversitetet.
    Årestedt, Kristoffer
    Linnéuniversitetet, Linköpings universitet.
    Adaptation and psychometric evaluation of the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in a sample of Swedish family members of patients with life-threatening illness2012Ingår i: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 26, nr 7, s. 930-938Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    BACKGROUND: Family members often take on many caring responsibilities, with complex issues and challenges to consider. Feelings of preparedness, competence and reward are identified as concepts that may protect caregiver wellbeing and decrease negative outcomes related to caregiving.

    AIM: This study aimed to translate, adapt and psychometrically evaluate the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in Swedish family members of patients with life threatening illness.

    DESIGN: Correlational.

    SETTING/PARTICIPANTS: The study took place in four settings including advanced palliative care. The scales were tested in a sample of 125 family members of persons with life-threatening illness. All three scales were tested in relation to distribution of item and scale scores, missing data patterns, dimensionality, convergent validity and reliability.

    RESULTS: The results in this study indicate that the Swedish versions of The Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale are valid, reliable and user-friendly scales. Confirmatory factor analysis showed that the scales were unidimensional and all demonstrated Cronbach's alpha values of ≥0.9.

    CONCLUSIONS: As a result of this study it is anticipated that the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale could provide a basis for collaborative research between different countries and make international studies more comparable and generalizable despite differences in language and culture.

  • 34.
    Henriksson (Alvariza), Anette
    et al.
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Benzein, Eva
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Meeting the needs of family members of persons with life threatening illness: a support group programme during ongoing palliative care.2011Ingår i: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 9, nr 3, s. 263-271Artikel i tidskrift (Refereegranskat)
  • 35.
    Henriksson (Alvariza), Anette
    et al.
    Örebro universitet.
    Årestedt, Kristofer
    Linköping universitet, Linne universitet.
    Benzein, Eva
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC. Linnéuniversitetet.
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC. Karolinska institutet, Stockholms sjukhem.
    Andershed, Birgitta
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC. Gjøvik University College, Norway.
    Effects of a support group programme for patients with life-threatening illness during ongoing palliative care2013Ingår i: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 27, nr 3, s. 257-264Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    BACKGROUND: Health care systems in many countries are moving towards outpatient care in which family members are central in providing care for patients with life-threatening illness. Several studies show that family members report a lack of preparation, knowledge and the ability to handle the caregiver role, and a need for information and psychosocial support. 

    AIM: The aim was to investigate the effects of a support group programme for family members of patients with life-threatening illness during ongoing palliative care.

    DESIGN: A prospective quasi-experimental design, including an intervention group and a comparison group, was used.

    SETTINGS/PARTICIPANTS: A support group programme was offered to family members during ongoing palliative care at three intervention settings: two specialist palliative care units and one haematology unit. A fourth setting, a specialist palliative care unit, was used for comparisons.

    RESULTS: Family members taking part in the support group programme significantly increased their perceptions of preparedness for caregiving, competence for caregiving, and rewards of caregiving. Hope, anxiety, depression symptoms and health showed no significant changes.

    CONCLUSIONS: The intervention, including a support group programme delivered to family members of patients with life-threatening illness during ongoing palliative care, proved to be effective in certain domains of caregiving. No negative outcomes were detected. The results indicate that this intervention could be implemented and delivered to family members during ongoing palliative care.

