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  • 1.
    Holm, Maja
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Nursing Sciences Sophiahemmet University Stockholm Sweden;Department of Health Care Sciences Palliative Research Centre, Marie Cederschiöld University Stockholm Sweden.
    Lundberg, Tina
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Lövgren, Malin
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Advanced Pediatric Home Care, Karolinska University Hospital, Stockholm, Sweden.
    Ljungman, Lisa
    Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
    Parenting a child with cancer and maintaining a healthy couple relationship: Findings from the Family Talk Intervention2024Ingår i: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 71, nr 1Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background Despite the challenges that caring for a child with cancer brings for parents, little knowledge is available concerning the effects on the parents’ couple relationship. Furthermore, few interventions have been designed to support parents in their couple relationship. The aim of this paper was, therefore, to explore parents’ experiences of their couple relationship while having a dependent child with cancer and the support they received from a family-based intervention, the Family Talk Intervention (FTI).

    Methods Data for this paper were taken from semi-structured interviews performed in a pilot study of the FTI in the context of pediatric oncology. In total, 22 couples were interviewed after participating in the FTI. The interviews were transcribed and analyzed using qualitative content analysis.

    Results Parents described how maintaining a couple relationship while living with childhood cancer could be very challenging and was not given the highest priority. The FTI was considered a way of providing important support to the couple and a chance for them to sit down together and listen to each other's perspectives on the situation. Parents described that the FTI had helped them gain an increased mutual understanding, sometimes also helping them to realize that they needed more extensive professional support in their relationship.

    Conclusions Living with childhood cancer and upholding a healthy couple relationship is challenging for parents. The FTI has the potential to support couples, mainly by providing opportunities for parents to communicate with each other. However, some couples may be in need of a tailored clinical intervention.

  • 2.
    Eriksson, Maria
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Children’s Participation and Perspectives in Family Disputes2024Ingår i: Children in Custody Disputes: Matching Legal Proceedings to Problems / [ed] Anna Kaldal; Agnes Hellner; Titti Mattsson, Palgrave Macmillan, 2024, 1, s. 85-106Kapitel i bok, del av antologi (Refereegranskat)
    Abstract [en]

    From a sociological perspective, this chapter discusses how agency interventions in the lives of children involved in family disputes, could become as child-centred and child-friendly as possible. It is divided into two parts, the first focusing on child health in family disputes, and the second on children’s participation and perspectives. The discussion sets out the results of several empirical studies of children in contact with family-law services and identifies implications for policy and practice. On a policy level, the author describes a need to dissolve boundaries between family-law proceedings and child welfare. To reach that objective in practice, the issue of children’s participation is connected to risk assessments and how best to communicate with children. The author explains how both the principle of care and the principle of participation can be simplified, then applied in practice, in order to contribute to the child’s sense of security and coherence. It is further argued that children’s participation can be enhanced, drawing on research of how best to communicate with them. Finally, the chapter explores children’s actions beyond participation, noting that, the children interviewed in one of the studies, emphasized their right to decide for themselves.

  • 3.
    Eriksson, Maria
    et al.
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Robertsson, Karin
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Bergman, Ann-Sofie
    Institutionen för socialt arbete, Stockholms universitet.
    Specialiserade team vid våld i nära relation: en studie i tre kommuner2024Rapport (Övrigt vetenskapligt)
    Abstract [sv]

    I föreliggande rapport redovisas resultat av en studie av hur tre kommuner hanterar socialnämndens ansvar för insatser på våldsområdet. Den undersöker hur kommunerna organiserar och genomför arbetet med att ge stöd till vuxna personer som utsatts för våld i nära relation respektive insatser till personer som utövar våld i nära relation. Studien genomfördes under åren 2020-2022 av forskare knutna till Institutionen för socialvetenskap vid Marie Cederschiöld högskola, inom ramen för det sexåriga forskningsprogrammet ”Samordnade interventionssystem mot våld i nära relationer” finansierat av Forte (2019-01492).

    Resultaten pekar på betydelsen av särskilda enheter eller mottagningar inriktade på våld i nära relation för att säkra god kvalitet i kommunernas insatser. Samtidigt synliggör både brukares och personalens beskrivningar utmaningar i socialtjänstens arbete med våld i nära relationer. Dessa handlar om implikationer av socialtjänstens funktionsindelning och specialisering, komplexiteten i att komma ur våld i förhållande till begränsade resurser till stödet till våldsutsatta, särskilt sårbara våldsutsatta brukare och hur arbetet är anpassat till deras behov, samt problemet med att interventionssystemet kring våld i nära relationer tenderar att vara vuxencentrerat trots att det finns minderåriga barn i familjen de flesta fall av våld i nära relationer som socialtjänsten kommer i kontakt med.

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  • 4.
    Börjeson, Martin
    et al.
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Tideman, Magnus
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Leder individuella stöd till delaktighet?: En kunskapskartläggning2024Rapport (Övrigt vetenskapligt)
    Abstract [sv]

    Rapporten redovisar en kunskapskartläggning som är första delen i ett flerårigt forskningsprojekt som med olika metoder belyser frågan om individuella stödinsatser leder till ökad delaktighet för personer med funktionsnedsättning. Kartläggningen pekar på behov av fördjupande studier och i den registerstudie och de två intervjustudier som utgör forskningsprojektets andra delar är ambitionen att ytterligare fördjupa dessa perspektiv.

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  • 5.
    Holm, Maja
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Sophiahemmet högskola, Stockholm.
    Lövgren, Malin
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Karolinska universitetssjukhuset.
    Alvariza, Anette
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Stockholms sjukhem.
    Eklund, Rakel
    Uppsala universitet.
    Kreicbergs, Ulrika
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Karolinska institutet.
    Experiences of being a severely ill parent of dependent children receiving care at home: Hopes and challenges2024Ingår i: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 22, nr 1, s. 169-173Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    OBJECTIVES: Multiple studies have focused on severely ill patients in the role as parents of dependent children, yet few have explored the thoughts and feelings within this group during palliative home care.

    METHODS: This qualitative study derives from a pilot intervention study, the Family Talk Intervention (FTI), in specialized palliative home care. The FTI is a support program with the main goal to increase family communication about illness-related topics. The study is based on field notes from 104 sessions with 20 parents taken by an interventionist during intervention delivery. The field notes were analyzed using the principles of qualitative content analysis.

    RESULTS: The field notes revealed several challenging situations for parents with severe illness. A major issue was how to find ways to talk to their children about their illness and prognosis. The parents expressed guilt for being unable to fulfill their roles as parents and partners. Existing family conflicts had escalated with the illness, according to some parents. Despite being affected by illness, parents tried to have hope, if only for small things - such as a period of ordinary family life.

    SIGNIFICANCE OF RESULTS: Severely ill parents in specialized palliative home care seek support regarding how to communicate and stay connected to their roles in the family, which is a struggle when a parent is cared for at home, while it in contrast may promote normality and hope. Communication with children is vital and needs to be brought to the attention of health-care professionals. A family-centered focus, involving both parents and children, should be embraced.

  • 6.
    Bockgård, Gustav
    et al.
    Department of Scandinavian Languages, Uppsala University, Uppsala.
    Mattsson, Elisabet
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Department of Women’s and Children’s Health, Healthcare Sciences and e-Health, Uppsala University, Uppsala.
    von Essen, Louise
    Department of Women’s and Children’s Health, Healthcare Sciences and e-Health, Uppsala University, Uppsala.
    Klarare, Anna
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Women’s and Children’s Health, Healthcare Sciences and e-Health, Uppsala University, Uppsala.
    Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings: Insights From Women With Lived Experience of Homelessness2024Ingår i: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Interviews with individuals experiencing homelessness can be challenging for various reasons, including mental and physical health issues, substance use, and negative experiences with authority figures. Researchers have used photos to facilitate communication and empower participants during data collection. We analyzed data from a previous study to explore the use of researcher-generated photos during interviews about health with 13 women experiencing homelessness. Conversation analysis revealed clear patterns regarding the use of the photos during the interviews. The photos were referred to 118 times over the total interview length, 6 hours and 23 minutes, with the interviewer making 62% of the referrals and the women accounting for 38%. Fifty-nine percent of the referrals occurred within the first 5 minutes of the interviews. The women used the photos to trigger associations and emotions, to describe photo content, or in a minor role during the interview. Interpretations from an advisory board of six women with lived experiences of homelessness suggested that the photos did not engage participants as intended, highlighting the importance of considering participants’ perspectives when designing photo-elicitation methods. The feedback also provided valuable insights into interview locations and incentives in research that may have influenced the women’s willingness to use the photos. This study emphasizes the importance of understanding the complexity of choosing researcher-generated photos in interviews with underserved, hard-to-reach populations.

