Change search
Refine search result
41424344454647 2151 - 2200 of 5159
CiteExportLink to result list
Permanent link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Rows per page
  • 5
  • 10
  • 20
  • 50
  • 100
  • 250
Sort
  • Standard (Relevance)
  • Author A-Ö
  • Author Ö-A
  • Title A-Ö
  • Title Ö-A
  • Publication type A-Ö
  • Publication type Ö-A
  • Issued (Oldest first)
  • Issued (Newest first)
  • Created (Oldest first)
  • Created (Newest first)
  • Last updated (Oldest first)
  • Last updated (Newest first)
  • Disputation date (earliest first)
  • Disputation date (latest first)
  • Standard (Relevance)
  • Author A-Ö
  • Author Ö-A
  • Title A-Ö
  • Title Ö-A
  • Publication type A-Ö
  • Publication type Ö-A
  • Issued (Oldest first)
  • Issued (Newest first)
  • Created (Oldest first)
  • Created (Newest first)
  • Last updated (Oldest first)
  • Last updated (Newest first)
  • Disputation date (earliest first)
  • Disputation date (latest first)
Select
The maximal number of hits you can export is 250. When you want to export more records please use the Create feeds function.
  • 2151.
    Helgesson, Gert
    et al.
    Stockholm Centre for Healthcare Ethics, Department of Learning, Informatics, Management, and Ethics, Karolinska Insitutet, Stockholm.
    Bülow, William
    Department of Philosophy, Stockholm University.
    Eriksson, Stefan
    Centrum för forsknings- och bioetik, Centre for Research Ethics & Bioethics, Uppsala universitet.
    Godskesen, Tove E.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences. Centre for Research Ethics & Bioethics, Uppsala University, Sweden.
    Should the deceased be listed as authors?2019In: Journal of Medical Ethics, ISSN 0306-6800, E-ISSN 1473-4257, no 0, p. 1-8Article in journal (Refereed)
    Abstract [en]

    Sometimes participants in research collaborationdie before the paper is accepted for publication. Thequestion we raise in this paper is how authorship shouldbe handled in such situations. First, the outcome of aliterature survey is presented. Taking this as our startingpoint, we then go on to discuss authorship of the deadin relation to the requirements of the Vancouver rules.We argue that in principle the deceased can meet therequirements laid down in these authorship guidelines.However, to include a deceased researcher as authorrequires a strong justification. The more the person has been involved in the research and writing process beforehe or she passes away, the stronger the justification forinclusion.

  • 2152.
    Helin Modeen, Rasmus
    Ersta Sköndal Bräcke University College, Department of Social Sciences.
    Socialsekreterares attityder gentemot våldsutövande män2017Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    This study investigates the social service workers attitudes towards violent men and their attitudes towards working with the target group. The empirical study has both quantitative and qualitative parts. A large part of the result consists of questionnaires from 41 social service workers, all of them working in one way or the other with domestic violence. The survey consists of some background issues, followed by a vignette from which statements have been formulated. The survey ends with two open questions that examine the reason why the social service worker works within the social services as well as their attitudes towards working with violence-enforcing men. Attribution theory was used in the design of the questionnaire and as a tool in the thematization of the survey's statements. Michel Lipsky's theory of street-level bureaucracy is also used to provide a more nuanced picture of the study’s results and to further understand the qualitative empirical part of the study. The study's results indicate, among other things, that there are no clear guidelines for social service workers to follow within the work area, that there is a strong perception among the social service workers that the demand for assistance by perpetrators is low, and that there is a relatively strong willingness to work with the target group, but that such work is performed to a limited extent.

  • 2153.
    Helland, Nina
    Ersta Sköndal University College, Institutionen för omvårdnad.
    Leken som psykiatrisk omvårdnadshandling1999Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 2154.
    Hellberg, Ann-Sofie
    et al.
    Örebro universitet, Handelshögskolan vid Örebro universitet.
    Karlsson, MartinÖrebro universitet, Akademin för humaniora, utbildning och samhällsvetenskap.Larsson, HannuÖrebro universitet, Handelshögskolan vid Örebro universitet.Lundberg, ErikÖrebro universitet, Akademin för humaniora, utbildning och samhällsvetenskap.Persson, MonikaÖrebro universitet, Akademin för humaniora, utbildning och samhällsvetenskap.
    Perspektiv på offentlig verksamhet i utveckling: tolv kapitel om demokrati, styrning och effektivitet2011Collection (editor) (Other academic)
    Abstract [sv]

    Perspektiv på offentlig verksamhet i utveckling - Tolv kapitel om demokrati, styrning och effektivitet samlar texter från doktorander och forskare knutna till Forskarskolan Offentlig verksamhet i utveckling (FOVU) vid Örebro Universitet. Antologin erbjuder en mångdisciplinär och omfångsrik behandling av en rad viktiga utmaningar för dagens offentlig verksamhet. I boken behandlas ämnen som korruption, jämställdhet, trygghet, medborgardialog, sjukskrivning och högerextremism. Målsättningen med boken är att skapa en bro mellan inomvetenskapliga debatter, offentlig praktik och politik. Här erbjuds kortare texter som på ett överskådligt sätt angriper praktikrelevanta ämnen utan att göra avkall på den vetenskapliga kvaliteten. Vissa texter erbjuder forskningsöversikter och reder ut oklarheter i teoretiska debatter, medan andra presenterar resultat av empirisk forskning.

  • 2155.
    Hellberg, Kajsa
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Jonsson, Cecilia
    Ersta Sköndal University College, Department of Health Care Sciences.
    Kvinnors upplevelser av förändrad sexualitet i samband med bröstcancer2008Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 2156.
    Hellerup, Jonas
    et al.
    Ersta Sköndal University College, Department of Social Work.
    Åhman, Maria
    Ersta Sköndal University College, Department of Social Work.
    "Ja, det låter ju jättebra, men verkligheten ser inte ut så!": en studie av förhållandet mellan teori och praktik i det förebyggande arbetet med ADHD/DAMP för barn mellan 0-5 år i Solna stad2007Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 2157.
    Hellgren, Emma
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Mårtensson, Josefin
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Utsatt för sexuellt våld: En litteraturöversikt om kvinnors upplevelser av hälso- och sjukvården2018Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: One of three women worldwide have experienced sexual or physical violence. The violence and the abuse that women face causes serious short- and long-term physical and mental problems for women. Sexual violence is an extensive public health problem. Healthcare meets individuals exposed to sexual violence in various healthcare context and have a significant functions for women. Healthcare need to provide adequate/appropriate care and knowledge is important.

    Aim: The aim of the literature review was to describe how women exposed to sexual violence experience the healthcare.

    Method: A literature review has been conducted. Eleven original scientific articles were selected from databases PubMed and CINAHL Complete. Similarites and differences were identified and analyzed.

    Results: The analysis of healthcare experiences of women suffered from sexual violence  resulted in five themes. These were treament, information, patient participation, the health facility environment and medical care.

    Discussion: Methods and results have been discussed. Parts of the literature review were discussed based on Callista Roys theory of adaptation combined with other literature, previous research and the authors own reflections. Aspects such as secondary victimization, equal healthcare, the importance of adaptation, roles and expectations, stimuli and how to improve patient involvement by information, were highlighted.

