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  • 1.
    Holm, Maja
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Nursing Sciences Sophiahemmet University Stockholm Sweden;Department of Health Care Sciences Palliative Research Centre, Marie Cederschiöld University Stockholm Sweden.
    Lundberg, Tina
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Lövgren, Malin
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Advanced Pediatric Home Care, Karolinska University Hospital, Stockholm, Sweden.
    Ljungman, Lisa
    Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
    Parenting a child with cancer and maintaining a healthy couple relationship: Findings from the Family Talk Intervention2024Ingår i: Pediatric Blood & Cancer, ISSN 1545-5009, E-ISSN 1545-5017, Vol. 71, nr 1Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background Despite the challenges that caring for a child with cancer brings for parents, little knowledge is available concerning the effects on the parents’ couple relationship. Furthermore, few interventions have been designed to support parents in their couple relationship. The aim of this paper was, therefore, to explore parents’ experiences of their couple relationship while having a dependent child with cancer and the support they received from a family-based intervention, the Family Talk Intervention (FTI).

    Methods Data for this paper were taken from semi-structured interviews performed in a pilot study of the FTI in the context of pediatric oncology. In total, 22 couples were interviewed after participating in the FTI. The interviews were transcribed and analyzed using qualitative content analysis.

    Results Parents described how maintaining a couple relationship while living with childhood cancer could be very challenging and was not given the highest priority. The FTI was considered a way of providing important support to the couple and a chance for them to sit down together and listen to each other's perspectives on the situation. Parents described that the FTI had helped them gain an increased mutual understanding, sometimes also helping them to realize that they needed more extensive professional support in their relationship.

    Conclusions Living with childhood cancer and upholding a healthy couple relationship is challenging for parents. The FTI has the potential to support couples, mainly by providing opportunities for parents to communicate with each other. However, some couples may be in need of a tailored clinical intervention.

  • 2.
    Holm, Maja
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Sophiahemmet högskola, Stockholm.
    Lövgren, Malin
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Karolinska universitetssjukhuset.
    Alvariza, Anette
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Stockholms sjukhem.
    Eklund, Rakel
    Uppsala universitet.
    Kreicbergs, Ulrika
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Karolinska institutet.
    Experiences of being a severely ill parent of dependent children receiving care at home: Hopes and challenges2024Ingår i: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 22, nr 1, s. 169-173Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    OBJECTIVES: Multiple studies have focused on severely ill patients in the role as parents of dependent children, yet few have explored the thoughts and feelings within this group during palliative home care.

    METHODS: This qualitative study derives from a pilot intervention study, the Family Talk Intervention (FTI), in specialized palliative home care. The FTI is a support program with the main goal to increase family communication about illness-related topics. The study is based on field notes from 104 sessions with 20 parents taken by an interventionist during intervention delivery. The field notes were analyzed using the principles of qualitative content analysis.

    RESULTS: The field notes revealed several challenging situations for parents with severe illness. A major issue was how to find ways to talk to their children about their illness and prognosis. The parents expressed guilt for being unable to fulfill their roles as parents and partners. Existing family conflicts had escalated with the illness, according to some parents. Despite being affected by illness, parents tried to have hope, if only for small things - such as a period of ordinary family life.

    SIGNIFICANCE OF RESULTS: Severely ill parents in specialized palliative home care seek support regarding how to communicate and stay connected to their roles in the family, which is a struggle when a parent is cared for at home, while it in contrast may promote normality and hope. Communication with children is vital and needs to be brought to the attention of health-care professionals. A family-centered focus, involving both parents and children, should be embraced.

  • 3.
    Bockgård, Gustav
    et al.
    Department of Scandinavian Languages, Uppsala University, Uppsala.
    Mattsson, Elisabet
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Department of Women’s and Children’s Health, Healthcare Sciences and e-Health, Uppsala University, Uppsala.
    von Essen, Louise
    Department of Women’s and Children’s Health, Healthcare Sciences and e-Health, Uppsala University, Uppsala.
    Klarare, Anna
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Women’s and Children’s Health, Healthcare Sciences and e-Health, Uppsala University, Uppsala.
    Collaborative Interpretation of Researcher-Generated Photo-Elicitation Findings: Insights From Women With Lived Experience of Homelessness2024Ingår i: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Interviews with individuals experiencing homelessness can be challenging for various reasons, including mental and physical health issues, substance use, and negative experiences with authority figures. Researchers have used photos to facilitate communication and empower participants during data collection. We analyzed data from a previous study to explore the use of researcher-generated photos during interviews about health with 13 women experiencing homelessness. Conversation analysis revealed clear patterns regarding the use of the photos during the interviews. The photos were referred to 118 times over the total interview length, 6 hours and 23 minutes, with the interviewer making 62% of the referrals and the women accounting for 38%. Fifty-nine percent of the referrals occurred within the first 5 minutes of the interviews. The women used the photos to trigger associations and emotions, to describe photo content, or in a minor role during the interview. Interpretations from an advisory board of six women with lived experiences of homelessness suggested that the photos did not engage participants as intended, highlighting the importance of considering participants’ perspectives when designing photo-elicitation methods. The feedback also provided valuable insights into interview locations and incentives in research that may have influenced the women’s willingness to use the photos. This study emphasizes the importance of understanding the complexity of choosing researcher-generated photos in interviews with underserved, hard-to-reach populations.

