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  • 2201. Henriksen Skov, Lars
    et al.
    Svedberg, Lars
    Ersta Sköndal University College, Institute for Civil Society Studies.
    Volunteering and Social Activism:: Moving beyond the Traditional Divide2010In: Journal of Civil Society, ISSN 1744-8689, E-ISSN 1744-8697, Vol. 6, no 2, p. 95-98Article in journal (Refereed)
    Abstract [en]

    This article introduces the special issue of the Journal of Civil Society on 'volunteering and social activism'. We think research and the scholarly debate on civil society for too long have ignored important research questions that start at the crossroads of the ideal types of the 'altruistic volunteer' and the 'political activist'. Behind the idea of pulling together a special issue was an ambition to open up an avenue for research and dialogue between two research traditions that, in our opinion, have had too little inspiring effect on each other. The special issue includes four articles that all raise important challenges to the impression of volunteering and social activism as separate and disconnected forms of civic engagement.

  • 2202.
    Henriksson (Alvariza), Anette
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    A support Group programme family members of persons with life-threatening illness.2011Conference paper (Refereed)
  • 2203.
    Henriksson (Alvariza), Anette
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    A support group programme for family members: an intervention during ongoing palliative care2012Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    Family members are central in providing care for patients with lifethreatening illness, but they often experience a lack of necessary preparation and knowledge, with a need for information and psychosocial support. The overall aim of this thesis was to investigate participant’s experiences as well as effects of a support group programme for family members of patients with life-threatening illness during ongoing palliative care.

    Methods: A mixed method design was used. Study I was retrospective descriptive and used a phenomenological method to analyse 10 face-to-face interviews about experiences of participating in the programme. Study II was retrospective descriptive and used qualitative content analysis to analyse 29 telephone interviews about experiences of the programme design. Study III was correlational and used a confirmatory factor analysis to psychometrically evaluate the preparedness for caregiving scale(PCS), caregiver competence scale(CCS) and rewards of caregiving scale(RCS) in 124 family members. Study IV was prospective quasi-experimental and used interferential statistics to investigate effects of the programme, assessing preparedness, competence, rewards, anxiety, depression, hope and health in 125 family members.

    Results: The main experiences of participation in the programme were; a sense of safety and belonging, confirmation, insight into the gravity of the illness, and a moment of rest. The programme was experienced as covering topics of interest, structured to make participants feel invited by the caring team and using an open approach that fostered a warm atmosphere. The Swedish versions of PCS, CCS and RCS were shown to be valid and reliable. Family members who participated in the programme significantly increased in preparedness, competence and rewards in relation to caregiving. No significant changes were shown for anxiety, depression, hope and health.

    Clinical implications: The results should provide encouragement in the challenging work to develop and deliverer interventions, with the explicit purpose of supporting family members in palliative care.

  • 2204.
    Henriksson (Alvariza), Anette
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    A support Group Programme for family members of persons with life-threatening illness2012Conference paper (Refereed)
  • 2205.
    Henriksson (Alvariza), Anette
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    A support Group Programme for family members of persons with life-threatening illness.2010Conference paper (Refereed)
  • 2206.
    Henriksson (Alvariza), Anette
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    A support group programme for relatives during the late palliative phase.2007Conference paper (Refereed)
  • 2207.
    Henriksson (Alvariza), Anette
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    A supportgroup programme for family members during the late palliative phase.2008Conference paper (Refereed)
  • 2208.
    Henriksson (Alvariza), Anette
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    Effects of a support group programme for family caregivers2013Conference paper (Refereed)
  • 2209.
    Henriksson (Alvariza), Anette
    Ersta Sköndal University College, Department of Health Care Sciences, Palliative Research Centre, PRC.
    Förberedelse för att vårda: en intervention för närstående under pågående palliativ vård2013In: Omvårdnad på avancerad nivå: kärnkompetenser inom sjuksköterskans specialistområden / [ed] Anna-Karin Edberg, Anna Ehrenberg, Febe Friberg, Lars Wallin, Helle Wijk, Joakim Öhlén, Lund: Studentlitteratur AB, 2013, 1, p. webb-Chapter in book (Other academic)
    Abstract [sv]

    Närstående har i dag en betydande roll i vårdandet och omhändertagandet av svårt sjuka/döende personer. För många är det en självklarhet att inta rollen som vårdare medan andra kanske inte ser sig ha något val. Ofta är närstående otillräckligt förberedda för att vårda och hantera den nya situationen, vilket kan medföra negativa konsekvenser. Det är därför viktigt med information och stöd i olika former till närstående under vårdtiden. Den här artikeln belyser närståendes situation och stöd till närstående. Artikeln beskriver ett särskilt stödprogram för närstående under pågående palliativ vård, närståendes erfarenheter av programmet och effekter av programmet (Henriksson 2012).

  • 2210.
    Henriksson (Alvariza), Anette
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    Stöd för närstående till personer med livshotande sjukdom.2012Conference paper (Other academic)
  • 2211.
    Henriksson (Alvariza), Anette
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    Stödinterventioner till närstående under pågående vård2013In: Palliativ vård: Begrepp och perspektiv i teori och praktik / [ed] Birgitta Andershed, Britt-Marie Ternestedt, Cecilia Håkansson, Lund: Studentlitteratur, 2013Chapter in book (Other academic)
  • 2212.
    Henriksson (Alvariza), Anette
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    Support for family members in palliative care2009Conference paper (Refereed)
  • 2213.
    Henriksson (Alvariza), Anette
    et al.
    Ersta Sköndal University College, Department of palliative care research.
    Andershed, Birgitta
    Ersta Sköndal University College, Department of palliative care research.
    A support group programme for relatives during the late palliative phase.2007In: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 13, no 4, p. 175-83Article in journal (Refereed)
    Abstract [en]

    This study describes an intervention where relatives were invited to take part in a support group programme during the late palliative phase of their family member. The purpose was to describe their experiences of the support group programme and the subsequent impact on their lives as relatives of a terminally ill person. Qualitative interviews were chosen as the data collection method. The analysis was inspired by the phenomenological method as described by Giorgi (1989). The relatives' experiences were categorised into six key constituents: confirmation; insight into the gravity of the illness; sense of belonging created by similar experiences; participation in the care system; being able to rest; and strength to provide support for the patient. These six constituents resulted in a sense of safety in relation to the patient, the illness, the nursing staff and the care unit. The study's findings show that interventions of this kind may be integral to the relatives' ability to handle their situation when caring for a terminally ill family member.

