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  • 1. Brännström, Margareta
    et al.
    Brulin, Christine
    Norberg, Astrid
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede. Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Boman, Kurt
    Strandberg, Gunilla
    Being a palliative nurse for persons with severe congestive heart failure in advanced homecare.2005Ingår i: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 4, nr 4, s. 314-23Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Advanced homecare for persons with congestive heart failure is a 'new' challenge for palliative nurses. The aim of this study is to illuminate the meaning of being a palliative nurse for persons with severe congestive heart failure in advanced homecare. Narrative interviews with 11 nurses were conducted, tape-recorded, and transcribed verbatim. A phenomenological-hermeneutic method was used to interpret the text. One meaning of being a palliative nurse is being firmly rooted and guided by the values of palliative culture. Being adaptable to the patient's way of life carries great weight. On one hand nurses live out this value, facilitating for the patients to live their everyday life as good as possible. Being a facilitator is revealed as difficult, challenging, but overall positive. On the other hand nurses get into a tight corner when values of palliative culture clash and do not correspond with the nurses interpretation of what is good for the person with congestive heart failure. Being in such a tight corner is revealed as frustrating and giving rise to feelings of inadequacy. Thus, it seems important to reflect critical on the values of palliative culture.

  • 2. Brännström, Margareta
    et al.
    Ekman, Inger
    Norberg, Astrid
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede. Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Boman, Kurt
    Strandberg, Gunilla
    Living with severe chronic heart failure in palliative advanced home care.2006Ingår i: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 5, nr 4, s. 295-302Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    BACKGROUND: Living with severe chronic heart failure (CHF) in palliative care has been little studied. AIM: The aim of this study is to illuminate meaning of living with severe CHF in palliative advanced home care through patients' narratives. METHODS: Narrative interviews were conducted with 4 patients, tape-recorded and transcribed verbatim. A phenomenological-hermeneutic method was used to interpret the text. RESULTS: Meaning of living with severe CHF in palliative advanced home care emerged as 'knocking on death's door' although surviving. The course of the illness forces one to live a 'roller coaster life,' with an ongoing oscillation between ups and downs. Making it through the downs breeds a kind of confidence in one's ability to survive and the will to live is strong. Being offered a safety belt in the 'roller coaster' by the palliative advanced home care team evokes feelings of security. CONCLUSIONS: Meaning of living with severe CHF in palliative advanced home care is on one hand, being aware of one's imminent death, on the other hand, making it through the downs i.e. surviving life-threatening conditions, breed confidence in also surviving the current down. Being constructively dependent on palliative advanced home care facilitates everyday life at home.

  • 3.
    Ekman, Inger
    et al.
    Göteborgs universitet.
    Swedberg, Karl
    Göteborgs universitet.
    Taft, Charles
    Göteborgs universitet.
    Lindseth, Anders
    Göteborgs universitet; Bodø University College.
    Norberg, Astrid
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård. Göteborgs universitet; Umeå universitet.
    Brink, Eva
    Göteborgs universitet.
    Carlsson, Jane
    Göteborgs universitet.
    Dahlin-Ivanoff, Synneve
    Göteborgs universitet.
    Johansson, Inga-Lill
    Göteborgs universitet.
    Kjellgren, Karin
    Linköpings universitet.
    Lidén, Eva
    Göteborgs universitet.
    Öhlén, Joakim
    Institutionen för vårdvetenskap och hälsa, Sahlgrenska akademin, Göteborgs universitet.
    Olsson, Lars-Eric
    Göteborgs universitet.
    Rosén, Henrik
    Göteborgs universitet.
    Rydmark, Martin
    Göteborgs universitet.
    Stibrant Sunnerhagen, Katharina
    Göteborgs universitet.
    Person-centered care: Ready for prime time2011Ingår i: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 10, nr 4, s. 248-251Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Long-term diseases are today the leading cause of mortality worldwide and are estimated to be the leading cause of disability by 2020. Person-centered care (PCC) has been shown to advance concordance between care provider and patient on treatment plans, improve health outcomes and increase patient satisfaction. Yet, despite these and other documented benefits, there are a variety of significant challenges to putting PCC into clinical practice. Although care providers today broadly acknowledge PCC to be an important part of care, in our experience we must establish routines that initiate, integrate, and safeguard PCC in daily clinical practice to ensure that PCC is systematically and consistently practiced, i.e. not just when we feel we have time for it. In this paper, we propose a few simple routines to facilitate and safeguard the transition to PCC. We believe that if conscientiously and systematically applied, they will help to make PCC the focus and mainstay of care in long-term illness.