  • 4.
    Ayoub, Maria
    et al.
    School of Health and Welfare, Dalarna University, Falun.
    Udo, Camilla
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. School of Health and Welfare, Dalarna University, Falun; Center for Clinical Research Dalarna, Uppsala University, Falun.
    Årestedt, Kristofer
    Department of Health and Caring Sciences, Faculty of Health and Life Science, Linnaeus University, Växjö.
    Kreicbergs, Ulrika
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Women’s and Children’s Health, Childhood Cancer Research Unit, Karolinska Institute, Solna; Louis Dundas Center, Great Ormond Street Institute of Child Health, University College London, London, UK.
    Lövgren, Malin
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Advanced Pediatric Home Care, Astrid Lindgren Children’s Hospital, Karolinska University Hospital.
    The Family Talk Intervention in Pediatric Oncology: Potential Effects Reported by Parents2024Ingår i: Children, E-ISSN 2227-9067, Vol. 11, nr 1, artikel-id 95Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: Childhood cancer impacts the family system and has psychosocial consequences for all family members. For the parents, the ill child, and the siblings to be able to adjust to this challenging situation, the whole family needs access to psychosocial support. However, only a few such family interventions in pediatric oncology have been evaluated. The aim of this study was to explore the potential effects of a family-centered intervention, the Family Talk Intervention (FTI), in pediatric oncology from the parents’ perspectives.

    Methods: A concurrent mixed methods design was used for this study. Data were derived from a pilot study of 26 families recruited from one pediatric oncology center in Sweden. This study focused on questionnaire and interview data from 52 parents.

    Results: After participation in FTI, the parents felt more satisfied with the conversations within the family about the illness. FTI also contributed to strengthened family togetherness, including more open communication and improved family relations, as described by the parents. Parents further expressed that they felt more empowered in their parenting role following FTI.

    Conclusions: The findings regarding FTI’s ability to improve family communication and family relations, thus strengthening family togetherness in families with childhood cancer, are promising. This provides motivation for a large-scale study of FTIs in pediatric oncology.

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  • 5.
    Oelschlägel, Lina
    et al.
    Lovisenberg Diaconal University College, Norway; Department of Public Health Sciences, Institute of Health and Society, Faculty of Medicine, University of Oslo, Oslo, Norway.
    Moen, Anne
    Department of Public Health Sciences, Institute of Health and Society, Faculty of Medicine, University of Oslo, Oslo, Norway.
    Dihle, Alfhild
    Department of Nursing and Health Promotion, Faculty of Health Sciences, OsloMet - Oslo Metropolitan University, Oslo, Norway.
    Christensen, Vivi L.
    Department of Nursing and Health Sciences, Faculty of Health and Social Sciences, University of South-Eastern Norway, Drammen, Norway.
    Heggdal, Kristin
    Faculty of Health Sciences, VID Specialized University, Oslo, Norway.
    Österlind, Jane
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Steindal, Simen A.
    Lovisenberg Diaconal University College, Norway; Faculty of Health Sciences, VID Specialized University, Oslo, Norway.
    Implementation of remote home care: Assessment guided by the RE-AIM framework2024Ingår i: BMC Health Services Research, E-ISSN 1472-6963, Vol. 24, artikel-id 145Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background Welfare technology interventions have become increasingly important in home-based palliative care for facilitating safe, time-efficient, and cost-effective methods to support patients living independently. However, studies evaluating the implementation of welfare technology innovations are scarce, and the empirical evidence for sustainable models using technology in home-based palliative care remains low. This study aimed to report on the use of the Reach Effectiveness Adoption Implementation Maintenance (RE-AIM) framework to assess the implementation of remote home care (RHC) a technology-mediated service for home-living patients in the palliative phase of cancer. Furthermore, it aimed to explore areas of particular importance determining the sustainability of technologies for remote palliative home-based care.

    Methods A secondary analysis of data collected by semi-structured interviews with patients with cancer in the palliative phase, focus groups, and semi-structured interviews with healthcare professionals (HCPs) experienced with RHC was performed. A deductive reflexive thematic analysis using RE-AIM dimensions was conducted.

    Results Five themes illustrating the five RE-AIM dimensions were identified: (1) Reach: protective actions inrecruitment - gatekeeping, (2) Effectiveness: potential to offer person-centered care, (3) Adoption: balancing high touch with high tech, (4) Implementation: moving towards a common understanding, and (5) Maintenance: adjusting to what really matters. The RE-AIM framework highlighted that RHC implementation for patients in the palliative phase of cancer was influenced by HCP gatekeeping behavior, concerns regarding abandoning palliative care as a high-touch specialty, and a lack of competence in palliative care. Although RHC facilitated improved routines in patients’ daily lives, it was perceived as a static service unable to keep pace with disease progression.

