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  • 51.
    Aleson, Marie
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Häggqvist, Lina
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Patienters upplevelser av att vårdas inom somatisk sjukvård i samband med psykisk ohälsa: En litteraturöversikt2017Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Mental illness is nowadays considered a public health problem. Patients with mental illness often suffer co-morbidity and are therefore often cared for within somatic care. According to caring science the holistic perspective of the human with both body and soul is advocated where one part can never be excluded. Sensitivity in the caring relationship can be crucial for a patient suffering from mental illness. However, health personnel themselves experience a lack of knowledge caring for patients with mental illness.

    Aim: The aim of the literature review was to illustrate patients´ experiences of being cared for within somatic care in conjunction with mental illness.

    Method: Literature review including ten scientific articles was implemented, eight with a qualitative design and two with a quantitative design. The articles were analyzed according to Friberg’s (2012) method for literature review.

    Results: Six main themes were identified: experiences of meeting health personnel, experiences of being understood, follow-up by the caregiver, experiences of being involved, experiences of barriers for care and security.

    Discussion: The result is discussed according to Eriksson's theory of the caring relationship and suffering. Lack of knowledge within mental illness creates insecurity among health personnel and also creates suffering for the patient. The importance of seeing to the human as a whole is discussed.

  • 52.
    Alfredsson, Johanna
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Venuti, Maria
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Kulturkompetens - Ett behov för sjuksköterskor och sjuksköterskestudenter: En litteraturöversikt2018Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    Bakgrund: Ökad global migration ställer krav på sjuksköterskor i omvårdnadssituationer där patientens etnicitet och sårbarhet behöver beaktas. Sårbarheten kan bestå i flyktingars hälsosituation och den stress flyktingar upplever under migrationsprocessen. Sjuksköterskor och sjuksköterskestudenter behöver ta kulturen i beaktande vid möte med dessa patienter.

    Syfte: Att belysa sjuksköterskors och sjuksköterskestudenters kulturkompetens.

    Metod: Litteraturöversikten grundar sig på tio vetenskapliga artiklar, varav två kvantitativa och åtta kvalitativa.

    Resultat: Sjuksköterskor och sjuksköterskestudenter finner kommunikationsproblemet som största hindret, där språkbarriärer är en tydlig faktor. Detta gör att sjuksköterskor och sjuksköterskestudenter anser att omvårdnaden i dessa fall tar mer tid i anspråk, och att tolkanvändningen förekommer alltför sällan. Sjuksköterskor och sjuksköterskestudenter anser att de har en viss kulturkompetens men att en önskan finns om ytterligare utbildning i ämnet.

    Diskussion: En önskan hos sjuksköterskor och sjuksköterskestudenter om fördjupade kunskaper i kulturkompetens kan utläsas av de resultat som framkommit i litteraturöversikten. Kulturkompetens har i litteraturöversikten diskuterats utifrån Madeleine Leiningers transkulturella omvårdnadsteori.

  • 53.
    Ali, Awin
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Abdullahi Ali, Hafsa
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Att leva med diabetes typ 2: upplevelser av livsstilsförändringar och behovet av stöd2019Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 54.
    Alkacir, Tülay
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Moaven, Morvarid
    Ersta Sköndal University College, Department of Health Care Sciences.
    Anhörigvårdarens upplevelser och behov av stöd vid vård av en person med demenssjukdom2006Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 55.
    Allahyar, Shirin
    Ersta Sköndal University College, Department of Health Care Sciences.
    Språksvårigheters påverkan i tvärkulturellt omvårdnadsarbete2004Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 56.
    Allenius, Emelie
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Sjuksköterskors upplevelse av vårdrelationen vid självvald inläggning hos personer med emotionell instabilitet: en intervjustudie2017Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: The nurse has a responsibility to through a person-centred and relation fostering approach support the patient's recovery process. The professional-patient relationship between nurses and persons with emotional instability within the closed psychiatric care is often characterized by frustration, irritation and misunderstanding, leading to an increased suffering. Brief admission as a method has the purpose to increase the patient’s sense of participation and autonomy, factors which are considered to improve the professional-patient relationship. The method has just recently been introduced in the Swedish health care system. There are however only a limited number of studies concerning brief admission in connection with emotional instability and deliberate self-harm, with no prior studies in Sweden.

    Aim: To describe nurses experience of the professional-patient relationship within brief admission among persons with emotional instability and deliberate self-harm.

    Method: The study was performed using the qualitative method. Eight nurses with experience from brief admission were interviewed and the data was analysed using a qualitative content analysis.

    Results: From the analysis two main categories emerged. The first category “Brief admission   promotes the professional-patient relationship” describes the experience of the interviewees that brief admission creates predictability and structure leading to improved   communication, continuity together with meetings between more equal partners. In the second category “Clarified role of the nurse” the interviewees describes a higher degree of focus on the care within brief admission together with working to support the resources of the patients, which affects the role of the nurses. 

    Discussion: The results of the study are illustrated and discussed using the tidal model and its ten commitments regarding the nurse’s professional responsibility within nursing together with relevant literature.

  • 57.
    Allgulander,, Karin
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Andersson, Eva
    Ersta Sköndal University College, Department of Health Care Sciences.
    Hur sjuksköterskan kommunicerar med sin patient2005Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 58.
    Alm, Annie
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Åström, Madeleine
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Patienters erfarenhet av faktorer som hindrar eller främjar egenvård vid diabetes typ 2: En litteraturöversikt2017Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Diabetes is an increasing problem and self-care is of great importance to prevent complications. Nurses have an important role in supporting or compensating in areas that the patient is not sufficient enough to self-manage. The interest in this topic originated in several clinical encounters with patients showing self-care deficits and tools for supporting these patients are in demand.

    Aim: The aim of this literature review is to illuminate patients’ experiences of barriers and promoters of self-care in type 2 diabetes.

    Method: Literature review. The result is based on 13 scholarly articles. The articles were identified from searching the databases Cinahl Complete, Academic Search Complete, PubMed and Nursing & Allied Health Database. This literature review focused on qualitative studies. A matrix method was used in compiling the results. The results were then analyzed and categorized.

    Results: Many factors affect individuals' ability of self-care. These are presented in the main themes: "Barriers" and "Promotors". Both internal and external factors influence a persons’ ability of self-care. A recurrent problem and barrier were lack of motivation and understanding of the importance of self-care. Coping, compliance and self-efficacy have a positive influence on self-care as demonstrated in the promotors theme.

    Discussion: Self-image and a persons’ emotional state affect his or hers self-care capacity and ability to change habits. Nurses need opportunities to improve their knowledge and understanding about lifestyle and diabetes counselling in order to help these patients. The results of this literature review were partially discussed using Dorothea Orem's "Self-care nursing deficit theory".