  • 7.
    Jernbro, Carolina
    et al.
    Karlstads Universitet.
    Landberg, Åsa
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Våld i ungas nära relationer och hedersrelaterat våld och förtryck: Förekomst, riskfaktorer och hälsokonsekvenser2024Rapport (Övrigt vetenskapligt)
    Abstract [sv]

    Denna rapport är ett samarbete mellan Jämställdhetsmyndigheten och Stiftelsen Allmänna Barnhuset. Rapporten bygger på data från den senaste nationella kartläggningen av våld mot barn som genomfördes av Stiftelsen Allmänna Barnhuset på uppdrag av regeringen under våren 2022. I studien deltog 5 820 elever i årskurs nio. De har i en anonym enkät svarat på frågor om utsatthet för olika former av våld begått av jämnåriga och vuxna. Den här rapporten bygger på fördjupade analyser av svaren på frågorna om våld i egna parrelationer och hedersrelaterat förtryck.

    Resultatet visar att våld i ungas parrelationer och hedersrelaterat våld och förtryck är alltför vanligt i Sverige. Nästan var tredje ungdom som haft en relation hade varit utsatt för våld i egen parrelation och våldet överlappade med andra former av våld. Flickor och icke-binära var utsatta i betydligt större utsträckning än pojkar. Ungefär var femte ungdom i studien upplevde oskuldskrav och detta var vanligast bland flickor med utrikesfödda föräldrar. Ungdomar med oskuldskrav var mer utsatta för våld av föräldrar och andra vuxna än övriga ungdomar. Flickor med oskuldskrav var den mest utsatta gruppen då de var utsatta för mer allvarligt och systematiskt fysiskt våld än pojkar och övriga flickor.

    Vi hoppas att med den här rapporten kunna bidra med kunskap som möjliggör ett effektivt förebyggande arbete. Våld i ungas parrelationer och hedersrelaterat våld och förtryck medför ett lidande för de som drabbas samt stora kostnader för samhället. Våldet går att förebygga, men det behövs mer effektiva åtgärder inklusive ett starkare skydd och stöd till de som är utsatta.

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  • 8.
    Ayoub, Maria
    et al.
    School of Health and Welfare, Dalarna University, Falun.
    Udo, Camilla
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. School of Health and Welfare, Dalarna University, Falun; Center for Clinical Research Dalarna, Uppsala University, Falun.
    Årestedt, Kristofer
    Department of Health and Caring Sciences, Faculty of Health and Life Science, Linnaeus University, Växjö.
    Kreicbergs, Ulrika
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Women’s and Children’s Health, Childhood Cancer Research Unit, Karolinska Institute, Solna; Louis Dundas Center, Great Ormond Street Institute of Child Health, University College London, London, UK.
    Lövgren, Malin
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Advanced Pediatric Home Care, Astrid Lindgren Children’s Hospital, Karolinska University Hospital.
    The Family Talk Intervention in Pediatric Oncology: Potential Effects Reported by Parents2024Ingår i: Children, E-ISSN 2227-9067, Vol. 11, nr 1, artikel-id 95Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: Childhood cancer impacts the family system and has psychosocial consequences for all family members. For the parents, the ill child, and the siblings to be able to adjust to this challenging situation, the whole family needs access to psychosocial support. However, only a few such family interventions in pediatric oncology have been evaluated. The aim of this study was to explore the potential effects of a family-centered intervention, the Family Talk Intervention (FTI), in pediatric oncology from the parents’ perspectives.

    Methods: A concurrent mixed methods design was used for this study. Data were derived from a pilot study of 26 families recruited from one pediatric oncology center in Sweden. This study focused on questionnaire and interview data from 52 parents.

    Results: After participation in FTI, the parents felt more satisfied with the conversations within the family about the illness. FTI also contributed to strengthened family togetherness, including more open communication and improved family relations, as described by the parents. Parents further expressed that they felt more empowered in their parenting role following FTI.

    Conclusions: The findings regarding FTI’s ability to improve family communication and family relations, thus strengthening family togetherness in families with childhood cancer, are promising. This provides motivation for a large-scale study of FTIs in pediatric oncology.

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  • 9.
    Oelschlägel, Lina
    et al.
    Lovisenberg Diaconal University College, Norway; Department of Public Health Sciences, Institute of Health and Society, Faculty of Medicine, University of Oslo, Oslo, Norway.
    Moen, Anne
    Department of Public Health Sciences, Institute of Health and Society, Faculty of Medicine, University of Oslo, Oslo, Norway.
    Dihle, Alfhild
    Department of Nursing and Health Promotion, Faculty of Health Sciences, OsloMet - Oslo Metropolitan University, Oslo, Norway.
    Christensen, Vivi L.
    Department of Nursing and Health Sciences, Faculty of Health and Social Sciences, University of South-Eastern Norway, Drammen, Norway.
    Heggdal, Kristin
    Faculty of Health Sciences, VID Specialized University, Oslo, Norway.
    Österlind, Jane
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Steindal, Simen A.
    Lovisenberg Diaconal University College, Norway; Faculty of Health Sciences, VID Specialized University, Oslo, Norway.
    Implementation of remote home care: Assessment guided by the RE-AIM framework2024Ingår i: BMC Health Services Research, E-ISSN 1472-6963, Vol. 24, artikel-id 145Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background Welfare technology interventions have become increasingly important in home-based palliative care for facilitating safe, time-efficient, and cost-effective methods to support patients living independently. However, studies evaluating the implementation of welfare technology innovations are scarce, and the empirical evidence for sustainable models using technology in home-based palliative care remains low. This study aimed to report on the use of the Reach Effectiveness Adoption Implementation Maintenance (RE-AIM) framework to assess the implementation of remote home care (RHC) a technology-mediated service for home-living patients in the palliative phase of cancer. Furthermore, it aimed to explore areas of particular importance determining the sustainability of technologies for remote palliative home-based care.

    Methods A secondary analysis of data collected by semi-structured interviews with patients with cancer in the palliative phase, focus groups, and semi-structured interviews with healthcare professionals (HCPs) experienced with RHC was performed. A deductive reflexive thematic analysis using RE-AIM dimensions was conducted.

    Results Five themes illustrating the five RE-AIM dimensions were identified: (1) Reach: protective actions inrecruitment - gatekeeping, (2) Effectiveness: potential to offer person-centered care, (3) Adoption: balancing high touch with high tech, (4) Implementation: moving towards a common understanding, and (5) Maintenance: adjusting to what really matters. The RE-AIM framework highlighted that RHC implementation for patients in the palliative phase of cancer was influenced by HCP gatekeeping behavior, concerns regarding abandoning palliative care as a high-touch specialty, and a lack of competence in palliative care. Although RHC facilitated improved routines in patients’ daily lives, it was perceived as a static service unable to keep pace with disease progression.

    Conclusions A person-centered approach that prioritizes individual needs and preferences is necessary for providing optimal care. Although technologies such as RHC are not a panacea, they can be integrated as support for increasingly strained health services.

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  • 10.
    Anonymous,
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    When the wounds heal but the soul bleeds: A lived experience narrative2024Ingår i: Journal of Psychiatric and Mental Health Nursing, ISSN 1351-0126, E-ISSN 1365-2850Artikel i tidskrift (Övrigt vetenskapligt)
    Abstract [en]

    Accessible Summary

    What is known on the subject?

    • This paper acknowledges the profound and lasting impact of childhood abuse on substance use and homelessness.

    What this paper adds to existing knowledge?

    • It underscores the inherent value and humanity of every individual, regardless of their struggles.
    • That a comprehensive approach to mental health care, encompassing medication, therapy and a secure environment, is imperative.

    What are the implications for mental health nursing?

    • Early intervention and recognising individuals who suffer in silence are paramount. Mental health nurses must have the courage to ask uncomfortable questions and truly hear the unspoken words.
    • Mental health nurses should never underestimate the power of simply being present with someone during their darkest moments. This simple act can wield significant influence.
  • 11.
    Åberg, Pelle
    et al.
    Marie Cederschiöld högskola, Institutionen för civilsamhälle och religion.
    Essen, Johan von
    Marie Cederschiöld högskola, Institutionen för civilsamhälle och religion, Centrum för civilsamhällesforskning.
    Cras, Patrik
    Sveriges lantbruksuniversitet.
    Nordfeldt, Marie
    Karlstads universitet.
    Hansen, Kjell
    Folkbildning i landsbygder: Om folkbildningens betydelser för människor och lokalsamhällen i svenska landsbygder2024Rapport (Övrigt vetenskapligt)
    Abstract [sv]

    I rapporten Folkbildning i landsbygder undersöks folkbildningens betydelse för människor och lokalsamhällen i tre utvalda svenska landsbygder. Vilka betydelser har studieförbund och folkhögskolor som mötesplatser och lokala offentligheter? Som infrastrukturer för lokalt samhällsengagemang? För lokal kompetensutveckling? Eller för det lokala kulturutbudet?

    Rapportens avslutande analys handlar om de avvägningar som studieförbundens och folkhögskolornas anställda gör mellan de ideal och riktlinjer som styr folkbildningen, och de behov som präglar det lokalsamhälle som de är verksamma i.