    Conclusions A person-centered approach that prioritizes individual needs and preferences is necessary for providing optimal care. Although technologies such as RHC are not a panacea, they can be integrated as support for increasingly strained health services.

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  • 6.
    Anonymous,
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    When the wounds heal but the soul bleeds: A lived experience narrative2024Ingår i: Journal of Psychiatric and Mental Health Nursing, ISSN 1351-0126, E-ISSN 1365-2850Artikel i tidskrift (Övrigt vetenskapligt)
    Abstract [en]

    Accessible Summary

    What is known on the subject?

    • This paper acknowledges the profound and lasting impact of childhood abuse on substance use and homelessness.

    What this paper adds to existing knowledge?

    • It underscores the inherent value and humanity of every individual, regardless of their struggles.
    • That a comprehensive approach to mental health care, encompassing medication, therapy and a secure environment, is imperative.

    What are the implications for mental health nursing?

    • Early intervention and recognising individuals who suffer in silence are paramount. Mental health nurses must have the courage to ask uncomfortable questions and truly hear the unspoken words.
    • Mental health nurses should never underestimate the power of simply being present with someone during their darkest moments. This simple act can wield significant influence.
  • 7.
    Klarare, Anna
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Department of Women’s and Children’s Health, Healthcare Sciences and e-Health, Uppsala University, Uppsala, Sweden.
    Ekström, Veronica
    Marie Cederschiöld högskola, Institutionen för socialvetenskap.
    Godskesen, Tove
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Faculty of Nursing and Health Sciences, Nord University, Bodø, Norway.
    Westman, Jeanette
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Mattsson, Elisabet
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Department of Women’s and Children’s Health, Healthcare Sciences and e-Health, Uppsala University, Uppsala, Sweden.
    Kneck, Åsa
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Treatment of trauma-related conditions for people in homelessness: A scoping review2024Ingår i: Journal of social distress and the homeless, ISSN 1053-0789, E-ISSN 1573-658XArtikel, forskningsöversikt (Refereegranskat)
    Abstract [en]

    People in homelessness face significant health inequities, with tri-morbidity, exposure to violence, substance use- and post-traumatic stress disorder. The aim of this scoping review was to describe treatments for trauma-related conditions for persons in homelessness. Systematic searches were performed in three databases: PubMed, PsycInfo and Scopus, guided by the PRISMA checklist. Nine studies fulfilled the criteria and were included in the review. Results show no randomized studies specifically focusing on treatment of trauma-related conditions for people in homelessness. Studies described interventions or programs that focused on consolidating and developing participants’ own strengths and skills to better navigate life with the challenges of homelessness, trauma, and PTSD. Treatment of trauma-related conditions may have positive effects for people in homelessness, as for others. Multimodal treatments, developing personal strengths and skills for people in homelessness, show potential to decrease trauma symptoms, however, more robust studies are needed for inferences and recommendations. 

  • 8.
    Pageau, Félix
    et al.
    Division of Geriatrics, Department of Medicine, Faculty of Medicine, Laval University, Quebec City, Canada; Centre d'excellence en vieillissement de Québec, VITAM, Quebec City, Canada.
    Fiasse, Gaëlle
    Department of Philosophy, Joint Appointment With the School of Religious Studies, McGill University, Montreal, Canada; Department of Philosophy, Hebrew University of Jerusalem, Jerusalem, Israel.
    Nordenfelt, Lennart
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Mihailov, Emilian
    Department of the History of Philosophy and Practical Philosophy, Research Center in Applied Ethics, Faculty of Philosophy, University of Bucharest, Bucharest, Romania.
    Care of the older person and the value of human dignity2024Ingår i: Bioethics, ISSN 0269-9702, E-ISSN 1467-8519, Vol. 38, nr 1, s. 44-51Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    As the world population is rapidly aging, stakeholders must address the care of the elderly with great concern. Also, loss of dignity is often associated with aging due to dementia, mobility problems and diminished functional autonomy. However, dignity is a polysemic term that is deemed useless by some ethicists. To counter this claim, we propose four concepts to define it better and make use accurately of this notion. These are human dignity, dignity of identity, dignities of excellence and attributed dignities. Finally, we explain the importance of solicitude and human dignity in the care of the elderly. This will ensure the respect, friendship and dignity of the elderly in providing geriatric ethical care.

