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  • 1.
    Andersen, Rebecka
    Marie Cederschiöld University, Institutionen för civilsamhälle och religion, Centre for Civil Society Research.
    I kvinnornas värld: Omsorg och tvång på uppfostringsanstalten Viebäckhemmen 1905–19472022Doctoral thesis, monograph (Other academic)
    Abstract [en]

    At the beginning of the 20th century, a range of new laws concerning children and- youths in Sweden were enacted. An effect of the laws was that 15 to 18-year-oldboys and girls facing prosecution could get their sentences transformed into time spent at a reformatory. However, while the state established public reformatories for boys, girls were sent to Viebäckhemmen, a reformatory that was run by a religious organization; the Swedish Deaconess Institute. Given that the state organized different solutions for boys and girls during this period, the aim of this thesis is in part to analyze how gender impacted social policy. Theories on the private and public are used as a theoretical framework, as well as theories on how gender impacts the social contract and how the social contract impacts gendernotions. By incorporating the history of early social work in the field of civil society research, as well as adding a gender perspective, the thesis discusses how and why the logics within civil society were considered more suitable for the upbringing and re-education of girls. The study draws from a wide range of sources. Government documents and correspondence between the state and the organization provide a timeline for the reformatory, while other archival materials such as internal documents, court records, journals, and letters provide an insight into the daily life at Viebäckhemmen. The first part of the thesis focuses on the relationship and negotiations between state and organization, while the second part focuses on the women that populated the institution, where the concept of“caring power” is used to describe the relationship between girls and deaconesses.

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  • 2.
    Eklund, Rakel
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC.
    Barns erfarenheter av ”the Family Talk Intervention”: Att leva med en svårt sjuk förälder som vårdas inom specialiserad palliativ hemsjukvård2020Doctoral thesis, comprehensive summary (Other academic)
    Abstract [sv]

    När en förälder i en barnfamilj får en livshotande sjukdom förändras livet för allai familjen. Barn som lever i denna situation rapporterar att de upplever oro och skuld relaterat till förälderns sjukdom. Dessutom har barnen en ökad risk för psykisk ohälsa. Brist på kommunikation inom familjen om sjukdomen och ämnen relaterade till den, har visat sig ha en negativ påverkan på hälsan. Trots detta finns endast ett fåtal stödinterventioner utvärderade för barnfamiljer i palliativ vård, och ännu färre utvärderade utifrån barns erfarenheter. The Family Talk Intervention (FTI) är en familjecentrerad intervention, med barnen i fokus, som visat på positiva effekter gällande sjukdomsrelaterad information och ökad kommunikation för barnfamiljer inom psykiatrisk och somatisk vård. Det övergripande syftet med denna avhandling var att utforska barns erfarenheter av FTI och att leva med en svårt sjuk förälder som vårdas inom specialiserad palliativ hemsjukvård. Avhandlingen påvisar att de flesta barnen ville veta mer om sin förälders sjukdom. De yngre barnen rapporterade svårigheter både med att berätta om, och med att visa hur de själva mådde för någon i sin familj. De barn som deltog i FTI uppskattade strukturen och innehållet, de kände sig sedda, hörda och uppmärksammade under FTI, vilket skapade en känsla av tillit och trygghet.Alla barn blev lyssnade till och fick stöd att uttrycka både svårigheter och faktorer som kunde underlätta för dem. Under interventionen var det dock endast för ett fåtal barn som deras synpunkter och åsikter togs i beaktan, i enlighet med artikel 12 i barnkonventionen. De flesta barn rapporterade dock att FTI ökade kunskaperna om förälderns sjukdom och att det blev lättare att kommunicera med sina föräldrar. Genom sitt deltagande i FTI kunde barnen förbereda sig inför framtida sjukdomsrelaterade händelser, och hantering av konflikter underlättades.Resultatet visar att de behov barnen hade innan deltagande i FTI till stor del tillgodosågs under deltagandet. FTI innehar dock en struktur som ger föräldrarnas perspektiv större utrymme än barnens. Barnens perspektiv behöver således tas i beaktan i större utsträckning i syfte att det stöd som ges till dessa barn verkligen är till för dem. FTI tycks trots detta vara genomförbart och betydelsefullt för de barn som deltagit.