  • 4.
    Eriksson, Monica
    et al.
    Mittuniversitetet.
    Asplund, Kenneth
    Mittuniversitetet.
    Svedlund, Marianne
    Mittuniversitetet.
    Patients´and their partners´experiences of returning home after hospital discharge following acute myocardial infarction2009Ingår i: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 8, nr 4, s. 267-273Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: Returning home from hospital after an acute myocardial infarction [AMI] can be a period of vulnerability both for the patient and his/her partner. This study focuses on the time immediately after discharge.

    Aims: The aim of this study was to describe the patient’s and his/her partner’s experiences after hospital discharge following AMI.

    Methods: 15 couples took part in individual interviews, 4- 8 weeks after discharge. Data were analysed using qualitative content analysis.

    Results: The results are presented by means of three themes, ´ at home in one’s own home`, ´ at home within oneself ` and ´having normality in sight`, comprising ten categories that describe the experiences of both the patient and his/her partner.

    Conclusions: The patients as well as partners described the period after discharge from hospital comprising ambitions of feeling safety in their home, an inner sense of security and seeking normalisation.The results of this study could be useful for nurses when planning for patient discharge. During hospitalization nurses can prepare both the patient and their partner for what to expect when the patient returns home.

  • 5.
    Lidin, Matthias
    et al.
    Karolinska institutet.
    Hellénius, Mai-Lis
    Karolinska institutet.
    Ekblom-Bak, Elin
    Gymnastik- och idrottshögskolan.
    Rydell Karlsson, Monica
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap. Karolinska institutet.
    Experiences from individuals with increased cardiovascular risk participating in a one-year lifestyle program.2019Ingår i: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, artikel-id 1474515119848967Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    OBJECTIVE: The purpose of the current study was to describe the participants' experiences of a structured lifestyle program for persons with high cardiovascular risk.

    METHOD: Sixteen participants with high cardiovascular risk participating in a one-year structured lifestyle intervention program were interviewed regarding their experiences of the program. The interviews were analyzed using content analyses.

    RESULTS: The participants' (mean age 58 ± 9) experiences were categorized into three categories: "How to know," based on the participants' experience from both individual counselling and group sessions with tools to strengthen self-care; "Staff who know how," based on experience from the meeting with, and the importance of, competent health professionals; "Why feedback is essential," based on the participants' experience and effects of person-centered feedback. Several factors were deemed important in the structure of the program: an individual visit with shared goal setting, a group education session with interactive discussion, a competent, educated, and respectful health professional who gives continuous feedback, and the right tools to support self-care at home between visits.

    CONCLUSION: Individuals participating in a structured lifestyle program experienced several factors as important: an individual visit with shared goal setting, a group education session with interactive discussion, a competent, educated, and respectful healthcare professional who gives continuous feedback, and the right tools to support self-care at home between visits.

  • 6. Nordgren, Lena
    et al.
    Asp, Margareta
    Fagerberg, Ingegerd
    An exploration of the phenomenon of formal care from the perspective of middle-aged heart failure patients2007Ingår i: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 6, nr 2, s. 121-129Artikel i tidskrift (Refereegranskat)
  • 7.
    Öhlen, Joakim
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC.
    Do inequalities in end of life care matter?2014Ingår i: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 13, nr 2, s. 105-107Artikel i tidskrift (Refereegranskat)
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