  • 9.
    Häger Tibell, Louise
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Tema Cancer, BES: Breast-Endocrine Tumours and Sarcoma, Karolinska University Hospital, Stockholm, Sweden.
    Årestedt, Kristofer
    Faculty of Health and Life Sciences, Linnaeus University, Kalmar, Sweden; Department of Research, Region Kalmar County, Kalmar, Sweden.
    Holm, Maja
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Nursing Science, Sophiahemmet University, Stockholm, Sweden.
    Wallin, Viktoria
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Steineck, Gunnar
    Department of Clinical Cancer Epidemiology, Karolinska Institutet, Stockholm, Sweden; Division of Clinical Cancer Epidemiology, Sahlgrenska University Hospital, Gothenburg, Sweden.
    Hudson, Peter
    Centre for Palliative Care, St Vincent´s Hospital and The University of Melbourne, Melbourne, Australia; Vrije University Brussels, Brussels, Belgium.
    Kreicbergs, Ulrika
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Women's and Children's Health, Karolinska Institutet, Stockholm, Sweden.
    Alvariza, Anette
    Research and Development-Unit/Palliative Care, Stockholms Sjukhem, Stockholm, Sweden.
    Preparedness for caregiving and preparedness for death: Associations and modifiable thereafter factors among family caregivers of patients with advanced cancer in specialized home care2024Ingår i: Death Studies, ISSN 0748-1187, E-ISSN 1091-7683, Vol. 48, nr 4, s. 407-416Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The purpose of this study was to (1) explore associations between preparedness for caregiving and preparedness for death among family caregivers of patients with advanced cancer and (2) explore modifiable preparedness factors, such as communication and support. Data was derived from a baseline questionnaire collected in specialized home care. The questionnaire included socio-demographics, the Preparedness for Caregiving Scale, and single items addressing preparedness for death, received support and communication about incurable illness. Data was analyzed using descriptive statistics and Spearman correlations. Altogether 39 family caregivers participated. A significant association was found between preparedness for caregiving and preparedness for death. Received support and communication about the illness was associated with higher levels of preparedness for caregiving and death. This study contributes to evidence on the association between preparedness for caregiving and death, but also that communication and support employed by healthcare professionals could improve family caregiver preparedness and wellbeing. 

  • 10.
    Kneck, Åsa
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Ewertzon, Mats
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Swedish Family Care Competence Centre, Kalmar.
    Leksell, Janeth
    Department of Medical Sciences, Uppsala University.
    Årestedt, Kristofer
    Faculty of Health and Life Sciences, Linnaeus University, Kalmar; The Research Section, Region Kalmar County, Kalmar.
    Amsberg, Susanne
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    I have never been invited: A cross-sectional explorative study of family members' experiences of encounters with healthcare professionals in diabetes care2024Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 38, nr 1, s. 82-91Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    AIM: To explore the experiences of family members of adult persons with type 1 diabetes concerning both the approach of healthcare professionals and feelings of alienation in encounters with professional diabetes care.

    METHODS: A cross-sectional explorative quantitative and qualitative design. The Family Involvement and Alienation Questionnaire-Revised (FIAQ-R), including an open-ended question, was answered by 37 family members of adult persons with type 1 diabetes. Analyses included descriptive statistics and qualitative analysis. The study has received ethical approval.

    RESULTS: Family members rated the approach of the healthcare professionals as being somewhat positive and considered that the approach towards them is important. They only felt partially alienated from the professional care. Qualitative data revealed that the family members often lacked direct access to the professional care and that their involvement was dependent on their relationship with the person with diabetes. Findings highlighted that the family members' wish to be involved in the care was sometimes unanswered.

    CONCLUSION: Based on the findings, it is reasonable to stress the importance of considering family members' perspectives and involving them in diabetes care to improve overall patient support.

  • 11.
    Kassman, Anders
    et al.
    Marie Cederschiöld högskola, Institutionen för civilsamhälle och religion, Centrum för civilsamhällesforskning.
    Kneck, Åsa
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Blomqvist Mickelsson, Tony
    Södertörns högskola.
    Hur kan ledare inom idrottsrörelsen navigera delvis motsägelsefulla förväntningar från utövare, föräldrar, styrelsen och staten?2024Konferensbidrag (Övrigt vetenskapligt)
    Abstract [sv]

    Genom idrottsrörelsens verksamhet förväntas ett brett spektrum av mervärden, utöver enbart idrottslig utveckling och sportsliga framgångar. Främjandet av fysisk aktivitet, samhörighet, meningsfull fritidssysselsättning, social inkludering, integration, demokratisk fostran och brottförebyggande arbete bidrar till att motivera statlig och kommunal finansiering. I det implicita kontraktet mellan staten och idrottsrörelsen ingår även en aktiv strävan att vara öppen och tillgänglig för alla. Engagemanget för breddat deltagande utspelar sig i hög grad inom lokala medlemsbaserade föreningar, där ideella ledare står inför komplexa utmaningar. Ledaren har en nyckelroll, navigerar genom behov och förväntningar från utövare, föräldrar, styrelser och stat där egna förmågor och resurser blir avgörande. För att underlätta för den ideella lokala ledaren behövs olika former av stödstrukturer som behöver synliggöras tillsammans med ledarnas förutsättningar och bidrag till idrottsrörelsen.