  • 2158.
    Hellmark Sörensen, Anna
    Ersta Sköndal University College, Department of Social Sciences.
    Lika rätt för barn: En studie av rättssäkerheten för barn i skyddat boende på ideella kvinnojourer.2012Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    The present study examines how the rule of law is applied and interpreted for children placed outside their home by social services and how the rule of law are interpreted and applied in the case of children placed on non-profit refuges. The study has a sociology of law approach. Methods used in the study are a combination of legal dogmatic and social scientific method. The material consists of texts and one interview. Theories of the rule of law is used to create an understanding of the material (Staaf; Petczenik). The study shows that there are deficiencies in the formal legal rights as well as to the substantive legal rights, that will not be discussed at all. The results of the study shows that there is a gap between the law and its application.

  • 2159.
    Hellron-Pettersen, Liselott
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Johansson, Camilla
    Ersta Sköndal University College, Department of Health Care Sciences.
    Patienters upplevelser av tvång i ett psykiatriskt vårdkontext2004Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 2160. Hellsing, AL
    et al.
    Linton, S
    Andershed, Birgitta
    et, al
    Ergonomic education for nursing students1993In: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 30, no 6, p. 499-510Article in journal (Refereed)
  • 2161.
    Hellsten, Eva
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Rochester, Sandra
    Ersta Sköndal University College, Department of Health Care Sciences.
    Omvårdnadens betydelse för kvinnor med reumatoid artrit: en litteraturstudie med stöd av Barbro Gustafssons SAUK-modell2001Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 2162.
    Hellstrand, Maria
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Huttunen, Miriam
    Ersta Sköndal University College.
    Patienters upplevelser av egenvård vid hjärtsvikt: En litteraturöversikt2016Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Heart failure is a common disease among elderly people in Sweden. The disease affects the patient’s quality of life and requires a change of lifestyle. Self-care is a part of the treatment of heart failure and for the patient to be able to accomplish this requires a commitment and desire to care for himself. The nurse has a central role in patient’s self-care because the patient needs support in their self-care and information about the disease.

    Aim: To describe patients´ experiences of living with heart failure and manage their self-care.

    Method: A literature review

    Results: The result presents in four main themes. The first main theme is the diagnosis of heart failure and consists of two sub themes, to accept their diagnosis and to deny their diagnosis. The main theme two and three are the patients’ experiences of self-care and the patients’ experiences of physical activity. The last and fourth main theme is information and knowledge with two sub themes, is understand the meaning and the role of information.

    Discussion: In the discussion the authors discussed the results from the literature review related to Orems and Erikssons nursing theory, and the consensus concept of health. The authors argued for example for the economy and gender relevant to self-care.

  • 2163.
    Hellström, Björn
    Ersta Sköndal University College, Department of Social Work.
    Barncentrum: tvärprofessionell samverkan kring barn som utsatts för allvarliga brott i nära relationer2007Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 2164.
    Hellström, Ingrid
    Ersta Sköndal University College, Department of palliative care research.
    Dignity and elderly spouses with dementia2009In: Dignity in care for older people / [ed] Lennart Nordenfelt, Chichester: Wiley-Blackwell , 2009, p. 99-116Chapter in book (Other academic)
  • 2165.
    Hellström, Ingrid
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier ; Linköpings universitet, Hälsouniversitetet.
    Exploring 'couplehood' in dementia: a constructivist grounded theory study2005Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

      The overall aim of this thesis is to gain a better understanding how people with dementia and their spouses experience dementia over time, especially the impact it has on their inter-personal relationships and patterns of everyday life. Data were collected using separate semi-structured interviews with 20 persons with dementia and their spouses of 6 monthly intervals over an 18-months period (132 interviews in total), and analysed using constructivist grounded theory.

    Analysis suggested that whilst spouses are aware of and acknowledge the diagnosis of dementia, they do not routinely talk about it but rather the focus of their combined efforts is on making life as meaningful as possible. To do this couples, rather than individuals, actively ‘work together’ to create a ‘nurturative relational context’ in order to sustain the quality of their relationship, and maintain the self-image and sense of agency of the person with dementia.

    In order to create a ‘nurturative relational context’ couples continued to ‘do things together’ for as long as possible by understanding complementary roles underpinned by a mutual appreciation of each others contribution in a way that builds upon the remaining strengths of the person with dementia. Their focus is therefore on ‘couplehood’ as much as ‘personhood’.

    An analysis of the complete data set identified three temporally sequenced but overlapping phases of the experience of couplehood termed ‘sustaining couplehood’, ‘maintaining involvement’, and ‘becoming alone’. ‘Sustaining couplehood’ had the primary goal of ensuring that the spuses’ ‘work’. This involved four interrelated sets of activities: talking things through, in order to ensure good communication and acknowledge and value differences; being affectionate and appreciative by demonstrating continued attractiveness to their spouse; making the most of things by enjoying everyday pleasures, looking for positive interpretations of events and focussing on the present (living for today); and finally, keeping the peace by being aware of potential points of friction and not responding to difficult behaviour. Both the person with dementia and the non-affected spouse were active strategies in the above process.

    In addition both spouses worked to ‘maintain the involvement’ of the person with dementia by ensuring that they had an active role to play. However, despite their efforts, eventually the non-affected spouse took on an increasing role and this occurred in a number of ways, either by the person with dementia consciously ‘handing over’ responsibility or more passively ‘letting go’, or by the non-affected spouse ‘taking over’.

    ‘Sustaining couplehood’ and ‘maintaining involvement’ often occurred simultaneously but the relative emphasis changed over time as ‘sustaining couplehood’ became more difficult and increasing effort was expended in ‘maintaining involvement’. As this occurred the data suggested that the non-affected spouse became increasingly ‘alone’ as the dementia progressed. This process has yet to be fully explored, however, it is clear that for spouses a complete understanding of the dementia experience is not possible without consideration of ‘couplehood’.

  • 2166.
    Hellström, Ingrid
    Ersta Sköndal University College, Department of Health Care Sciences. Linköpings universitet.
    Vardag och samspel hemma eller på hemmet2016In: Att leva med demens / [ed] Hellström Ingrid & Hydén, Lars-Christer, Malmö: Gleerups Utbildning AB, 2016, p. 51-54Chapter in book (Other academic)
  • 2167.
    Hellström, Ingrid
    Ersta Sköndal University College, Department of palliative care research.
    Värdighet och äldre makar med demens2010In: Värdighet i vården av äldre personer / [ed] Lennart Nordenfelt, Lund: Studentlitteratur , 2010, 1, p. 169-196Chapter in book (Other academic)
  • 2168.
    Hellström, Ingrid
    et al.
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Carlander (Goliath), Ida
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Närstående i hemsjukvården2010In: Hemsjukvård / [ed] Eva Drevenhorn, Lund: Studentlitteratur , 2010, 1:1, p. 75-90Chapter in book (Other academic)
  • 2169.
    Hellström, Ingrid
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences. Linköpings universitet.
    Hydén, Lars-ChristerLinköpings universitet.
    Att leva med demens2016Collection (editor) (Other academic)
    Abstract [sv]

    För att personer med demenssjukdom ska kunna leva ett fullgott liv behövs mer kunskap. I grunden handlar det om att förändra föreställningar och attityder till personer som lever med en demenssjukdom så att personerna själva, deras anhöriga och personal inom hälso- och sjukvården och politiker, kan se nya möjligheter i stället för enbart förluster. I den här boken presenteras kunskap och forskning som sätter personer med demenssjukdom i centrum. Boken utgår alltså inte i första hand från vården eller anhöriga, utan från dem som lever med sjukdomen. På så sätt skapas en tankeram som ger stöd vid både utvecklingsarbete och reflektion bland människor som på olika sätt arbetar med och för personer med demenssjukdom.