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    Folkbildning i landsbygder
  • 12.
    Inghammar, Helena
    et al.
    Strängnäs stift.
    Christiansson Drake, Elisabeth
    Marie Cederschiöld högskola, Institutionen för civilsamhälle och religion.
    Diakonatets identitet måste bearbetas vidare2024Ingår i: Kyrkans tidning, nr 2024-02-02Artikel i tidskrift (Övrig (populärvetenskap, debatt, mm))
    Abstract [sv]

    Många diakoner uppfattar liturgiska uppgifter som centrala och identitetsskapande. Men i kyrkohandboken saknas stöd för att de utför dessa uppgifter just för att de är diakoner. Om inte diakonatets identitet arbetas igenom, riskeras teologisk anonymitet.

  • 13.
    Klarare, Anna
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Department of Women’s and Children’s Health, Healthcare Sciences and e-Health, Uppsala University, Uppsala, Sweden.
    Ekström, Veronica
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Godskesen, Tove
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Faculty of Nursing and Health Sciences, Nord University, Bodø, Norway.
    Westman, Jeanette
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Mattsson, Elisabet
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Department of Women’s and Children’s Health, Healthcare Sciences and e-Health, Uppsala University, Uppsala, Sweden.
    Kneck, Åsa
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Treatment of trauma-related conditions for people in homelessness: A scoping review2024Ingår i: Journal of social distress and the homeless, ISSN 1053-0789, E-ISSN 1573-658XArtikel, forskningsöversikt (Refereegranskat)
    Abstract [en]

    People in homelessness face significant health inequities, with tri-morbidity, exposure to violence, substance use- and post-traumatic stress disorder. The aim of this scoping review was to describe treatments for trauma-related conditions for persons in homelessness. Systematic searches were performed in three databases: PubMed, PsycInfo and Scopus, guided by the PRISMA checklist. Nine studies fulfilled the criteria and were included in the review. Results show no randomized studies specifically focusing on treatment of trauma-related conditions for people in homelessness. Studies described interventions or programs that focused on consolidating and developing participants’ own strengths and skills to better navigate life with the challenges of homelessness, trauma, and PTSD. Treatment of trauma-related conditions may have positive effects for people in homelessness, as for others. Multimodal treatments, developing personal strengths and skills for people in homelessness, show potential to decrease trauma symptoms, however, more robust studies are needed for inferences and recommendations. 

  • 14.
    Pageau, Félix
    et al.
    Division of Geriatrics, Department of Medicine, Faculty of Medicine, Laval University, Quebec City, Canada; Centre d'excellence en vieillissement de Québec, VITAM, Quebec City, Canada.
    Fiasse, Gaëlle
    Department of Philosophy, Joint Appointment With the School of Religious Studies, McGill University, Montreal, Canada; Department of Philosophy, Hebrew University of Jerusalem, Jerusalem, Israel.
    Nordenfelt, Lennart
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Mihailov, Emilian
    Department of the History of Philosophy and Practical Philosophy, Research Center in Applied Ethics, Faculty of Philosophy, University of Bucharest, Bucharest, Romania.
    Care of the older person and the value of human dignity2024Ingår i: Bioethics, ISSN 0269-9702, E-ISSN 1467-8519, Vol. 38, nr 1, s. 44-51Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    As the world population is rapidly aging, stakeholders must address the care of the elderly with great concern. Also, loss of dignity is often associated with aging due to dementia, mobility problems and diminished functional autonomy. However, dignity is a polysemic term that is deemed useless by some ethicists. To counter this claim, we propose four concepts to define it better and make use accurately of this notion. These are human dignity, dignity of identity, dignities of excellence and attributed dignities. Finally, we explain the importance of solicitude and human dignity in the care of the elderly. This will ensure the respect, friendship and dignity of the elderly in providing geriatric ethical care.

  • 15.
    Jonsson, Linda
    et al.
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Linell, Hanna
    Institutionen för socialt arbete, Stockholms universitet.
    Eriksson, Maria
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Implementering av Efter barnförhöret i Stockholms stad2024Rapport (Övrigt vetenskapligt)
    Abstract [sv]

    Rapporten fokuserar på implementeringen av modellen ”Efter barnförhöret” via det mobila teamet på Barnahus i Stockholms stad. Syftet med implementeringsstudien var att undersöka möjligheterna till att implementera en familjeorienterad krisinventionsmodell som Efter barnförhöret för att stödja barn och deras familjer efter ett polisförhör som rör våld i familjen. I projektet skulle fokus vara på genomförbarhet och användning av arbetsmodellen samt vilka organisatoriska och personella förutsättningar som främjar respektive hindrar implementeringen av arbetsmodellen. Befintligt dokumenterat material inhämtades i kombination med att intervjuer genomfördes under 2021-2022 med ledning och krisstödsteamets personal. I projektet framkom flera utmaningar som att få till ett jämt remissflöde, att kunna hantera situationer när det blir få respektive många barn och familjer som behöver stöd utifrån personalens arbetssituation. Vidare beskrev personalen behov av att få tid och resurser till utbildning och metodutveckling och ett behov av ett ökat stöd från ledningen.

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  • 16.
    Häger Tibell, Louise
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Tema Cancer, BES: Breast-Endocrine Tumours and Sarcoma, Karolinska University Hospital, Stockholm, Sweden.
    Årestedt, Kristofer
    Faculty of Health and Life Sciences, Linnaeus University, Kalmar, Sweden; Department of Research, Region Kalmar County, Kalmar, Sweden.
    Holm, Maja
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Nursing Science, Sophiahemmet University, Stockholm, Sweden.
    Wallin, Viktoria
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Steineck, Gunnar
    Department of Clinical Cancer Epidemiology, Karolinska Institutet, Stockholm, Sweden; Division of Clinical Cancer Epidemiology, Sahlgrenska University Hospital, Gothenburg, Sweden.
    Hudson, Peter
    Centre for Palliative Care, St Vincent´s Hospital and The University of Melbourne, Melbourne, Australia; Vrije University Brussels, Brussels, Belgium.
    Kreicbergs, Ulrika
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.
    Alvariza, Anette
    Research and Development-Unit/Palliative Care, Stockholms Sjukhem, Stockholm, Sweden.
    Preparedness for caregiving and preparedness for death: Associations and modifiable thereafter factors among family caregivers of patients with advanced cancer in specialized home care2024Ingår i: Death Studies, ISSN 0748-1187, E-ISSN 1091-7683, Vol. 48, nr 4, s. 407-416Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The purpose of this study was to (1) explore associations between preparedness for caregiving and preparedness for death among family caregivers of patients with advanced cancer and (2) explore modifiable preparedness factors, such as communication and support. Data was derived from a baseline questionnaire collected in specialized home care. The questionnaire included socio-demographics, the Preparedness for Caregiving Scale, and single items addressing preparedness for death, received support and communication about incurable illness. Data was analyzed using descriptive statistics and Spearman correlations. Altogether 39 family caregivers participated. A significant association was found between preparedness for caregiving and preparedness for death. Received support and communication about the illness was associated with higher levels of preparedness for caregiving and death. This study contributes to evidence on the association between preparedness for caregiving and death, but also that communication and support employed by healthcare professionals could improve family caregiver preparedness and wellbeing. 

  • 17.
    Hampton, DeeAndria
    et al.
    Lilly Family School of Philanthropy, Indiana University, Indianapolis, Indiana, USA.
    Wiepking, Pamala
    Lilly Family School of Philanthropy, Indiana University, Indianapolis, Indiana, USA ; Center for Philanthropic Studies, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.
    Chapman, Cassandra
    UQ Business School, The University of Queensland, St Lucia, Australia.
    McHugh, Lucy Holmes
    College of Science and Engineering, James Cook University, Townsville, Australia.
    Arnesen, Daniel
    Institute for Social Research, Oslo, Norway.
    Carrigan, Cathie
    Lilly Family School of Philanthropy, Indiana University, Indianapolis, Indiana, USA.
    Feit, Galia
    Institute for Law and Philanthropy, Buchmann Faculty of Law, Tel Aviv University, Tel Aviv, Israel.
    Grönlund, Henrietta
    Faculty of Theology, University of Helsinki, Helsinki, Finland.
    Hrafnsdóttir, Steinunn
    Faculty of Social Work, School of Social Sciences, University of Iceland, Reykjavík, Iceland.
    Ivanova, Natalya
    Centre for Studies of Civil Society and the Nonprofit Sector, National Research University Higher School of Economics, Moscow, Russia.
    Katz, Hagai
    Guilford Glazer Faculty of Business and Management, Ben-Gurion University of the Negev, Beersheba, Israel.
    Kim, Sung‐Ju
    School of Social Work, North Carolina State University, Raleigh, North Carolina, USA.
    Kristmundsson, Ómar H.
    Faculty of Political Science, University of Iceland, Reykjavík, Iceland.
    Litofcenko, Julia
    Institute for Nonprofit Management, WU Vienna University of Economics and Business, Vienna, Austria.
    Mersianova, Irina
    Centre for Studies of Civil Society and the Nonprofit Sector, National Research University Higher School of Economics, Moscow, Russia.
    Neumayr, Michaela
    Institute for Nonprofit Management, WU Vienna University of Economics and Business, Vienna, Austria.
    Pessi, Anne Birgitta
    Faculty of Theology, University of Helsinki, Helsinki, Finland.
    Scaife, Wendy
    Australian Centre for Philanthropy and Nonprofit Studies, Queensland University of Technology, Gardens Point Campus, Brisbane, Australia.
    Sivesind, Karl Henrik
    Institute for Social Research, Oslo, Norway.
    Vamstad, Johan
    Marie Cederschiöld högskola, Institutionen för civilsamhälle och religion, Centrum för civilsamhällesforskning.
    Yang, Yongzheng
    School of Public Administration and Policy, Renmin University of China, Beijing, People's Republic of China.
    Philanthropy during COVID‐19: Learnings and recommendations for philanthropic organizations navigating crisis2024Ingår i: Journal of Philanthropy and Marketing, ISSN 2691-1361, Vol. 29, nr 1, artikel-id e1814Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    This practice paper articulates the key learnings for philanthropic organizations based on their experiences of the COVID-19 pandemic. Which actions can philanthropic organizations take to best support community needs during times of crisis? To answer this question, we synthesize information about how philanthropic organizations responded during the early COVID-19 crisis (spring―fall 2020) across 11 countries: Australia, Austria, Finland, Germany, Iceland, Israel, Norway, Sweden, the Republic of Korea, the Russian Federation, and the United States of America. Results indicate four key actions that we recommend philanthropic organizations take during times of crisis: (1) Assess community needs; (2) engage with volunteers and donors; (3) communicate effectively and strategically with volunteers, donors, and the public; and (4) focus on equity.