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  • 12.
    Karlsson Rosenblad, Andreas
    et al.
    Department of Statistics, Uppsala University; Department of Statistics, Uppsala University, Akademiska sjukhuset; Department of Neurobiology, Care Sciences and Society, Division of Family Medicine and Primary Care, Karolinska Institutet.
    Klarare, Anna
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Women’s and Children’s Health, Healthcare Services and e-Health, Uppsala University, Akademiska sjukhuset.
    Rapaport, Penny
    Division of Psychiatry, Faculty of Brain Sciences, University College London, UK.
    Mattsson, Elisabet
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Department of Women’s and Children’s Health, Healthcare Services and e-Health, Uppsala University, Akademiska sjukhuset.
    Gaber, Sophie Nadia
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Department of Women’s and Children’s Health, Healthcare Services and e-Health, Uppsala University, Akademiska sjukhuset.
    Health literacy and its association with mental and spiritual well-being among women experiencing homelessness2024Ingår i: Health Promotion International, ISSN 0957-4824, E-ISSN 1460-2245, Vol. 39, nr 2Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Low health literacy (HL) has been linked to low self-rated health, reduced efficacy of behaviour change, and challenges in preventing, treating, or managing health conditions. People experiencing homelessness are at risk of poor HL; however, few studies have investigated HL in relation to mental and spiritual well-being among people experiencing homelessness in general, or women experiencing homelessness specifically. This cross-sectional study of 46 women experiencing homelessness in Stockholm, Sweden, recruited during the period October 2019–December 2020, aimed to examine how HL was associated with mental and spiritual well-being among women experiencing homelessness. Participants answered questions about socio-demographic characteristics (age, length of homelessness, education) and digital technology (mobile phone/the Internet) use, in addition to Swedish language versions of three questionnaires administered through structured, face-to-face interviews: the Communicative and Critical Health Literacy Scale, the General Health Questionnaire 12 and the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being. Data were analysed using linear regression, which revealed statistically significant associations between HL and mental well-being (p = .009), and between HL and spiritual well-being (p = .022). However, neither socio-demographic characteristics nor digital technology use were significantly associated with HL. In conclusion, promoting HL may improve mental and spiritual well-being in this vulnerable population. An advisory board of women with lived experiences of homelessness (n = 5) supported the interpretation of the findings and emphasised the need to consider HL in relation to basic needs such as ‘housing first’. Moreover, health information and services should be accessible to people with different degrees of HL.

  • 13.
    Eriksson, Linda Victoria
    et al.
    Karolinska institutet; Karolinska universitetssjukhuset.
    Holmberg, Katarina
    Karolinska institutet; Sophiahemmet högskola.
    Lundh Hagelin, Carina
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Karolinska institutet.
    Wengström, Yvonne
    Karolinska institutet; Karolinska universitetssjukhuset.
    Bergkvist, Karin
    Karolinska institutet; Sophiahemmet högskola.
    Winterling, Jeanette
    Karolinska institutet; Karolinska universitetssjukhuset.
    Symptom Burden and Recovery in the First Year After Allogeneic Hematopoietic Stem Cell Transplantation2023Ingår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 46, nr 1, s. 77-85Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    BACKGROUND: Patients are affected by various symptoms after allogeneic hematopoietic stem cell transplantation (allo-HSCT) that can affect recovery. Research has mainly focused on symptom occurrence; thus, little is known about patients' overall symptom burden.

    OBJECTIVE: The aim of this study was to examine patient-reported symptom burden in the first year after allo-HSCT and whether a high symptom burden 4 months after allo-HSCT predicts recovery, that is, general health and sick leave, 1 year after transplantation.

    METHODS: Allo-HSCT patients aged 18 to 65 years were included (n = 189). Questionnaire data were collected on admission to the allo-HSCT unit, as well as 4 and 7 months and 1 year after allo-HSCT. Logistic regression evaluated relationships between demographic characteristics, chronic graft-versus-host disease, physical activity, and a high symptom burden.

    RESULTS: Tiredness, susceptibility to infection, disinterest in sex, and physical weakness remained the most frequent symptoms, while distressing symptoms varied during the first year after allo-HSCT.Poor general health 1 year after allo-HSCT was associated with older age, low physical activity, and a high symptom burden 4 months after allo-HSCT. Full-time sick leave 1 year after allo-HSCT was associated with chronic graft-versus-host disease, low physical activity, and a high symptom burden 4 months after transplantation.

    CONCLUSIONS: Experiencing a high symptom burden 4 months after allo-HSCT can affect recovery 1 year after transplantation. Furthermore, low physical activity 4 months after allo-HSCT can predict both general health and sick leave 1 year after transplantation.

    IMPLICATIONS FOR PRACTICE: Repeated symptom assessment, including experienced distress, is central for reducing overall symptom burden and supporting recovery after allo-HSCT.