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  • 3.
    Henrekson, Ebba
    Marie Cederschiöld University, Institutionen för civilsamhälle och religion.
    Exceptions in the Swedish School System: Exploring the Conditions Facing Secular and Confessional Nonprofit Schools2023Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    In the late 1980s and early 1990s, the Swedish school system underwent a series of reforms that opened up the system for independent schools funded through vouchers. Since then, for-profit firms have gained significant traction and constitute a far greater share of the school system compared to nonprofits. This dissertation aims to contribute to a better understanding of the conditions facing secular and confessional nonprofit schools, both during the establishment process and the day-to-day operations. To achieve this aim, I have adopted an institutional approach which in this case implies that I focus both on formal rules and regulations (i.e., legal framework) as well as systems of beliefs, values, and ideas. The articles included in the dissertation analyze four conditions. First, I point to how confessional schools have always been perceived as deviant and as reducing social cohesion. This remains true regardless of whether the value system of the Swedish school system has been said to rest on a secular or a religious foundation. Second, I show how a lack of a philanthropic infrastructure in Sweden makes it harder for nonprofits to initiate new schools. Third, I discuss how due to the marginal presence of independent schools in Sweden before the school choice reform there is a lack of intermediary organizations giving advice to nonprofit schools regarding best practices and representing them at the political level. Fourth, I show how the design of the legal framework of the school system puts high demands on nonprofit schools to conform both to a bureaucratic logic and a market logic. Taken together, the results point to various conditions that contribute to a situation in which secular and confessional nonprofit schools have difficulties asserting themselves in the Swedish school system.

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  • 4.
    Hjorth, Elin
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC.
    Experiences of care and everyday life in a time of change for families in which a child has spinal muscular atrophy2020Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    This thesis focuses on children with severe spinal muscular atrophy (SMA) and their families. Although the disease is severe, and the families are faced with challenges in everyday life related to the progressive muscle weakness that SMA causes, knowledge of their experiences of the situation is limited. The overall purpose of this thesis was therefore to explore how families, with a child who has SMA, experience the care received and their everyday life.The thesis encompasses two projects: a two-nationwide survey with 95 bereaved and non-bereaved parents (response rate of 84%) and an ethnographical study with two families (17 interviews and participant observations at six occasions).The findings showed that parents were generally pleased with the care their children received. However, there were some shortcomings, especially that staff lacked knowledge about the diagnosis, leading the parents to feel that they themselves had to take initiatives for measurements and treatments (Paper II).Further, the parents reported deficiencies in coordination between care providers (Papers I–II). The parents emphasised the importance of having a good relationship with staff (Paper II), to find ways to cope with everyday life and get practical support in everyday activities, as well as social support in dealing with disease and grief (Paper III). With the new medicine for SMA, the families’narratives were rewritten, and the families were facing slow improvements; small events that made a big difference. Hope was negotiated and struggled with indifferent ways by different family members, but contributed to how they dealt with the disease and the outlook on the future (Paper IV).Many of the experiences described by the families can be useful for professionals in modifying their work to support these families in accordance with their needs.

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  • 5.
    Holmberg, Bodil
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC.
    När kroppen inte räcker till: Assisterad kroppslig omvårdnad i livets slut på vård- och omsorgsboende2020Doctoral thesis, comprehensive summary (Other academic)
    Abstract [sv]