  • 59.
    Alm Persson, Ingrid
    Ersta Sköndal University College, Department of Health Care Sciences.
    Vem bestämmer?: vårdares upplevelser av utvecklingsstörda människors möjligheter samt vilja till självbestämmande i en basal omvårdnadssituation2002Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
  • 60.
    Almegård, Julia
    Ersta Sköndal University College, Department of Health Care Sciences.
    Sjuksköterskans omvårdnad vid psykisk ohälsa inom den öppna vården: En litteraturöversikt2016Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Mental illness is increasing in society and is today the leading cause off sick leave and extended sick leave in Sweden. The care of patients with mental illness are time consuming, and the need for resources that this group of patients requires are opening up for new ways for nurses to work, beyond their traditional profession.

    Aim: The aim of this literature review is to describe the nursing care for patients with mental illness in general outpatient care.

    Method: The method that was used in this paper is a literature review. Eight scientific articles were reviewed, four were of qualitative design, three of quantitative design and one of mixed method.

    Results: The literature review resulted in two main themes, divided in four and two sub themes. The main theme, performed nursing care, describes how the nurse is working with assessments, information, education, guidance, continuous talks and psychotherapy. The second main theme, the effects of the implemented nursing care, describes the impact of how nursing care measures may have affected the nurse’s commitment as well as on the patient’s symptoms and treatment.

    Discussion: The nursing care described in the results are discussed with the view of the nurse as a contributing labor in outpatient care for patients with mental illness. The findings are also discussed from the tidal model of nursing theorist Phil Barker, and the consensus concept of man.

  • 61.
    Almgren, Sofia
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Kjällman, Jenny
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Är akutmottagningen en plats att dö på?: Sjuksköterskors erfarenheter av att vårda patienter i ett sent palliativt skede på en akutmottagning – en litteraturöversikt2017Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [sv]

    Bakgrund: Palliativ vård bygger på ett förhållningssätt med syfte att lindra lidande och öka livskvaliteten under den sista tiden i livet. Sjuksköterskans uppgift i den palliativa vården är att utifrån en personcentrerad vård skapa förutsättningar för en god död. Trots att det finns möjlighet för vård i hemmet eller på palliativ vårdenhet händer det att patienter i ett sent palliativt skede ändå söker sig till akutmottagningen.

    Syfte: Att beskriva sjuksköterskors erfarenheter av att vårda patienter i ett sent palliativt skede, på akutmottagning.

    Metod: En litteraturöversikt har gjorts för att besvara syftet. Elva vetenskapliga orginalartiklar har inkluderats och dessa har granskats, analyserats tematiserats för att urskilja likheter och skillnader.

    Resultat: Två huvudteman och sex underteman identifierades. Det första huvudtemat var Sjuksköterskans erfarenheter av faktorer som utgör hinder för god palliativ vård, med tillhörande underteman vårdmiljön som ett hinder, avsaknad av nödvändiga resurser, kurativ mentalitet och anhöriga som ett hinder för god palliativ vård. Det andra huvudtemat var sjuksköterskans erfarenheter av faktorer som främjar en god palliativ vård, med tillhörande underteman en underlättande vårdmiljö och resursers betydelse för god palliativ vård.

    Diskussion: Diskussionen framhäver vårdkulturens betydelse för den palliativa vården på en akutmottagning. Författarna diskuterar tre fenomen, resurser, kurativ mentalitet och akutmottagningens utformning i relation till Katie Erikssons caritativa vårdteori.

  • 62.
    Almqvist, E
    et al.
    Kanada.
    Adam, S
    Bloch, M
    Fuller, A
    Welch, P
    Eisenberg, D
    Whelan, D
    Macgregor, D
    Meschino, W
    Hayden, M R
    Risk reversals in predictive testing for Huntington disease.1997In: American Journal of Human Genetics, ISSN 0002-9297, E-ISSN 1537-6605, Vol. 61, no 4, p. 945-52Article in journal (Refereed)
    Abstract [en]

    The first predictive testing for Huntington disease (HD) was based on analysis of linked polymorphic DNA markers to estimate the likelihood of inheriting the mutation for HD. Limits to accuracy included recombination between the DNA markers and the mutation, pedigree structure, and whether DNA samples were available from family members. With direct tests for the HD mutation, we have assessed the accuracy of results obtained by linkage approaches when requested to do so by the test individuals. For six such individuals, there was significant disparity between the tests. Three went from a decreased risk to an increased risk, while in another three the risk was decreased. Knowledge of the potential reasons for these changes in results and impact of these risk reversals on both patients and the counseling team can assist in the development of strategies for the prevention and, where necessary, management of a risk reversal in any predictive testing program.

  • 63.
    Almqvist, E
    et al.
    Karolinska institutet.
    Andrew, S
    Theilmann, J
    Goldberg, P
    Zeisler, J
    Drugge, U
    Grandell, U
    Tapper-Persson, M
    Winblad, B
    Hayden, M
    Geographical distribution of haplotypes in Swedish families with Huntington's disease.1994In: Human Genetics, ISSN 0340-6717, E-ISSN 1432-1203, Vol. 94, no 2, p. 124-8Article in journal (Refereed)
    Abstract [en]

    This study was planned to determine the number of origins of the mutation underlying Huntington's disease (HD) in Sweden. Haplotypes were constructed for 23 different HD families, using six different polymorphisms [(CCG)n, GT70, 674, BS1, E2 and 4.2], including two within the gene. In addition, extensive genealogical investigations were performed, and the geographical origin of the haplotypes was studied. Ten different haplotypes were observed suggesting multiple origins for the HD mutation in Sweden. Analysis of the two polymorphic markers within the HD gene (the CCG repeat and GT70) indicates that there are at least three origins for the HD mutation in Sweden. One of these haplotypes (7/A) accounts for 89% of the families, suggesting that the majority of the Swedish HD families are related through a single HD mutation of ancient origin. Furthermore, three of the families that were previously considered to be unrelated could be traced to a common ancestor in the 15th century, a finding that is consistent with this hypothesis.

  • 64.
    Almqvist, E
    et al.
    Karolinska institutet.
    Lake, S
    Axelman, K
    Johansson, K
    Winblad, B
    Screening of amyloid precursor protein gene mutation (APP 717 Val-->Ile) in Swedish families with Alzheimer's disease.1993In: Journal of neural transmission. Parkinson's disease and dementia section, ISSN 0936-3076, Vol. 6, no 2, p. 151-6Article in journal (Refereed)
    Abstract [en]

    Screening for the APP 717 Val-->Ile mutation in the amyloid precursor protein (APP) gene in 34 Swedish families with familial Alzheimer's disease (FAD), 16 sporadic cases of Alzheimer's disease and five patients with Down's syndrome (DS) failed to identify further cases of the mutation. These results suggests that the mutation is rare among Swedish families with Alzheimer's disease. In addition, we summarize present reports of the frequency of the mutation.