    Cirka 110 000 och 170 000 svenskar har i dag en demenssjukdom. Om ett tiotal år är det betydligt fler: ökad livslängd och en större medvetenhet om demenssjukdomar gör att allt fler personer får en diagnos tidigt i förloppet. Som en konsekvens av detta kommer alltfler personer att leva med en demenssjukdom under lång tid, och ofta i hemmet. Detta innebär inte bara en utmaning för vård, omsorg och socialpolitik, utan väcker också frågor som berör såväl personer med demens, som anhöriga och andra i det sociala nätverket: Hur kan personer med demens leva och fungera i sitt hem tillsammans med eventuella familjemedlemmar? Hur kan de fungera som medborgare och delta i samhällslivet, ha makt över sitt eget vardagsliv och fatta egna beslut om sitt eget liv?

    I boken medverkar forskare från Centrum för demensforskning (CEDER) vid Linköpings universitet. Den innehåller många pedagogiska exempel och riktar sig till utbildningar inom vård, omvårdnad, socialt arbete och omsorg.

  • 2170.
    Hellström, Ingrid
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Linköpings universitet.
    Håkanson, Cecilia
    Ersta Sköndal University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska institutet.
    Eriksson, Henrik
    Röda korsets högskola.
    Sandberg, Jonas
    Jönköpings universitet.
    Development of older men's caregiving roles for wives with dementia.2017In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 31, no 4, p. 957-964Article in journal (Refereed)
    Abstract [en]

    This secondary analysis of qualitative interviews describes how older Swedish men approach the caregiver role for a wife with dementia, over time. An increasing number of male caregivers will become primary caregivers for partners living with dementia at home, and they will likely be caregivers for an extended period of time. It has been stated that caregiving experiences influence how older men think of themselves. The theoretical starting point is a constructivist position, offering an understanding of older caregiving men's constructions and reconstructions of themselves and their caregiver roles. Seven men, who were cohabiting with their wives, were interviewed on up to five occasions at home during a 5- to 6-year period. The findings comprise three themes; me and it, me despite it, it is me, depict how these men gradually take on and normalise the caregiving tasks, and how they develop and internalise a language based on their caring activities. The results provide understanding about the relationship between men as caregivers and how this influences them as individuals. By careful attention to each caregiving man's individual needs rather than making gendered assumptions about men and caring, the aim of the caregiver support for men might best target men's own meaning to the caring in their the everyday practices.

  • 2171.
    Hellström, Ingrid
    et al.
    Ersta Sköndal University College, Department of palliative care research.
    Lundh, Ulla
    Livet med demenssjukdom på äldre dagar2007In: Hemmets vårdetik: om vård av äldre i livets slutskede / [ed] Gunilla Silfverberg, Lund: Studentlitteratur , 2007, 1, p. 91-107Chapter in book (Other academic)
  • 2172.
    Hellström, Ingrid
    et al.
    Ersta Sköndal University College, Department of palliative care research.
    Nolan, M
    Time together2009In: Time for Dementia / [ed] Jane Gilliard and Mary Marshall, London: Hawker Publications , 2009Chapter in book (Other academic)
  • 2173.
    Hellström, Ingrid
    et al.
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier ; Linköpings universitet, Hälsouniversitetet.
    Nolan, Mike
    University of Sheffield, UK.
    Lundh, Ulla
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier ; Linköpings universitet, Hälsouniversitetet.
    Awareness context theory and the dynamics of dementia: Improving understanding using emergent fit2005In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 4, no 2, p. 269-295Article in journal (Refereed)
    Abstract [en]

    This article presents the initial results of an ongoing constructivistgrounded theory study (Charmaz, 2000) exploringthe impact of dementia on the everyday life and relationships of older spousal couples. Using a processof ‘emergent fit’ (Glaser, 1978)and drawing upon data from 74 interviews with 20 spouse couples living with dementia, it considers the relevanceof ‘awareness context theory’ (Glaser& Strauss, 1965) and the ‘dynamicsof dementia’ (Keady, 1999) to an understanding of interpersonal relationships among spouses. The combinationof existing literature and new data providefurther insights into how couples actively work to ‘construct’ awareness in a way that, forthe majority, maintains both a sense of ‘self’for the person with dementia (PWD) and the integrityof the relationship between couples. It is suggested that a‘mutual acknowledgement’ of thediagnosis and a subsequent focus on maintaininga meaningful life in the present combine to create a ‘nurturative relational context’ in whichliving with dementia unfolds.

  • 2174.
    Hellström, Ingrid
    et al.
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier Linköpings universitet, Hälsouniversitetet.
    Nolan, Mike
    University of Sheffield, UK.
    Lundh, Ulla
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier ; Linköpings universitet, Hälsouniversitetet.
    Sustaining 'couplehood': spouses' strategies for living positively with dementia2007In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 6, no 3, p. 383-409Article in journal (Refereed)
    Abstract [en]

    This article explores the strategies that spouses use in orderto live positively when one partner has dementia. Data werecollected from 152 interviews with 20 couples conducted overa period of five years. Using a constructivist grounded theorymethodology, data were analysed to capture the main processesinvolved and charted how these changed over time. Three mainphases were identified termed: `sustaining couplehood'; `maintaininginvolvement'; and `moving on', that operated in an iterativerather than linear fashion. The data highlight the very activerole played by both partners, especially in the early stagesof the disease, as they strive to maintain the quality and closenessof their relationship by creating what we term a `nurturativerelational context'. The diverse strategies that the couplesadopt are presented, and the gradual way in which the personwith dementia `hands over' or `let's go' of responsibility totheir partner is described. The article provides several newinsights into the nature of spousal relationships in dementiaand the ways in which they seek to maximize their quality oflife, and, wherever possible, sustain couplehood.

  • 2175.
    Hellström, Ingrid
    et al.
    Linköpings universitet.
    Nolan, Mike
    University of Sheffield, UK.
    Lundh, Ulla
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier ; Linköpings universitet, Hälsouniversitetet.
    We do things together: A case study of couplehood2005In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 4, no 1, p. 7-22Article in journal (Refereed)
    Abstract [en]

    The value of the single case study is well established in dementiacare with the seminal contributions of Alzheimerand Kitwood being based on the study of individuals.This article presents a case study of an elderly married coupleliving with dementia and explores how theirrelationship has continued to flourish. In drawingon their story we highlight ways in which both partners seekto ‘maintain involvement’ of theperson with dementia (PWD) (Keady, 1999), andconsider the various types of ‘work’ that is required. We suggest that whilst the ‘personhood’of the PWD as an individual has received muchrecent attention, a consideration of ‘couplehood’is also essential to a full understanding of how spouses live with and respond to the impact of dementia.

