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  • 1.
    Benzein, Eva Gunilla
    et al.
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Saveman, Britt-Inger
    Health-promoting conversations about hope and suffering with couples in palliative care.2008Ingår i: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 14, nr 9, s. 439-45Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    BACKGROUND: Families living with a dying relative face existential challenges which need to be met by caregivers in a dialogue. AIM: To describe couples' experiences of participating in nurse-initiated health-promoting conversations about hope and suffering during home-based palliative care. METHOD: Data comprised semi-structured evaluative interviews with six couples. Each couple together had previously participated in three health-fostering conversations with nurses. Data were analyzed by content. RESULT: Talking with nurses about existential issues such as hope and suffering made couples feel that they were part of a trustful relationship, and that it was a healing experience. It gave them the opportunity to unburden themselves, as well as a way of learning and finding new strategies for managing daily life. CONCLUSION: Health-promoting conversations about hope and suffering should be implemented as a natural part of the caring relationship between caregivers and families in the palliative context.

  • 2.
    Ek, Kristina
    et al.
    Högskolan i Skövde.
    Westin, Lars
    Högskolan i Skövde.
    Prahl, Charlotte
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC. Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Österlind, Jane
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC. Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Strang, Susann
    Göteborgs universitet & Angereds Närsjukhus.
    Bergh, Ingrid
    Högskolan i Skövde.
    Henoch, Ingela
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC. Angereds Närsjukhus & Göteborgs universitet.
    Hammarlund, Kina
    Högskolan i Skövde.
    Death and caring for dying patients: exploring first-year students´descriptive experiences2014Ingår i: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 20, nr 10, s. 509-515Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Aim: To describe first-year nursing students' experiences of witnessing death and providing end-of-life care.

    Methods: This study is part of a larger longitudinal project. Interviews (n=17) were conducted with nursing students at the end of their first year of education. To analyse the interviews (lived-experience descriptions), a thematic analysis, ‘a search for meaning’ (Van Manen, 1997) was applied.

    Results: The results are presented within the framework of four separate themes: (1) The thought of death is more frightening than the actual experience, (2) Daring to approach the dying patient and offering something of oneself, (3) The experience of not sufficing in the face of death and (4) Being confronted with one's own feelings.

    Conclusion: Nursing students require continuous support and opportunity to reflect and discuss their experiences about caring for dying patients and confronting death throughout the entirety of their education. In addition, teachers and clinical supervisors need to give support using reflective practice to help students to develop confidence in their capacity for caring for dying patients.

  • 3.
    Henriksson (Alvariza), Anette
    et al.
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Andershed, Birgitta
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    A support group programme for relatives during the late palliative phase.2007Ingår i: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 13, nr 4, s. 175-83Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    This study describes an intervention where relatives were invited to take part in a support group programme during the late palliative phase of their family member. The purpose was to describe their experiences of the support group programme and the subsequent impact on their lives as relatives of a terminally ill person. Qualitative interviews were chosen as the data collection method. The analysis was inspired by the phenomenological method as described by Giorgi (1989). The relatives' experiences were categorised into six key constituents: confirmation; insight into the gravity of the illness; sense of belonging created by similar experiences; participation in the care system; being able to rest; and strength to provide support for the patient. These six constituents resulted in a sense of safety in relation to the patient, the illness, the nursing staff and the care unit. The study's findings show that interventions of this kind may be integral to the relatives' ability to handle their situation when caring for a terminally ill family member.

  • 4.
    Holm, Maja
    et al.
    Mälardalens högskola.
    Goliath, Ida
    Karolinska Institutet.
    Södlind, Hanna
    Palliative Care Unit, Solna Sundbyberg, Stockholm, Sweden.
    Alvariza, Anette
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap.
    Leading an intervention for family caregivers: a part of nursing in palliative care2017Ingår i: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 23, nr 4, s. 166-172Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Professional leadership has been highlighted as an important part of successful intervention delivery. The aim of this study is to explore the narratives of nurses involved in leading a group intervention for family caregivers in palliative care. Nurses were interviewed about their experiences as group leaders in a psycho-educational group intervention, which was delivered at 10 specialised palliative home care settings, with the help of an intervention manual. Data were analysed with interpretive descriptive methodology. Three themes were identified in the analysis: embracing the leading role, developing qualities as a group leader, and professional and personal development. The results showed that the role as group leader initially was a challenge for the nurses, but that they gradually were able to develop the professional and personal skills that were required. The nurses believed that their profession was best suited to lead this kind of supportive intervention.