  • 65.
    Almqvist, E
    et al.
    Kanada.
    Spence, N
    Nichol, K
    Andrew, S E
    Vesa, J
    Peltonen, L
    Anvret, M
    Goto, J
    Kanazawa, I
    Goldberg, Y P
    Ancestral differences in the distribution of the delta 2642 glutamic acid polymorphism is associated with varying CAG repeat lengths on normal chromosomes: insights into the genetic evolution of Huntington disease.1995In: Human Molecular Genetics, ISSN 0964-6906, E-ISSN 1460-2083, Vol. 4, no 2, p. 207-14Article in journal (Refereed)
    Abstract [en]

    This study addresses genetic factors associated with normal variation of the CAG repeat in the Huntington disease (HD) gene. To achieve this, we have studied patterns of variation of three trinucleotide repeats in the HD gene including the CAG and adjacent CCG repeats as well as a GAG polymorphism at residue 2642 (delta 2642). We have previously demonstrated that variation in the CCG repeat is associated with variation of the CAG repeat length on normal chromosomes. Here we show that differences in the GAG trinucleotide polymorphism at residue 2642 is also significantly correlated with CAG size on normal chromosomes. The B allele which is associated with higher CAG repeat lengths on normal chromosomes is markedly enriched on affected chromosomes. Furthermore, this glutamic acid polymorphism shows significant variation in different ancestries and is absent in chromosomes of Japanese, Black and Chinese descent. Haplotype analysis of both the CCG and delta 2642 polymorphisms have indicated that both are independently associated with differences in CAG length on normal chromosomes. These findings lead to a model for the genetic evolution of new mutations for HD preferentially occurring on normal chromosomes with higher CAG repeat lengths and a CCG repeat length of seven and/or a deletion of the glutamic acid residue at delta 2642. This study also provides additional evidence for genetic contributions to demographic differences in prevalence rates for HD.

  • 66.
    Almqvist, E W
    et al.
    Kanada.
    Bloch, M
    Brinkman, R
    Craufurd, D
    Hayden, M R
    A worldwide assessment of the frequency of suicide, suicide attempts, or psychiatric hospitalization after predictive testing for Huntington disease.1999In: American Journal of Human Genetics, ISSN 0002-9297, E-ISSN 1537-6605, Vol. 64, no 5, p. 1293-304Article in journal (Refereed)
    Abstract [en]

    Prior to the implementation of predictive-testing programs for Huntington disease (HD), significant concern was raised concerning the likelihood of catastrophic events (CEs), particularly in those persons receiving an increased-risk result. We have investigated the frequency of CEs-that is, suicide, suicide attempt, and psychiatric hospitalization-after an HD predictive-testing result, through questionnaires sent to predictive-testing centers worldwide. A total of 44 persons (0.97%) in a cohort of 4,527 test participants had a CE: 5 successful suicides, 21 suicide attempts, and 18 hospitalizations for psychiatric reasons. All persons committing suicide had signs of HD, whereas 11 (52.4%) of 21 persons attempting suicide and 8 (44.4%) of 18 who had a psychiatric hospitalization were symptomatic. A total of 11 (84.6%) of 13 asymptomatic persons who experienced a CE during the first year after HD predictive testing received an increased-risk result. Factors associated with an increased risk of a CE included (a) a psychiatric history </=5 years prior to testing and (b) unemployed status. The frequency of CEs did not differ between those persons receiving results of predictive testing through linkage analysis in whom there was only changes in direction of risk and those persons receiving definitive results after analysis for the mutation underlying HD. These findings provide insights into the frequency, associated factors, and timing of CEs in a worldwide cohort of persons receiving predictive-testing results and, as such, highlight persons for whom ongoing support may be beneficial.

  • 67.
    Almqvist, E W
    et al.
    Kanada.
    Brinkman, R R
    Wiggins, S
    Hayden, M R
    Psychological consequences and predictors of adverse events in the first 5 years after predictive testing for Huntington's disease.2003In: Clinical Genetics, ISSN 0009-9163, E-ISSN 1399-0004, Vol. 64, no 4, p. 300-9Article in journal (Refereed)
    Abstract [en]

    The promise of genetic medicine is to provide information, based on genotype, to persons not yet sick about their risk of future illness. However, little is known of the long-term psychological effects for asymptomatic persons learning their risk of having a serious disease. Predictive genetic testing for Huntington's disease (HD) has been offered for the longest time for any disease. In the present study, the psychological consequences of predictive testing were assessed prospectively in individuals at risk for HD during seven visits over 5 years. Questionnaires of standard measures of psychological distress (the General Severity Index of the Symptom Check List-90-Revised), depression (the Beck Depression Inventory), and general well-being (the General Well-Being Scale) were administered to the participants. A significant reduction in psychological distress was observed for both result groups throughout 2 years (p < 0.001) and at 5 years (p = 0.002). Despite the overall improvement of the psychological well-being, 6.9% (14 of 202) of the participants experienced an adverse event during the first 2 years after predictive testing that was clinically significant. The frequency of all defined adverse events in the participants was 21.8%, with higher frequency in the increased risk group (p = 0.03) and most occurring within 12 months of receiving results.

  • 68.
    Almqvist, E W
    et al.
    Kanada.
    Elterman, D S
    MacLeod, P M
    Hayden, M R
    High incidence rate and absent family histories in one quarter of patients newly diagnosed with Huntington disease in British Columbia.2001In: Clinical Genetics, ISSN 0009-9163, E-ISSN 1399-0004, Vol. 60, no 3, p. 198-205Article in journal (Refereed)
    Abstract [en]

    The advent of the direct mutation test for Huntington disease (HD) has made it possible to identify a previously unrecognized symptomatic population of HD, including those with an atypical presentation or patients without a family history of HD. The present study investigated the uptake of this test in the province of British Columbia (BC), Canada and assessed the incidence rate and rate of identification of new mutations for HD. All symptomatic individuals residing in BC who were referred for the genetic test for HD between 1993 and 2000 (n=205) were analyzed for CAG expansion, baseline demographics and clinical data, and a family history of HD. A total of 141 (or 68.8%) had a CAG expansion > or =36. Of these, almost one-quarter (24.1%) did not have a family history of HD. An extensive chart review revealed that 11 patients (or 7.8%) had reliable information on both parents (who lived well into old age) and therefore possibly could represent new mutations for HD. This indicates a three to four times higher new mutation rate than previously reported. Our findings also show that the yearly incidence rate for HD was 6.9 per million, which is two times higher than previous incidence studies performed prior to the identification of the HD mutation. We also identified five persons with a clinical presentation of HD but without CAG expansion (genocopies) (2.4%).

  • 69.
    Almström, Ulrika
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Mantzios, Olivia
    Ersta Sköndal University College, Department of Health Care Sciences.
    Möten mellan vården och patienter med HIV: En litteraturstudie2016Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: HIV-infection among humans received attention throughout the world 35 years ago from the dramatic increase in deaths. The deadly virus has spread globally with intensity in the African continent. The virus has been somewhat falsely characterized as the “homosexual disease” even though this group represents a minority of all people living with HIV. Global programs are taking action to decrease the amount of deaths and the knowledge and attitude towards the virus has improved in Sweden through the last decades. Despite this, there are still dramatic misunderstandings in knowledge about HIV and attitudes towards HIV-infected people. Care should be given with respect no matter diagnosis, and adequate communication is of vital importance to be able to perform individualized care in a proper functioning healthcare setting.

    Aim: How HIV-infected patients experience interaction with healthcare professionals.

    Method: A literature review was conducted to analyze and compile data of existing knowledge from eleven scientific articles within a specific area of study.