  • 2176.
    Hellström, Ingrid
    et al.
    Linköpings universitet.
    Nolan, Mike
    University of Sheffield, Sheffield, UK.
    Nordenfelt, Lennart
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Lundh, Ulla
    Linköpings universitet, Institutionen för samhälls- och välfärdsstudier ; Linköpings universitet, Hälsouniversitetet.
    Ethical and methodological issues in interviewing persons with dementia2007In: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 14, no 5, p. 608-619Article in journal (Refereed)
    Abstract [en]

    People with dementia have previously not been active participantsin research, with ethical difficulties often being cited asthe reason for this. A wider inclusion of people with dementiain research raises several ethical and methodological challenges.This article adds to the emerging debate by reflecting on theethical and methodological issues raised during an interviewstudy involving people with dementia and their spouses. Thestudy sought to explore the impact of living with dementia.We argue that there is support for the inclusion of people withdementia in research and that the benefits of participationusually far outweigh the risks, particularly when a `safe context'has been created. The role of gatekeepers as potentially responsiblefor excluding people with dementia needs further consideration,with particular reference to the appropriateness of viewingconsent as a primarily cognitive, universalistic and exclusionaryevent as opposed to a more particularistic, inclusive and contextrelevant process.

  • 2177.
    Hellström, Jessica
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Larsson, Therese
    Ersta Sköndal University College, Department of Health Care Sciences.
    Sjuksköterskans attityd i förhållande till suicidnära patienter inom somatisk vård: En litteraturöversikt2016Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Suicide is a global public health problem and in year 2014 it was 790 000 individuals that committed suicide. Suicide is one of the twenty most common reasons that citizens in the world die of. In Sweden, 2014, fifteen hundred individuals committed suicide. Over nine thousand patients in Sweden is hospitalized every year for deliberated self-harm, in which attempted suicide are included. Patients has experienced that nurses’ attitudes have an impact on their care when hospitalized after an attempted suicide. 

    Aim: The aim was to explore nurses’ attitudes towards suicidal patients within somatic care.

    Method: This literature review was conducted in accordance to Friberg. Ten scientific articles were included and has been analyzed to constitute the result.

    Results: Nurses’ attitudes towards suicidal patients was in general mostly negative. Several explanations were found for nurses’ attitudes; nurses’ valuation system, nurses’ age, experience of caring for suicidal patients and nurses’ educational background. The longer education nurses’ had the more positive were they in their attitude towards suicidal patients. Absence of experience contributed to a more negative attitude. Attitudes of nurses were more negative if they were older than 45 years.

    Discussion: The result of this literature review has been discussed from Paterson and Zderads’ humanistic nursing theory which includes the "Me-you relationship." Based on the human encounter between two individuals and that highlights how important it is not to see the inquisition of the patient.  The nurse-patient relationship requires an open dialogue in which the patient is given space to talk about their life-world and express their feelings, desires and will.

  • 2178.
    Hellström, Linda
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Lavenius, Caroline
    Ersta Sköndal University College, Department of Health Care Sciences.
    Massage som en omvårdnadshandling för cancerpatienter2005Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 2179. Hellström, Olle
    et al.
    Bullington, Jennifer
    Linköpings universitet.
    Karlsson, Gunnar
    Lindqvist, Per
    Mattsson, Bengt
    A phenomenological study of fibromyalgia: patient perspectives1999In: Scandinavian Journal of Primary Health Care, ISSN 0281-3432, E-ISSN 1502-7724, Vol. 17, no 1, p. 11-16Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: To describe the way in which the fibromyalgia patients understand the meaning of their illness. DESIGN: Qualitative, empirical phenomenological psychological method. SETTING: A collaborative transdisciplinary interview study of patients' described experiences of living with fibromyalgia. No therapeutic relationships existed between patients and researchers. SUBJECTS: Eighteen patients with fibromyalgia were interviewed. Ten of the 18 taped interviews were transcribed and analysed. MAIN OUTCOME MEASURES: Patients' narratives, described experiences of living with fibromyalgia. RESULTS: The patients were intensively involved in efforts to get their self-images as ill persons confirmed. Their experience was that the disease started dramatically, with a variety of capriciously appearing symptoms of unknown cause that gave rise to the suffering. The fibromyalgia patients seemed to develop strategies to cope with a precarious self-image and find ways to manage the thought of what the future would bring. CONCLUSION: The meaning structures revealed in the patients' ways of describing their experiences of living with fibromyalgia seemed to be partially constituted by their efforts to stand forth as afflicted with a disease, which could be a way to help them to manage the demands that they placed upon themselves.

  • 2180. Hellström, Olle
    et al.
    Bullington, Jennifer
    Linköpings universitet.
    Karlsson, Gunnar
    Lindqvist, Per
    Mattsson, Bengt
    Doctors' attitudes to fibromyalgia: a phenomenological study1998In: Scandinavian journal of social medicine, ISSN 0300-8037, Vol. 26, no 3, p. 232-237Article in journal (Refereed)
    Abstract [en]

    Besides specific technical skills, successful encounters with patients require an understanding of the many ways in which patients may express themselves. This qualitative study reports on the clinical experiences of doctors when meeting patients with fibromyalgia (FM). Ten strategically chosen rheumatologists and 10 GPs in central Sweden were interviewed. The interviews were taped, transcribed and analysed in accordance with the empirical, phenomenological, psychological method. The analyses indicate that doctors try to comply with the wishes and demands of patients, and at the same time avoid perceptions of personal frustration. They are inclined to be objective and to act instrumentally, apparently in order to keep in touch with what gave biomedical meaning to an otherwise incomprehensible phenomenon. The meaning structures revealed by doctors' descriptions of FM and of relating to FM patients were characterized mainly by the way in which the doctors were (i) managing their clinical uncertainty, (ii) adhering to the biomedical paradigm, (iii) prioritizing diagnostics, (iv) establishing an instrumental relationship, and (v) avoiding recognizing FM as a possible biomedical anomaly.

  • 2181.
    Hellzen, Ove
    et al.
    Mitthögskolan.
    Asplund, Kenneth
    Mitthögskolan.
    Sandman, Per-Olof
    Umeå universitet.
    Norberg, Astrid
    Umeå universitet.
    The meaning of caring as described by nurses caring for a person who acts provokingly: an interview study.2004In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 18, no 1, p. 3-11Article in journal (Refereed)
    Abstract [en]

    Nurses working with people with learning disabilities are sometimes exposed to provoking behaviour such as unpredictable and violent actions, spitting and sexual harassment. Eight nurses at a group dwelling in Sweden were interviewed about their experiences when caring for a person who acts provokingly. Narrative interviews were conducted and interpreted using a method inspired by Ricoeur. Three themes were formulated which describe nurses' feelings of being tormented, disrupted and helpless. Nurses describe themselves as being deeply humiliated by physical violence, spittle, sexual invective and actions on the part of the patient. They respond more to being spat on and the sexual invective than to the patient's physical violence. The frequent humiliations could be seen as a symbolic language connected to defilement and 'evil' and therefore as having a deep symbolic meaning for the nurses. These results were interpreted and reflected on in the light of a theoretical framework from an affliction perspective in order to achieve a deeper understanding of the text. This paper shows that an affliction perspective is important when searching for the meaning of caring for a patient who acts provokingly. The study indicates that the goal in a provoking care situation must be to see the provoking patient, as he appears to the nurses in order to glimpse the goodness concealed behind the provoking facade.