  • 14. Stobin, Rosanna
    et al.
    Björling, Anders
    Kneck, Åsa
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Orimliga krav på den som är sjuk och hemlös att ensam försöka navigera i ett svårtolkat strukturellt system: Erfarenheter hos personer i hemlöshet kring samverkan av vård- och omsorgsinsatser2023Ingår i: Vårdmagasinet Hälsa : medlemstidning för distriktssköterskor, ISSN 2003-1165, nr 1, s. 28-29Artikel i tidskrift (Övrig (populärvetenskap, debatt, mm))
    Abstract [sv]

    Personer som lever i hemlöshet är sjukare, både fysiskt och psykiskt och har kortare livslängd än genomsnittsbefolkningen, ändå söker denna patientgrupp vård i mindre utsträckning än andra. Ofta har personen komplexa behov som kräver insatser från hälso-sjukvården samt socialtjänsten. Problem med ohälsa till följd av missbruk, trauma, våldsutsatthet i kombination med avsaknad av fast bostad gör personer i hemlöshet särskilt sårbara och samverkan mellan olika aktörer avgörande för att säkerställa adekvata åtgärder.

  • 15.
    Mattsson, Elisabet
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Klarare, Anna
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Kvinnor far illa inom ramen för samhällets institutioner2023Ingår i: Dagens arena, nr 2023-04-14, s. 1Artikel i tidskrift (Övrig (populärvetenskap, debatt, mm))
    Abstract [sv]

    Vårdprogram, journalsystem och arbetsrutiner bör ändras för att öka säkerheten för kvinnor med skyddade personuppgifter. 

  • 16.
    Godskesen, Tove
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Uppsala universitet.
    Rejnö, Åsa
    Högskolan Väst, Trollhättan; Skaraborgs sjukhus, Skövde; Skaraborgsinstitutet.
    Etik i samverkan2023Ingår i: Samverkan i vården: Från system till praktik / [ed] Annika Eklund; Christian Gadolin, Liber, 2023, 1, s. 93-112Kapitel i bok, del av antologi (Refereegranskat)
  • 17.
    Agius, Josefine
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Klarare, Anna
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Mattsson, Elisabet
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Vamstad, Johan
    Marie Cederschiöld högskola, Institutionen för civilsamhälle och religion, Centrum för civilsamhällesforskning.
    Eriksson Lundström, Jenny
    Uppsala universitet.
    Vahlman, Sanna
    Ersta möjlighet, Stockholm.
    Vilket stöd våldsutsatta får blir ett lotteri: Ge kommuner ett särskilt bostadsförsörjningskrav för våldsutsatta2023Ingår i: Dagens Samhälle, artikel-id 2023-06-08Artikel i tidskrift (Övrig (populärvetenskap, debatt, mm))
    Abstract [sv]

    Inrätta en nationell handlingsplan som säkerställer skydd, stöd och stadigvarande boende för våldsutsatta oavsett kommun, föreslår forskare i ett projekt om kvinnor i hemlöshet.

  • 18.
    Godskesen, Tove
    et al.
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Uppsala universitet.
    Frygner Holm, Sara
    Uppsala universitet.
    Höglund, Anna T.
    Uppsala universitet.
    Eriksson, Stefan
    Uppsala universitet.
    YouTube as a source of information on clinical trials for paediatric cancer2023Ingår i: Information, Communication and Society, ISSN 1369-118X, E-ISSN 1468-4462, Vol. 26, nr 4, s. 716-729Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Little is known about the information parents of children with cancer find when searching for clinical trials information on YouTube. Thus, this study aimed to analyse the content, quality and reliability of YouTube videos focused on clinical trials for paediatric cancer. A descriptive cross-sectional design was used, and YouTube was searched using the phrases ‘clinical trials for children with cancer’ and ‘paediatric cancer clinical trials’. Videos that met inclusion criteria were assessed using the instruments Global Quality Scale and DISCERN. About half of the examined videos were in the GQS excellent-quality group and exhibited a total of 84,804 views. The mean time for videos was 5.7 minutes, they originated from the US or UK, were uploaded after 2016, and had a cancer centre/foundation or children hospital as video source. Half of them were focusing on early experimental trials and had a positive tone. Twenty percent were classified as useful without serious shortcomings, almost 50% as misleading with serious shortcomings, and 30% as inappropriate sources of information. In conclusion, most YouTube videos on paediatric cancer trials are not very informative and fall short of what could ethically be required regarding their facilitation of informed decision-making.

  • 19.
    Doveson, Sandra E.
    et al.
    Karolinska institutet.
    Holm, Maja
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Sophiahemmet högskola.
    Fransson, Per
    Umeå universitet; Norrlands universitetssjukhus.
    Wennman-Larsen, Agneta
    Karolinska institutet; Sophiahemmet högskola.
    Identification of early symptoms and changes in QoL and functioning among men with primary localized prostate cancer who later develop metastases: A matched, prospective study2023Ingår i: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 21, nr 2, s. 230-238Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    OBJECTIVE: To identify early symptoms and changes in QoL among men with primary localized prostate cancer (PC) who later develop metastases.