    Det övergripande syftet med denna avhandling var att belysa vård i livets slut på vård- och omsorgsboende, med inriktning mot den kroppsliga omvårdnaden, utifrån äldre personers, undersköterskors och anhörigas perspektiv. Avhandlingen bygger på fyra delstudier. Tre analysmetoder användes;innehållsanalys (I & III), fenomenologisk hermeneutik (II) och fenomenografi(IV). Datainsamlingen omfattade individuella intervjuer (I, II & IV) och observation (III). Fynden visar att; (I) undersköterskor känner de äldre personerna och värnar deras självbestämmande, välbefinnande och värdighet. I sitt arbete fokuserar de främst på kroppslig omvårdnad. Äldre personer (II) upplever kroppslig omvårdnad som en assistans, växelvis i form av ett fängelse eller som en njutning. De värnar sitt självbestämmande, men anpassar sig efter de omständigheter som bestäms av andra. Det är främst undersköterskor som utför assisterad kroppslig omvårdnad (III), medan äldre tar del i det de kan, trots nedsatt kroppslig förmåga. Anhöriga räknar med att äldre personer utövar fullt självbestämmande gällande assisterad kroppslig omvårdnad (IV). Själva bidrar de med en assisterad kroppslig omvårdnad som inte innefattar intimhygien, medan de förblir observanta på undersköterskors arbete. Avhandlingen belyser att assisterad kroppslig omvårdnad kan överbrygga äldres kroppsliga begränsningar och leda till välbefinnande när självbestämmandet främjas. Sådan assisterad kroppslig omvårdnad kan utgöra en väsentlig del av en palliativ omvårdnad för äldre personer på vård- och omsorgsboende i livets slut.

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  • 6.
    Holmqvist, Anna
    Ersta Sköndal Bräcke University College, Department of Social Sciences.
    Integritet på undantag?: En studie av barns röst i patientlagen och patientorganisationer2019Doctoral thesis, monograph (Other academic)
    Abstract [en]

    This thesis explores discourses regarding children’s voice, in the Swedish Patient Act, as well as in Swedish patient organizations. In the Patient Act, children’s rights as patients are construed on the basis of custodians’ parental rights and the assumption that patients are competent and autonomous adults. The child is given an object position, weaker than an adult patient and subordinated to parents’ authority. Consequently, the integrity of the child is not absolute, as it is construed through an autonomy discourse and a family discourse which set boundaries for the child´s voice in the Patient Act. The family discourse combined with a mass movement discourse form the prerequisits for children’s voice in the context of patient organizations. As a consequence, patient organizations do not act as voice in relation to children’s rights as patients, in the Patient Act. Rather, interviews with representatives of patient organizations show that the parents act as voice having a child in need of health care. The position of children in the organizationsis ambiguous and, rather than having a voice of their own, children can be used in advertising campaigns to attract funding, expressing the voice of the organization. When children are used in this way by organizations, children’s integrity seem to be negotiable. The thesis shows that in both the Patient Act and the patient organizations, the integrity of the child is questioned. Children seem to be regarded as imperfect rights-holders and as imperfect members of society.This perception of the child is traced to dominant ethical perspectives from which children’s human rights have emerged. Drawing on current academic debates, analternative approach to these prevailing ethical perspectives is suggested. Instead of making rights conditional upon presumed autonomy and adulthood, rights can be perceived as relational and expressions of the mutual interdependence of humans, regardless of age and maturity. If rights are seen in this way, with children being understood not as essentially different but differently equal, then the child´s voice can have actual importance.

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  • 7.
    Larsson, Susanne
    Ersta Sköndal Bräcke University College, Department of Social Sciences.
    Självbestämmande i LSS: En villkorad rättighet för personer med intellektuell funktionsnedsättning2021Doctoral thesis, monograph (Other academic)
    Abstract [en]

    Persons with moderate to more severe intellectual disabilities have a legal right to exercise self-determination, and a right to receive individually tailored support to enable them to live independently. However, these rights are not always realised in practice. Taking the difficulties that the functional impairments imply as a starting point, the aim of this thesis is to critically review and accrue increased knowledge about what conditions for self-determination persons with moderate to more severe intellectual disabilities are given within the context of support services offered, according to the Swedish Disability Act. The study is a multiple case study, based on analyses of so-called implementation plans and notes from observations and interviews (with staff), all gathered within the same six units:three group homes and three daily activity units. By conducting thematic analyses and using concepts from Nordenfeldt’s action theory, as well as theory about positioning, three overarching themes were developed: staff’s supportive methods and approaches, staff’s non-supportive methods and approaches, and staff’s methods and approaches that are both supportive and not when it comes to opportunities for self-determination. For example, staff views on the persons’self-determination as being adequate are interpreted as supportive. As a contrast, the fact that enhanced support is rarely used and, if used, rarely to a degree that promotes the person’s own initiative, is interpreted as non-supportive, and the implementation plans are interpreted as both supportive and non-supportive. Fundamentally, the study shows that the practical possibilities to exercise self determinationare limited for persons with moderate to severe intellectual disabilities by certain aspects of staff methods and approaches, and by the organisation of the units where the support is conducted. Further research is suggested on how to enable practise, staff methods and approaches that, to a higher degree, consider the persons themselves when planning and conducting their support, on the organisational preconditions, the implementation plans included, for complying with the principles and political goals of a person’s self determination and on the impact of staff knowledge, not least when it comes to enhanced support and communication devices. Finally, the character of conducting support and what this means for the methods and approaches, should be investigated further.