  • 2182.
    Hellzén, Ove
    et al.
    Mittuniversitetet.
    Asplund, Kenneth
    Umeå universitet.
    Being in a fragmented and isolated world: Iinterviews with carers working with a person with severely autistic disorder2002In: Journal of Advanced Nursing, ISSN 0309-2402, E-ISSN 1365-2648, Vol. 37, no 4, p. 346-354Article in journal (Refereed)
    Abstract [en]

    Aim: To illuminate the meaning of being a carer for a person having a severe autistic disorder. Background: Carers working with people with severe autim are occasionally exposed to residents’ self-injurious behaviours and violent actions and at time residents appear resistant to all forms of treatment. Design/Method: A qualitative case study was conducted. Six Swedish carers (ENs), working at a special ward on a nursing home were interviewed about their lived experiences when caring for an individual having a severe autistic disorder. Narrative interviews were conducted and interpreted using a phenomenological-hermeneutic method inspired by Paul Ricoeur. Findings: Two themes were formulated which describe the carers’ reality and their dream of an ideal, which described carers’ experiences of being trapped in a segmented and isolated care reality and thier longing to achieve a sense of wholeness. The findings were interpreted and reflected on in the light of a framework inspired by the German philosopher Karl Jaspers in order to achieve a deeper understanding of the text. Concusions: In their desperation the carers used their empirical knowledge based on scientific knowledge, which could be understood as a substitute for their vision of a consolating wholeness. This paper shows that searching for a substitute to consolation seems to be an important aspect of the meaning of being a carer for a person with severe autistic disorder.

  • 2183.
    Hellzén, Ove
    et al.
    Mittuniversitetet.
    Asplund, Kenneth
    Mittuniversitetet.
    Nurses' narratives about their residents when caring for people with long-term mental illness in municipal group dwellings2006In: International Journal of Mental Health Nursing, ISSN 1445-8330, E-ISSN 1447-0349, Vol. 15, no 1, p. 60-69Article in journal (Refereed)
    Abstract [en]

    Nurses working in community psychiatric care are expected to spend time with the residents, in a genuine, professional way, irrespective of their own feelings towards them. Fourteen nurses at two group dwellings in Sweden were interviewed about their experiences when caring for people with long-term mental illness. Narrative interviews were conducted and interpreted using a method inspired by Ricoeur. The analyses were performed in two steps: the first shows that residents could be divided into four different typologies or patterns--the good, the disabled, the invisible, and the bad residents, of which the nurses liked the first two and disliked the last two. In the second analysis, two themes were formulated to describe the nurses' experiences of 'replenishing one's self-worth and self-esteem' and 'giving up the caring role'. These results were interpreted and reflected on in the light of a theoretical framework in order to obtain a deeper understanding of the text. The study indicates that the question of whether nurses liked or disliked the residents appears to be closely related to whether or not the individual resident confirmed the nurse. Residents who confirmed nurses were liked and given attention, whereas those who did not were disliked and given a minimum of time together with the nurse.

  • 2184.
    Hellzén, Ove
    et al.
    Mittuniversitetet & Umeå universitet.
    Asplund, Kenneth
    Mittuniversitetet & University of Tromsø, Norway.
    Gilje, Fredricka
    Umeå universitet & University of North Dakota, Grand Forks, ND, USA.
    Sandman, Per-Olof
    Umeå universitet.
    Norbergh, Astrid
    Umeå universitet.
    From optimism to pessimism: A case study of a psychiatric patient1998In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 7, no 4, p. 360-370Article in journal (Refereed)
    Abstract [en]

    This article focuses on the results of a single case study which illuminates an understanding of phases in nursing care for a patient in a psychiatric setting in Sweden. The focus of this study is a fifty year old man who showed progressive deterioration from increased motor activity to oral, sexual, destructive and aggressive actions. The data collection using five methods occurred during a 21 months period. Results of the content analyses processes identified four distinct but indiscreet phases of the patient’s complex condition. The medical and nursing care was categorised in three approaches: optimistic, strategic and resigned. The results raise the question whether there is action that is without any meaning as an expression of the patient´s wishes, thoughts and feelings. It seems clear that the patient in this study felt really angry and in despair. However, during moments of lucidity, he also indicated that he felt this was not an authentic expression of his "real" self. His experience was that of a splintered world.

  • 2185.
    Hellzén, Ove
    et al.
    Mittuniversitetet, Institutionen för hälsovetenskap.
    Asplund, Kenneth
    Mittuniversitetet, Institutionen för hälsovetenskap.
    Sandman, Per-Olof
    Umeå universitet.
    Norberg, Astrid
    Umeå universitet.
    Unwillingness to be violated: Carers' experiences of caring for a person acting in a disturbing manner. An interview study1999In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 8, no 6, p. 653-662Article in journal (Refereed)
    Abstract [en]

    Carers working in psychiatric care are sometimes exposed to insane, unpredictable and violent actions. In rare cases a patient appears to be resistant to all forms of pharmacological treatment. · Fifteen carers (4 RNs, 11 ENs) on a psychiatric ward in Sweden were interviewed about their experiences when caring for a person who acted in a disturbing manner. Narrative interviews were conducted and interpreted using a method inspired by Ricoeur. · Four themes were formulated which describe the carers’ uncertainty about the future, their inability to interpret the patient’s disturbing behaviour and their own overall feeling of meaninglessness. · Carers believed that the patient had power and ruled the ward, which led to them feeling they were subjugated victims. Interviews also revealed the carers’ recognition of forbidden feelings and actions and own unknown negative sides. · These results were interpreted and reflected on in the light of an ethical framework in order to achieve a deeper understanding of the text. · This paper shows that an ethical perspective is important when searching for the meaning of caring for patients acting in a disturbing manner. The study raises the question: ‘Is it possible to establish good when evil has dominion?