    Results: The results of the review are presented in two main themes. The first main theme is positive experiences of interactions within healthcare that includes following sub themes: relationship-building values, the support given by caregivers, a positive professional-patient relation and closeness – a sign of acceptance. The second main theme is negative experiences of interactions within healthcare which includes following sub themes: differential treatment because of HIV, precautions exceeded by caregivers, inappropriate encounters, emotions and actions exceeded by caregivers and confidentiality breaches. These themes describe how patients experienced encounters within healthcare settings negatively.

    Discussion: The result findings are discussed from nurses and nursing students perspectives on knowledge about HIV. The importance of both knowledge about HIV and communication is highlighted, and how healthcare professionals should acquire these understandings. This has been discussed using Joyce Travelbee´s nursing theory.

  • 70.
    Alsberg, Pernilla
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Jakobsson, Charlotta
    Ersta Sköndal University College, Department of Health Care Sciences.
    Vårdpersonalens tankar och uppfattningar om närstående till äldre vårdtagare2007Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 71.
    Alsterlind, Ingrid
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Beck-Friis, Camilla
    Ersta Sköndal University College, Department of Health Care Sciences.
    Som en "naturlig" kvinna: en studie om äldre kvinnor och sexualitet2009Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 72.
    Alstermo, Jeanette
    et al.
    Ersta Sköndal University College, Institutionen för omvårdnad.
    Tóth, Katinka
    Ersta Sköndal University College, Institutionen för omvårdnad.
    Existentiella frågors betydelse i palliativ omvårdnad: en analys av sjuksköterskeutbildningens kurslitteratur1998Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 73.
    Alström, AnnaMaria
    Ersta Sköndal University College, Department of Health Care Sciences.
    Vikten av det personliga samtalet i vården: patientcentrerad kommunikation mellan patient och sjuksköterska2005Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 74.
    Al-suhaili, Hind
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Friberg, Sofia
    Ersta Sköndal University College, Department of Health Care Sciences.
    Ingen visste hur det var hemma: En litteraturöversikt över vuxna barns upplevelser av att ha vuxit upp med en psykiskt sjuk förälder2015Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Mental illness is a common health problem in Sweden, and may not only cause patient suffering, but also his or the patient`s family, particularly under aged children. Parents with mental illness may neglect or be less attentive to the children`s basic needs, and according to the stress-vulnerable model this may cause poor health under unnecessary life-long suffering for the child. It is the nurse`s responsibility to also ensure the patient`s family members´ health.

    Aim: To gain knowledge of adult children’s experiences of having a parent with mental illness during his or her childhood, as well as how they experience their own health.

    Method: Literature review by Friberg´s method. This literature review includes ten studies, which are taken from Cinahl complete, Medline with full text and Pubmed. Abstract was read by helicopter perspective and both qualitative and quantitative studies were selected. The authors discussed the similarities and differences in the results of the studies. Themes and subthemes were defined.

    Results: Three themes were defined; experiences of role change, the emotional experiences and experiences of health of an adult.

    Discussion: The three most characteristic themes of the study are discussed in relation to Travelbee's nursing theory of interpersonal relationships, the importance of information given to the underaged child, and how to work preventive in order to promote the experience of health in children with mentally ill parents.

  • 75.
    Altarabishi Almuslimani, Emelie
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Humphreys, Maria
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Livet efter en njurtransplantation: En litteraturöversikt2018Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    In Sweden there is 300,000–400,000 people with impaired kidney function. with chronic renal failure, patients experience a limited life, with many symptoms affecting their ways negative and dialysis treatment is time consuming and adversely affects their everyday lives. Kidney transplantation is an effective treatment and is the most common organ transplant in Sweden. Patients hope to have an improved quality of life through a kidney transplant despite the risks of transplant rejection. In order for the nurse to be able to provide good nursing after a kidney transplant and to see what the patient has for nursing needs, the nurses then needs a deeper knowledge of patients' experiences of life after a renal transplant.

    The aim was to describe how patients experience life after a kidney transplantation.

    Literature overview based on 10 scientific articles from the database Cinahl Complete, Academic Search Complete and Nursing & Allied Health. The articles are reviewed and analyzed according to Friberg's (2012) method of identifying similarities and differences, then compiled.

    Following the analyses, three main themes were identified: New life with changes, the experience of limited life, anxiety, concern and loneliness, which describes how life after kidney plantation is experienced by the patient

    The method discussion is based on the strengths and weaknesses of the literature review. The result is discussed based on Calista Roy's adaptation theory from the key concepts and adaptive features.

  • 76.
    Alvarez Gustafsson, Alejandra
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Närståendes erfarenheter av att vårda en anhörig med Alzheimers sjukdom: En litteraturöversikt2018Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 77.
    Alvarez-Netterlid, Thelma
    Ersta Sköndal University College, Department of Health Care Sciences.
    Närståendes behov av stöd vid palliativ vård i hemmet: en litteraturstudie2010Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 78.
    Alvariza, Anette
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Capio Palliativ vård, Dalens sjukhus Stockholm.
    Holm, Maja
    Sophiahemmet högskola.
    Palliativ vård i hemmet2019In: Hemsjukvård: olika perspektiv på trygg och säker vård / [ed] Mirjam Ekstedt & Maria Flink, Stockholm: Liber, 2019, p. 83-100Chapter in book (Other academic)
  • 79.
    Alvariza, Anette
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences. Capio Palliativ vård Dalen.
    Holm, Maja
    Sophiahemmet högskola.
    Benkel, Inger
    Göteborgs universitet.
    Norinder, Maria
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Capio Palliativ vård Dalen.
    Ewing, Gail
    Storbritannien.
    Grande, Gunn
    Storbritannien.
    Håkanson, Cecilia
    Göteborgs universitet.
    Öhlen, Joakim
    Göteborgs universitet.
    Årestedt, Kristofer
    Linnéuniversitetet, Landstinget i Kalmar län.
    A person-centred approach in nursing: Validity and reliability of the Carer Support Needs Assessment Tool.2018In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 35, p. 1-8, article id S1462-3889(18)30058-9Article in journal (Refereed)
    Abstract [en]

    PURPOSE: The Carer Support Needs Assessment Tool (CSNAT) was developed for use among family caregivers in palliative care for assessment of their support needs. The purpose of this study was to translate and evaluate the validity and reliability of the CSNAT in a sample of Swedish family caregivers and nurses in a palliative care context.

    METHODS: Data for this validation study was collected during 2016 in the context of palliative home care in two larger Swedish cities. The study was conducted in three stages to reach conceptual, semantic, operational and measurement equivalence between the original UK version and the Swedish version. Stage I consisted of translation to Swedish. In Stage II, cognitive interviews were performed with 8 family caregivers and 10 nurses. Data were analyzed based on relevance, clarity and sensitivity. In Stage III, the CSNAT and related self-rating measures (caregiver burden, preparedness for caregiving and quality of life) were completed by 118 family caregivers. Data quality, construct validity and test-retest reliability were evaluated.