  • 36.
    James, Inger
    et al.
    Örebro universitet.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Gustavsson, Bengt
    Örebro universitet.
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Emotional knowing in nursing practice: In the encounter between life and death2010Ingår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 5, s. 53-67Artikel i tidskrift (Refereegranskat)
  • 37. James, Inger
    et al.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Gustavsson, Bengt
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Knowledge Constructions in Nursing Practice: Understanding and Integrating Different Forms of Knowledge2010Ingår i: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 20, nr 11, s. 1500-1518Artikel i tidskrift (Refereegranskat)
  • 38. James, Inger
    et al.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Institutionen för vårdvetenskap. Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    A family's beliefs about cancer, dying, and death in the end of life.2007Ingår i: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 13, nr 2, s. 226-52Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The purpose of this case study was to describe the beliefs over time of a Swedish family and individual family members about cancer and death and how these beliefs affected their daily lives. Data were collected over 10 months using interviews, conversations, and diary notations. The beliefs were aggregated into eight main beliefs and four themes: Cancer is a deadly threat/death is a liberator, death can be held at bay/death can be lived near, dying is done alone/dying should not be done alone, and life has an end/life is endless. These beliefs appear to oscillate between seemingly contrasting poles. Some beliefs were shared by all family members, whereas others were described by only one or more members of the family. The complexity of daily life in families experiencing life-shortening illness underscores the need of individualized nursing care with openness to difference and collaboration as guiding principles.

  • 39. James, Inger
    et al.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Institutionen för vårdvetenskap. Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    The encounter between informal and professional care at the end of life2009Ingår i: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 19, nr 2, s. 258-71Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The purpose of this study was to obtain and describe in-depth knowledge about family carers' experiences of the encounter, in a hospital, between informal and professional care at the end of life. A hermeneutic approach was chosen, and we conducted interviews with 27 family carers 6 to 8 months after their loved one's death. In the encounter, the family carers made their own assessment of their loved one's condition and situation. The professionals' attitudes could both promote and impede the interaction between the two forms of care. Family carers' care actions were characterized by struggling to get treatment, being left behind, being partners, keeping the illness at a distance, hovering beside their loved one, waiting for death, and being experts and protectors. The main interpretation of the findings is that family carers possess practical knowledge about what care is the best, or least harmful, for their loved one. This can be linked to what Aristotle called phronesis.

  • 40.
    Johansson, Anita
    et al.
    Örebro universitet.
    Anderszen-Carlsson, Agneta
    Åhlin, Arne
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Being a mother to an adult son or daughter with long-term mental illness – to live a life on strain2010Ingår i: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 31, s. 692-699Artikel i tidskrift (Refereegranskat)
  • 41.
    Johansson, Anita
    et al.
    University of O¨ rebro, School of Health and Medical Sciences, Örebro, Sweden and Skaraborg Hospital, Division of Psychiatry, Skövde, Sweden.
    Anderzen-Carlsson, Agneta
    University of Örebro, School of Health and Medical Sciences, Örebro, Sweden and Centre for Health Care Sciences, Örebro, Sweden.
    Åhlin, Arne
    Margretelunds Ungdomshem, National Board of Institutional Care, Lidköping, Sweden.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård. University College, Department of Nursing, Gjøvik, Norway.
    Fathers’ everyday experiences of having an adult child who suffers from long-term mental illness2012Ingår i: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 33, nr 2, s. 109-117Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The purpose of this study is to describe the everyday life experiences of fathers of adult children who have various forms of long-term mental illness. Ten fathers were interviewed. Content analysis revealed one main theme: Maintaining a strong fac¸ade while balancing on a thin line, and two sub-themes: (1) A constant struggle and (2) A feeling of powerlessness. The fathers demonstrated great engagement and good will to participate in their child’s life. A sense of powerlessness and frustration at not having or being allowed freedom of action emerged. Cooperation between children, parents, the care service providers, and the authorities could increase the parents’ abilities to provide adequate support to the child as well as helping them to understand and make the incomprehensible manageable.