  • 5.
    Janze, Anna
    et al.
    Ersta Sköndal högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Hospice Ersta diakoni, Ersta sjukhus.
    Henriksson (Alvariza), Anette
    Ersta Sköndal högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Capio Geriatrik Dalen Stockholm.
    Preparing for palliative caregiving as a transition in the awareness of death: family carer experiences.2014Ingår i: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 20, nr 10, s. 494-501Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    AIM: The aim of this study was to explore family caregivers´ experiences from partners' stories about preparing for caregiving.

    METHODS: The study had a descriptive and interpretive design using qualitative interviews and qualitative content analysis.

    RESULTS: Preparing for caregiving was described in the two sub-themes: living in uncertainty, focusing on the present and preparing for the future; and preparing for caregiving while transitioning to new roles. One overarching theme 'preparing for caregiving in awareness of death' was seen as a common thread throughout the results. Preparing meant dealing with changes in life, living in uncertainty and transitioning to new roles.

    CONCLUSION: Family (partner) caregivers continuously tried to prepare in different ways in response to their partners' illness. Preparing for caregiving meant to willingly or unwillingly prepare for the dying and death of their partner and awareness about this was always present in some way, influencing the whole experience.

  • 6.
    Lundberg, Tina
    et al.
    Ersta Sköndal högskola, Palliativt forskningscentrum, PFC. Karolinska Institutet.
    Olsson, Mariann
    Fürst, Carl Johan
    The perspectives of bereaved family members on their experiences of support in palliative care2013Ingår i: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 19, nr 6, s. 282-288Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Aim: To explore family members’ supportive interactions in palliative care and the emotional experiences that they associate with these interactions. Methods: Qualitative individual interviews were performed with bereaved family members recruited from an urban palliative care service in Sweden. The interviews were analysed using inductive qualitative content analysis. Results: Five categories of supportive interactions with staff members were linked with emotional consequences: informational support, supportive encounters, professional focus of staff, a supportive environment, and bereavement support. Having a dialogue with family members nurtured certainty and security, supportive encounters gave a warm and comforting feeling, and bereavement support contributed to feelings of strength. Environmental factors contributed to dignity. Conclusion: Supportive interactions with staff and within a home-like environment help to build resilience if tailored to the family member’s own needs.

  • 7.
    Lundh Hagelin, Carina
    et al.
    Sophiahemmets högskola, Stockholms sjukhem, Karolinska institutet.
    Melin-Johansson, Christina
    Mittuniversitetet, Göteborgs universitet.
    Henoch, Ingela
    Göteborgs universitet, Angereds närsjukhus, Göteborg.
    Bergh, Ingrid
    Högskolan i Skövde.
    Ek, Kristina
    Högskolan i Skövde.
    Hammarlund, Kina
    Högskolan i Skövde.
    Prahl, Charlotte
    Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Strang, Susann
    Göteborgs universitet.
    Westin, Lars
    Högskolan i Skövde.
    Österlind, Jane
    Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Browall, Maria
    Högskolan i Skövde.
    Factors influencing attitude toward care of dying patients in first- year nursing students2016Ingår i: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 22, nr 1, s. 28-36Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Aim: To describe Swedish first-year undergraduate nursing students’ attitudes toward care of dying patients. Possible influences such as age, earlier care experiences, care education, experiences of meeting dying patients and place of birth were investigated.

    Method: The Frommelt Attitude Toward Care of the Dying Scale (FATCOD) was used in six universities. Descriptive statistics and regression analysis were used.

    Results: Some 371 students (67.3%) reported overall positive attitude toward caring for dying patients (total mean FATCOD 119.5, SD 10.6) early in their first semester. Older students, students with both earlier care experience and earlier education, those with experience of meeting a dying person, and students born in Sweden reported the highest scores, a more positive attitude.

    Conclusion: Age, earlier care experience and education, experiences of meeting a dying person and place of birth seems to affect students’ attitudes toward care of the dying and need to be considered among nursing educators.

  • 8. Melin-Johansson, Christina
    et al.
    Österlind, Jane
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Hagelin, Carina Lundh
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Henoch, Ingela
    Göteborgs universitet.
    Ek, Kristina
    Bergh, Ingrid
    Högskolan i Skövde.
    Browall, Maria
    Högskolan i Skövde, Jönköping University.
    Undergraduate nursing students' transformational learning during clinical training.2018Ingår i: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 24, nr 4, s. 184-192Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    BACKGROUND: Undergraduate nursing students encounter patients at the end of life during their clinical training. They need to confront dying and death under supportive circumstances in order to be prepared for similar situations in their future career.

    AIM: To explore undergraduate nursing students' descriptions of caring situations with patients at the end of life during supervised clinical training.

    METHODS: A qualitative study using the critical incident technique was chosen. A total of 85 students wrote a short text about their experiences of caring for patients at the end of life during their clinical training. These critical incident reports were then analysed using deductive and inductive content analysis.