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  • 8.
    Lundgren, Linnea
    Ersta Sköndal Bräcke University College, Centre for Civil Society Research. Ersta Sköndal Bräcke University College, Department of Social Sciences, Institute for Research on Conditions, Organisation and Outcomes of Social Work.
    A Risk or a Resource?: A Study of the Swedish State’s Shifting Perception and Handling of Minority Religious Communities between 1952-20192021Doctoral thesis, monograph (Other academic)
    Abstract [en]

    In Sweden, as in many other European countries, governments and other public authorities increasingly seem to view religious communities as an important resource that should be included in welfare provision and help combat problems that societies are facing, thereby intentionally or unintentionally bringing religion back into the public arena. However, religious communities also seem to be perceived as a risk and a problem that needs to be further regulated and controlled. Given these conflicting signals, the aim of this thesis is to contribute to the understanding of the contradictory and contested perspective of religion in the public realm today by describing, analysing and discussing changes in the Swedish state’s perception and handling of minority religious communities between 1952 and 2019. The point of departure is an assumption that the state has a central role in setting the terms and conditions that both enable and limit what religious communities can do, thus shaping the function and role of religion in the public realm. The studied governments documents have been analysed through a mix-method approach meaning that both an automated content analysis and an idea-analysis have been performed. A theoretical framework including theories regarding the governance of religious diversity and civil society state relations is used to analyse the material. The results show that the priorities of the state have been central in governing minority religious communities throughout the studied time period. Also, although the issue has become a new policy concern in the late 1990s, many of the recent controversies concerning minority religious communities are not new. Rather, such controversies are indicative of an ongoing story of Sweden’s handling of religious diversity. The conflicting view of minority religious communities today seems therefore to be deeply embedded in the inherent tensions of the Swedish social contract.

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  • 9.
    Mankell, Anna
    Ersta Sköndal Bräcke University College, Centre for Civil Society Research.
    Collective Patient Participation: Patient Voice and Civil Society Organizations in Healthcare2021Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    The importance of engaging patients in the development of healthcare services and policy has received increasing attention over the last decades. However, this attention has mainly been directed towards various forms of involvement of individual patients. This dissertation shifts focus to the collective forms of patient participation and the specific values they bring. The overall aim of the dissertationis to explore how collective patient participation is shaped, in an increasingly individualized and marketized society. The articles included in the dissertation analyze aspects such as advocacy work, representation mechanisms and coproduction practices at different levels of healthcare. These aspects are studied from the perspective of civil society organizations navigating current social trends such as individualization and marketization. Taken together, the findings point to the importance of considering the preconditions of the individual patient to engage in patient participation in a collective form. This appears to be an important factor in the shaping of collective patient participation, as well as a potential challenge for both advocacy and representation. The findings also indicate that individual and collective forms of participation should not be seen as two conflicting interests, but could rather be mutually strengthening, something that should be considered both by civil society organizations and healthcare policymakers. Furthermore, this dissertation contributes to a better understanding of the diverse nature of patient participation, and how these variations all play important yet distinct roles in improving democratic and quality aspects of healthcare.