  • 18.
    Kneck, Åsa
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Ewertzon, Mats
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Swedish Family Care Competence Centre, Kalmar.
    Leksell, Janeth
    Department of Medical Sciences, Uppsala University.
    Årestedt, Kristofer
    Faculty of Health and Life Sciences, Linnaeus University, Kalmar; The Research Section, Region Kalmar County, Kalmar.
    Amsberg, Susanne
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    I have never been invited: A cross-sectional explorative study of family members' experiences of encounters with healthcare professionals in diabetes care2024Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 38, nr 1, s. 82-91Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    AIM: To explore the experiences of family members of adult persons with type 1 diabetes concerning both the approach of healthcare professionals and feelings of alienation in encounters with professional diabetes care.

    METHODS: A cross-sectional explorative quantitative and qualitative design. The Family Involvement and Alienation Questionnaire-Revised (FIAQ-R), including an open-ended question, was answered by 37 family members of adult persons with type 1 diabetes. Analyses included descriptive statistics and qualitative analysis. The study has received ethical approval.

    RESULTS: Family members rated the approach of the healthcare professionals as being somewhat positive and considered that the approach towards them is important. They only felt partially alienated from the professional care. Qualitative data revealed that the family members often lacked direct access to the professional care and that their involvement was dependent on their relationship with the person with diabetes. Findings highlighted that the family members' wish to be involved in the care was sometimes unanswered.

    CONCLUSION: Based on the findings, it is reasonable to stress the importance of considering family members' perspectives and involving them in diabetes care to improve overall patient support.

  • 19.
    Eriksson, Maria
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Enabling Children's participation: Putting the ‘good dialogues’ model into practice2024Ingår i: Children & society, ISSN 0951-0605, E-ISSN 1099-0860, Vol. 38, nr 2, s. 334-348Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    A growing interest in children's participation has led to an increased need for methods for communicating with children. Empirical knowledge on ways to secure children's participation in encounters with welfare professionals and in decisions regarding their life is, however, scarce. One example of a practice model intended to enable children's participation is ‘Good Dialogues’. Presenting results from an evaluation study of the feasibility and practical use of the Good Dialogues model, this article explores the ways in which practitioners manage to put the agenda of child-centred and child-guided dialogues with children underpinning this model into practice. The ways in which children's participation is undermined are also discussed as well as the need for further knowledge development.

  • 20.
    Kassman, Anders
    et al.
    Marie Cederschiöld högskola, Institutionen för civilsamhälle och religion, Centrum för civilsamhällesforskning.
    Kneck, Åsa
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Blomqvist Mickelsson, Tony
    Södertörns högskola.
    Hur kan ledare inom idrottsrörelsen navigera delvis motsägelsefulla förväntningar från utövare, föräldrar, styrelsen och staten?2024Konferensbidrag (Övrigt vetenskapligt)
    Abstract [sv]

    Genom idrottsrörelsens verksamhet förväntas ett brett spektrum av mervärden, utöver enbart idrottslig utveckling och sportsliga framgångar. Främjandet av fysisk aktivitet, samhörighet, meningsfull fritidssysselsättning, social inkludering, integration, demokratisk fostran och brottförebyggande arbete bidrar till att motivera statlig och kommunal finansiering. I det implicita kontraktet mellan staten och idrottsrörelsen ingår även en aktiv strävan att vara öppen och tillgänglig för alla. Engagemanget för breddat deltagande utspelar sig i hög grad inom lokala medlemsbaserade föreningar, där ideella ledare står inför komplexa utmaningar. Ledaren har en nyckelroll, navigerar genom behov och förväntningar från utövare, föräldrar, styrelser och stat där egna förmågor och resurser blir avgörande. För att underlätta för den ideella lokala ledaren behövs olika former av stödstrukturer som behöver synliggöras tillsammans med ledarnas förutsättningar och bidrag till idrottsrörelsen.

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  • 21.
    Karlsson Rosenblad, Andreas
    et al.
    Department of Statistics, Uppsala University; Department of Statistics, Uppsala University, Akademiska sjukhuset; Department of Neurobiology, Care Sciences and Society, Division of Family Medicine and Primary Care, Karolinska Institutet.
    Klarare, Anna
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Women’s and Children’s Health, Healthcare Services and e-Health, Uppsala University, Akademiska sjukhuset.
    Rapaport, Penny
    Division of Psychiatry, Faculty of Brain Sciences, University College London, UK.
    Mattsson, Elisabet
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Department of Women’s and Children’s Health, Healthcare Services and e-Health, Uppsala University, Akademiska sjukhuset.
    Gaber, Sophie Nadia
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Department of Women’s and Children’s Health, Healthcare Services and e-Health, Uppsala University, Akademiska sjukhuset.
    Health literacy and its association with mental and spiritual well-being among women experiencing homelessness2024Ingår i: Health Promotion International, ISSN 0957-4824, E-ISSN 1460-2245, Vol. 39, nr 2Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Low health literacy (HL) has been linked to low self-rated health, reduced efficacy of behaviour change, and challenges in preventing, treating, or managing health conditions. People experiencing homelessness are at risk of poor HL; however, few studies have investigated HL in relation to mental and spiritual well-being among people experiencing homelessness in general, or women experiencing homelessness specifically. This cross-sectional study of 46 women experiencing homelessness in Stockholm, Sweden, recruited during the period October 2019–December 2020, aimed to examine how HL was associated with mental and spiritual well-being among women experiencing homelessness. Participants answered questions about socio-demographic characteristics (age, length of homelessness, education) and digital technology (mobile phone/the Internet) use, in addition to Swedish language versions of three questionnaires administered through structured, face-to-face interviews: the Communicative and Critical Health Literacy Scale, the General Health Questionnaire 12 and the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being. Data were analysed using linear regression, which revealed statistically significant associations between HL and mental well-being (p = .009), and between HL and spiritual well-being (p = .022). However, neither socio-demographic characteristics nor digital technology use were significantly associated with HL. In conclusion, promoting HL may improve mental and spiritual well-being in this vulnerable population. An advisory board of women with lived experiences of homelessness (n = 5) supported the interpretation of the findings and emphasised the need to consider HL in relation to basic needs such as ‘housing first’. Moreover, health information and services should be accessible to people with different degrees of HL.

  • 22.
    Lundberg, Erik
    Marie Cederschiöld högskola, Institutionen för civilsamhälle och religion, Centrum för civilsamhällesforskning. School of Culture and Society, Dalarna University, Falun, Sweden.
    Can Participation in Mock Elections Boost Civic Competence among Students?2024Ingår i: Journal of Political Science Education, ISSN 1551-2169, E-ISSN 1551-2177, s. 1-18Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Mock elections are an increasingly popular form of  active learning, adopted in many European countries and the United States. However, we have limited knowledge regarding the extent to  which they enhance students’ civic competence. This article analyzes data from over 9,000 students aged 13-19 who participated in  a  2022 mock election in  Sweden. The goal is  to determine the extent to which mock elections boost civic competence, with an emphasis on potential variations related to  gender, ethnic background, and edu-cational stage. Results indicate that such participation positively influences students’ self-reported political knowledge and, to  a  lesser extent, their political interest, engagement, and efficacy. Yet, the impact varies among student demographics. For instance, foreign- born students reported greater effects than their Swedish-born coun-terparts. Female students displayed heightened political knowledge and interest compared to  males, while male students demonstrated higher political engagement. Interestingly, mock elections seemed to enhance political knowledge more in  primary school students than in  secondary school ones. Conversely, they had a  more pronounced impact on the political interests and engagement of secondary school students. The study concludes with suggestions for future research to  employ more rigorous methods to  assess the influence of  mock elections on civic competencies.

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  • 23. Nylenna, Helge K
    et al.
    Lundgren, Linnea
    Marie Cederschiöld högskola, Institutionen för civilsamhälle och religion, Centrum för civilsamhällesforskning.
    State Church and Religious Equality: A Comparative Study of Competing Logics during the Process of Changing Relations between State and Church in Sweden and Norway2024Ingår i: Journal of Church and State, ISSN 0021-969X, E-ISSN 2040-4867Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    In recent decades, the religious landscape in the Nordic countries has changed. Transforming from traditional homogeneous Evangelical-Lutheran societies into more religiously and culturally diverse, there have been reforms creating new relationships between the states and the traditional state churches. Taking a comparative approach, this article analyzes how institutional logics guided the church and state reforms in Norway and Sweden. Analyzing governmental documents through the theoretical lens of institutional logics, the article makes a distinction between the logic of state church and the logic of religious equality. The article shows how the former acts as a foundational logic within policymaking even though there has been a movement towards more religious equality in legislation. Though there are differences in how Norway and Sweden facilitate their arrangements for support to faith communities, the ideas informing the arrangements are similar. We point towards an increased discrepancy behind the ideas informing policymaking and the practical implications of those policies.

  • 24.
    Thulin, Johanna
    et al.
    Department of Social Work, Linnaeus University, Växjö, Sweden.
    Landberg, Åsa
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Skillmark, Mikael
    Department of Social Work, Jönköping University, Jönköping, Sweden.
    Juggling conflicting demands when using a new intervention to combat child physical abuse in the Swedish child welfare services2024Ingår i: Nordic Social Work Research, ISSN 2156-857X, E-ISSN 2156-8588Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    This article focuses on the complexities of using a new intervention when parents are suspected of child physical abuse. Children leaving a child forensic interview due to suspected child physical abuse are often handed over to their parents, who sometimes are the suspected perpetrators. The Efter barnförhöret (EB) [After the child forensic interview] intervention was developed to aid children in this stressful situation by providing professional support from child welfare services to the child and parents. The article is based on interviews with 11 respondents working with EB. Narratives reveal how respondents use their discretionary space to navigate different institutional logics. In the themes Focusing on the child, Getting parents motivated, The challenges with organizational boundaries and Demand trumps resources, respondents argue that EB, despite organizational challenges, is considered an important intervention that meets the needs of children and families after the disclosure of child physical abuse.

  • 25. Thulin, Johanna
    et al.
    Landberg, Åsa
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Jernbro, Carolina
    Våld är aldrig okej: Sammanfattning av en nationell kartläggning av våld mot barn2024Rapport (Övrigt vetenskapligt)
    Abstract [sv]

    Stiftelsen Allmänna Barnhuset har på uppdrag av regeringen genomfört en kartläggning av våld mot barn i Sverige. I studien har 5820 elever i årskurs nio anonymt svarat på frågor om våldsutsatthet. Genom att så många elever svarat på frågorna kan vi få en bild av hur vanligt det är att som barn utsättas för olika former av våld – och vilka konsekvenser våldet kan få. Studien är en uppföljning av tidigare studier som genomförts år 2000, 2006, 2011 och 2016. Det gör att vi kan se att vissa former av våld har ökat, medan andra har minskat eller stått still.

    Resultatet visar att en majoritet av alla femtonåringar i Sverige har varit utsatta för någon form av våld av en vuxen och/eller jämnårig under sin uppväxt. Våldet påverkar barns mående och skolprestationer. Trots det får få barn tillgång till stöd och rehabilitering och barn vänder sig i högre grad till jämnåriga än vuxna när de avslöjar sin våldsutsatthet. Det är oacceptabelt att så många barn varit utsatta för våld och vuxna måste bli bättre på att uppmärksamma utsatta barn – och erbjuda stöd.

    Den här rapporten sammanfattar resultaten från Våld mot barn 2022 – en nationell kartläggning och visar hur vanligt det är att barn varit utsatt för olika former av fysisk och psykisk misshandel, upplevt våld mellan de vuxna i hemmet, försummelse, sexuella övergrepp, våld i egen parrelation samt mobbning.

    En elev i studien uttryckte det så här: ”Aldrig okej med våld och övergrepp oavsett vad det är för situation”.

  • 26.
    Eriksson, Linda Victoria
    et al.
    Karolinska institutet; Karolinska universitetssjukhuset.
    Holmberg, Katarina
    Karolinska institutet; Sophiahemmet högskola.
    Lundh Hagelin, Carina
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Karolinska institutet.
    Wengström, Yvonne
    Karolinska institutet; Karolinska universitetssjukhuset.
    Bergkvist, Karin
    Karolinska institutet; Sophiahemmet högskola.
    Winterling, Jeanette
    Karolinska institutet; Karolinska universitetssjukhuset.
    Symptom Burden and Recovery in the First Year After Allogeneic Hematopoietic Stem Cell Transplantation2023Ingår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 46, nr 1, s. 77-85Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    BACKGROUND: Patients are affected by various symptoms after allogeneic hematopoietic stem cell transplantation (allo-HSCT) that can affect recovery. Research has mainly focused on symptom occurrence; thus, little is known about patients' overall symptom burden.

    OBJECTIVE: The aim of this study was to examine patient-reported symptom burden in the first year after allo-HSCT and whether a high symptom burden 4 months after allo-HSCT predicts recovery, that is, general health and sick leave, 1 year after transplantation.

    METHODS: Allo-HSCT patients aged 18 to 65 years were included (n = 189). Questionnaire data were collected on admission to the allo-HSCT unit, as well as 4 and 7 months and 1 year after allo-HSCT. Logistic regression evaluated relationships between demographic characteristics, chronic graft-versus-host disease, physical activity, and a high symptom burden.

    RESULTS: Tiredness, susceptibility to infection, disinterest in sex, and physical weakness remained the most frequent symptoms, while distressing symptoms varied during the first year after allo-HSCT.Poor general health 1 year after allo-HSCT was associated with older age, low physical activity, and a high symptom burden 4 months after allo-HSCT. Full-time sick leave 1 year after allo-HSCT was associated with chronic graft-versus-host disease, low physical activity, and a high symptom burden 4 months after transplantation.

    CONCLUSIONS: Experiencing a high symptom burden 4 months after allo-HSCT can affect recovery 1 year after transplantation. Furthermore, low physical activity 4 months after allo-HSCT can predict both general health and sick leave 1 year after transplantation.

    IMPLICATIONS FOR PRACTICE: Repeated symptom assessment, including experienced distress, is central for reducing overall symptom burden and supporting recovery after allo-HSCT.

  • 27.
    Eriksson, Maria
    et al.
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Källström, ÅsaÖrebro universitet.Näsman, ElisabetUppsala universitet.
    Barns röster om våld: Att lyssna, tolka och förstå2023Samlingsverk (redaktörskap) (Övrigt vetenskapligt)
    Abstract [sv]

    Barn som upplever våld i sin familj är en utsatt grupp. Under senare år har hjälpinsatser för denna grupp vuxit fram, men fortfarande behövs mer kunskap bland professionella som arbetar med barn. Barn ska kunna känna sig delaktiga i alla beslut som rör dem, samtidigt som vuxna ansvarar för att barn inte far illa. Hur ska utsatthet upptäckas, utredas och dokumenteras på ett sätt som förenar delaktighets- och omsorgsperspektiven? Kan någon skyddas och vara delaktig på en och samma gång?

    Utifrån dessa frågor visar författarna hur ny forskning kan utveckla arbetet med barn som upplever våld hemma. Bokens första del diskuterar förutsättningarna för att nå och förstå barns berättelser om och perspektiv på våld i hemmet inklusive synen på våldsutsatta barn i olika sammanhang. Den andra delen behandlar vad barn säger om våldet, hur de hanterar det och omgivningens bemötande. 

    Denna nya upplaga är reviderad och uppdaterad i enlighet med den senaste forskningen på området. Boken innehåller fem nyskrivna kapitel som berör angelägna frågor för alla som arbetar med barn i utsatthet och som speglar de nya behov som har uppstått sedan förra upplagan. Ett behandlar utvecklingen och aktuella frågor i lagstiftning och praktik; ett tar upp barns strategier och ett det sociala nätverkets roll i situationer med våld. De övriga två diskuterar vad barn tycker om delaktighet i utredningsprocesser och vad de säger om stödinsatser.

  • 28.
    Näsman, Elisabet
    et al.
    Uppsala universitet.
    Källström, Åsa
    Örebro universitet.
    Eriksson, Maria
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Perspektiv på barns röster om våld2023Ingår i: Barns röster om våld: Att lyssna, tolka och förstå / [ed] Maria Eriksson; Åsa Källström; Elisabet Näsman, Malmö: Gleerups Utbildning AB, 2023, 3, s. 9-26Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 29.
    Eriksson, Maria
    et al.
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Näsman, Elisabet
    Uppsala universitet.
    Vad barn tycker om delaktighet i utredningsprocesser2023Ingår i: Barns röster om våld: Att lyssna, tolka och förstå / [ed] Maria Eriksson; Åsa Källström; Elisabet Näsman, Malmö: Gleerups Utbildning AB, 2023, 3, s. 191-204Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 30.
    Eriksson, Maria
    et al.
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Näsman, Elisabet
    Uppsala universitet.
    Vad barn säger om bemötandet från professionella2023Ingår i: Barns röster om våld: Att lyssna, tolka och förstå / [ed] Maria Eriksson; Åsa Källström; Elisabet Näsman, Malmö: Gleerups Utbildning AB, 2023, 3, s. 175-191Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 31.
    Eriksson, Maria
    et al.
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Bruno, Linnéa
    Stockholms universitet.
    Näsman, Elisabet
    Uppsala universitet.
    Våldsutsatta barns vardag i förskola och skola2023Ingår i: Barns röster om våld: Att lyssna, tolka och förstå / [ed] Maria Eriksson; Åsa Källström; Elisabet Näsman, Malmö: Gleerups Utbildning AB, 2023, 3, s. 107-123Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 32.
    Eriksson, Maria
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Politik, lagar och praktik2023Ingår i: Barns röster om våld: Att lyssna, tolka och förstå / [ed] Maria Eriksson; Åsa Källström; Elisabet Näsman, Malmö: Gleerups Utbildning AB, 2023, 3, s. 27-40Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 33.
    Svedin, Carl Göran
    et al.
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Landberg, Åsa
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Jonsson, Linda
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Mer utsatta än andra – om våld och övergrepp mot barn med funktionsnedsättningar: En fördjupning från studien "Unga, sex och internet efter #metoo"2023Rapport (Övrigt vetenskapligt)
    Abstract [sv]

    Våld mot barn är ett allvarligt samhällsproblem och en rättighetskränkning som alltför många barn i Sverige har erfarenhet av. I den här rapporten belyser vi den särskilda utsatthet för våld som drabbar barn och ungdomar med funktionsnedsättning inklusive kronisk sjukdom. Målgruppen för rapporten är yrkesverksamma och beslutsfattare inom alla olika samhällsområden som rör barn och unga.

    Vi har låtit ett nationellt representativt urval av 3 268 elever i årskurs tre på gymnasiet svara anonymt på en enkät vilket ger en bild av deras erfarenheter av sexuella övergrepp och andra former av våld under hela uppväxten. Materialet samlades in under tiden december 2019 till mars 2021. Undersökningen har genomförts av forskare från Marie Cederschiöld högskola på uppdrag av Stiftelsen Allmänna Barnhuset och har finansierats av regeringen.

    Studien visar att funktionsnedsättning närmast fördubblade sannolikheten för att ha blivit mobbad, psykiskt misshandlad, fysiskt misshandlad eller att ha blivit utsatt för sexuella övergrepp. Det mer än fördubblade risken att ha blivit utsatt för sexuell exploatering. Ungdomar med neuropsykiatriska eller psykiatriska tillstånd var särskilt utsatta.

  • 34.
    Vamstad, Johan
    Marie Cederschiöld högskola, Institutionen för civilsamhälle och religion, Centrum för civilsamhällesforskning.
    医療福祉からの「コミュニティ・コ・プロダクション」—名古屋,尼崎,新居浜の実践: [Cooperatives as health and welfare service providers in Japan and the Nordic countries]2023Ingår i: コ・プロダクションの理論と実践―参加型福祉: [Co-production : Theory and its Practices] / [ed] Yayoi Saito, Osaka: Osaka University Press , 2023, 1, s. 223-236Kapitel i bok, del av antologi (Refereegranskat)
    Abstract [en]

    Cooperatives exist in countries around the world and the cooperative idea almost seems to have universal appeal and application. At its core is the idea of mutual gain through cooperation among members, cooperation that allow the contribution of the individual member to be multiplied to the benefit of him or her and for the cooperative as a collective. The cooperative idea is an idea about joining with others to do it for yourself, the group and perhaps also society as a whole. Cooperatives have therefore often been a grassroot solution to problems not solved, or interests not addressed by, the state or businesses on the free market. In short, when no one else is providing what you need, you can organize with others with the same interest and provide it for yourselves out of the power of a cooperative. 

    In terms of welfare service provision this means that when services are missing, of poor quality or of a variety not preferred, then those services can be provided by a cooperative. The provision of welfare services takes different forms in different countries and these different forms have been categorized in welfare regimes. A very distinct welfare regime with a very distinct form of welfare service provision is the social democratic welfare regime of primarily the Nordic countries in the north of Europe. Here welfare services are almost entirely paid for by public money and the welfare services are to a large extent provided by central, regional and local government institutions. To maintain this welfare regime, the government collects high taxes from the general public, taxes that are mostly paid willingly in expectation of receiving welfare services of a high standard in return. The high taxes are the price paid for public health insurance, tuition free education from elementary school to universities and heavily subsidized child and eldercare services. What would cause people who have already paid high taxes to receive welfare services to organize in a cooperative to provide such services? What are the incentives to co-produce with others when the expectation is on the state to deliver welfare services? 

    These are questions addressed in this chapter and to answer them we will look at research on cooperatives and co-production from four Nordic countries; Denmark, Finland, Norway and Sweden. The collected knowledge from these four countries will show that the reasons for forming cooperatives and the roles they play in welfare services are varied and plentiful. It will also illustrate that there is, in fact, no contradiction in having both a large, publicly funded, welfare state and active participation by co-producing citizens in welfare services. These findings from the Nordic countries are also compared to the findings about Japanese health and medical cooperatives presented in other chapters of this book. 

  • 35.
    Vamstad, Johan
    Marie Cederschiöld högskola, Institutionen för civilsamhälle och religion, Centrum för civilsamhällesforskning.
    北欧諸国からみる日本の協同組合福祉医療: [Community co-production at Japanese health and welfare cooperatives : a Swedish perspective]2023Ingår i: コ・プロダクションの理論と実践―参加型福祉: [Co-production : Theory and its Practices] / [ed] Yayoi Saito, Osaka: Osaka University Press , 2023, 1, s. 57-80Kapitel i bok, del av antologi (Refereegranskat)
  • 36. Stobin, Rosanna
    et al.
    Björling, Anders
    Kneck, Åsa
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Orimliga krav på den som är sjuk och hemlös att ensam försöka navigera i ett svårtolkat strukturellt system: Erfarenheter hos personer i hemlöshet kring samverkan av vård- och omsorgsinsatser2023Ingår i: Vårdmagasinet Hälsa : medlemstidning för distriktssköterskor, ISSN 2003-1165, nr 1, s. 28-29Artikel i tidskrift (Övrig (populärvetenskap, debatt, mm))
    Abstract [sv]

    Personer som lever i hemlöshet är sjukare, både fysiskt och psykiskt och har kortare livslängd än genomsnittsbefolkningen, ändå söker denna patientgrupp vård i mindre utsträckning än andra. Ofta har personen komplexa behov som kräver insatser från hälso-sjukvården samt socialtjänsten. Problem med ohälsa till följd av missbruk, trauma, våldsutsatthet i kombination med avsaknad av fast bostad gör personer i hemlöshet särskilt sårbara och samverkan mellan olika aktörer avgörande för att säkerställa adekvata åtgärder.

  • 37.
    Mattsson, Elisabet
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Klarare, Anna
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Kvinnor far illa inom ramen för samhällets institutioner2023Ingår i: Dagens arena, nr 2023-04-14, s. 1Artikel i tidskrift (Övrig (populärvetenskap, debatt, mm))
    Abstract [sv]

    Vårdprogram, journalsystem och arbetsrutiner bör ändras för att öka säkerheten för kvinnor med skyddade personuppgifter. 

  • 38.
    Brännnvall, Mari
    et al.
    Västra Götalandsregionens kompetenscentrum om våld i nära relationer.
    Ekström, Veronica
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Att arbeta i ”möjlighetsfönstret”: Polis och socialtjänst i samverkan vid akuta ärenden av våld i familjer med barn2023Ingår i: Socialvetenskaplig tidskrift, ISSN 1104-1420, E-ISSN 2003-5624, Vol. 30, nr 1, s. 435-455Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    This article describes and discusses the cooperation between police and social services when working in accordance with the so-called Icelandic model. The aim of this article is to explore what cooperation within the Icelandic model during the “window of opportunity” means for police officers and social workers discretion and their possibility to perform their work in acute cases of domestic violence in families with children. Empirical data consists of interviews with police officers and social workers. Theories of new institutionalism and street level bureaucrats are used in the analysis. Results show that the Icelandic model has led to increased cooperation between police and social workers at the crime scene. The police and social workers state that they can focus to a greater extent on carrying out what they regard as their own tasks in acute cases of domestic violence when they work according to the model. At the same time, the model has entailed increased control of their work, which has reduced the degree of discretion and possibility for professional assessments and priorities. The perception that there is a “window of opportunity” is shared by the police and the social services and they believe that coordinated efforts in the acute phase are important.

  • 39.
    Godskesen, Tove
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Uppsala universitet.
    Rejnö, Åsa
    Högskolan Väst, Trollhättan; Skaraborgs sjukhus, Skövde; Skaraborgsinstitutet.
    Etik i samverkan2023Ingår i: Samverkan i vården: Från system till praktik / [ed] Annika Eklund; Christian Gadolin, Liber, 2023, 1, s. 93-112Kapitel i bok, del av antologi (Refereegranskat)
  • 40.
    Agius, Josefine
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Klarare, Anna
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Mattsson, Elisabet
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Vamstad, Johan
    Marie Cederschiöld högskola, Institutionen för civilsamhälle och religion, Centrum för civilsamhällesforskning.
    Eriksson Lundström, Jenny
    Uppsala universitet.
    Vahlman, Sanna
    Ersta möjlighet, Stockholm.
    Vilket stöd våldsutsatta får blir ett lotteri: Ge kommuner ett särskilt bostadsförsörjningskrav för våldsutsatta2023Ingår i: Dagens Samhälle, artikel-id 2023-06-08Artikel i tidskrift (Övrig (populärvetenskap, debatt, mm))
    Abstract [sv]

    Inrätta en nationell handlingsplan som säkerställer skydd, stöd och stadigvarande boende för våldsutsatta oavsett kommun, föreslår forskare i ett projekt om kvinnor i hemlöshet.

  • 41.
    Åkerlund, Nina
    et al.
    Jönköping University.
    Ekström, Veronica
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Johansson, David
    Jönköping University.
    Examensmålet mäns våld mot kvinnor och våld i nära relationer: Socionom- och sjuksköterskestudenters uppfattningar om sin kunskap, erfarenhet och förmåga gällande våld i nära relationer i början och slutet av utbildningen2023Ingår i: Socialmedicinsk Tidskrift, ISSN 0037-833X, Vol. 100, nr 2, s. 321-335Artikel i tidskrift (Refereegranskat)
    Abstract [sv]

    I denna tvärsnittsstudie undersöks 538 socionom- och sjuksköterskestudenters uppfattningar om sin kunskap om mäns våld mot kvinnor och våld i nära relationer. En betydande andel av studenterna skattar att de har kunskap om och erfarenhet av att arbeta med våld redan i början av sina studier. Kunskap som de fått via tidigare utbildningar och arbetslivserfarenheter. Studenternas skattningar indikerar att de aktuella utbildningarna innehåller våld, även om omfattningen varierar. Studien visar på få skillnader mellan sjuksköterske- och socionomstudenters upplevda kunskap och erfarenhet. Studenternas skattningar tydliggör att studenter tillägnar sig kunskap och erfarenhet även via undervisningen, VFU och arbete vid sidan av studierna och att studenter i slutet av utbildningarna skattar sin kunskap och förmåga att agera professionellt högre, jämfört med studenter i början av utbildningarna.

  • 42.
    Brännnvall, Mari
    et al.
    Västra Götalands kompetenscentrum om våld i nära relationer.
    Ekström, Veronica
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Immediate and coordinated responses to domestic violence: Exploring the window of opportunity concept2023Ingår i: Journal of Gender-Based Violence, ISSN 2398-6808, Vol. 7, nr 2Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    This article examines the window of opportunity concept and its implications for police officers’ and social workers’ perceptions of abused women’s agency. The study consists of a qualitative analysis of semi-structured interviews with eight police officers and eight social workers who have worked according to the so-called Icelandic model. This model is based on the assumption that a window of opportunity exists. It is thus a relevant case for analysing the concept’s implications for practical work with and support of abused women.We found that the empirical basis for the window of opportunity concept was meagre. However, the professionals working with domestic violence thought that the concept was relevant, useful and in accordance with their experiences. During the time period they perceived as the window of opportunity, they attributed agency to abused women, and considered it important to offer support before the window closed. At the same time, they tended to underestimate women’s agency, and viewed a choice not to accept support as a sign that the woman had returned to the abuser.

  • 43.
    Godskesen, Tove
    et al.
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Uppsala universitet.
    Frygner Holm, Sara
    Uppsala universitet.
    Höglund, Anna T.
    Uppsala universitet.
    Eriksson, Stefan
    Uppsala universitet.
    YouTube as a source of information on clinical trials for paediatric cancer2023Ingår i: Information, Communication and Society, ISSN 1369-118X, E-ISSN 1468-4462, Vol. 26, nr 4, s. 716-729Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Little is known about the information parents of children with cancer find when searching for clinical trials information on YouTube. Thus, this study aimed to analyse the content, quality and reliability of YouTube videos focused on clinical trials for paediatric cancer. A descriptive cross-sectional design was used, and YouTube was searched using the phrases ‘clinical trials for children with cancer’ and ‘paediatric cancer clinical trials’. Videos that met inclusion criteria were assessed using the instruments Global Quality Scale and DISCERN. About half of the examined videos were in the GQS excellent-quality group and exhibited a total of 84,804 views. The mean time for videos was 5.7 minutes, they originated from the US or UK, were uploaded after 2016, and had a cancer centre/foundation or children hospital as video source. Half of them were focusing on early experimental trials and had a positive tone. Twenty percent were classified as useful without serious shortcomings, almost 50% as misleading with serious shortcomings, and 30% as inappropriate sources of information. In conclusion, most YouTube videos on paediatric cancer trials are not very informative and fall short of what could ethically be required regarding their facilitation of informed decision-making.

  • 44.
    Doveson, Sandra E.
    et al.
    Karolinska institutet.
    Holm, Maja
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Sophiahemmet högskola.
    Fransson, Per
    Umeå universitet; Norrlands universitetssjukhus.
    Wennman-Larsen, Agneta
    Karolinska institutet; Sophiahemmet högskola.
    Identification of early symptoms and changes in QoL and functioning among men with primary localized prostate cancer who later develop metastases: A matched, prospective study2023Ingår i: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 21, nr 2, s. 230-238Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    OBJECTIVE: To identify early symptoms and changes in QoL among men with primary localized prostate cancer (PC) who later develop metastases.

    METHODS: From an ongoing prospective study of 3.885 men with localized PC, primarily treated with radiotherapy (RT), a subsample of men developing metastatic PC (mPC) following the first year after the start of RT and that had died during the follow-up (mPC group, n = 107) were matched against men who did not develop metastases (non-mPC group, n = 214). Data were collected using the EORTC QLQ-C30 and PCSS instruments. Non-parametric tests were performed for comparisons at baseline, end of RT, 3 months, and 1, 2, 3, and 5 years after RT.

    RESULTS: The final sample consists of 317 men (mPC n = 106; non-mPC n = 211) who had completed at least one questionnaire. Initially, symptom levels were generally low and QoL and functioning high in both groups. An increasing difference between the groups was found, where the mPC group gradually deteriorated from the 2-year follow-up. Significant differences were found for several outcomes at 3 and 5 years. In a sensitivity analysis, where metastatic patients were removed from the time-point of verified metastases, most differences did not remain significant. Significant deterioration over time was seen within both groups for some outcomes.

    SIGNIFICANCE OF RESULTS: The results indicate that unmet supportive needs occur over time among these men. Worsening QoL or functioning and symptoms may be difficult to recognize when the development is gradual over several years, and with various access to systematic follow-up in late phases. This highlights the need for continuous monitoring of PC patients to detect needs for supportive interventions early and throughout the disease course, also among those with non-metastatic disease who have undergone curatively intended treatment.

  • 45.
    Holmberg, Katarina
    et al.
    Karolinska Institutet; Sophiahemmet högskola.
    Bergkvist, Karin
    Karolinska Institutet; Sophiahemmet högskola.
    Adalsteinsdóttir, Solveig
    Karolinska universitetssjukhuset.
    Wengström, Yvonne
    Karolinska Institutet; Karolinska universitetssjukhuset.
    Lundh Hagelin, Carina
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Karolinska Institutet.
    Nursing as a balancing act in allogeneic hematopoietic cell transplantation: Nurses' experiences through participation in workshops2023Ingår i: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 63, artikel-id 102300Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Purpose

    Registered nurses have a key role in supporting patients during the trajectory of allogeneic hematopoietic cell transplantation (allo-HCT). However, the circumstances for performing nursing are not previously outlined therefore the purpose of this study was to explore the conditions for nursing care in allo-HCT.

    Method

    An explorative design, inspired by Experienced based co-design was used to gather experiences, thoughts and visions of nursing care in allo-HCT by means of workshops. Thematic analysis was applied to analyse the data.

    Result

    An overarching theme that was defined from the data was nursing as a balancing act and illustrating conditions for performing nursing in a highly medical-technical environment. The theme included three sub-themes: Fragmented care vs holistic care outlining how the holistic approach to care disappeared when the care became fragmented; Proximity vs distance illuminating the balance between seeing the patient as an independent person despite illness and the need for support; Teamwork vs stand-alone demonstrating the difficulties inherent in adapting to both teamwork and independence in nursing.

    Conclusion

    This study shows that the conditions for RNs and nursing care in allo-HCT care is to balance tasks and approach towards the patient and themselves. RNs must weigh and balance what is most important in the moment and where something else often has to be put aside. It is difficult for RNs to find the time to plan each patient's care and to support the patient in the way they see as most optimal to prepare for discharge, self-care and rehabilitation.

  • 46.
    Jernbro, Carolina
    et al.
    Stiftelsen Allmänna Barnhuset.
    Landberg, Åsa
    Marie Cederschiöld högskola, Institutionen för socialvetenskap. Stiftelsen Allmänna Barnhuset.
    Thulin, Johanna
    Stiftelsen Allmänna Barnhuset.
    Våld mot barn 2022: En nationell kartläggning2023Rapport (Övrigt vetenskapligt)
    Abstract [sv]

    Barn har rätt att skyddas från alla former av våld och kränkande behandling och målet är att allt våld mot barn ska upphöra. För att kunna förebygga och stoppa våld mot barn behövs kunskap om hur vanligt våld är, våldets karaktär och faktorer kopplade till våldet. Det ger förutsättningar att arbeta vidare med att förebygga och skydda.

    Denna studie har genomförts av Stiftelsen Allmänna Barnhuset på uppdrag av regeringen i syfte att följa upp tidigare kartläggningar av våld mot barn avseende förekomst, attityder till så kallat uppfostringsvåld och riskfaktorer för våld. Drygt 5 800 elever från årskurs 9 i grundskolan har svarat på frågor om utsatthet för våld under hela uppväxten.

    Resultaten visar att över 57 procent av eleverna hade varit utsatta för någon form av våld av vuxen och/eller jämnårig under sin uppväxt och 40 procent hade varit utsatt för våld där en vuxen varit förövare. Drygt åtta procent av eleverna hade varit utsatta för 3-5 former av våld där en vuxen varit förövare.

    Andelen barn som hade utsatts för någon form av våld av en vuxen någon gång under uppväxten är oförändrad sedan den senaste undersökningen. Däremot framkommer förändringar gällande enskilda former av våld. En minskning sågs vad gällde fysiskt våld av vuxen och upplevt våld mellan vuxna i familjen. Försummelse, psykiskt våld av en förälder samt sexuella övergrepp begångna av okända vuxna och av jämnåriga har dock ökat.

    Funktionsnedsättning eller kronisk sjukdom hos barnet, dålig familjeekonomi, att bo mestadels med endast en förälder samt missbruk, psykisk sjukdom, suicidproblematik och kriminalitet hos föräldrarna var starkt förknippat med våld och multiutsatthet.

    Det var relativt få våldsutsatta som berättat om våld och övergrepp för en professionell person. Vidare visar studien brister i bemötande samt tillgång till stöd och behandling efter att våldet avslöjats. Långt ifrån alla elever som själva upplevde att de behövde stöd hade fått det och en betydande andel av de som sökt professionellt stöd var missnöjda.

    Resultaten visar att Sverige har en lång väg kvar för att våld mot barn ska upphöra.

  • 47.
    Gottvall, Maria
    et al.
    The Swedish Red Cross University, Huddinge, Sweden; The Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
    Brunell, Calle
    The Swedish Red Cross University, Huddinge, Sweden.
    Eldebo, Anna
    The Swedish Red Cross University, Huddinge, Sweden.
    Kissiti, Rogers
    The Swedish Red Cross University, Huddinge, Sweden.
    Mattsson, Elisabet
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. The Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
    Jirwe, Maria
    The Swedish Red Cross University, Huddinge, Sweden; The Division of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institute, Solna, Sweden.
    Carlsson, Tommy
    The Swedish Red Cross University, Huddinge, Sweden; The Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
    Nurse education about forced migrants with diverse sexual orientations, gender identities, and gender expressions: An exploratory focus group study2023Ingår i: Nurse Education Today, ISSN 0260-6917, E-ISSN 1532-2793, Vol. 128, artikel-id 105880Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    BACKGROUND: In many countries, forced migrants can seek asylum based on persecution and danger related to self-identifying as having diverse sexual orientations, gender identities, and gender expressions; herein defined as lesbian, gay, bisexual, transgender, queer, or other non-heterosexual orientations, non-cisgender identities, gender expressions and/or reproductive development considered beyond cultural, societal or physiological norms. Nurse education has a significant role in promoting cultural competence among future health professionals.

    OBJECTIVES: To explore the experiences and views regarding education about forced migrants with diverse sexual orientations, gender identities, and gender expressions, among students and lecturers in nurse education.

    DESIGN: Explorative qualitative study with focus group discussions.

    SETTINGS: Swedish nursing programs.

    PARTICIPANTS: Final-year nursing students and lecturers (n = 25 participants) at nursing programs were recruited with convenience and snowball sampling.

    METHODS: Semi-structured digital focus group discussions (n = 9) were audio recorded and transcribed verbatim. Data were analyzed with inductive qualitative content analysis.

    RESULTS: Promoting a broader understanding regarding societal structures and preparing students to provide culturally sensitive care were considered as essential components in nurse education. Challenges and problems involved a need for increased awareness, the associated topics and target populations seldom being addressed, and a need for improvements within clinical placements. Participants suggested the utilization of external resources, presented a range of different specific learning activities that would promote in-depth understanding, and articulated a need for overarching decisions and guidelines regarding mandatory inclusion in nurse education.

    CONCLUSIONS: Students and lecturers describe several challenges and problems that need to be addressed in regard to forced migration, sexual health, and inclusion health. There seems to be a need for utilization of external competence in learning activities as well as establishing clearer guidelines, which may increase the quality of education and better prepare future nurses to support patients with diverse backgrounds and identities.

  • 48.
    Beyermann, Alexandra
    et al.
    Division of Caring Science, School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden.
    Asp, Margareta
    Division of Caring Science, School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden.
    Godskesen, Tove
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Centre for Research Ethics & Bioethics, Uppsala University, Sweden.
    Söderman, Mirkka
    Division of Caring Science, School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden.
    Nurses’ challenges when supporting the family of patients with ALS in specialized palliative home care: A qualitative study2023Ingår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 18, nr 1, artikel-id 2238984Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Purpose: Being a family member to someone who has amyotrophic lateral sclerosis (ALS) is demanding and often requires sacrificing a lot. Family members can experience fatigue, anxiety, guilt and need support. The aim was to explore registered nurses’ (RNs’) experiences of providing support to the families of patients with ALS within specialized palliative home care (SPHC).

    Methods: A qualitative explorative design. Interviews were conducted with RNs (n = 11) from five SPHCs in Sweden and analysed using qualitative content analysis.

    Results: The results emerged in the following categories:” To support in an increasingly difficult everyday life”, based on the sub-categories: “Creating a trusting relationship”, “Balancing between the needs of patients and their families”, and “Sharing knowledge about dying to the families”;” To support in emotionally challenging situations”, based on the sub-categories: “Harbouring family members’ difficult feelings”, “Providing support even though the situation is unpleasant” and “Being able to give support by receiving confirmation and support from others”.

    Conclusions: RNs working in SPHC have an important role in providing support in several ways to the families of patients with ALS, through facilitating their everyday life and giving emotional support when needed, based on the needs of both patients and their families.

  • 49.
    Lundgren, Linnea
    Marie Cederschiöld högskola, Institutionen för civilsamhälle och religion, Centrum för civilsamhällesforskning.
    Det civila samhället och tilliten till religiösa organisationers sociala ansvarstagande2023Ingår i: Religioner, livsåskådningar och etik: För lärare 4-9 och gymnasiet / [ed] Olof Franck; Kerstin von Brömssen; Christina Osbeck, Gleerups Utbildning AB, 2023, 2, s. 175-186Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 50.
    Lundgren, Linnea
    Marie Cederschiöld högskola, Institutionen för civilsamhälle och religion, Centrum för civilsamhällesforskning.
    Religious Minorities as a Risk and Resource: Theoretical Perspectives on State Management of Minority Religions2023Ingår i: Religious Minorities Online / [ed] Erica Baffelli; Alexander van der Haven; Michael Stausberg, Berlin, Boston: De Gruyter , 2023Kapitel i bok, del av antologi (Refereegranskat)
    Abstract [en]

    This article explores how the two concepts of "risk" and "resource" can provide a framework to study and understand both current and historical perceptions and management of religious minorities in different contexts. By examining how policymakers identify religious minorities (or religion) as a risk or as aresource it is possible to develop an understanding of how policymakers set the terms for who is or is not included in the public realm as well as deepening the understanding of the underlying values of a society and ideological foundations contributing to the fear of the religious other.

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