    RESULTS: The CSNAT items were considered relevant and useful to identify areas of support needs. The Swedish CSNAT showed sound psychometric properties with satisfactory data quality and few problems with missing data across items (1.8%-6.1%). All items except one correlated as expected (rho>0.3) with caregiver burden, supporting construct validity. All items had satisfactory test-retest reliability (κw=0.45-0.75).

    CONCLUSIONS: This study further adds to the validity of the CSNAT and shows in addition that it is reliable and stable for use among family caregivers in palliative care.

  • 80.
    Alvariza, Anette
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Dalens sjukhus, Stockholm.
    Holm, Maja
    Mälardalens högskola, Linnéuniversitet, Växjö.
    Bylund-Grenklo, Tove
    Linnéuniversitetet, Växjö, Karo­linska institutet.
    Goliath, Ida
    Karolinska institutet, Ersta sjukhus, Stockholm.
    Kreicbergs, Ulrika
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Karolinska institutet.
    Viktigt att stärka närståendes möjligheter att förbereda sig2016In: Läkartidningen, ISSN 0023-7205, E-ISSN 1652-7518, Vol. 113, article id D4YCArticle in journal (Other academic)
  • 81.
    Alvariza, Anette
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences, Palliative Research Centre, PRC.
    Lövgren, Malin
    Ersta Sköndal University College, Department of Health Care Sciences, Palliative Research Centre, PRC.
    Bylund-Grenklo, Tove
    Karolinska institutet.
    Hakola, Pia
    Stockholms Sjukhem.
    Fürst, Carl Johan
    Lunds universitet, Region Skåne.
    Kreicbergs, Ulrika
    Ersta Sköndal University College, Department of Health Care Sciences, Palliative Research Centre, PRC.
    How to support teenagers who are losing a parent to cancer: Bereaved young adults' advice to healthcare professionals-A nationwide survey.2016In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 15, no 3, p. 313-319Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: The loss of a parent to cancer is considered one of the most traumatic events a teenager can experience. Studies have shown that teenagers, from the time of diagnosis, are already extremely worried about the consequences of a parent's cancer but tend to be left to manage these concerns on their own. The present study aimed to explore young adults' advice to healthcare professionals on how to support teenagers who are losing a parent to cancer.

    METHODS: This work derives from a Swedish nationwide survey and employs a qualitative approach with a descriptive/interpretive design to obtain answers to an open-ended question concerning advice to healthcare professionals. Of the 851 eligible young adults who had lost a parent to cancer when they were 13-16 years of age within the previous 6 to 9 years, 622 participated in our survey (response rate = 73%). Of these 622 young adults, 481 responded to the open-ended question about what advice to give healthcare professionals.

    RESULTS: Four themes emerged: (1) to be seen and acknowledged; (2) to understand and prepare for illness, treatment, and the impending death; (3) to spend time with the ill parent, and (4) to receive support tailored to the individual teenager's needs.

    SIGNIFICANCE OF RESULTS: This nationwide study contributes hands-on suggestions to healthcare staff regarding attitudes, communication, and support from the perspective of young adults who, in their teenage years, lost a parent to cancer. Teenagers may feel better supported during a parent's illness if healthcare professionals take this manageable advice forward into practice and see each teenager as individuals; explain the disease, its treatments, and consequences; encourage teenagers to spend time with their ill parent; and recommend sources of support.

  • 82.
    Alvariza, Anette
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC. CapioPalliativ vård, Dalen sjukhus, Stockholm.
    Årestedt, Kristofer
    Linnéuniversitetet, Länssjukhuset i Kalmar.
    Boman, Kurt
    Umeå universitet.
    Brännström, Margareta
    Umeå universitet.
    Family members' experiences of integrated palliative advanced home and heart failure care: A qualitative study of the PREFER intervention.2018In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 16, no 3, p. 278-285Article in journal (Refereed)
    Abstract [en]

    OBJECTIVE: Chronic heart failure is a disease with high morbidity and symptom burden for patients, and it also places great demands on family members. Patients with heart failure should have access to palliative care for the purpose of improving quality of life for both patients and their families. In the PREFER randomized controlled intervention, patients with New York Heart Association classes III-IV heart failure received person-centered care with a multidisciplinary approach involving collaboration between specialists in palliative and heart failure care. The aim of the present study was to describe family members' experiences of the intervention, which integrated palliative advanced home and heart failure care.

    METHOD: This study had a qualitative descriptive design based on family member interviews. Altogether, 14 family members participated in semistructured interviews for evaluation after intervention completion. The data were analyzed by means of content analysis.

    RESULTS: Family members expressed gratitude and happiness after witnessing the patient feeling better due to symptom relief and empowerment. They also felt relieved and less worried, as they were reassured that the patient was being cared for properly and that their own responsibility for care was shared with healthcare professionals. However, some family members also felt as though they were living in the shadow of severe illness, without receiving any support for themselves.

    SIGNIFICANCE OF RESULTS: Several benefits were found for family members from the PREFER intervention, and our results indicate the significance of integrated palliative advanced home and heart failure care. However, in order to improve this intervention, psychosocial professionals should be included on the intervention team and should contribute by paying closer attention and providing targeted support for family members.

  • 83.
    Alwin, Anhar
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Eskander, Johan
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Sjuksköterskors upplevda svårigheter vid vård av patienter med palliativ diagnos: En litteraturöversikt2017Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Palliative care for health professional means trying to achieve the maximum dying person's quality of life and ease suffering. The palliative care for health professionals means to try to achieve the dying person's maximum quality of life and alleviate suffering. The care inclined towards the Swedish national health care program for palliative care and the International Council of Nurses, ICN. The nurse's role and tasks in health care are described where even the four cornerstones elucidated.

    Aim: To elucidate the nurses perceived difficulties in nursing patients with palliative diagnosis.

    Method: The thesis is a literature review based on Friberg's analysis. This literature review includes ten scientific articles that have been searched in the databases CINAHL Complete and PubMed. As a theoretical base, Patricia Benner's theory from novice to expert was selected as a discussion of the results discussion.

    Results: The nurses perceived difficulties of caring for patients with a palliative diagnosis resulted in four main themes in the literature; communication, family and relationship, the health care team as well as knowledge and experience.

    Discussion: The results of the literature review are discussed based on Benner's theory. The nurses' perceived difficulties irradiated by four themes – knowledge and experience, family support, communication between colleagues and towards the patient as well the culture as perceived difficulties.

  • 84.
    Alzghoul, Johan Yahya
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Kvinnors upplevelse av att leva med fibromyalgi: En litteraturöversikt2018Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Fibromyalgia is a lifelong disease. The exact cause is unknown, but pain is one of the fundamental symptoms that affects the mobility of the patient. The disease affects about two percent of the world's population and 75-85 percent are women. The etiology behind the disease is not entirely known. It is difficult to diagnose fibromyalgia and patients go through many medical examinations. It usually takes up to five years to receive a diagnosis.

    Aim: The purpose was to describe women’s experience of living with fibromyalgia.

    Method: A literature review based on eight qualitative studies from the databases PubMed and CINAHL.