    METHODS: From an ongoing prospective study of 3.885 men with localized PC, primarily treated with radiotherapy (RT), a subsample of men developing metastatic PC (mPC) following the first year after the start of RT and that had died during the follow-up (mPC group, n = 107) were matched against men who did not develop metastases (non-mPC group, n = 214). Data were collected using the EORTC QLQ-C30 and PCSS instruments. Non-parametric tests were performed for comparisons at baseline, end of RT, 3 months, and 1, 2, 3, and 5 years after RT.

    RESULTS: The final sample consists of 317 men (mPC n = 106; non-mPC n = 211) who had completed at least one questionnaire. Initially, symptom levels were generally low and QoL and functioning high in both groups. An increasing difference between the groups was found, where the mPC group gradually deteriorated from the 2-year follow-up. Significant differences were found for several outcomes at 3 and 5 years. In a sensitivity analysis, where metastatic patients were removed from the time-point of verified metastases, most differences did not remain significant. Significant deterioration over time was seen within both groups for some outcomes.

    SIGNIFICANCE OF RESULTS: The results indicate that unmet supportive needs occur over time among these men. Worsening QoL or functioning and symptoms may be difficult to recognize when the development is gradual over several years, and with various access to systematic follow-up in late phases. This highlights the need for continuous monitoring of PC patients to detect needs for supportive interventions early and throughout the disease course, also among those with non-metastatic disease who have undergone curatively intended treatment.

  • 20.
    Holmberg, Katarina
    et al.
    Karolinska Institutet; Sophiahemmet högskola.
    Bergkvist, Karin
    Karolinska Institutet; Sophiahemmet högskola.
    Adalsteinsdóttir, Solveig
    Karolinska universitetssjukhuset.
    Wengström, Yvonne
    Karolinska Institutet; Karolinska universitetssjukhuset.
    Lundh Hagelin, Carina
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Karolinska Institutet.
    Nursing as a balancing act in allogeneic hematopoietic cell transplantation: Nurses' experiences through participation in workshops2023Ingår i: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 63, artikel-id 102300Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Purpose

    Registered nurses have a key role in supporting patients during the trajectory of allogeneic hematopoietic cell transplantation (allo-HCT). However, the circumstances for performing nursing are not previously outlined therefore the purpose of this study was to explore the conditions for nursing care in allo-HCT.

    Method

    An explorative design, inspired by Experienced based co-design was used to gather experiences, thoughts and visions of nursing care in allo-HCT by means of workshops. Thematic analysis was applied to analyse the data.

    Result

    An overarching theme that was defined from the data was nursing as a balancing act and illustrating conditions for performing nursing in a highly medical-technical environment. The theme included three sub-themes: Fragmented care vs holistic care outlining how the holistic approach to care disappeared when the care became fragmented; Proximity vs distance illuminating the balance between seeing the patient as an independent person despite illness and the need for support; Teamwork vs stand-alone demonstrating the difficulties inherent in adapting to both teamwork and independence in nursing.

    Conclusion

    This study shows that the conditions for RNs and nursing care in allo-HCT care is to balance tasks and approach towards the patient and themselves. RNs must weigh and balance what is most important in the moment and where something else often has to be put aside. It is difficult for RNs to find the time to plan each patient's care and to support the patient in the way they see as most optimal to prepare for discharge, self-care and rehabilitation.

  • 21.
    Gottvall, Maria
    et al.
    The Swedish Red Cross University, Huddinge, Sweden; The Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
    Brunell, Calle
    The Swedish Red Cross University, Huddinge, Sweden.
    Eldebo, Anna
    The Swedish Red Cross University, Huddinge, Sweden.
    Kissiti, Rogers
    The Swedish Red Cross University, Huddinge, Sweden.
    Mattsson, Elisabet
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. The Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
    Jirwe, Maria
    The Swedish Red Cross University, Huddinge, Sweden; The Division of Nursing, Department of Neurobiology, Care Sciences and Society, Karolinska Institute, Solna, Sweden.
    Carlsson, Tommy
    The Swedish Red Cross University, Huddinge, Sweden; The Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
    Nurse education about forced migrants with diverse sexual orientations, gender identities, and gender expressions: An exploratory focus group study2023Ingår i: Nurse Education Today, ISSN 0260-6917, E-ISSN 1532-2793, Vol. 128, artikel-id 105880Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    BACKGROUND: In many countries, forced migrants can seek asylum based on persecution and danger related to self-identifying as having diverse sexual orientations, gender identities, and gender expressions; herein defined as lesbian, gay, bisexual, transgender, queer, or other non-heterosexual orientations, non-cisgender identities, gender expressions and/or reproductive development considered beyond cultural, societal or physiological norms. Nurse education has a significant role in promoting cultural competence among future health professionals.