  • 42.
    Johansson, Anita
    et al.
    Örebro universitet, Skaraborg sjukhus, Skövde.
    Ewertzon, Mats
    Ersta Sköndal högskola, Institutionen för vårdvetenskap. Swedish National Family Care Competence Centre, Kalmar, Sweden.
    Andershed, Birgitta
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC. Gjøvik University College, Gjøvik, Norway.
    Anderzen-Carlsson, Agneta
    Örebro universitet, Centre for Health Care Sciences, Örebro, Sweden.
    Nasic, Salmir
    Skaraborg sjukhus, Skövde.
    Ahlin, Arne
    National Board of Institutional Care, SiS Ungdomshem Margretelund, Lidkoping, Sweden.
    Health-Related Quality of Life: From the Perspekctive of Mothers and Fathers of Adult Children Suffering From Long-Term Mental Disorders2015Ingår i: Archives of Psychiatric Nursing, ISSN 0883-9417, E-ISSN 1532-8228, Vol. 29, nr 3, s. 180-185Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    There is a lack of studies on mothers' and fathers' experiences of Health-Related Quality of Life (HRQOL) associated with caregiving of adult children suffering from mental disorder. A cross-sectional study was therefore carried out with 108 mothers and 43 fathers. Data were collected by means of the Short Form Health Survey (SF-36), the Hospital Anxiety and Depression Scale (HADS), the Family Involvement and Alienation Questionnaire (FIAQ) and the Burden Assessment Scale (BAS). Mothers' HRQOL was affected more than fathers' and lower compared to Swedish age related norms. HRQOL was predominantly related to ratings on HADS and BAS.

  • 43.
    Johansson, Gunilla
    et al.
    Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Sandahl, Christer
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Authentic and congruent leadership providing excellent work environment in palliative care.2011Ingår i: International journal of health care quality assurance incorporating leadership in helath services, ISSN 1366-0756, E-ISSN 2051-3135, Vol. 24, nr 2, s. 135-149Artikel i tidskrift (Refereegranskat)
  • 44.
    Johansson, Gunilla
    et al.
    Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Sandahl, Christer
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Good care giving: the core of the work environment in palliative careIngår i: Leadership in health services, ISSN 1751-1887Artikel i tidskrift (Refereegranskat)
  • 45.
    Karlsson, Christina
    et al.
    Örebro universitet.
    Tisell, Anna
    Örebro universitet.
    Engström, Åsa
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Family members’ satisfaction of critical care in a intensive care unit2011Ingår i: Nursing in Critical Care, ISSN 1362-1017, E-ISSN 1478-5153, Vol. 16, nr 1, s. 11-18Artikel i tidskrift (Refereegranskat)
  • 46. Segesten, K
    et al.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Berg, C
    Frid, I
    Palm, C-A
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Öhlén, Joakim
    Göteborgs universitet.
    Kommentarer2004Ingår i: Närståendes behov: Omvårdnad som akademiskt ämne / [ed] G Östlinder, Stockholm: Svensk sjuksköterskeförening , 2004, s. 112-5Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 47. Shields, Linda
    et al.
    Kristensson-Hallström, Inger
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Jackson, Karin
    Eriksson, Mats
    Nursing and Health care in Sweden.2002Ingår i: Australian Journal of Advanced Nursing, ISSN 0813-0531, E-ISSN 1447-4328, Vol. 20, nr 1, s. 13-19Artikel i tidskrift (Refereegranskat)
  • 48.
    Ternestedt, Britt-Marie
    et al.
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC.
    Andershed, Birgitta
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC.
    Den palliativa vårdens utveckling2013Ingår i: Palliativ vård: begrepp & perspektiv i teori och praktik / [ed] Birgitta Andershed, Britt-Marie Ternestedt, Cecilia Håkanson, Lund: Studentlitteratur AB, 2013, 1, s. 103-116Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 49.
    Ternestedt, Britt-Marie
    et al.
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Eriksson, Monika
    Johansson, Ingrid
    A Good Death. Development of a Nursing model of care.2002Ingår i: Journal of Hospice and Palliative Nursing, ISSN 1522-2179, E-ISSN 1539-0705, Vol. 4, nr 3, s. 153-160Artikel i tidskrift (Refereegranskat)
  • 50.
    Ternestedt, Britt-Marie
    et al.
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Österlind, Jane
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Henoch, Ingela
    Sahlgrenska akademin, Göteborgs universitet,institutionen för vårdvetenskap och hälsa.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    De 6 S:n - En modell för personcentrerad palliativ vård2012 (uppl. 1)Bok (Övrigt vetenskapligt)
12 1 - 50 av 54
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