    Results: Four main categories were identified: The experience of pain and fatigue, experience of total change in the daily life with three subcategories: Limitation in daily routines, limitations in social life and limitations at work. The third main category is the experience of losing identity. The fourth is to be mistrusted with the associated subcategories: To be mistrusted by the surrounding, to be mistrusted by the medical care.

    Discussion: The discussion contains of a method discussion where the weaknesses and strengths of the review are discussed. In the result discussion, the results were discussed using Katie Eriksson's Nursing Theory. Fibromyalgia has a major impact on women’s lives. Pain and fatigue have been described as the basis for all limitations. According to Katie Eriksson theory this can be defined as different kinds of suffering that the woman living with fibromyalgia have experienced.

  • 85. Aléx, Lena
    et al.
    Hammarström, Anne
    Norberg, Astrid
    Ersta Sköndal University College, Department of palliative care research. Ersta Sköndal University College, Department of Health Care Sciences.
    Lundman, Berit
    Construction of masculinities among men aged 85 and older in the north of Sweden.2008In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 17, no 4, p. 451-9Article in journal (Refereed)
    Abstract [en]

    AIM: The aim was to analyse the construction of masculinities among men aged 85 and older. BACKGROUND: All societies have a gender order, constructed from multiple ideas of what is seen as feminine and masculine. As the group of men aged 85 and older is increasing in size and their demand for care will increase, we must recognize the importance of studying these men and various discourses of masculinities. DESIGN: Qualitative explorative. METHODS: Qualitative content analysis was used to analyse thematic narratives. Masculinity theories provided the point of departure for the analysis. RESULTS: The analysis coalesced into three masculinities. 'Being in the male centre', developed from subthemes as: taking pride in one's work and economic situation; being in the centre in relation to others; regarding women as sexual objects; and belonging to a select group. 'Striving to maintain the male facade' developed from subthemes as: emphasizing 'important' connections; having feelings of loss; striving to maintain old norms and rejecting the fact of being old. 'Being related' was formulated from subthemes as: feeling at home with domestic duties; being concerned; accepting one's own aging; and reflecting on life. CONCLUSIONS: Our study indicates the importance of being aware of the existence of multiple masculinities, in contrast to the generally unproblematic and unsubtle particular healthcare approaches which consider men as simply belonging to one masculinity. Relevance to clinical practice. Diverse masculinities probably affect encounters between men and healthcare providers and others who work with an older population and therefore our results are of importance in a caring context.

  • 86.
    Amanbaeva, Asel
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Föräldrar som förlorat en son eller dotter genom ett plötsligt dödsfall: Föräldrars upplevelser i samband med förlusten av ett barn genom plötsligt dödsfall samt möjliga psykiatriska omvårdnadshandlingar i samband med detta2017Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Parents who suddenly lose a child can be put into a traumatic crisis with mental illness and need for psychiatric care as a result. Studies show that the loss generates mental and physical impairments in parents, clearly noticeable both in private and in working life in the early years. Symptoms of anxiety, hopelessness, fatigue, shame and guilt, insulation, sleep problems are slowing down each year, but memory problems and suicidal thoughts often remain for many years. Increased mental stress in parents affects health negatively and increases mortality over several years due to increased alcohol consumption, smoking, reduced physical activity and unnecessary eating habits.

    Aim: Describe parents' experiences in connection with the loss of a child through sudden deaths as well as possible psychiatric nursing actions in connection with this.

    Method: Qualitative approach comprising a literature study of 12 scientific studies analysed using Evan's descriptive synthesis.

    Results: The result shows that parents needed psychiatric support and follow-up meetings to work through the process of mourning. Furthermore, parents need to have their suffering accepted and that psychiatric healthcare professionals listen to them and that they are properly addressed in their life. People felt the desire for others' understanding and needed to talk about the child's passing away. Not being able to talk to someone about the deceased child was experienced as the most burdensome experience.

    Discussion: In order to respond professionally to these needs, the nurse in psychiatric care needs to reflect on the encounter with mourning parents, give time for conversation, initiate, ask parents about their needs, see each parent as unique, help to find an opinion and to accept the loss, show enthusiasm and compassion as well as offer follow-up meeting.

  • 87.
    Amanbaeva, Asel
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Swierszcz, Bernadetta
    Ersta Sköndal University College, Department of Health Care Sciences.
    Att vårdas för MRSA: En litteraturöversikt om patienters upplevelser av MRSA-vård2014Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: Methicillin-resistant Staphylococcus aureus (MRSA) is increasing drastically in healthcare both in Sweden and worldwide. The bacteria is spread most commonly from patient to patient by health-care professionals when restrictions on basic hygiene is not followed. Becoming infected with MRSA can lead to severe consequences for the patients in terms of surgical site infection, the implanted prostheses, the heart valves, lungs, the meninges. Patients with MRSA are cared for in isolation to prevent MRSA from spreading further, which could cause distress in patients. 

    Aim: This paper aims to describe patients' experiences of MRSA care. 

    Methods: Nine scientific qualitative articles form the basis of this literature review. The articles were analyzed and compiled, and new themes emerged after the similarities that emerged from their performance parts. 

    Results: The result shows that caring changed after MRSA diagnosis. This is recognized by the following six themes and two subthemes: Patients' knowledge about MRSA, Experiences of becoming infected with MRSA, Patients experiences of staff knowledge and information, experiences of treatment by staff, isolation with two subthemes: Negative experiences of isolation and positive experiences of isolation and Concerns for the future. 

    Discussions: The results are discussed from the patient's perspective, with Katie Erikson's theory of the suffering person as a theoretical base. The nursing staff can affect how caring is experienced. Deficiencies in knowledge of MRSA in health care staff, their attitude and adherence to hygiene causes health suffering in patients with MRSA. The nurse's role is to prevent / alleviate the suffering of patients. 

  • 88.
    Amhezion, Nazriet
    et al.
    Ersta Sköndal University College, Institutionen för omvårdnad.
    Guillard, Pia
    Ersta Sköndal University College, Institutionen för omvårdnad.
    Sjuksköterskans möjlighet att främja god egenvård vid diabetes typ-1: utifrån ett transitionsperspektiv2000Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 89.
    Amoding, Caroline
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences.
    Pohl, Johan
    Ersta Sköndal University College, Department of Health Care Sciences.
    Faktorer som påverkar sjuksköterskan i sin yrkesutövning2007Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
  • 90.
    Amsberg, Susanne
    et al.
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Wijk, Ingrid
    Sophiahemmet högskola.
    Livheim, Fredrik
    Karolinska Institutet.
    Toft, Eva
    Karolinska Institutet, Ersta sjukhus.
    Johansson, Unn-Britt
    Sophiahemmet högskola, Södersjukhuset.
    Anderbro, Therese
    Karolinska institutet, Stockholms universitet.
    Acceptance and commitment therapy (ACT) for adult type 1 diabetes management: study protocol for a randomised controlled trial.2018In: BMJ Open, ISSN 2044-6055, E-ISSN 2044-6055, Vol. 8, no 11, p. 1-8, article id e022234Article in journal (Refereed)
    Abstract [en]

    INTRODUCTION: Integrating diabetes self-management into daily life involves a range of complex challenges for affected individuals. Environmental, social, behavioural and emotional psychological factors influence the lives of those with diabetes. The aim of this study is to evaluate the impact of a stress management group intervention based on acceptance and commitment therapy (ACT) among adults living with poorly controlled type 1 diabetes.