  • 2186.
    Hellzén, Ove
    et al.
    Mittuniversitetet.
    Kristiansen, Lisbeth
    Mittuniversitetet.
    Asplund, Kenneth
    Mittuniversitetet.
    En studie i kvantitetssäkring av omvårdnad: En möjlig metod att fokusera kvaliteten?2003In: Incitament : för en hälso- & sjukvård i förvandling, ISSN 1103-503X, Vol. 12, no 7, p. 638-640Article in journal (Other academic)
  • 2187.
    Hembold, Vivi
    Ersta Sköndal University College, Department of Social Work. Ersta Sköndal University College, Sköndalsinstitutet.
    Ungdomar och självmord: bakomliggande orsaker, utlösande faktorer och preventivt arbete2000Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 2188.
    Hendar, Karin
    Ersta Sköndal University College, Department of Health Care Sciences, St Lukas Educational Institute.
    Våld i nära relationer: Fem kvinnors upplevelser och erfarenheter av längre samtalskontakt2016Independent thesis Advanced level (professional degree), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Introduction: Intimate partner violence is a global health problem in today’s society, which affects women, men and children. Ultimately, it is the responsibility of the local council to provide victims of violence with sufficient help and support. This study focuses on the women’s situation and strives to make their voices heard when it comes to what help should be provided. The objective of this study has been to research how women subjected to violence, have experienced extended counselling. 

    Research questions: How is extended counselling experienced by women who have been subject to intimate partner violence? What part of the counselling have they found helpful? What do they miss?

    Method: Five women, who have been subjected to intimate partner violence and who have completed extended counselling, were interviewed. The study has a qualitative and hermeneutic approach and has been processed using a thematic method of analysis.

    Results: The results of the study show that it is important for the women to be able to discuss all aspects of their lives, not just the violence aspects. The results also stress that it is important that the therapist is experienced in the field of intimate partner violence and is used to meeting women who have been subjected to violence. The women must be given enough time and space to process potentially traumatic experiences and there has to be an understanding that feelings of shame can make the story harder to tell. The interviewed women partly lacked the opportunity to talk more about shame during the treatment and also wanted repeated information on the likely extent of the treatment period.

    Discussion: This group of patients exposed to violence might require more extensive counselling, which should include processing the feelings of shame, and the framework for the treatment should be made clear. The women’s efforts in creating a new life story are facilitated through a trusting cooperation. The impression that the counselling provides improved self-esteem and security is stressed, whilst accepting what has happened, to some extent, without accepting the violence per se.

  • 2189.
    Henoch, I
    et al.
    Göteborgs universitet.
    Danielson, E
    Göteborgs universitet.
    Strang, S
    Göteborgs universitet.
    Browall, M
    Högskolan i Skövde.
    Melin-Johansson4, Christina
    Mittuniversitetet.
    Patients', family members' and healthcare staffs' opinions about existential issues as a base for an educational intervention2011In: BMJ Supportive & Palliative Care, ISSN 2045-435X, E-ISSN 2045-4368, Vol. 1, no 1, article id 62Article in journal (Refereed)
    Abstract [en]

    Objective To explore patients', family members' and healthcare staff's opinions about existential issues important to patients with cancer and their relatives.

    Methods Two integrative literature reviews were conducted about existential issues among cancer patients and relatives, and interventions to meet these issues. Four focus groups were conducted with healthcare staff working with cancer patients at different stages about patients' existential issues, and staff's responsibility when existential issues are raised.

    Results In the patient review, existential issues were divided into two themes: struggle to maintain self-identity and threats to self-identity. Relatives' existential issues concerned living both in and beyond the presence of death, with reminders of death, compelling them to respond to life close to death and seek support. Few interventions directed to patients or relatives applicable to everyday healthcare practice were found. Focus groups with staff revealed four categories of patients' existential issues, life and death, meaning, freedom of choice, relationships and solitude. According to staff, their responsibility concerned achieving an encounter with the patient.

    Conclusion Results from three studies are congruent in that, patients, relatives and staff agree, although in different ways, about the importance of existential issues to patients and relatives. Healthcare staff was aware of the importance of existential issues and are to some extent confident about how to act when these issues are raised by the patients.

    Ongoing studies The project group now continues implementing findings from these studies in an educational intervention to healthcare staff in different settings, and planning interventions to patients and relatives.

  • 2190. Henoch, I
    et al.
    Jakobsson Ung, E
    Ozanne, A
    Falk, H
    Falk, K
    Kenne Sarenmalm, Elisabeth
    Öhlén, Joakim
    Ersta Sköndal University College, Palliative Reserch Centre, PRC.
    Fridh, I
    Nursing students' experiences of involvement in clinical research: An exploratory study2013In: Nurse Education in Practice, ISSN 1471-5953, E-ISSN 1873-5223Article in journal (Refereed)
  • 2191. Henoch, Ingela
    et al.
    Browall, Maria
    Melin-Johansson, Christina
    Mittuniversitetet.
    Danielson, Ella
    Udo, Camilla
    Johansson Sundler, Annelie
    Björk, Maria
    Ek, Kristina
    Hammarlund, Kina
    Bergh, Ingrid
    Strang, Susann
    The Swedish version of the Frommelt Attitude Toward Care of the Dying scale: aspects of validity and factors influencing nurses' and nursing students' attitudes.2014In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 37, no 1, p. E1-11Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Nurses' attitudes toward caring for dying persons need to be explored. The Frommelt Attitude Toward Care of the Dying (FATCOD) scale has not previously been used in Swedish language.

    OBJECTIVES: The objectives of this study were to compare FATCOD scores among Swedish nurses and nursing students with those from other languages, to explore the existence of 2 subscales, and to evaluate influences of experiences on attitudes toward care of dying patients.

    METHODS: A descriptive, cross-sectional, and predictive design was used. The FATCOD scores of Swedish nurses from hospice, oncology, surgery clinics, and palliative home care and nursing students were compared with published scores from the United States, Israel, and Japan. Descriptive statistics, t tests, and factor and regression analyses were used.

    RESULTS: The sample consisted of 213 persons: 71 registered nurses, 42 enrolled nurses, and 100 nursing students. Swedish FATCOD mean scores did not differ from published means from the United States and Israel, but were significantly more positive than Japanese means. In line with Japanese studies, factor analyses yielded a 2-factor solution. Total FATCOD and subscales had low Cronbach α's. Hospice and palliative team nurses were more positive than oncology and surgery nurses to care for dying patients.

    CONCLUSIONS: Although our results suggest that the Swedish FATCOD may comprise 2 distinct scales, the total scale may be the most adequate and applicable for use in Sweden. Professional experience was associated with nurses' attitudes toward caring for dying patients.

    IMPLICATION FOR PRACTICE: Care culture might influence nurses' attitudes toward caring for dying patients; the benefits of education need to be explored.

  • 2192.
    Henoch, Ingela
    et al.
    Göteborgs universitet.
    Carlander, Ida
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska institutet.
    Holm, Maja
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska institutet.
    James, Inger
    Örebro universitet.
    Sarenmalm, Elisabeth Kenne
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Skaraborgs sjukhus.
    Hagelin, Carina Lundh
    Karolinska institutet, Sophiahemmet högskola, Stockholms sjukhem.
    Lind, Susanne
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska institutet.
    Sandgren, Anna
    Jönköping university, Linnéuniversitetet.
    Öhlén, Joakim
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Göteborgs universitet.
    Palliative Care Research: A Systematic Review of foci, designs and methods of research conducted in Sweden between 2007 and 2012.2016In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 30, no 1, p. 5-25Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: In 2007, a literature review was undertaken of palliative care research from Sweden during the 1970s-2006, paving the way for a follow-up study to explore the recent developments. The aim was to systematically examine palliative care research from Sweden between 2007 and 2012, with special attention to methods, designs and research foci.