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  • 10.
    Norinder, Maria
    Marie Cederschiöld University, Department of Health Care Sciences, Palliative Research Centre, PRC.
    A person-centred approach to support family caregivers in specialised home care: The Carer Support Needs Assessment Tool Intervention2023Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    Family caregivers are crucial providers of support and care for patients with lifethreatening illness and many report unmet support needs. With the use of quantitative and qualitative methods this thesis aimed to evaluate the Carer Support Needs Assessment Tool (CSNAT) and explore experiences and potential effects of utilising the Carer Support Needs Assessment Tool Intervention (CSNAT-I) among family caregivers and registered nurses in the context of specialised home care. The results showed that the CSNAT tool was valid and reliable for use among family caregivers in specialised home care (I). Family caregivers reported most the need for additional support concerning “Knowing what to expect in the future” (I, II). They reported and described how higher levels of need for more support were associated with poorer quality of life (II). The intervention was effective in significantly increasing family caregivers’ preparedness for caregiving (p = 0.002) (IV). Participating nurses expressed that their everyday clinical practice changed while learning to use the CSNAT-I and they experienced professional and personal growth (III). Their assessments and supportive inputs shifted from reactive towards proactive and more in collaboration with family caregivers. When utilizing the CSNAT-I, family caregivers experienced their conversations with nurses as co-created, providing new perspectives and insights which increased their involvement and helped in finding solutions (V).

    In conclusion, this thesis gives further weight to the importance of addressing family caregivers' support needs as a part of nursing.

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  • 11.
    Odhnoff, Sissela
    Marie Cederschiöld University, Institutionen för civilsamhälle och religion.
    Mellan det förflutna och framtiden: En studie av hyresgästföreningen på 2000-talet2023Doctoral thesis, monograph (Other academic)
    Abstract [en]

    The present thesis is a study of the Swedish Union of Tenants, an organisation with a long popular movement history, working in an ever-changing environment.

    The Swedish Union of Tenants is one of the major popular movements and has strongly influenced Swedish housing policy development including the 1978 reform concerning tenants’ right to negotiate rents collectively. Although it is a powerful organisation it is repeatedly exposed to external pressures for change on an issue it considers highly important including the 1978 reform. The purpose of the thesis is to generate knowledge concerning how an old popular movement organisation is affected by its external environment and how it reacts when traditions and institutions are exposed to contemporary pressures for change. The thesis investigates the Swedish Union of Tenants’ strategies for safeguarding the interests of its members as well as other tenants. Thre einstitutions within the framework of the organisation’s operations are examined in the thesis: the collective model of negotiations, tenant participation in decision making and the membership. The empirical materials primarily consist of internal organisational documents and interviews. The theoretical starting point has been institutional logics, organisational logics, logics of action and path dependency. The results portray how the complex operations of the organisation spur conflicts of interest whilst, at the same time, the operations mutually reinforce each other. Furthermore, the results demonstrate how the organisation’s operations interact with its environment to safeguard the interests of members and other tenants. Using my theoretical concepts, I have developed a model for the analysis of a complex organisation and the interactions within the organisation’s operational functions as well as with the external environment.

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  • 12.
    O'Sullivan, Anna
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC.
    Bereaved family members’ VOICES of support and care during the last three months of life for people with advanced illness2021Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    This thesis is in the subject of palliative care within the research field ‘The individual in the Welfare society’. The overall aim was to investigate bereaved family members’ experiences of support and care during the last three months of life for people with advanced illness. It encompasses four studies, in study I theVOICES (SF) (Views of Informal Carers – Evaluation of Services (Short Form))questionnaire was validated, and in studies II-IV a survey design was employed using VOICES (SF). The survey sample consisted of 485 bereaved family members (20-90 years old, 70.7% women) of people who had died in one of four hospitals, in two Swedish healthcare regions, between August 2016 and April 2017. VOICES (SF) was found feasible for use in a Swedish context in study I,however, the construct of some parts in the questionnaire was found not to be optimal when used in studies II-IV. Further development and validation is, therefore, recommended. The care place/care service was central for family members’ experiences of care and support. The importance of that the ill persons received care according to their needs was stressed, but the delivery of the care -with respect, dignity and empathy - was equally important. Most of the family members were satisfied with the care; however, about a fifth were not, indicating a need for improvement. The type of care, diagnosis, length of illness, educational attainment, and the relationship between the deceased person and the family member, influenced the experiences of care. This confirms that there are potential inequalities in care at the end of life. End-of-life communication and the support given to family members was not experienced as optimal. Family members expressed the importance of healthcare staff providing them with clear information, their own difficulties in recognising imminent death, and the value of a follow-up conversation with a healthcare professional who was present at the time of death. This thesis project has provided novel and important knowledge about the content and quality of care during the last few months of life, for all groups with potential palliative care needs, hence contributing to the discourse concerning quality of care at the end of life and placing care at the end of life on the agenda of the Swedish welfare society.