    FINDINGS: The theme 'students' transformational learning towards becoming a professional nurse during clinical training' summarises how students relate to patients and relatives, interpret the transition from life to death, feel when caring for a dead body and learn end-of-life caring actions from their supervisors.

    IMPLICATIONS: As a preparation for their future profession, students undergoing clinical training need to confront death and dying while supported by trained supervisors and must learn how to communicate about end-of-life issues and cope with emotional stress and grief.

  • 9.
    Strang, Susann
    et al.
    Göteborgs universitet.
    Berg, Ingrid
    Högskolan i Skövde.
    Ek, Kristina
    Högskolan i Skövde.
    Hammarlund, Kina
    Högskolan i Skövde.
    Prahl, Charlotte
    Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Westin, Lars
    Högskolan i Skövde.
    Österlind, Jane
    Ersta Sköndal högskola, Institutionen för vårdvetenskap. Ersta Sköndal högskola, Palliativt forskningscentrum, PFC.
    Henoch, Ingela
    Göteborgs universitet.
    Swedish nursing students´ reasoning about emotionally demanding issues in caring for dying patients2014Ingår i: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 20, nr 4, s. 194-200Artikel i tidskrift (Refereegranskat)
  • 10.
    Swall, Anna
    et al.
    Högskolan Dalarna.
    Craftman, Åsa
    Sophiahemmet högskola.
    Grundberg, Åke
    Sophiahemmet högskola.
    Wiklund, Eleonor
    Väliaho, Nina
    Hagelin, Carina Lundh
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap. Karolinska institutet.
    Dog handlers' experiences of therapy dogs' impact on life near death for persons with dementia.2019Ingår i: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 25, nr 2, s. 65-71Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    BACKGROUND:: Persons with dementia may have severe physical and psychological symptoms at the end of life. A therapy dog used in their care can provide comfort and relieve their anxiety. The dog handler guides the dog during the interaction with the patient.

    AIM:: To describe the impact of therapy dogs on people with dementia in the final stages of life from the perspective of the dog handler.

    METHODS:: Interviews were conducted and analysed using qualitative content analysis.

    FINDINGS:: The dog provides comfort and relief through its presence and by responding to the physical and emotional expressions of the dying person.

    CONCLUSIONS:: Interactions with dogs were found to have a positive impact on persons with dementia and eased the symptoms associated with end of life according to the dog handlers.

  • 11.
    Ternestedt, Britt-Marie
    et al.
    Ersta Sköndal högskola, Institutionen för vårdvetenskap. Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Franklin, Lise-Lotte
    Ersta Sköndal högskola, Enheten för forskning i palliativ vård. Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Ways of relating to death: views of older people resident in nursing homes.2006Ingår i: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 12, nr 7, s. 334-40Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Few studies shed light on what older people themselves consider a good or dignified death. This study is part of a larger project where interviews were used to follow 12 nursing home residents over time. The aim of the present study was to reach a deeper understanding of seven older people's thoughts, feelings and attitudes towards death. The participants were interviewed on four occasions across 18-24 months, and the interviews were analysed using a hermeneutic method. The findings revealed three main themes: 1. Zest for life, 2. Indifferent attitude, 3. Longing for death. The themes mirror the complexity of what ageing and nearing the end of life can mean. A strong desire among the participants was to be more involved in their own personal care and in everyday life at the nursing home. Person-oriented care based on the philosophy of palliative care, and including conversation as a natural component, might promote the older person's possibilities to obtain a good death.

  • 12.
    Österlind, Jane
    et al.
    Ersta Sköndal högskola, Enheten för forskning om vård i livets slutskede.
    Hansebo, Görel
    Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Lantz, Göran
    Ersta Sköndal högskola, Institutionen för vårdvetenskap.
    Ternestedt, Britt-Marie
    Ersta Sköndal högskola, Institutionen för vårdvetenskap. Ersta Sköndal högskola, Enheten för forskning i palliativ vård.
    Pathways in end-of-life care for older people: care managers' reasoning.2008Ingår i: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 14, nr 9, s. 420-5Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Seven care managers employed by a large municipality in Sweden were interviewed concerning their reasoning regarding end-of-life care for older people. Data were analyzed using a hermeneutic approach. The results showed that end-of-life care was considered to constitute a small part of the care managers' work and was something they did not focus on in general when assessing care needs. Two different pathways to death--the natural and the medical--were identified. In the natural pathway, death was invisible and the care was more routine-oriented. In the medical pathway, death was visualised and the care more individualised. Neither of the pathways paid attention to communication or existential needs. Thus, there is a need for a palliative pathway to death based on the philosophy of palliative care, which could provide guidance for care managers and promote opportunities for older people to achieve a dignified dying and death.

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