    METHODS: A literature review was undertaken. The databases Academic search elite, Age line, Ahmed, Cinahl, PsychInfo, PubMed, Scopus, Soc abstracts, Web of science and Libris were reviewed for Swedish palliative care research studies published from 2007 to 2012, applying the search criteria 'palliative care OR palliative medicine OR end-of-life care OR terminal care OR hospice care OR dying OR death'.

    RESULTS: A total of 263 papers met the inclusion criteria, indicating an increased volume of research compared to the 133 articles identified in the previous review. Common study foci were symptom assessment and management, experiences of illness and care planning. Targeting non-cancer-specific populations and utilisation of population-based register studies were identified as new features. There was continued domination of cross-sectional, qualitative and mono-disciplinary studies, not including ethnic minority groups, nonverbally communicable people or children <18 years of age.

    CONCLUSIONS: The trend is that Swedish palliative care research has expanded in volume from 2007 to 2012 compared to during the 1970s to 2006, with increasing participation of non-cancer-specific populations. A domination of qualitative approaches and small, cross-sectional studies with few interventions is still characteristic. Still more strategies are needed to expand the knowledge development of palliative care to respond to demographical, epidemiological, therapeutic and healthcare structure changes.

  • 2193. Henoch, Ingela
    et al.
    Danielson, Ella
    Strang, Susann
    Browall, Maria
    Melin-Johansson, Christina
    Göteborgs universitet.
    Training intervention for health care staff in the provision of existential support to patients with cancer: a randomized, controlled study.2013In: Journal of Pain and Symptom Management, ISSN 0885-3924, E-ISSN 1873-6513, Vol. 46, no 6, p. 785-94, article id S0885-3924(13)00190-5Article in journal (Refereed)
    Abstract [en]

    CONTEXT: When a patient receives a cancer diagnosis, existential issues become more compelling. Throughout the illness trajectory, patients with cancer are cared for in oncology wards, by home care teams or in hospices. Nurses working with these patients are sometimes aware of the patients' existential needs but do not feel confident when discussing these issues.

    OBJECTIVES: To determine the effects of a training intervention, where the focus is on existential issues and nurses' perceived confidence in communication and their attitude toward caring for dying patients.

    METHODS: This was a randomized, controlled trial with a training intervention comprising theoretical training in existential issues combined with individual and group reflection. In total, 102 nurses in oncology and hospice wards and in palliative home care teams were randomized to a training or non-training group. Primary outcomes, confidence in communication, and attitude toward the care of dying patients were measured at baseline, immediately after the training, and five to six months later.

    RESULTS: Confidence in communication improved significantly in the training group from baseline (before the training) to both the first and second follow-up, that is, immediately after the training and five months later. The attitude toward caring for the dying did not improve in the training group.

    CONCLUSION: This study shows that short-term training with reflection improves the confidence of health care staff when communicating, which is important for health care managers with limited resources. Further studies are needed to explore how patients experience the communication skills of health care staff after such training.

  • 2194.
    Henoch, Ingela
    et al.
    Göteborgs universitet.
    Lövgren, Malin
    Högskolan Dalarna.
    The influence of symptom clusters and the most distressing concerns regarding quality of life among patients with inoperable lung cancer.2014In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 18, no 3, p. 236-241Article in journal (Refereed)
    Abstract [en]

    PURPOSE: To explore the influence of symptom clusters and the most distressing concerns on global rating of quality of life (QoL) among patients with inoperable lung cancer (LC) over a three-month period following diagnosis.

    METHODS: Data were derived from a longitudinal study dealing with the symptom experiences of 400 patients with LC at three time points: close to diagnosis and one and three months later. The symptom clusters were derived from a QoL questionnaire using factor analysis, which resulted in three clusters: the Respiratory cluster, the Pain cluster and the Mood cluster. The most distressing concerns were derived from responses to a free listing question ('What is most distressing at present') and were categorised under three dimensions: Bodily distress, Life situation with LC and Iatrogenic distress. Cross-sectional, multivariate regression analyses with QoL as a dependent variable were used to determine predictors (symptom clusters and most distressing concerns) at the three time points.

    RESULTS: All three symptom clusters predicted QoL at each time point. Close to diagnosis, none of the dimensions of most distressing concerns predicted QoL, while the dimension Bodily distress was a significant predictor of QoL after one month. The Life situation with LC dimension was a significant predictor of QoL three months after diagnosis.

    CONCLUSIONS: Symptom clusters are important to LC patients' QoL and need to be acknowledged by healthcare professionals. The present study shows the importance of patients' descriptions of key concerns, which vary from diagnosis onwards, and urges healthcare professionals to be vigilant to such changes.

  • 2195.
    Henoch, Ingela
    et al.
    Karolinska Institutet, Göteborgs universitet, Bräcke Diakoni, Göteborg.
    Lövgren, Malin
    Högskolan Dalarna, Stockholms Sjukhem.
    Wilde-Larsson, Bodil
    Karlstad universitet, Hedmark University College, Norge.
    Tishelman, Carol
    Karolinska Institutet, Stockholms Sjukhem.
    Perception of quality of care: Comparison of the views of patients' with lung cancer and their family members.2012In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 21, no 3-4, p. 585-594Article in journal (Refereed)
    Abstract [en]

    AIMS AND OBJECTIVES: To explore potential differences within dyads of patients' with lung cancer and family members' judgment of different aspects of quality of care and relationships between quality of care and personal and health-related characteristics.

    BACKGROUND: High quality of care is important for acceptable quality of life in patients in palliative care. If patients are unable to participate in quality of care assessments or decision-making, family members might often act as proxies, despite the complicated nature of their own situation.

    DESIGN: Cross-sectional survey design.

    METHOD: A patient and family member version of the abbreviated questionnaire Quality from Patients' Perspective, with additional items about perceived health and opinions about care, was mailed to members of the Swedish lung cancer Patient Organisation. Wilcoxon's signed rank test was used to identify potential differences within 51 patient-family member dyads' quality of care ratings. Relationships between Quality from Patients' Perspective dimensions and demographic and health-related variables were examined with Spearman's correlations.

    RESULTS: Patient-family member dyads had high levels of agreement in ratings of perceived reality of quality of care. Family members generally rated the subjective importance of individual items higher than did the patient in the dyad, with significant difference in the dimension 'socio-cultural approach'. Older patients were found to rate the physical-technical conditions higher than younger patients, in relation to perceived reality but not subjective importance. Women family members were found to rate the subjective importance of medical-technical competence, identity-oriented approach and socio-cultural approach significantly higher than men did.

    CONCLUSIONS: Patients with lung cancer and their family members agree in ratings of the perceived reality, but they differ more in ratings of the subjective importance of quality of care. When patients are unable to communicate their preferences, family members' opinions could be used as proxies concerning concrete aspects of quality of care. Concerning more subjective aspects, family members' ratings should be interpreted with precaution, as it could diverge from patients' own opinion.

    RELEVANCE TO CLINICAL PRACTICE: The perceptions of the importance of different aspects of quality of care were less related to health status than were judgments of quality of care received. This might suggest that the care patients received fulfilled neither the patients' nor family members' expectations, which is an important message to healthcare professionals and which would demand further exploration.