  • 2214.
    Henriksson (Alvariza), Anette
    et al.
    Örebro universitet.
    Andershed, Birgitta
    Ersta Sköndal University College, Enheten för forskning i palliativ vård. Gjövik University, Norway.
    Benzein, Eva
    Ersta Sköndal University College, Enheten för forskning i palliativ vård. Linnéuniversitetet.
    Årestedt, Kristoffer
    Linnéuniversitetet, Linköpings universitet.
    Adaptation and psychometric evaluation of the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in a sample of Swedish family members of patients with life-threatening illness2012In: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 26, no 7, p. 930-938Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Family members often take on many caring responsibilities, with complex issues and challenges to consider. Feelings of preparedness, competence and reward are identified as concepts that may protect caregiver wellbeing and decrease negative outcomes related to caregiving.

    AIM: This study aimed to translate, adapt and psychometrically evaluate the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in Swedish family members of patients with life threatening illness.

    DESIGN: Correlational.

    SETTING/PARTICIPANTS: The study took place in four settings including advanced palliative care. The scales were tested in a sample of 125 family members of persons with life-threatening illness. All three scales were tested in relation to distribution of item and scale scores, missing data patterns, dimensionality, convergent validity and reliability.

    RESULTS: The results in this study indicate that the Swedish versions of The Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale are valid, reliable and user-friendly scales. Confirmatory factor analysis showed that the scales were unidimensional and all demonstrated Cronbach's alpha values of ≥0.9.

    CONCLUSIONS: As a result of this study it is anticipated that the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale could provide a basis for collaborative research between different countries and make international studies more comparable and generalizable despite differences in language and culture.

  • 2215.
    Henriksson (Alvariza), Anette
    et al.
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Benzein, Eva
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Andershed, Birgitta
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Meeting the needs of family members of persons with life threatening illness: a support group programme during ongoing palliative care.2011In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 9, no 3, p. 263-271Article in journal (Refereed)
  • 2216.
    Henriksson (Alvariza), Anette
    et al.
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    Carlander (Goliath), Ida
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    Årestedt, Kristofer
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    Feelings of Reward among Family Caregivers during Ongoing Palliative Care2014In: Palliative Medicine / [ed] Catherine Walshe, Sage Publications, 2014, p. 613-614Conference paper (Refereed)
    Abstract [en]

    Objectives: Palliative family caregivers appear to experience rewards of caregiving concurrent with burdens and negative feelings. Relatively few studies have especially attended to the positive and rewarding aspects in palliative family caregiving. In addition, most studies on rewards are retrospective and examine the experiences of bereaved family caregivers. This study aimed to describe feelings of rewards among family caregivers during ongoing palliative care. A further aim was to compare experience of rewards in relation to sex and age. Methods: The sample consisted of 125 family caregivers and the study took place in three specialist palliative care units and one hematology unit. Participants answered a questionnaire including demographic background questions and the Rewards of Caregiving Scale (RCS). Descriptive statistics were used to describe characteristics of the participants and the level of rewards. Mann-Whitney U test was used to compare differences between groups of different sex and age. Results: Palliative family caregivers reported in general high levels of reward.The largest source of rewards was feelings of being helpful to the patient. This was closely followed by rewards as a consequence of giving something to the patients that brought her/him happiness and being there for the patient. The smallest sources of rewards were personally growth, self-satisfaction and personal meaning. There was an association between rewards and age but not between men and women. Conclusions: Family caregivers experienced rewards of caregiving during ongoing palliative care despite their unique and stressful situation. Feelings of rewards seem to be about handling the situation in a satisfying way, to feel competent and confident to take care of the patient and thereby feel proud. Support could preferably be designed aiming to improve family caregiver’s ability to care and to facilitate rewards of caregiving and focus on strengths and resources.

  • 2217.
    Henriksson (Alvariza), Anette
    et al.
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    Carlander (Goliath), Ida
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    Årestedt, Kristofer
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    Feelings of rewards among family caregivers during ongoing palliative care2015In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 13, no 6, p. 1509-1517Article in journal (Refereed)
    Abstract [en]

    Objectives: Palliative family caregivers appear to experience the rewards of caregiving concurrent with burdens and negative feelings. Relatively few studies have attended to the positive and rewarding aspects in palliative family caregiving. In addition, most studies on rewards are retrospective and examine the experiences of bereaved family caregivers. The present study aimed at describing feelings of reward among family caregivers during ongoing palliative care. A further aim was to compare the experience of rewards in relation to sex and age. Methods: The sample consisted of 125 family caregivers and took place in three specialist palliative care units and one hematology unit. Participants answered a questionnaire including demographic background questions and the Rewards of Caregiving Scale (RCS). Descriptive statistics were employed to describe characteristics of the participants and the level of rewards. A Mann-Whitney U test was used to compare differences between groups of different sex and age. Results: Palliative family caregivers reported general high levels of reward. The greatest source of rewards involved feelings of being helpful to patients. This was closely followed by giving something to patients that brought them happiness and being there for them. The smallest sources of rewards were related to personal growth, self-satisfaction, and personal meaning. There was also an association between rewards and age but not between men and women. Significance of results: Family caregivers experienced the rewards of caregiving during ongoing palliative care despite their unique and stressful situation. Feelings of reward seem to be about handling a situation in a satisfying way, feeling competent and confident to take care of the patient and thereby feeling proud. Support could preferably be designed to improve a family caregiver's ability to care and to facilitate the positive aspects and rewards of caregiving and focus on strengths and resources.

  • 2218.
    Henriksson (Alvariza), Anette
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Capio Geriatrik Dalen sjukhus, Ersta sjukhus, Karolinska institutet.
    Carlander, Ida
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Ersta sjukhus, Karolinska institutet.
    Årestedt, Kristofer
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Linköpings universitet, Linnéuniversitetet .
    Factors associated with feelings of reward during ongoing family palliative caregiving.2015In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 13, no 3, p. 505-12Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: Of the few studies that have paid attention to feelings of reward in family palliative caregiving, most are retrospective and examine the experiences of bereaved family caregivers. Although feeling rewarded has been described as an influence that may facilitate the way family caregivers handle the caregiving situation, no study has sought to identify the factors associated with feelings of reward while providing ongoing family palliative care. The aim of this study, therefore, was to identify influential factors in feelings of reward experienced by family palliative caregivers.

    METHOD: Our study had a correlational cross-sectional design. Family caregivers (n = 125) of patients receiving specialized palliative care were consecutively recruited from four settings. These caregivers answered a questionnaire that included the Rewards of Caregiving Scale (RCS). This questionnaire included questions about demographic background and scales to measure preparedness for caregiving, feelings of hope, perceived health, and symptoms of anxiety and depression. Correlation and regression analyses were conducted to identify factors associated with rewards.

    RESULTS: The results demonstrated that the more prepared caregivers with higher levels of hope felt more rewarded, while caregivers with higher levels of anxiety and those in a spousal relationship with the patient felt less rewarded by caregiving.

    SIGNIFICANCE OF RESULTS: It seems reasonable that feeling rewarded can be a significant contributor to the overall experience of providing ongoing palliative care. The situation of family caregivers has been shown to be multifaceted and complex, and such covariant factors as preparedness, anxiety, hope, and being in a spousal relationship with the patient to influence this experience.

  • 2219.
    Henriksson (Alvariza), Anette
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences, Palliative Research Centre, PRC.
    Hudson, Peter
    Australien.
    Öhlen, Joakim
    Ersta Sköndal University College, Department of Health Care Sciences, Palliative Research Centre, PRC.
    Thomas, Kristina
    Australien.
    Holm, Maja
    Ersta Sköndal University College, Department of Health Care Sciences, Palliative Research Centre, PRC.
    Carlander (Goliath), Ida
    Karolinska institutet.
    Hagell, Peter
    Högskolan Kristianstad.
    Årestedt, Kristofer
    Linneuniversitetet.
    Use of the Preparedness for Caregiving Scale in Palliative Care: A Rasch Evaluation Study.2015In: Journal of Pain and Symptom Management, ISSN 0885-3924, E-ISSN 1873-6513, Vol. 50, no 4, p. 533-541Article in journal (Refereed)
    Abstract [en]

    CONTEXT: Studies have shown that family carers who feel more prepared for the caregiver role tend to have more favorable experiences. Valid and reliable methods are needed to identify family carers who may be less prepared for the role of supporting a person who needs palliative care.

    OBJECTIVES: The aim of this study was to evaluate the measurement properties of the original English version and a Swedish version of the Preparedness for Caregiving Scale (PCS).

    METHODS: The sample (n = 674) was taken from four different intervention studies from Australia and Sweden, all focused on improving family carers' feelings of preparedness. Family carers of patients receiving palliative home care were selected, and baseline data were used. The measurement properties of the PCS were evaluated using the Rasch model.

    RESULTS: Both the English and Swedish versions of the PCS exhibit sound measurement properties according to the Rasch model. The items in the PCS captured different levels of preparedness. The response categories were appropriate and corresponded to the level of preparedness. No significant differential item functioning for age and sex was detected. Three items demonstrated differential item functioning by language but did not impact interpretation of scores. Reliability was high (>0.90) according to the Person Separation Index.

    CONCLUSION: The PCS is valid for use among family carers in palliative care. Data provide support for its use across age and gender groups as well as across the two language versions.

  • 2220.
    Henriksson (Alvariza), Anette
    et al.
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    Årestedt, Kristofer
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    Exploring factors and caregiver outcomes associated with feelings of preparedness for caregiving in family caregivers in palliative care: A correlational, cross-sectional study2013In: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 27, no 7, p. 639-646Article in journal (Refereed)
    Abstract [en]

    Background: Family caregivers in palliative care often report feeling insufficiently prepared to handle the caregiver role. Preparedness has been confirmed as a variable that may actually protect family caregiver well-being. Preparedness refers to how ready family caregivers perceive they are for the tasks and demands in the caregiving role.

    Aim: The aim of this study was to explore factors associated with preparedness and to further investigate whether preparedness is associated with caregiver outcomes.

    Design: This was a correlational study using a cross-sectional design.

    Setting/participants: The study took place in three specialist palliative care units and one haematology unit. A total of 125 family caregivers of patients with life-threatening illness participated.

    Result: Preparedness was significantly associated with higher levels of hope and reward and with a lower level of anxiety. In contrast, preparedness was not associated with depression or health. Being female and cohabiting with the patient were significantly associated with a higher level of preparedness. The relationship to the patient was significantly associated with preparedness, while social support, place of care, time since diagnosis and age of the patients showed no association.

    Conclusion:Feelings of preparedness seem to be important for how family caregivers experience the unique situation when caring for a patient who is severely ill and close to death. Our findings support the inclusion of preparedness in support models for family caregivers in palliative care. Psycho-educational interventions could preferably be designed aiming to increase family caregiver’s preparedness to care, including practical care, communication and emotional support.

  • 2221.
    Henriksson (Alvariza), Anette
    et al.
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    Årestedt, Kristofer
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    Exploring factors and caregiver outcomes associated with feelings of preparedness for caregiving in family caregivers in palliative care: A cross-sectional study2013Conference paper (Refereed)
  • 2222.
    Henriksson (Alvariza), Anette
    et al.
    Örebro universitet.
    Årestedt, Kristofer
    Linköping universitet, Linne universitet.
    Benzein, Eva
    Ersta Sköndal University College, Palliative Research Centre, PRC. Linnéuniversitetet.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Palliative Research Centre, PRC. Karolinska institutet, Stockholms sjukhem.
    Andershed, Birgitta
    Ersta Sköndal University College, Palliative Research Centre, PRC. Gjøvik University College, Norway.
    Effects of a support group programme for patients with life-threatening illness during ongoing palliative care2013In: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 27, no 3, p. 257-264Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Health care systems in many countries are moving towards outpatient care in which family members are central in providing care for patients with life-threatening illness. Several studies show that family members report a lack of preparation, knowledge and the ability to handle the caregiver role, and a need for information and psychosocial support. 

    AIM: The aim was to investigate the effects of a support group programme for family members of patients with life-threatening illness during ongoing palliative care.

    DESIGN: A prospective quasi-experimental design, including an intervention group and a comparison group, was used.

    SETTINGS/PARTICIPANTS: A support group programme was offered to family members during ongoing palliative care at three intervention settings: two specialist palliative care units and one haematology unit. A fourth setting, a specialist palliative care unit, was used for comparisons.

    RESULTS: Family members taking part in the support group programme significantly increased their perceptions of preparedness for caregiving, competence for caregiving, and rewards of caregiving. Hope, anxiety, depression symptoms and health showed no significant changes.

    CONCLUSIONS: The intervention, including a support group programme delivered to family members of patients with life-threatening illness during ongoing palliative care, proved to be effective in certain domains of caregiving. No negative outcomes were detected. The results indicate that this intervention could be implemented and delivered to family members during ongoing palliative care.

  • 2223.
    Henriksson, Annette
    Ersta Sköndal University College, Department of Health Care Sciences, St Lukas Educational Institute.
    Relationen mellan aktiviteter med hästar och psykosocial utveckling hos barn med autismdiagnos: En kvalitativ studie av föräldrars erfarenheter2015Independent thesis Advanced level (professional degree), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    This study has been conducted in order to increase knowledge about psychosocial development in children with autism diagnosis in relationship to activities with horses. The study is qualitative, based on five interviews with parents and includes field observations. The interviews have been processed according to inductive thematic analysis and are reported under three themes related to the childrens interaction with their environment. The result shows that the activity with horses has positive impact on the children's desire and ability to interact and communicate with the outside world. The skills manifests in interaction with children as well as with adults, both within the family and in other settings. The result of the study indicates conformity with previous research, and the event's multi-facetted content and effects are made visible. Surprising results are experiences of the children's different relationship and communication with horses, and observations of the immediate impact on the children when riding. Research from a family perspective highligtening the voice of the child is proposed, as well as further research on physiological effects of horseback riding in reltionship to social interacting.

  • 2224.
    Henriksson, Henrietta
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Sundberg, Sven-Erik
    Ersta Sköndal University College, Department of Health Care Sciences.
    Förutsättningar för patientdelaktighet ur ett patientperspektiv2007Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 2225.
    Henriksson, Karin
    et al.
    Ersta Sköndal University College, Department of Social Work.
    Ostad Gholizadeh, Rihaneh
    Ersta Sköndal University College, Department of Social Work.
    Familjehemsutredning: En studie om utredningsmetoderna PRIDE och Kälvesten2009Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 2226.
    Hergens, Maria-Pia
    et al.
    Ersta Sköndal University College, Institutionen för omvårdnad.
    Mattsson, Malin
    Ersta Sköndal University College, Institutionen för omvårdnad.
    Diabetes ur barn och ungdomars perspektiv1999Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 2227.
    Hermann, Imor
    Ersta Sköndal University College, St Lukas Educational Institute.
    Identifikation, identitet & psykoterapi: En studie av några unga mäns erfarenhet av psykoterapi med manliga psykoterapeuter.2015Independent thesis Advanced level (professional degree), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    Specifik psykisk sårbarhet hos män och manlig identitetsproblematik har alltmer uppmärksammats när det gäller mäns psykiska ohälsa. I studien medverkade fem deltagare i åldrarna 21-27 år som alla hade gått i psykoterapi vid Stadsmissionen i Stockholms Mottagning för Unga Män, MUM. Frågeställning för studien har varit: Hur upplever unga vuxna män sin psykoterapi med en manlig psykoterapeut utifrån ett identitetsskapande perspektiv?

    Studien är en kvalitativ undersökning av unga manliga patienters erfarenhet och upplevelse av att gå i psykodynamisk terapi vid en könshomogen mottagning med enbart manlig personal. Några psykoanalytiska teoretiker som Freud, Chodorow och Benjamin utgör studiens teoretiska grund. Resultatet har kunnat påvisa teman av identifikation som en viktig del i terapiprocessen där den könshomogena terapimiljön upplevts som främjande för terapin och där terapeutens egen könstillhörighet upplevs ha haft betydelse. Det är emellertid osäkert om könstillhörigheten eller den egna terapeutiska stilen är den viktigaste specifika faktorn för en god terapeutisk relation.

  • 2228.
    Hermansson, Elin
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Riikonen, Johanna
    Ersta Sköndal University College, Department of Health Care Sciences.
    Sjuksköterskors erfarenheter av att vårda flyktingar, asylsökande och papperslösa: En litteraturöversikt2016Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: In general, refugees, asylum seekers and undocumented migrants are considered to be a vulnerable population. With regards to the increasing number of asylum applicants during the last decade in Sweden, health care staff is likely to encounter individuals with a refugee background. Although, many working in health care have limited knowledge about the effects of migration and legal rights. Nurses are required to have the ability to meet patients’ physical, psychological, social, spiritual as well as cultural needs, and to deliver the care in a culturally sensible way.

    Aim: The aim of this bachelor’s thesis was to illustrate nurses’ experiences of caring for refugees, asylum seekers and undocumented migrants.

    Method: A literature review according to Friberg’s method was conducted. Twelve scientific articles of both qualitative and quantitative design are the foundation of this paper. Data was collected from the databases CINAHL and PubMed. Themes and subthemes were then formed after analyses of the material.

    Results: The results are presented in two main themes along with their subthemes. The first main theme Experiences of obstacles in caring describes various difficulties the nurses encountered while caring for patients who are refugees, asylum seekers and undocumented migrants. The second main theme The nurses’ emotional reactions describes subjective feelings the nurses expressed while working with patients who have this background.

    Discussion: The results show that nurses experienced difficulties in the communication and difficulties giving care related to different cultural views on health. Stereotyping and bias of patients could also occur among nurses, which affected the care negatively. These consequential findings are discussed in relation to Leininger’s theory of transcultural nursing.

  • 2229.
    Hernberg, Danielle
    Ersta Sköndal Bräcke University College, Department of Social Sciences.
    ”Det pratas för lite om ungdomar överhuvudtaget när det gäller ungdomar och sexualitet”: professionella inom socialtjänsten om bemötande och arbete med unga som har sex som självskadebeteende2018Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    The aim of this study was to raise awareness of how professionals in social services treat and work with adolescents who have sex as self-injury behavior. The need for this study was based on the increased numbers of the adolescents who have sex as self-injury and also that social service is a key actor to notice these adolescents. Swedish social service should work for adolescents to grow up under safe conditions and pay special attention to adolescents who show signs of contrary development. In order to answer to the aim of this study the approach was qualitative in which semi structured interviewing was used. By using semi structured interviewing, the interviewees were given the opportunity to contribute to a nuanced aspect of the problem. The result was interpreted thematically and then analysed using a theoretical framework in order to better understand how professionals in social services treat and work with adolescents who have sex as self-injury behavior. The theoretical framework consisted of two theoretical concepts and frameworks: sex as a social construction and the significance of the relationship in professional work with people. The result of this essay show that professionals within social service do not actively work with adolescents with sex as self-injury, only when the problem is explicit in a specific case. The result also shows that the problem has not been addressed in social services and that the professionals rarely or never talk about it, either within the organization or with the adolescents. Besides that, the result also shows that the professionals need more knowledge about the problem and that the relationship is a prerequisite for the adolescents to tell professionals about this type of problems.

  • 2230.
    Hernestål, Marilene
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Nyström, Teresa
    Ersta Sköndal University College, Department of Health Care Sciences.
    En analys av mäns och kvinnors sorg efter bortgång av partner2008Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 2231.
    Herold, Karin
    Ersta Sköndal University College, St Lukas Educational Institute.
    Utmattningssyndrom - varför hände det mig?2012Independent thesis Advanced level (professional degree), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    Vad är det som gör att människor i dagens samhälle pressar sig så hårt att de tillslut försätter sig i stress och utmattningssituationer?

    Syftet med studien är att undersöka vad det är som gör att vissa människor inte kan identifiera och/eller lyssna på egna varningssignaler, samt deras tankar om utmattningsdepressionens orsaker.

    Frågeställningarna är: Hur beskriver de människor som själva fått diagnosen utmattningsdepression sina egna tankar om orsakerna till stress och/eller utmattningssymptomen? Har de blivit hjälpta genom psykoterapi och i så fall vad har de uppfattat som det terapeutiskt verksamma?

    Studiens metod baseras på kvalitativa djupintervjuer med fem personer som själva fått diagnosen utmattningsdepression och som har gått eller fortfarande går i terapi.

    Resultatet visar att intervjupersonernas egna tankar om orsaker främst handlar om olika livskriser som de har varit med om. Upprepande påfrestande kriser har bidragit till extra sårbarhet för att senare utveckla stress och/eller utmattningssyndrom. Otrygg anknytning och dålig självkänsla framkom som bakomliggande orsaker till dessa kriser.

    Slutsatserna blir att otrygg anknytning i kombination med individuella kriser senare i livet kan vara en viktig orsak till stress- och/eller utmattningssyndrom. Brist på emotionell omsorg kan finnas i socialt välfungerade familjer. Individens utveckling av mentalisering och affektreglering påverkas av hög emotionell påfrestning under längre tid i barndomen.

  • 2232.
    Herrera De Leon, Morayma
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Bircan, Metin
    Ersta Sköndal University College, Department of Health Care Sciences.
    Individanpassad information till patienter med typ 2 diabetes: En litteraturstudie om patienters erfarenheter av information från sjukvården2013Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Diabetes type 2 is one of the largest forms of lifestyle disease in the developed countries, but in later years, also in development countries. Patients are in need of accurate information to learn how to manage and live with the disease. Therefore it is important that nurses have knowledge of how patients perceive information from health care. 

    Aim: The aim of the present study was to investigate what experiences patients with diabetes type two has regarding information from health care.

    Method: A literature study based on previous research regarding diabetes type two and information to patients. Twelve scientific articles with qualitative approach was analysed with text analysis.

    Result: The results show that the patients call for information that is tailored to them as unique individuals and that is easy to understand and adapt to, as they need tools for their self-care. Four themes emerged: Difficulties to accept and adapt to information, Information adapted to cope with daily life, Differences in information from the physician and the nurse and Accessible information.

    Discussion: The results are discussed in relation to Orem theory of self-care. Since patients often have difficulty adjusting to their disease, they need support in terms of information to be able to live as normal a life as possible. This becomes increasingly important, as diabetes type two is a disease that younger and younger ages, and it is therefore something they have to live a long time with.

  • 2233.
    Hettrel, Camilla
    Ersta Sköndal University College, Department of Social Work.
    Fem berättelser om Marte meo-metoden2006Independent thesis Advanced level (degree of Master (One Year)), 20 credits / 30 HE creditsStudent thesis
  • 2234.
    Hewelt Michalik, Aleksandra
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Neilande, Marika
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Faktorer som påverkar sjukssköterskors ledarskap i omvårdnadsarbete inom äldrevården i Sverige: en litteraturöversikt2018Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    The elderly population is getting older in Sweden and high requirements will affect the health care. Situation within the care of elderly is alarming due to lack of educated staff, especially nurses. This often results in insufficient care and could be a risk for the patients’ safety. Nurses as expert in nursing have an important role in the care and thus carry responsibility for the elderlies nursing is of high quality. Aim was to illuminate factors regarding nurses' leadership in nursing that may influence the quality of nursing in the care of elderly in Sweden. A literature review of data collection from two databases that resulted in eleven articles, six qualitative and five quantitative. There are several factors that influence the nurses' leadership in nursing care, which in turn affects nursing quality in the elderly care. The results consist of three main themes: Organizational structure and care culture, Knowledge and expertise, Relationships and cooperation. There are several factors that influence the nurses' leadership in nursing care, which in turn affects nursing quality in the elderly care. The results consist of three main themes: Organizational structure and care culture, Knowledge and expertise, Relationships and cooperation. In method discussion, the authors discussed the strengths and weaknesses of the work as well as the process of cooperation throughout the work. In the result discussion, the authors reasoned factors that proved to affect nurses' leadership in nursing as well as the most important aspects of careers, based on Katie Eriksson's nursing theory.

  • 2235.
    Hidmark, Niklas
    Ersta Sköndal University College, Department of Diaconal Studies, Church Music and Theology.
    Hammondorgel – något för Svenska kyrkan?: När och på vilket sätt kan Hammondorgeln användas i Svenska kyrkans verksamhet och hur kan en klassiskt skolad kyrkomusiker lära sig instrumentet och spelstilen?2013Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    I uppsatsen redogörs för Hammondorgelns historia samt instrumentets konstruktion och funktion. I den konstnärliga delen av arbetet beskrivs författarens process att lära sig spela instrumentet. I kvantitativa intervjuer och diskussioner fångas åsikter och kritik upp efter att instrumentet använts i gudstjänster och konserter i Stora Sköndals Kyrka, Stockholm. I kvalitativa intervjuer med två kyrkomusiker, som också spelar Hammondorgel, redovisas erfarenheter och infallsvinklar.

    Slutsatsen pekar på både fördelar och nackdelar. Positivt är t.ex. att känslor man förr inte känt under en gudstjänst kan komma fram samt att Hammondorgeln kan vara bättre än kyrkorgeln på att framföra t.ex. pop och rock – musik som allt oftare spelas på CD vid begravningar. Svårigheter kan vara att kvalitets-Hammondorglar är sällsynta och svårskötta samt att man riskerar att stöta bort folk som förknippar sin religiösa tro med en mer traditionell kyrkomusik.

  • 2236.
    Hietala Yebari, Sofia
    Ersta Sköndal University College, Department of Social Work.
    Vilka föräldrar återförenas med sina placerade barn?: motiveringar som står bakom beslut om hemtagning2011Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    Syftet med studien är att öka kunskap om socialsekreterarnas motiveringar bakom gällande beslut om barns återförening med sina föräldrar, som tidigare bedömts ha en bristande föräldraförmåga.

    Min frågeställning består av tre frågor: Vilka faktorer kan påverka ett beslut om ett återkallande av placering av barn enligt SoL eller LVU 2 §? Hur förhåller sig socialsekreterarna till möjligheten om utveckling av föräldraförmågan efter placering? Hur stor andel av föräldrar, vars barn blivit placerade enligt SOL eller LVU 2§, har fått omhändertagandet återkallat?

    Frågorna besvaras med den kvalitativa forskningsintervjun. Halvstrukturerade intervjuer och dokument valdes som huvudsakliga datainsamlingstekniker. Sju socialsekreterare, var av en enhetschef deltog i undersökningen. Två av informanterna intervjuades tillsammans.

    För analys av empirin har studien använt sig av: anknytnings teori, lagar och riktlinjer, tidigare forskning om placerade barn och deras föräldrar.

    Resultatet visade en tvetydighet gällande socialsekreterarnas tillämpning av lagar; ett övervägande fokus på vårdnadsöverflyttningar och bristfälliga insatserna kring återförening. Det är väldigt få barn som återförenas med sina föräldrar. Det visade sig att det skiljer sig i bedömningar från socialkontor och socialsekreterare. Ett barns återförening möjlighet bedöms utifrån barnets anknytning i främsta rum, och i andra hand bedöms förälderns utveckling. Föräldern har ofta tre år på sig att bättra sig och hålla så bra kontakt med barnet så att de ska hålla sin plats som primär vårdnadshavare för att ha en eventuell chans till återförening. Större delen av barnen blir uppväxtplacerade, med tanke på vårdnadsöverflyttning och anknytningen. Går föräldern med på en frivillig placering enligt SoL så har man större möjlighet att påverka en hemtagning, men via tvångsvårdslagstiftningen LVU blir det svårare, samarbete med socialsekreteraren ökar möjligheten till återförening. 

    Det är tydligt att barnavårdsutredningar är under komplex press, man vill göra det bästa för barnet och följa lagstiftning samtidigt som man ska hålla kostnaderna nere.

  • 2237.
    Hill Fors, Clara
    Ersta Sköndal Bräcke University College, Department of Social Sciences.
    Tolkens upplevelser av särskilt svåra samtal i offentligt socialt arbete2018Independent thesis Basic level (degree of Bachelor), 20 credits / 30 HE creditsStudent thesis
  • 2238.
    Hillerström, Susanna
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Vannisse, Anja
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Närståendes upplevelser av vård vid livets slutskede på vårdavdelningar: En litteraturöversikt2017Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Receiving end-of-life care can turn into a big adjustment for both the patient and the next of kin. According to previous research the knowledge is inadequate regarding this type of care-giving, which turned out to be a relevant area for further research. The nurse carries a great responsibility when it comes to the wishes and requirements of the next of kin, and is also providing information, support and involvement in this trying situation.

    Aim: The aim was to describe how someone who is a next of kin might experience the end-of-life care in hospital wards.

    Method: Literature review. Eight qualitative articles, one quantitative article and one article with mixed method were collected from the databases CINAHL Complete and PUBMED. The searches were limited to full text, peer reviewed, in English and the years of publishing from 2006 to 2016.

    Results: Four themes emerged during the analysis; The importance of communication for end-of-life care, the relationship’s importance and the need of closeness, experience of support, comfort and attitude and next of kin’s involvement in end-of-life care. The importance of communication was vital. This emerged from the experiences the next of kin described as inadequate, and thus feeling unable to make the right decisions. Also, some positive and negative aspects regarding the next of kin’s experiences of support emerged. This included the meaning of the relationships for the caring, which leads to an improved chance for them to get involved.

    Discussion: The results showed great similarities in terms of information and knowledge, which leads to improved communication between the nurse and next of kin. Direct communication was considered, according to the next of kin, as an essential factor in the development of the perception of nursing care. This is discussed on the basis of Andershed’s theory, as well as other perspectives, of the nurses and the patients, and the way in which the next of kin’s involvement is affected.

  • 2239.
    Hittenkofer, Emma
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Ludvigsson, Peter
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Sjuksköterskors upplevelser av att vårda döende patienter på en vårdavdelning inom somatisk akutsjukvård: en litteraturöversikt2017Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Palliative care is a type of care that should improve or maintain quality of life for dying patients and their relatives. In many parts of the world specialized palliative care is not available but there is an increasing demand that it should be recognized as a human right. Relatives of dying patients at wards in emergency hospitals do not experience that they receive enough support and attention. The care should be characterized by a professional care relation and from the nurses’ perspective the care relation should contain knowledge, openness and reflection.

    Aim: To describe nurses’ experiences of caring for dying patients at a somatic ward in emergency hospitals.

    Method: A literature review based on ten scientific articles. Nine articles were qualitative and one article mixed method.

    Results: The compilation of the material resulted in four main themes and two subthemes; Nurse’s perception of good palliative care, Death in nurses daily work with two subthemes When there is not enough time and When death comes closer. Nurses’ experiences of creating a good caring environment and The meaning of communication for palliative care.

    Discussion: The compiled result and the way it was achieved were discussed in a result- and method discussion. The result was problematized in relation to background, additional literature and scientific studies and Virginia Hendersons nursing theory.

  • 2240.
    Hjalmarson, Lena
    Ersta Sköndal University College, Department of Social Work.
    "Det är en så häftig upplevelse": En studie om dans och demens2011Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    The aim of this study is to raise knowledge about the meaning of dance as an intervention in the care of people with dementia. The study is based on an overview of the existing literature on the subjects dance and dementia. The study also gives an example from the care of people with dementia in the county of Linköping. The results will be presented within three main themes; psychological effects, physiological effects and social effects by the using of dance in the care of people with dementia. Later on the analysis is based on the same main themes that will be analyzed by the theories about quality of life and symbolic interaction. 

  • 2241. Hjalmarsson, Erik
    et al.
    Kåver, Anna
    Perseius, Kent-Inge
    Cederberg, Kerstin
    Ghaderi, Ata
    Dialectical behaviour therapy for borderline personality disorder among adolescents and young adults: Pilot study, extending the research findings in new settings and cultures2008In: Clinical Psychologist, ISSN 1328-4207, E-ISSN 1742-9552, Clinical psychologist [Elektronisk resurs], ISSN 1742-9552, Vol. 12, no 1, p. 18-29Article in journal (Refereed)
    Abstract [en]

    The aim of this paper was to investigate the feasibility and impact of dialectical behaviour therapy (DBT) for patients with borderline personality disorder (BPD) in a clinical outpatient setting. Eighteen clinicians were trained and supervised in using DBT. Twenty-seven female patients were assessed on a number of variables before the treatment, as well as 5 and 12 months after the start of the DBT. Despite some barriers, DBT could be implemented successfully, and the professionals reported increased competence 1 year after the start of the therapy. Low treatment dropout rates suggested that DBT was well accepted by the patients. One year after the start of treatment, the patients reported significant decrease on most variables measuring psychological distress and number of parasuicidal behaviours. The study provides preliminary support for the feasibility and impact of DBT in the outpatient treatment of BPD in a cultural setting outside the United States.

  • 2242.
    Hjalmarsson, Sofie
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Ekholm, Jessica
    Ersta Sköndal University College, Department of Health Care Sciences.
    Hälso- och sjukvårdspersonalens erfarenheter av att vårda patienter som genomgått kvinnlig könsstympning: En litteraturöversikt2016Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Female genital mutilation is a procedure that has long been carried out in many parts of the world. 196 member countries have joined United Nation's (UN) Convention on the rights of children, to work together to eliminate this kind of malicious practice. Through continuous data collection of female genital mutilation, it predicts a significant rise as the world population increases. Health professionals are familiar with the procedure, but few can identify its different types.

    Aim: The aim was to describe health professionals’ experiences of caring for patients who have undergone female genital mutilation.

    Method: The method consists of a literature review based on seven qualitative articles, three quantitative articles and one with mixed method retrieved from three different databases; Cinahl Complete, PubMed and Academic Search Complete.

    Results: The results are presented under two categories: Lack of knowledge and The complexity of caring. Health professionals expressed a lack of knowledge and experience to nurture and meet women who have undergone female genital mutilation. Many felt that they experienced tumultuous feelings at meetings with women who have undergone female genital mutilation and their families. Seeing the female genitalia altered anatomy with very severe scarring was unmanageable for many health professionals.

    Discussion: The results were discussed on the basis of Leininger's transcultural nursing theory and the concept of consensus human. The transcultural awareness and the ability of health professionals' to ignore their own ethnocentric approach is the basis for the professional caring.

  • 2243.
    Hjelm, Emma
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Björn, Karolina
    Ersta Sköndal University College, Department of Health Care Sciences.
    ”Skyll dig själv?” – en litteraturöversikt om sjuksköterskors attityder gentemot alkoholister: Vad påverkar attityderna?2012Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 2244. Hjelm-Wallén, Lena
    et al.
    Ruin, Olof
    Trägårdh, Lars
    Ersta Sköndal Bräcke University College, Department of Social Sciences, The Institute for Civil Society Research.
    Baudin, Tobias
    Kommunalarbetareförbundet.
    Bengtsson, Håkan A.
    Arenagruppen.
    Bengtsson, Jesper
    Sohlman, Michael
    Rosenberg, Göran
    Säve-Söderbergh, Bengt
    Wingborg, Mats
    Det behövs mer än värnplikt2016In: Svenska dagbladet, ISSN 1101-2412, no 2016-10-07, p. 6-6Article in journal (Other (popular science, discussion, etc.))
    Abstract [sv]

    Människors säkerhet handlar om mycket mer än det rent militära. Därför är det är dags att överväga att införa allmän medborgartjänst för alla medborgare kring tjugoårsåldern.

  • 2245. Hjelm-Wallén, Lena
    et al.
    Ruin, Olof
    Trägårdh, Lars
    Ersta Sköndal Bräcke University College, Department of Social Sciences, The Institute for Civil Society Research.
    Baudin, Tobias
    LO, Landsorganisationen i Sverige.
    Botström, Philip
    Sveriges Socialdemokratiska Ungdomsförbund, SSU.
    Sohlman, Michael
    Bengtsson, Håkan, A.
    Arenagruppen.
    Wingborg, Mats
    Säve-Söderbergh, Bengt
    Dags att införa en modern typ av värnplikt2016In: Svenska dagbladet, ISSN 1101-2412, no 2016-01-19Article in journal (Other (popular science, discussion, etc.))
    Abstract [sv]

    Hoten mot dagens samhälle är betydligt bredare än det rent militära. Vi är väl medvetna om att civilsamhället gör stora insatser. Men än fler borde delta, skriver flera debattörer som vill att effekterna av någon form av medborgartjänst eller moderniserad värnplikt utreds.