    METHODS AND ANALYSIS: This study will use a randomised controlled trial design evaluating treatment as usual (TAU) and ACT versus TAU. The stress management group intervention will be based on ACT and comprises a programme divided into seven 2-hour sessions conducted over 14 weeks. A total of 70 patients who meet inclusion criteria will be recruited over a 2-year period with follow-up after 1, 2 and 5 years.The primary outcome measure will be HbA1c. The secondary outcome measures will be the Depression Anxiety Stress Scales, the Swedish version of the Hypoglycemia Fear Survey, the Swedish version of the Problem Areas in Diabetes Scale, The Summary of Self-Care Activities, Acceptance Action Diabetes Questionnaire, Swedish Acceptance and Action Questionnaire and the Manchester Short Assessment of Quality of Life. The questionnaires will be administered via the internet at baseline, after sessions 4 (study week 7) and 7 (study week 14), and 6, 12 and 24 months later, then finally after 5 years. HbA1c will be measured at the same time points.Assessment of intervention effect will be performed through the analysis of covariance. An intention-to-treat approach will be used. Mixed-model repeated measures will be applied to explore effect of intervention across all time points.

    ETHICS AND DISSEMINATION: The study has received ethical approval (Dnr: 2016/14-31/1). The study findings will be disseminated through peer-reviewed publications, conferences and reports to key stakeholders.

    TRIAL REGISTRATION NUMBER: NCT02914496; Pre-results.

  • 91.
    Anagrius, Johanna
    Ersta Sköndal University College, Department of Health Care Sciences.
    Att berätta om sig själv eller inte: Rättspsykiatriska vårdares perspektiv2016Independent thesis Advanced level (degree of Master (One Year)), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: The care relationship is described as the cornerstone of nursing processes. This relationship is mutual but the caregiver carries the responsibility and shares the patient's story in order to nurse together with rather than only nursing the patient. The dual mission, civil protection and nursing, complicates the relationship in forensic care. Nursing a patient who committed a crime is not as intuitive as relieving the suffering of an innocent patient. Important in forensic psychiatry is everyday socializing where the caregiver finds a balance between personal and private. Negative emotions such as fear can make carers narrow-minded and uncompromising while an unexpected action beyond the daily work routines can prove to be important for patient recovery. The forensic psychiatric patients express a desire for safe, caring relationships but can be met by an exercise of power, negligence, intimidation and violence that create a feeling of containment and non-care. Aim: To describe nurses' thoughts concerning their privacy and what to reveal about themselves to patients in forensic psychiatric care. Method: Qualitative design with focus group interviews for data collection. Two focus group interviews with caregivers in forensic psychiatry were conducted. The material was analyzed using qualitative content analysis. Results: The results generated four main categories and ten subcategories. Influencing factors: the patient's needs and the nature of the crime, timing and information flow. Awareness of caring role: consider who hears and deals with the consequences, ability to set boundaries and communication. Key to relationship: giving in order to receive, honesty, human contact and trust. Indifference and suffering: lies and distance, negative consequences, neither need nor meaning. Discussions: The results are discussed within the theoretical framework of ‘The Symphony of Care’, which discusses the phenomenon of the care relationship. Many caregivers’ reflections that emerge in the results can be identified within this context.

  • 92.
    Anar, Esra
    Ersta Sköndal University College, Department of Health Care Sciences.
    Sjuksköterskors upplevelser av att vårda suicidnära individer: En litteraturstudie2012Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
    Abstract [en]

    Background: About one million people lose their lives by suicide each year worldwide. There are psychosocial, clinical and biological factors in suicidal acts. Whether suicide developed illustrated in a suicidal process. Care after a failed suicide attempt is experienced mostly uncomfortable and emotional of suicide close to the individual. The goal of treatment is to promote patient safety. For individuals have to feel confidence in the care and caregiver should be a safe and trustful care relationship is created.

    Aim: The aim was to describe nurses' experiences of caring for suicidal individuals.

    Methods: The author has worked out a study of literature in accordance with Friberg (2006). The study is based on ten scientific articles from databases CINAHL with Full Text, MEDLINE with Full Text and PubMed. Specific inclusion- and exclusion criteria were followed. A content analysis and quality assessment was done on selected articles.

    Results: The results of scientific articles compiled in the study of literature in five different categories. These categories are as follows: Feeling of responsibility, Feeling of occupied and lack of time, Feeling of lack of competence, Feeling of insecurity in communication with suicidal individuals and Approach to suicidal individuals.

    Discussions: The author concludes that nurses feel that there are factors that prevent the possibility of good interaction between the suicide and suicidal individuals. These factors are divided summarized as deficient of resources and attainment including communication. It induces in turn feelings of frustration associated with not being able to be helpful enough for these individuals.  

  • 93.
    Ander, Malin
    et al.
    Uppsala universitet.
    Grönqvist, Helena
    Uppsala universitet.
    Cernvall, Martin
    Uppsala universitet.
    Engvall, Gunn
    Uppsala universitet.
    Hedström, Mariann
    Uppsala universitet.
    Ljungman, Gustaf
    Uppsala universitet.
    Lyhagen, Johan
    Uppsala universitet.
    Mattsson, Elisabet
    Uppsala universitet.
    Essen, Louise von
    Uppsala universitet.
    Development of health-related quality of life and symptoms of anxiety and depression among persons diagnosed with cancer during adolescence: a 10-year follow-up study2016In: Psycho-Oncology, ISSN 1057-9249, E-ISSN 1099-1611, Vol. 25, no 5, p. 582-589Article in journal (Refereed)
    Abstract [en]

    Objective: The main aim was to investigate the development of health-related quality of life (HRQOL) and symptoms of anxiety and depression in a cohort diagnosed with cancer during adolescence from shortly after up to 10 years after diagnosis. Methods: Participants (n = 61) completed the SF-36 and the HADS shortly; six, 12, and 18 months; and two, three, four, and 10 years (n = 28) after diagnosis. Polynomial change trajectories were used to model development. Results: Polynomial change trajectories showed an initial increase which abated over time into a decrease which abated over time for the SF-36 subscales Mental Health and Vitality; an initial decline which abated over time into an increase for HADS anxiety; and an initial decline which abated over time into an increase which abated over time for HADS depression. The SF-36 mental component summary showed no change from two to 10 years after diagnosis whereas the SF-36 physical component summary showed an increase from two years after diagnosis which declined over time. Ten years after diagnosis 29% reported possible anxiety. Conclusions: Development of HRQOL and symptoms of anxiety and depression appears to be nonlinear among persons diagnosed with cancer during adolescence. Well into permanent survivorship an increase in symptoms of anxiety is shown and approximately a third of the participants report possible anxiety. The findings indicate the need for: studies designed to pinpoint the times of highest psychological risk, clinical follow-up focusing on psychological problems, and development of effective psychological interventions for survivors of adolescent cancer

  • 94.
    Anderbro, Therese Carin
    et al.
    Karolinska institutet, Stockholms universitet.
    Amsberg, Susanne
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences.
    Moberg, Erik
    Karolinska institutet.
    Gonder-Frederick, Linda
    USA.
    Adamson, Ulf
    Karolinska institutet.
    Lins, Per-Eric
    Karolinska institutet.
    Johansson, Unn-Britt
    Sophiahemmet högskola, Södersjukhuset.
    A longitudinal study of fear of hypoglycaemia in adults with type 1 diabetes.2018In: Endocrinology, diabetes & metabolism, ISSN 2398-9238, Vol. 1, no 2, article id e00013Article in journal (Refereed)
    Abstract [en]

    Aims: To investigate fear of hypoglycaemia (FoH) longitudinally in a cross-sectional study of adult patients with type 1 diabetes. Specifically, we investigated two subgroups of patients who over 4 years either showed a substantial increase or decrease in level of FoH to identify factors associated with changes in FoH.

    Methods: The Swedish version of the Hypoglycaemia Fear Survey (HFS) along with a questionnaire to assess hypoglycaemia history was sent by mail to 764 patients in 2010. The responders in 2010 (n = 469) received another set of the same two questionnaires in 2014. HbA1c, insulin regimen, weight and creatinine from 2010 and 2014 were obtained from medical records. Those with an absolute difference in HFS scores ≥ 75th percentile were included in the subgroup analyses. Statistical analyses included one-sample t tests, chi-square and McNemar's test.

    Results: The absolute difference in the HFS total score (n = 347) between 2010 and 2014 was m = ±7.6, SD ± 6. In the increased FoH group, more patients reported a high level of moderate hypoglycaemic episodes as well as impaired awareness of hypoglycaemia in 2014 compared with the decreased FoH group. There were more subjects in the increased FoH group with insulin pumps in 2014 and in 2010. In the decreased FoH group, more patients had a high frequency of daily self-monitoring of blood glucose (SMBG) in 2010 and in 2014.

    Conclusions: Fear of hypoglycaemia is stable across time for most patients. Changes in fear level are associated with changes in hypoglycaemia frequency. Thus, asking patients about changes in hypoglycaemia experiences is of great importance.

  • 95.
    Andershed, Birgitta
    Ersta Sköndal University College, Department of palliative care research.
    Relatives in end-of-life care – part 1: a systematic review of the literature the five last years, January 1999–February 20042006In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 15, no 9, p. 1158-1169Article in journal (Refereed)
  • 96.
    Andershed, Birgitta
    et al.
    Ersta Sköndal University College, Department of Health Care Sciences, Palliative Research Centre, PRC. Norwegian University of Science and Technology, Gjövik, Norway.
    Ewertzon, Mats
    Ersta Sköndal University College, Department of Health Care Sciences.
    Johansson, Anita
    Skaraborgs sjukhus.
    An isolated involvement in mental health care: Experiences of parents of young adults.2017In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 26, no 7-8, p. 1053-1065Article in journal (Refereed)
    Abstract [en]

    AIM: The aim of this study was to explore parents' involvement in the informal and professional care of their young adult child with mental illness. A further aim was to examine concepts in the caring theory of "Involvement in the light - involvement in the dark" in the context of mental health care.

    BACKGROUND: Mental illness has increased among young people in high-income countries and suicide is now the leading cause of death for this group. Because of their disease, these young people may have difficulty in carrying out daily, taken-for-granted, tasks. Consequently, they often become dependent on their parents, and their parents shoulder a considerable responsibility.

    DESIGN AND METHODS: A secondary descriptive design with a deductive content analysis was used. Ten parents who have a son or daughter with long-term mental illness (aged 18 - 25) were interviewed. The deductive analysis was based on the caring theory of "Involvement in the light - Involvement in the dark".

    RESULTS: The results are described using the following concepts in the theory: "Knowing", "Doing", "Being" and "Attitude of the health professionals". The result are to a great extent consistent with the "Involvement in the dark" metaphor, which describes an isolated involvement in which the parents were not informed, seen or acknowledged by the health professionals. Continuous support by professionals with a positive attitude was described as being of decisive importance for meaningful involvement. This article is protected by copyright. All rights reserved.

  • 97.
    Andershed, Birgitta
    et al.
    Ersta Sköndal University College, Department of palliative care research.
    Harstäde, Carina Werkander
    Next of kin's feelings of guilt and shame in end-of-life care.2007In: Contemporary nurse : a journal for the Australian nursing profession, ISSN 1037-6178, Vol. 27, no 1, p. 61-72Article in journal (Refereed)
    Abstract [en]

    In this study the aim was to explore and describe next of kin's feelings of guilt and shame in end-of-life care via secondary analysis of 47 qualitative interviews. In the analysis categories and subcategories emerged which conveyed how the next of kin experienced guilt; not having done or talked enough, being absent at important events or making errors of judgement. Categories conveying feelings of shame were situations where the next of kin felt inferior, was ashamed on behalf of the dying person and when family conflicts became apparent. Receiving help and support in order to make the remaining period as pleasant as possible can facilitate the next of kin's sense of having fulfilled their duties and responsibilities and therein reduce feelings of guilt and shame. It is apparent that these feelings should be taken into account and the next of kin should receive support to increase their well-being during the remaining time in end-of-life care and the grieving period.

  • 98.
    Andershed, Birgitta
    et al.
    Ersta Sköndal University College, Department of palliative care research.
    Olsson, Kristina
    Review of research related to Kristen Swanson's middle-range theory of caring.2009In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 23, no 3, p. 598-610Article in journal (Refereed)
    Abstract [en]

    The aim of this study was to identify and describe how Kristen Swanson's middle-range theory has been used in nursing practice/research presented in international journals. A total of 120 studies were included in the review and 23 were analysed further. An overview of the studies is presented, followed by four categories of how the theory has been used: referring to the theory (97 papers), applications of the theory to practice/research and/or theoretical discussions (nine papers), relating findings to and/or validation of the theory (eight papers), and development of measurements from and/or testing of the theory (six papers). The use of the theory and conclusions of the studies related to criteria for evaluation of theories were discussed.

  • 99.
    Andershed, Birgitta
    et al.
    Ersta Sköndal University College, Palliative Research Centre, PRC.
    Ternestedt, Britt-MarieErsta Sköndal University College, Palliative Research Centre, PRC.Håkanson, CeciliaErsta Sköndal University College, Palliative Research Centre, PRC.
    Palliativ vård: begrepp & perspektiv i teori och praktik2013Collection (editor) (Other academic)
  • 100.
    Andersson, Anna
    et al.
    Ersta Sköndal University College, Institutionen för omvårdnad.
    Bäckström, Sabina
    Ersta Sköndal University College, Institutionen för omvårdnad.
    Research on the care of patients with dementia in Sweden: a review study2000Independent thesis Basic level (degree of Bachelor), 10 credits / 15 HE creditsStudent thesis
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