  • 2196.
    Henoch, Ingela
    et al.
    Göteborgs universitet, Angereds närsjukhus.
    Melin-Johansson, Christina
    Göteborgs universitet, Mittuniversitetet.
    Bergh, Ingrid
    Högskolan i Skövde.
    Strang, Susann
    Göteborgs universitet, Angereds närsjukhus.
    Ek, Kristina
    Högskolan i Skövde.
    Hammarlund, Kina
    Högskolan i Skövde.
    Lundh Hagelin, Carina
    Sophiahemmets högskola, Stockholms sjukhem, Karolinska institutet.
    Westin, Lars
    Högskolan i Skövde.
    Österlind, Jane
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Ersta sjukhus.
    Browall, Maria
    Högskolan i Skövde, Karolinska institutet.
    Undergraduate nursing students' attitudes and preparedness toward caring for dying persons: A longitudinal study2017In: Nurse Education in Practice, ISSN 1471-5953, E-ISSN 1873-5223, Vol. 26, p. 12-20Article in journal (Refereed)
    Abstract [en]

    Nursing education needs to prepare students for care of dying patients. The aim of this study was to describe the development of nursing students' attitudes toward caring for dying patients and their perceived preparedness to perform end-of-life care. A longitudinal study was performed with 117 nursing students at six universities in Sweden. The students completed the Frommelt Attitude Toward Care of the Dying Scale (FATCOD) questionnaire at the beginning of first and second year, and at the end of third year of education. After education, the students completed questions about how prepared they felt by to perform end-of-life care. The total FATCOD increased from 126 to 132 during education. Five weeks' theoretical palliative care education significantly predicted positive changes in attitudes toward caring for dying patients. Students with five weeks' theoretical palliative care training felt more prepared and supported by the education to care for a dying patient than students with shorter education. A minority felt prepared to take care of a dead body or meet relatives.

  • 2197. Henoch, Ingela
    et al.
    Sawatzky, Richard
    Falk, Hanna
    Fridh, Isabell
    Jakobsson Ung, Eva
    Kenne Sarenmalm, Elisabeth
    Ersta Sköndal University College, Palliative Reserch Centre, PRC.
    Ozanne, Anneli
    Öhlen, Joakim
    Ersta Sköndal University College, Palliative Reserch Centre, PRC.
    Falk, Kristin
    Symptom distress profiles in hospitalized patients in sweden: a cross-sectional study.2014In: Research in Nursing & Health, ISSN 0160-6891, E-ISSN 1098-240X, Vol. 37, no 6, p. 512-523Article in journal (Refereed)
    Abstract [en]

    Symptom distress profiles of patients with a variety of diagnoses at two hospitals in Sweden were examined using a point-prevalence cross-sectional survey design. The sample included 710 patients present on internal medicine, surgery, geriatric, and oncology acute care hospital wards of each hospital on a single day. Symptom distress data were collected via structured interviews using a 0-10 numeric rating scale (NRS). Fatigue was the most prevalent symptom, experienced by 76.2% of the patients, followed by pain (65.2%) and sleeping difficulties (52.8%). Symptoms were fairly distressing (median NRS 5-6). Patients experiencing high distress from fatigue and pain were more likely to be female, living alone, and to have more symptoms. Latent class analysis revealed three symptom distress profiles that differed with respect to the degree of distress and number of symptoms. The profiles were not substantially differentiated by diagnoses. Symptom distress needs to be assessed and treated on an individual basis, rather than predicting distress levels based on diagnosis alone. © 2014 Wiley Periodicals, Inc.

  • 2198. Henoch, Ingela
    et al.
    Strang, Susann
    Browall, Maria
    Danielson, Ella
    Melin-Johansson, Christina
    Göteborgs universitet.
    Development of an existential support training program for healthcare professionals.2015In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 13, no 6, p. 1701-9Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: Our aim was to describe the developmental process of a training program for nurses to communicate existential issues with severely ill patients.

    METHOD: The Medical Research Council (MRC) framework for the development and evaluation of complex interventions was used to develop a training program for nurses to communicate about existential issues with their patients. The steps in the framework were employed to describe the development of the training intervention, and the development, feasibility and piloting, evaluation, and implementation phases. The development and feasibility phases are described in the Methods section. The evaluation and implementation phases are described in the Results section.

    RESULTS: In the evaluation phase, the effectiveness of the intervention was shown as nurses' confidence in communication increased after training. The understanding of the change process was considered to be that the nurses could describe their way of communicating in terms of prerequisites, process, and content. Some efforts have been made to implement the training intervention, but these require further elaboration.

    SIGNIFICANCE OF RESULTS: Existential and spiritual issues are very important to severely ill patients, and healthcare professionals need to be attentive to such questions. It is important that professionals be properly prepared when patients need this communication. An evidence-based training intervention could provide such preparation. Healthcare staff were able to identify situations where existential issues were apparent, and they reported that their confidence in communication about existential issues increased after attending a short-term training program that included reflection. In order to design a program that should be permanently implemented, more knowledge is needed of patients' perceptions of the quality of the healthcare staff's existential support.

  • 2199.
    Henriksen, Anna
    et al.
    Örebro universitet.
    Degner, Jürgen
    Örebro universitet.
    Oscarsson, Lars
    Örebro universitet.
    Youths in coercive residential care: attitudes towards key staff members’ personal involvement, from a therapeutic alliance perspective2008In: European Journal of Social Work, ISSN 1369-1457, E-ISSN 1468-2664, Vol. 11, no 2, p. 145-159Article in journal (Refereed)
    Abstract [en]

    A strong therapeutic alliance between staff and juveniles (residents) in institutional settings is considered to be important for a positive treatment outcome. The article focuses on residents placed in coercive care in Swedish residential treatment centres (RTCs), and the aim is to explore obstacles and opportunities for establishing a therapeutic alliance between key staff members (KSMs) and residents in a one-year perspective. The key question is how residents view their KSMs’ personal involvement and active participation in their treatment process. Semi-structured interviews were conducted with twenty-thre girls and twenty-three boys placed in ten different RTCs, and follow-up interviews were conducted after one year. In accordance with the theoretical approach, it is hypothesized that the residents’ view of KSM involvement will be more positive in the one-year follow-up. Results from the first data collection show that more than half of the adolescents perceived their KSMs’ personal involvement as mainly negative. Between the two interviews, several had developed a more positive view of the KSMs’ personal involvement, while a large group did not display any change in attitude. Positive and negative institutional conditions and processes affecting the prospects for the development of a therapeutic alliance between residents and KSMs are discussed.

  • 2200. Henriksen, Lars Skov
    et al.
    Strømsnes, KristinSvedberg, LarsErsta Sköndal Bräcke University College, The Institute for Organisational and Worklife Ethics.
    Civic Engagement in Scandinavia: Volunteering, Informal Help and Giving in Denmark, Norway and Sweden2019Collection (editor) (Other academic)
41424344454647 2151 - 2200 of 5159
CiteExportLink to result list
Permanent link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf