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  • 51.
    Nordenfelt, Lennart
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Dignity in care for older people2009Collection (editor) (Other academic)
  • 52.
    Nordenfelt, Lennart
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Health, autonomy and quality of life: some basic concepts in the theory of health care and the care of older people2009In: Dignity in care for older people / [ed] Lennart Nordenfelt, Chichester: Wiley-Blackwell , 2009, p. 3-25Chapter in book (Other academic)
  • 53.
    Nordenfelt, Lennart
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Health, science, and ordinary language2001Book (Other academic)
  • 54.
    Nordenfelt, Lennart
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Hemmets värden: om hälsa, livskvalitet och autonomi2007In: Hemmets vårdetik: om vård av äldre i livets slutskede / [ed] Gunilla Silfverberg, Lund: Studentlitteratur , 2007, 1, p. 67-89Chapter in book (Other academic)
  • 55.
    Nordenfelt, Lennart
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Hälsa, autonomi och livskvalitet: några grundläggande begrepp2010In: Värdighet i vården av äldre personer / [ed] Lennart Nordenfelt, Lund: Studentlitteratur AB , 2010, 1, p. 29-61Chapter in book (Other academic)
  • 56.
    Nordenfelt, Lennart
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Hälsa som medicinens mål2008In: Vårdetisk spegel / [ed] Gunilla Silfverberg, Stockholm: Ersta Sköndal högskola , 2008, p. 30-49Chapter in book (Other academic)
  • 57.
    Nordenfelt, Lennart
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Om mänsklig värdighet2007In: Hemmets vårdetik: om vård av äldre i livets slutskede / [ed] Gunilla Silfverberg, Lund: Studentlitteratur , 2007, 1, p. 119-134Chapter in book (Other academic)
  • 58.
    Nordenfelt, Lennart
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Rationality and compulsion: applying action theory to psychiatry2007Book (Other academic)
  • 59.
    Nordenfelt, Lennart
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    The concept of dignity2009In: Dignity in care for older people / [ed] Lennart Nordenfelt, Chichester: Wiley-Blackwell , 2009, p. 26-53Chapter in book (Other academic)
  • 60.
    Nordenfelt, Lennart
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    The concept of work ability2008Book (Other academic)
  • 61.
    Nordenfelt, Lennart
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Värdighet i vården av äldre personer2010Collection (editor) (Other academic)
  • 62.
    Nordenfelt, Lennart
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Värdighet som föremål för empiriska studier: erfarenheter från två forskningsprogram2010In: Värdighet i vården av äldre personer / [ed] Lennart Nordenfelt, Lund: Studentlitteratur AB , 2010, 1, p. 299-321Chapter in book (Other academic)
  • 63.
    Seiger Cronfalk, Berit
    et al.
    Ersta Sköndal University College, Department of palliative care research. Karolinska institutet.
    Strang, Peter
    Karolinska institutet.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Inner power, physical strength and existential well-being in daily life: relatives' experiences of receiving soft tissue massage in palliative home care.2009In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 18, no 15, p. 2225-2233Article in journal (Refereed)
    Abstract [en]

    AIM AND OBJECTIVES: This article explores relatives' experiences of receiving soft tissue massage as a support supplement while caring for a dying family member at home. BACKGROUND: In palliative home care, relatives play an important role as carers to seriously ill and dying family members. To improve their quality of life, different support strategies are of importance. Complementary methods, such as soft tissue massage have become an appreciated supplement for these patients. However, only few studies focus on relatives experiences of receiving soft tissue massage as a supplemental support. DESIGN: Qualitative design METHOD: Nineteen relatives received soft tissue massage (hand or foot) nine times (25 minutes) in their homes. Open-ended semi-structured tape-recorded interviews were conducted once per relative after the nine times of massage, using qualitative content analysis. RESULTS: Soft tissue massage gave the relatives' feelings of 'being cared for', 'body vitality' and 'peace of mind'. For a while, they put worries of daily life aside as they just experienced 'being'. During massage, it became apparent that body and mind is constituted of an indestructible completeness. The overarching theme was 'inner power, physical strength and existential well-being in their daily lives'. CONCLUSION: All relatives experienced soft tissue massage positively, although they were under considerable stress. Soft tissue massage could be an option to comfort and support relatives in palliative home care. RELEVANCE TO CLINICAL PRACTICE: In palliative nursing care, soft tissue massage could present a worthy supplement in supporting caring relatives.

  • 64.
    Seiger Cronfalk, Berit
    et al.
    Ersta Sköndal University College, Department of palliative care research. Karolinska institutet.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Strang, Peter
    Karolinska institutet.
    Soft tissue massage: early intervention for relatives whose family members died in palliative cancer care2010In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 19, no 7-8, p. 1040-1048Article in journal (Refereed)
    Abstract [en]

    Aim and objectives.  This paper explores how bereaved relatives experienced soft tissue massage during the first four months after the death of a family member who was in palliative cancer care.

    Background.  Death of a close family member or friend is recognised as being an emotional and existential turning point in life. Previous studies emphasise need for various support strategies to assist relatives while they are grieving.

    Design.  Qualitative design.

    Method.  Eighteen bereaved relatives (11 women and seven men) received soft tissue massage (25 minutes, hand or foot) once a week for eight weeks. In-depth interviews were conducted after the end of the eight-week periods. Interviews were analysed using a qualitative descriptive content analysis method.

    Results.  Soft tissue massage proved to be helpful and to generate feelings of consolation in the first four months of grieving. The main findings were organised into four categories: (1) a helping hand at the right time, (2) something to rely on, (3) moments of rest and (4) moments of retaining energy. The categories were then conceptualised into this theme: feelings of consolation and help in learning to restructure everyday life.

    Conclusions.  Soft tissue massage was experienced as a commendable source of consolation support during the grieving process. An assumption is that massage facilitates a transition toward rebuilding identity, but more studies in this area are needed.

    Relevance to clinical practice.  Soft tissue massage appears to be a worthy, early, grieving-process support option for bereaved family members whose relatives are in palliative care.

  • 65.
    Seiger Cronfalk, Berit
    et al.
    Ersta Sköndal University College, Department of palliative care research.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Strang, Peter
    Friedrichsen, Maria
    The existential experiences of receiving soft tissue massage in palliative home care: an intervention2009In: Supportive Care in Cancer, ISSN 0941-4355, E-ISSN 1433-7339, Vol. 17, no 9, p. 1203-1211Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: Soft tissue massage is currently used in palliative care for the relief of anxiety and pain. Only few studies have focused on patients' deeper experience of receiving the massage.

    AIM: The purpose of this study was to explore how patients with cancer in palliative home care experienced soft tissue massage.

    MATERIALS AND METHODS: Twenty-two patients received soft tissue massage (hand or foot) nine times over a period of 2 weeks. Each session lasted for 25 min. Following the last massage session, a qualitative interview was conducted. The analysis was performed using a hermeneutic approach.

    FINDINGS: Soft tissue massage generated feelings of existential respite with perceptions of being released from illness for a while. Two categories constituted the basis of the experiences: (1) "an experience of thoughtful attention" and (2) "a sensation of complete tranquility" resulting in the overarching theme "A time of existential respite."

    CONCLUSION: The patients experienced the massage to give meaning and to be important as it generated feelings of an inner respite.

    RELEVANCE TO CLINICAL PRACTICE: Soft tissue massage appears to be an appreciated source of support to dying patients in palliative home care. The method is easy to comprehend and relatively short (25 min) which may imply that it is a suitable complement in nursing care for this patient group.

  • 66.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    A dignified death and identy-promoting care2009In: Dignity in care for older people / [ed] Lennart Nordenfelt, Chichester: Wiley-Blackwell , 2009, p. 146-165Chapter in book (Other academic)
  • 67.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Att få vara den man är i dödens närhet2007In: Hemmets vårdetik: om vård av äldre i livets slutskede / [ed] Gunilla Silfverberg, Lund: Studentlitteratur , 2007, p. 147-163Chapter in book (Other academic)
  • 68.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Barn med medfödda hjärtfel: vad säger den psykosociala forskningen?2005In: Hjärtebarnet, ISSN 1104-8654Article in journal (Other academic)
  • 69.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    En värdig död och en identitetsfrämjande vård2010In: Värdighet i vården av äldre personer / [ed] Lennart Nordenfelt, Lund: Studentlitteratur AB , 2010, 1, p. 237-265Chapter in book (Other academic)
  • 70.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Expressed desire for hastened death by patients with advanced cancer had several meanings and uses.2005In: Evidence-Based Nursing, ISSN 1367-6539, E-ISSN 1468-9618, Vol. 8, no 3, p. 96-Article in journal (Refereed)
  • 71.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Forskning som speglar vården i livets slutskede: sammanställning av aktuell forskning2007Report (Other academic)
  • 72.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Hjälp att leva livet ut2005In: Att få hjälp att dö: synsätt, erfarenheter, kritiska frågor / [ed] Claes-Göran Westrin & Tore Nilstun, Lund: Sudentlitteratur , 2005, p. 73-88Chapter in book (Other academic)
  • 73.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Patients and their primary care providers identified 4 goals of life sustaining treatment.2006In: Evidence-Based Nursing, ISSN 1367-6539, E-ISSN 1468-9618, Vol. 9, no 3, p. 95-Article in journal (Refereed)
  • 74.
    Ternestedt, Britt-Marie
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Franklin, Lise-Lotte
    Ersta Sköndal University College, Enheten för forskning i palliativ vård. Ersta Sköndal University College, Department of Health Care Sciences.
    Ways of relating to death: views of older people resident in nursing homes.2006In: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 12, no 7, p. 334-40Article in journal (Refereed)
    Abstract [en]

    Few studies shed light on what older people themselves consider a good or dignified death. This study is part of a larger project where interviews were used to follow 12 nursing home residents over time. The aim of the present study was to reach a deeper understanding of seven older people's thoughts, feelings and attitudes towards death. The participants were interviewed on four occasions across 18-24 months, and the interviews were analysed using a hermeneutic method. The findings revealed three main themes: 1. Zest for life, 2. Indifferent attitude, 3. Longing for death. The themes mirror the complexity of what ageing and nearing the end of life can mean. A strong desire among the participants was to be more involved in their own personal care and in everyday life at the nursing home. Person-oriented care based on the philosophy of palliative care, and including conversation as a natural component, might promote the older person's possibilities to obtain a good death.

  • 75.
    Ternestedt, Britt-Marie
    et al.
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Österlind, Jane
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Henoch, Ingela
    Sahlgrenska akademin, Göteborgs universitet,institutionen för vårdvetenskap och hälsa.
    Andershed, Birgitta
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    De 6 S:n - En modell för personcentrerad palliativ vård2012 (ed. 1)Book (Other academic)
  • 76. Tishelman, C
    et al.
    Bergenmar, M
    Bernhardson, B-M
    Blomberg, K
    Börjeson, S
    Foderus, H
    Leveälahti, H
    Sahlberg-Blom, Eva
    Ersta Sköndal University College, Department of palliative care research.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Using undergraduate nursing students as mediators in a knowledge transfer programme for care for patients with advanced cancer.2008In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 17, no 3, p. 253-60Article in journal (Refereed)
    Abstract [en]

    Nursing today faces numerous challenges. Societal changes lead to reorganization of health care, changing workloads with sicker patients in hospital and home care, and limited economic resources. The increasing and changing nature of knowledge needed for expert care provision challenges nurses to continually update their competencies. These are issues demanding proactive and dynamic changes in the way nurses conceive their mandates and practice. The aim of the action-research project presented here was to foster improved quality of care for patients with advanced cancer through collaborative endeavours integrating cancer nursing clinical practice, research and education in a knowledge exchange programme. The programme was based on input about caregiving needs from multi-professional staff caring for patients with advanced cancer in a variety of healthcare settings. Undergraduate baccalaureate nursing students were then engaged in literature studies to help address these needs. Results of the studies were communicated back to the involved clinicians in a variety of ways. In this paper, we discuss what we have experienced as opportunities and obstacles in conducting the project, based on our reflections and external evaluations. This is linked to a broader discussion of ways of integrating cancer nursing research, education and practice.

  • 77. Wall, Kent
    et al.
    Oddsson, Hjörtur
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Jonzon, Anders
    Nylander, Eva
    Schollin, Jens
    Thirty-year electrocardiographic follow-up after repair of tetralogy of Fallot or atrial septal defect.2007In: Journal of Electrocardiology, ISSN 0022-0736, E-ISSN 1532-8430, Vol. 40, no 2, p. 214-7Article in journal (Refereed)
    Abstract [en]

    BACKGROUND AND PURPOSE: Knowledge about long-term electrocardiographic changes after surgery for congenital heart disease is limited. METHODS: Eleven patients with corrected tetralogy of Fallot (ToF) and 14 with corrected atrial septal defect (ASD) were followed up at 20 and 30 years after surgery. RESULTS: Approximately 50% of the ASD group developed prolonged QRS duration. In the ToF group, 7 increased QRS duration by more than 20 milliseconds. Nearly all had right bundle-branch block, and 30% of them also had bifascicular block. Two in the ASD group developed first grade atrioventricular block. Five ASD and 6 ToF had prolonged corrected QT duration in the late postoperative phase. CONCLUSIONS: Even after primarily good results of surgery in congenital heart disease, unknown late effects may occur not only in complex lesions such as ToF but also after ASD correction. Regular medical checkups are important after surgical correction in congenital heart disease.

  • 78. Wallerstedt, Birgitta
    et al.
    Benzein, Eva
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Andershed, Birgitta
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Sharing living and dying - a balancing act between vulnerability and a sense of security: Enrolled nurses’ experiences of working in the sitting service for dying patients at home2011In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 9Article in journal (Refereed)
  • 79. Ångström-Brännström, Charlotte
    et al.
    Norberg, Astrid
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Strandberg, Gunilla
    Söderberg, Anna
    Dahlqvist, Vera
    Parents' experiences of what comforts them when their child is suffering from cancer.2010In: Journal of Pediatric Oncology Nursing, ISSN 1043-4542, E-ISSN 1532-8457, Vol. 27, no 5, p. 266-75Article in journal (Refereed)
    Abstract [en]

    The aim of the study was to describe parents' narratives concerning what they find comforting when they have a child suffering from cancer. Interviews were conducted with 9 parents--8 mothers and 1 father--of children aged 3 to 9 years who were admitted to a pediatric oncology ward and had undergone their first treatment. The findings showed that the parents derived comfort from being close to their child, perceiving the child's strength, feeling at home in the ward, being a family and being at home, and receiving support from their social network. Comfort experienced in communion with the child and others became important and helped the parents build a new normality perceived as being at home in life despite all their difficulties. Within the frame of communion, the parents seemed to experience moments of hope for their child's recovery and survival.

  • 80.
    Öhlen, Joakim
    et al.
    Karolinska institutet.
    Andershed, Birgitta
    Ersta Sköndal University College, Department of palliative care research.
    Berg, Christina
    Frid, Ingvar
    Palm, Carl-Axel
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Segesten, Kerstin
    Relatives in end-of-life care--part 2: a theory for enabling safety2007In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 16, no 2, p. 382-390Article in journal (Refereed)
    Abstract [en]

    AIM: To develop a goal-oriented praxis theory for enabling safety for relatives when an adult or older patient is close to end-of-life.BACKGROUND: This is the second part of a project focusing on the situation and needs of relatives in end-of-life care. Our interpretation of the existing corpus of knowledge pertaining to the needs of close relatives in this situation showed the significance of relatives' need for safety.

    METHOD: The theory was developed step-by-step, through triangulation of critical review of empirical research in the field, our own clinical experiences from end-of-life care, renewed literature searches and theoretical reasoning.

    THEORY: The foundation for the theory is taken from the ethical intention of the philosopher Paul Ricoeur. From this, the theory focuses on relatives in the context of end-of-life care with the goal of enabling safety. This is proposed by four aphorisms functioning as safety enablers and these are directed towards the professional's approach and attitude, the relative's concern for the patient, the specific situation for the relative and the patient's end-of-life period as a period in the life of the relative.

    RELEVANCE TO CLINICAL PRACTICE: Implications for end-of-life practice are considered and include aspects for promotion of just institutions in end-of-life care, the significance of negotiated partnership in end-of-life care, enabling safety for relatives living in existential and practical uncertainty in connection with end-of-life care and diversity of relatives' preferences as they live through this particular period.

  • 81.
    Österlind, Jane
    et al.
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Hansebo, Görel
    Ersta Sköndal University College, Department of Health Care Sciences.
    Andersson, Janicke
    Institutionen för samhälls- och välfärdsstudier, LInköpings universitet.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Enheten för forskning i palliativ vård. Ersta Sköndal University College, Department of Health Care Sciences.
    Hellström, Ingrid
    Institutionen för samhälls- och välfärdsstudier, Linköpings universitet.
    A discourse of silence: professional carers resoning of death and dying in nursing homes2011In: Ageing & Society, ISSN 0144-686X, E-ISSN 1469-1779, Vol. 31, no 4, p. 529-544Article in journal (Other academic)
    Abstract [en]

    Nursing homes are a setting in which death and dying is common. How death and dying is articulated and the actions that take place in a nursing home constitute adiscourse that guides the staff in their work. The aim of this studywas to explore thediscourse of death and dying in nursing homes from the perspective and understandingof the staff. The study draws on Foucault’s discourse analysis. Data arefrom fivefocus-group discussions held with 28 staff of four different nursing homes in Sweden. The findings show that the discourse had three characteristics :(a) dying was silent and silenced, (b) emotions were pushed into the background,and (c) attentiveness to death arose after the moment of the elderly person’s death. The structure of the discourse was characterised by a movement between twopositions, avoiding and confronting death, themain focus being on avoidance. Thearticulation and practices of silence highlight a need to regard dying as a processthat requires attention. One way to ensure appropriate attention could be to instil the philosophy of palliative care in nursing homes, including training and supportfor the staff in their work. The study demonstrates that nursing-home staff needmore knowledge and support to enable them to feel that they do a good job.

  • 82.
    Österlind, Jane
    et al.
    Ersta Sköndal University College, Department of palliative care research.
    Hansebo, Görel
    Ersta Sköndal University College, Department of Health Care Sciences.
    Lantz, Göran
    Ersta Sköndal University College, Department of Health Care Sciences.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Pathways in end-of-life care for older people: care managers' reasoning.2008In: International Journal of Palliative Nursing, ISSN 1357-6321, E-ISSN 2052-286X, Vol. 14, no 9, p. 420-5Article in journal (Refereed)
    Abstract [en]

    Seven care managers employed by a large municipality in Sweden were interviewed concerning their reasoning regarding end-of-life care for older people. Data were analyzed using a hermeneutic approach. The results showed that end-of-life care was considered to constitute a small part of the care managers' work and was something they did not focus on in general when assessing care needs. Two different pathways to death--the natural and the medical--were identified. In the natural pathway, death was invisible and the care was more routine-oriented. In the medical pathway, death was visualised and the care more individualised. Neither of the pathways paid attention to communication or existential needs. Thus, there is a need for a palliative pathway to death based on the philosophy of palliative care, which could provide guidance for care managers and promote opportunities for older people to achieve a dignified dying and death.

  • 83.
    Österlind, Jane
    et al.
    Ersta Sköndal University College, Department of palliative care research. Ersta Sköndal University College, Department of Health Care Sciences.
    Ternestedt, Britt-Marie
    Ersta Sköndal University College, Department of Health Care Sciences. Ersta Sköndal University College, Enheten för forskning i palliativ vård. Karolinska institutet.
    Hansebo, Görel
    Ersta Sköndal University College, Department of Health Care Sciences. Karolinska institutet.
    Hellström, Ingrid
    Ersta Sköndal University College, Department of palliative care research. Ersta Sköndal University College, Department of Health Care Sciences. Linköpings universitet.
    Feeling lonely in an unfamiliar place: older peoples experiences of life close to death in a nursing home2017In: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 12, no 1, p. 1-8, article id e12129Article in journal (Refereed)
    Abstract [en]

    Aim: The aim of the study was to deepen the understanding of how older persons living in a nursing home experience life close to death.

    Background: A move to and a life in a nursing home while being close to death is a reality for many older people in Sweden. Being able to express thoughts and feelings about death has been described as both crucial for sustaining personhood as well as for establishing a meaningful existence at the end of life. Important are the experiences of older people living in nursing homes who are approaching death.

    Method: Six older people were interviewed on one to four occasions. A total of 16 interviews were conducted with the participants. An interpretative approach was chosen.

    Findings: The main interpretation, Feeling lonely in an unfamiliar place, is based on three themes (i) Waiting for death, with the subthemes death as a release and thinking of oneself as dead; (ii) Subordinate oneself to values and norms of the staff, with the subthemes feeling offended and feeling trapped; and (iii) Keep the courage up. The older people's lives were characterised by feelings of aloneness in an unfamiliar place which contributed to a sense of existential loneliness. They experienced few opportunities to discuss their thoughts of life and death, including preparations for passing away.

    Conclusion and implication for practice: It is of importance for professionals to be able to meet older people as they are and respect them as human beings in their transitions, before, during and after the move to a nursing home. It is important to find ways to support older people's wellbeing and identity near death.

  • 84. Östlinder, G
    et al.
    Norberg, Astrid
    Ersta Sköndal University College, Enheten för forskning i palliativ vård.
    Pilhammar Andersson, E
    Öhlén, Joakim
    Göteborgs universitet.
    Erfarenhetsbaserad kunskap: Vad är det och hur utvärderar vi den?2006Book (Other academic)
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