  • 2246.
    Hjort, Lovisa
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Steinweg, Caroline
    Ersta Sköndal University College, Department of Health Care Sciences.
    Sjuksköterskors attityder till patienter med HIV/HIDS2002Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 2247.
    Hjorth, Elin
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC.
    Kreicbergs, Ulrika
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska institutet.
    Sejersen, Thomas
    Karolinska institutet.
    Jeppesen, Jørgen
    Danmark.
    Werlauff, Ulla
    Danmark.
    Rahbek, Jes
    Danmark.
    Lövgren, Malin
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska institutet.
    Bereaved Parents More Satisfied With the Care Given to Their Child With Severe Spinal Muscular Atrophy Than Nonbereaved.2018In: Journal of Child Neurology, ISSN 0883-0738, E-ISSN 1708-8283, article id 883073818811544Article in journal (Refereed)
    Abstract [en]

    BACKGROUND AND AIMS:: Children with severe spinal muscular atrophy have complex care needs due to progressive muscle weakness, eventually leading to respiratory failure. To design a care system adapted to families' needs, more knowledge about parents' experience of care and its coordination between settings is required. This study explores (1) whether parents felt that health professionals took every opportunity to help the child feel as good as possible, (2) parents' satisfaction with various care settings, and (3) parents' satisfaction with coordination between settings.

    METHODS:: Data derive from nationwide Swedish and Danish surveys of bereaved and nonbereaved parents of children with severe spinal muscular atrophy born between 2000 and 2010 in Sweden and 2003 and 2013 in Denmark (N = 95, response rate = 84%). Descriptive statistics and content analysis were used.

    RESULTS:: Although most of the parents reported that care professionals had taken every opportunity to help the child feel as good as possible, one-third reported the opposite. Bereaved parents were significantly more satisfied with care than nonbereaved (81% vs 29%). The children received care at many different locations, for all of which parents rated high satisfaction. However, some were dissatisfied with care coordination, describing lack of knowledge and communication among staff, and how they as parents had to take the initiative in care management.

    CONCLUSIONS:: This study highlights the importance of improving disease-specific competence, communication and knowledge exchange among staff. For optimal care for these children and families, parents should be included in dialogues on care and staff should be more proactive and take care management initiatives.

  • 2248.
    Hjorth, Elin
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC.
    Kreicbergs, Ulrika
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska institutet, Astrid Lindgrens barnsjukhus.
    Sejersen, Thomas
    Karolinska institutet, Astrid Lindgrens barnsjukhus.
    Lövgren, Malin
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska institutet, Astrid Lindgrens barnsjukhus.
    Parents' advice to healthcare professionals working with children who have spinal muscular atrophy2018In: European journal of paediatric neurology, ISSN 1090-3798, E-ISSN 1532-2130, Vol. 22, no 1, p. 128-134, article id S1090-3798(17)30897-8Article in journal (Refereed)
    Abstract [en]

    AIM: To explore parents' advice to healthcare professionals working with children with spinal muscular atrophy (SMA).

    MATERIALS AND METHODS: This study derives from a Swedish nationwide survey and uses content analysis to make inferences from answers to an open-ended question concerning parent's advice to healthcare professionals. Of eligible parents who had a child born in Sweden between 2000 and 2010, diagnosed with SMA type 1 or 2, and for whom respiratory support was considered in the first year of life, 61 participated in the study (response rate: 87%). Of these, 51 parents answered the question about advice to healthcare professionals working with children with SMA.

    RESULTS: More than half of the advice from parents was related to professional-family relations. The second most frequent type of advice related to two aspects of knowledge about SMA: desire that healthcare professionals possess knowledge, and desire that they provide knowledge. The parents also had advice concerning support in daily life, both to the parents and to the affected child. Other pieces of advice were related to organization of care and the parents' desire to be involved in the child's care.

    CONCLUSIONS: Parents advised healthcare professionals to increase their disease-specific knowledge, to treat the parents as experts on their child, and to treat the family with respect, particularly in situations where the child's case is used as an opportunity to improve healthcare professionals' competence. Increased practical support in daily life and a case coordinator is also among parents' advice to healthcare professionals.

  • 2249.
    Hjukström, Linda
    Ersta Sköndal University College, Department of Health Care Sciences.
    Närståendes upplevelser av palliativ vård i hemmet2012Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Palliative homecare is a growing phenomenon. Next of kins often participate in the care as informal caregivers, although it means a major impact on their lives. The goal of palliative care is to relieve and allow as good a life as possible, not only for the patients but also for their next of kins.

    Aim: The aim of the study was to shed light on how next of kins perceive their situation in palliative homecare.

    Methods: A literature study has been accomplished through searches in the databases Cinahl, Pubmed and Medline. Twelve articles were selected for the result. In seven of the articles qualitative method was used, in two articles quantitative method and and three articles both qualitative and quantitative method were used. Seven studies were Swedish and the others were from Canada, Italy, Japan and Australia.

    Results: The result showed that informal caregivers had both positive and negative experiences of taking part in the care of the patient and they often felt insufficiency, uncertainty and fatigue, which caused other symptoms, both physical and psychological and spiritual. The result also showed that the informal caregivers had a great need to get support, information and training from the nurse in the professional care team both during treatment and after the patient had died.

    Discussion: There is often a difficult balance for the next of kins between taking care of the patient and their own personal needs of rest and personal time. Next of kins therefore need support from the professional care team to manage their role as informal caregivers. The nurse must be able to pay attention to the individuals unique needs and to assist in finding nursing interventions that can help next of kins to get the best possible balance in their daily lives despite the care burden. I consider that Carnevalis nursing model can be supportive in this work.

  • 2250.
    Hjulström, Susanne
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Liljestrand, Thérèse
    Ersta Sköndal University College, Department of Health Care Sciences.
    Petterson, Tine
    Ersta Sköndal University College, Department of Health Care Sciences.
    "Jag ska få besök, hoppas jag har orken": aspekter av betydelse för den palliativt vårdade patientens välbefinnande2004Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
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