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  • 13.
    Pohlkamp, Lilian
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC.
    Bereaved mothers and fathers: Grief and psychological health 1 to 5 years after losing a child to cancer2020Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    Bereaved parents often experience severe suffering and are at elevated risk for developing grief complications such as prolonged grief and other negative psychological health outcomes. The general aim of this thesis was to investigate symptoms of prolonged grief, depression, posttraumatic stress, anxiety, rumination, and sleep disturbance in parents who had lost a child to cancer 1 to5 years earlier. Attention was also given to the potential impact on the parents’grief of their experiences during the child’s illness, and finally to the parents’ views on their coping with grief. Methods: A cross-sectional design for data collection was used for all four studies in this thesis. Both quantitative and qualitative methods were used for data analysis, to provide various and complementing perspectives on bereaved parents’ grief and their psychological health. Results:Bereaved parents’ symptom levels of prolonged grief and psychological symptoms were found to be elevated and neither time- nor gender-dependent across the first five years after the loss. We also found that some of the parents’experiences during their child’s illness were associated with their grief and psychological symptoms. These factors differed for mothers and fathers. Mothers valued trustful relations with health care professionals, while fathers reported better psychological health when they had received support in practical matters. Findings also showed that parents found certain factors facilitated or complicated their coping with grief. Unsurprisingly, social support promoted positive coping with grief, while a less familiar factor – going back to work – could make coping with grief harder. Clinical implications: The findings provide knowledge which can improve the care for children, through development of support to their parents in pediatric oncology contexts and in bereavement.

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  • 14.
    Robertsson, Karin
    Ersta Sköndal Bräcke University College, Department of Social Sciences.
    Mellan civilsamhälle och folkrörelse: Ett aktörsperspektiv på rekrytering och organisering av medborgerligt engagemang2021Doctoral thesis, monograph (Other academic)
    Abstract [en]

    Civic engagement, commonly seen as concerning people's actions and activities,is generally studied at the individual level. In this doctoral thesis the term is used to examine and analyse how recruitment and organisation of civic engagement has developed since the mid-1990s at the organisational level in a Swedish context, as well as the conditions that have influenced and shaped this development. Three forms of civic engagement are examined: associational membership, volunteering and giving. In this thesis, interviews and text analyses are used. The analysis of archived webpages and annual reports demonstrates a more diversified range of forms of civic engagement available at the organisational level. It is expressed as an increased demand for different types of volunteering and giving, in addition to the more traditional form of civic engagement that associational membership constitutes in a Swedish context. The diversified range of civic engagement is accompanied by various recruitment practices such as marketing and fundraising, characterised by different institutional logics that guide the actual recruitment work within organisations. Interviews were conducted with elected representatives and employees at a senior level within non-profit human service organisations. The interviewees reasoning about the changing conditions for recruiting and organising civic engagement is understood as actions through which they reproduce or change logics. The study concludes that in practice, the recruitment and organisation of civic engagement can be seen as an expression of institutional complexity. It is argued that the collectively shared view of how civic engagement can and should be organised in a Swedish context is characterized by a complex composition of logics that prescribe different patterns of action for participants and organisations.

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  • 15.
    Rolf, Hannes
    Ersta Sköndal Bräcke University College, Centre for Civil Society Research.
    En fackförening för hemmen: Kollektiv mobilisering, hyresgästorganisering och maktkamp på hyresmarknaden i Stockholm och Göteborg 1875–19422020Doctoral thesis, monograph (Other academic)
    Abstract [en]

