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Children with palliative care needs: The landscape of the nordic countries
Oslo Metropolitan University, Norway.
Oslo Metropolitan University, Norway; Oslo University Hospital, Norway.
Lund University, Sweden; Region Skåne, Sweden.
Copenhagen University Hospital, Denmark; North Zealand Hospital, Denmark.
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2024 (English)In: BMC Palliative Care, E-ISSN 1472-684X, Vol. 23, no 1, p. 1-13, article id 118Article in journal (Refereed) Published
Abstract [en]

Background: To strengthen palliative care for children in the Nordic countries, an updated status of current needs,resources, clinical services, education, and research is necessary to align and consolidate future research. A Nordic research collaboration initiative for children with palliative care needs was assembled in 2023. Building on this initiative, this paper presents an overview of pediatric palliative care (PPC) in the Nordic countries’ (a) population characteristics, (b) care models and setting of care, (c) education and training, and (d) research.

Methods: The Nordic initiative researchers collaboratively gathered and assessed available data on the characteristics of PPC within Denmark, Finland, Greenland, Iceland, Norway, the Faroe Islands, Sweden, and Åland. Data were compiled in a matrix with population characteristics, models- and setting of care, education and training, and areas of research in a Nordic context. The findings are narratively and descriptively presented, providing an overview of Nordic PPC. Results In total, the Nordic child population comprises around six million children (0–19 years), of which about 41.200 are estimated to be living with a life-limiting and/or life-threatening condition. Healthcare services are provided through various care models, ranging from specialized care to homecare settings. Overall, there remain few opportunities for education and training with some exceptions. Also, Nordic research within PPC has been shown to be a growing field although much remains to be done.

Conclusion: This overview is the first outline of the current PPC in Nordic countries. Although some differences remain important to acknowledge, overall, the strengths and challenges faced within PPC in the Nordic countries are comparable and call for joint action to increase evidence, services, and education to better serve the children, families, and healthcare personnel within PPC. Despite the varying structural premises for PPC, research endeavors aiming to provide evidence in this field seem increasing, timely and relevant for the Nordic countries, as well as the international context.

Place, publisher, year, edition, pages
2024. Vol. 23, no 1, p. 1-13, article id 118
Keywords [en]
Nordic countries, Pediatric palliative care, Care models, Research, Pediatric palliative education, Collaborative overview
National Category
Nursing Palliative Medicine and Palliative Care
Research subject
The Individual in the Welfare Society, Palliative Care
Identifiers
URN: urn:nbn:se:esh:diva-11190DOI: 10.1186/s12904-024-01447-xISI: 001216148500001PubMedID: 38720316OAI: oai:DiVA.org:esh-11190DiVA, id: diva2:1924536
Available from: 2025-01-06 Created: 2025-01-06 Last updated: 2025-09-22Bibliographically approved

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