    This thesis is a study of the collective mobilisation and organisation of tenants in Gothenburg and Stockholm between 1875 and 1942. Of special interest are the power relations and the power struggle between the landlords and the organised tenants in the same period. The similarities and differences between the tenants’ movement in Gothenburg and Stockholm played an important role in the historical process and both cities thus need to be studied and compared to each other. The concept of contentious repertoire, developed mainly in the works of Charles Tilly and Sidney Tarrow, is used to explain the methods employed by the tenants in their collective mobilisation. Other important factors considered in the thesis are the opportunity structures available and the periods of international radicalisation where the rent struggle also seems to have intensified worldwide. Both the Swedish organised landlords and tenants modelled their organisations after labour market organisation and both parties came to understand their relation as part of a class struggle. A concept borrowed from Klas Åmark, exchangeability, will be used to illustrate an important factor – the harder it was for a landlord to replace a tenant with another tenant, the better the tenants’ position. The tenants’ unions knew this and tried with militant means as well as with advocacy for tenants’ rights and increased housing construction to make it harder for the landlords to replace their tenants. Episodes of tenant militancy were frequent, in Gothenburg especially between 1923 and 1937 and in Stockholm especially between 1928 and 1936. The collective mobilisation and organisation of the tenants did alter the power relations between landlords and tenants, which can be seen both in the concessions made by landlords in numerous conflicts and in the fact that the landlords altered their organisations to defend themselves against the tenant offensive. By the end of the period, centralised collective bargaining had been largely implemented. Other strategies aimed at reducing the exchangeability were also used by the tenants. Tenant housing cooperative enterprises, first seen as a form of protest action and as an alternative to privately owned housing, eventually took on more centralised form in the organisation HSB. The close ties between HSB and the tenants’ unions gave the latter some economical backing and the former some additional legitimacy. By the end of the research period, the idea of large-scale municipal housing had taken over the role the idea of cooperative housing once had, and even though HSB was to play an important part in the post-war housing projects it would be reduced to a secondary position. When it comes to new legislation, the rent law of 1939 did little to alter the power relations,even though it did recognise the tenants’ movement as the natural representative for the tenants’ cause. The 1942 rent act, however, did give the tenants some leverage but it also overrode the system of collective bargaining that had been worked out by the tenants and landlords. All in all, the directactions, the housing production and the new legislation reduced the exchangeability of the tenants and altered the power relations in favour of the tenants.

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  • 16.
    Wallin, Viktoria
    Marie Cederschiöld University, Department of Health Care Sciences, Palliative Research Centre, PRC.
    Mealtimes in palliative care contexts: Perspectives of patients, partners, and registered nurses2022Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    The overall aim was to explore patients’, partners’, and registered nurses’ (RNs)experiences of mealtimes in palliative care contexts. Qualitative (studies I, II, IVand V) and quantitative (study IV) study designs were used to explore the experiences of mealtimes in palliative care from various perspectives. Three interview studies (studies I, II, V), a mixed-method systematic review (study III),and a cross-sectional study (study IV), were conducted. The findings showed that patient’s appreciated support that resembled their needs and wishes during hampered eating. Being encouraged to eat could both reduce and induce distress and well-being, social life was affected. Food and eating had existential loading (I, III). The partners described how they tried to support their dying partner by striving to maintain ordinariness around food and mealtimes, as well as finding new ways to support eating (II). RNs highlighted that food and mealtimes in palliative care cause psychosocial distress for patients and their families. Exploration implies that RNs perceptions align with patients’and families’, indicating awareness of the challenges that patients and families face (IV). RNs in palliative care are well prepared to support patients with eating challenges related to physical problems, but might be less prepared to support existential, psychological, and social needs (V).In conclusion, efforts to minimize the distress that patients and families experience in relation to mealtimes in palliative care are required. An area in need of further development is how to support RNs in communicating about food and mealtimes in palliative care to support patients’, partners’, and families’ well-being at the patient’s end-of-life.

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  • 17.
    Weber Falk, Megan
    Ersta Sköndal Bräcke University College, Department of Health Care Sciences, Palliative Research Centre, PRC.
    Development and Evaluation of the Grief and Communication Family Support Intervention for Parentally Bereaved Families in Sweden2020Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    Each year in Sweden, approximately 6,900 children will have a parent diagnosed with cancer. Of all the children in Sweden born between 1990–1992, 5.6% have a parent with cancer and 1.1% of them have already had a parent die from cancer. Bereavement support is an important component in palliative care, which aims to alleviate the physical, psychological, and spiritual suffering of patients and their family members. Several, but not all families participating in the studies in this thesis came from a palliative care setting. Earlier research has shown that parentally bereaved children often experience psychological problems, physical problems, reduced self-esteem, difficulties communicating,school and behavioral problems, and/or complicated grief, with approximately 10% of parentally bereaved children experiencing some type of clinically significant psychological difficulty. Moreover, a child’s response to a parent’s death is often mediated by how their surviving parent responds to the loss. Still, support for bereaved children and families is limited in Sweden. The overall aim of this research project was to explore and describe psychological health, grief, and family communication among parentally bereaved children and surviving parents and to develop and evaluate a supportive family intervention. Four studies were conducted including an interview study exploring family communication in parentally bereaved families, a questionnaire study examining associations between family communication and psychological health in parentally bereaved children and adolescents, and the adaptation and evaluation of the Grief and Communication Family Support Intervention. Results from these four studies indicated that communication may be an important factor for adjustment following the death of a parent. Specifically, communication in some parentally bereaved families may involve conflict, which may in turn affect child and adolescent psychological health. Results from testing the Grief and Communication Family Support Intervention indicate that it may improve family communication and relationships. Testing the Grief and Communication Family Support Intervention with larger, more diverse samples is necessary to confirm these results. The results imply that helping families find ways to adjust and adapt in healthy ways following the death of a parent, potentially through the Grief and Communication Family Support Intervention, is likely to improve psychological health and communication among bereaved family members.

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  • 18.
    Wollter, Filip
    Ersta Sköndal Bräcke University College, Department of Social Sciences.
    The reasoning behind social work intervention design2020Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    In social work, the methods for achieving policy goals are often subject to some degree of local and case-by-case autonomy. This autonomy enables the design of interventions to be negotiated between different actors, which are underpinned by diverse logics, interests, and knowledge-bases. This dissertation explores the reasoning behind social work intervention design. The study focused on how involved actors reason when they deliberate on which design to choose inindividual cases, including how different forms of knowledge and local organizational conditions affect the choice of design. The aim was to develop comprehensive knowledge about social work intervention design that is not limited to the influence of a single actor, knowledge form, decision-making model, or specific organizational condition. The study found that professional experiential knowledge and the local availability and range of intervention forms are the most significant factors shaping the design and customization of intervention. Furthermore, the study found that the local range of intervention forms is not based on professional analysis, but rather developed randomly and subject to managerial control. Client experiences can be significant if social workers assess their desires as credible and sustainable, or if clients are highly motivated or have had success in the past with the intended form of intervention. Several other factors of significance exist, but to a lesser degree or in a smaller proportion of the studied municipalities, such as financial constraints, the community interest of laypersons, and research findings. Regarding the use of research-based knowledge, there seems to be a decoupling between management and street-level. Social work managers described research-based knowledge,evidence-based practice, professional experiential knowledge, procurement, and legislation as the most significant factors of treatment deliberation.

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  • 19.
    Ydremark, Therese
    Marie Cederschiöld University, Institutionen för civilsamhälle och religion, Centre for Civil Society Research.
    Efter flykten: En studie av civilsamhällets betydelser för deltagande och tillhörighet efter påtvingad migration2022Doctoral thesis, monograph (Other academic)
    Abstract [en]

    This thesis investigates the significance of civil society for citizenship in terms of participation and belonging after forced migration. Through a process perspective deriving from migration studies, emplacement processes after forced migration,that is, processes of participation and belonging, are investigated. This means that a broader perspective on citizenship is applied than citizenship as formal status. The ambition is also to illustrate such processes from a 25-year perspective. The thesis demonstrates that the four civil society roles described in previous civil society literature are also relevant after forced migration: participation in collectiveproblem-solving, social integration, provision of member services, and the democratic role. Added to that, it is argued that there is another civil society role relevant after forced migration: civil society as an arena for negotiating and balancing belongings. This role relates to individual processes as well as processes involving the surrounding society. Furthermore, the thesis demonstrates processes of social integration at three levels: individual, organisational, and societal. Departing from this, social integration is depicted as a phenomenon taking place through contacts and social networks involving the majority population, but also compatriots and other migrants. This result points to social integration as more complex than often depicted. The study also concludes that civil society participation may be one way to interweave a lifeworld consisting of (at least) two countries.

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