    OBJECTIVES: To explore the experiences and views regarding education about forced migrants with diverse sexual orientations, gender identities, and gender expressions, among students and lecturers in nurse education.

    DESIGN: Explorative qualitative study with focus group discussions.

    SETTINGS: Swedish nursing programs.

    PARTICIPANTS: Final-year nursing students and lecturers (n = 25 participants) at nursing programs were recruited with convenience and snowball sampling.

    METHODS: Semi-structured digital focus group discussions (n = 9) were audio recorded and transcribed verbatim. Data were analyzed with inductive qualitative content analysis.

    RESULTS: Promoting a broader understanding regarding societal structures and preparing students to provide culturally sensitive care were considered as essential components in nurse education. Challenges and problems involved a need for increased awareness, the associated topics and target populations seldom being addressed, and a need for improvements within clinical placements. Participants suggested the utilization of external resources, presented a range of different specific learning activities that would promote in-depth understanding, and articulated a need for overarching decisions and guidelines regarding mandatory inclusion in nurse education.

    CONCLUSIONS: Students and lecturers describe several challenges and problems that need to be addressed in regard to forced migration, sexual health, and inclusion health. There seems to be a need for utilization of external competence in learning activities as well as establishing clearer guidelines, which may increase the quality of education and better prepare future nurses to support patients with diverse backgrounds and identities.

  • 22.
    Beyermann, Alexandra
    et al.
    Division of Caring Science, School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden.
    Asp, Margareta
    Division of Caring Science, School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden.
    Godskesen, Tove
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Centre for Research Ethics & Bioethics, Uppsala University, Sweden.
    Söderman, Mirkka
    Division of Caring Science, School of Health, Care and Social Welfare, Mälardalen University, Eskilstuna, Sweden.
    Nurses’ challenges when supporting the family of patients with ALS in specialized palliative home care: A qualitative study2023Ingår i: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 18, nr 1, artikel-id 2238984Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Purpose: Being a family member to someone who has amyotrophic lateral sclerosis (ALS) is demanding and often requires sacrificing a lot. Family members can experience fatigue, anxiety, guilt and need support. The aim was to explore registered nurses’ (RNs’) experiences of providing support to the families of patients with ALS within specialized palliative home care (SPHC).

    Methods: A qualitative explorative design. Interviews were conducted with RNs (n = 11) from five SPHCs in Sweden and analysed using qualitative content analysis.

    Results: The results emerged in the following categories:” To support in an increasingly difficult everyday life”, based on the sub-categories: “Creating a trusting relationship”, “Balancing between the needs of patients and their families”, and “Sharing knowledge about dying to the families”;” To support in emotionally challenging situations”, based on the sub-categories: “Harbouring family members’ difficult feelings”, “Providing support even though the situation is unpleasant” and “Being able to give support by receiving confirmation and support from others”.

    Conclusions: RNs working in SPHC have an important role in providing support in several ways to the families of patients with ALS, through facilitating their everyday life and giving emotional support when needed, based on the needs of both patients and their families.

  • 23.
    Melin Johansson, Christina
    et al.
    Mid Sweden University, Health Sciences/Nursing, Östersund.
    Lagerin, Annica
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Holmberg, Bodil
    Linnéuniversitet, Health and Caring Sciences, Växjö.
    Udo, Camilla
    Dalarna University, Department of Health and Welfare, Falun.
    Talk for life - conversations in palliative care: Establishing a Trusting Relation: Interdisciplinary Strategies2023Ingår i: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 37, nr 1 Supplement, artikel-id P 14.023Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background/aims: In Sweden, palliative care, is an interdisciplinary approach including e.g. doctors, nurses, hospital social workers, physiotherapists and occupational therapists, having knowledge about the patient’s physical and medical status. Communication about existential issues as life and death, and meaning, contribute to relieve symptoms for patients and support their next-of-kin. Today, these conversations are not provided on equal terms to all patients in palliative care. Therefore, there is a need for deeper knowledge about healthcare professionals’ experiences of existential conversations with patients and their next-of-kin in palliative care, and investigate their main concerns to initiate and implement these conversations.

    Aim: To deepen the understanding of healthcare professionals’ communication strategies and main concerns in conversations with patients having palliative care needs and their next-of kin.

    Methods: Design: A qualitative approach using grounded theory method for data collection and analysis with a focus on communication processes in the participants’ natural settings. Seven focus group interviews with assistant and registered nurses, psysiotherapists and occupational therapists were conducted. The analysis is in progress and final results will presented at the conference.

    Results: Preliminary results: Professionals’ main concerns involved “Establishing a trusting relationship” which they solved by “Maintaining presence” despite challenges. These challenges affected how they handled their main concern and are represented in the categories “Talking about death” “Capturing wishes and needs” and “Guiding the patient and next-of-kin”.

    Conclusions: A theory based on the professional’s main concerns and challenges will be developed when all data have been analyzed.

  • 24.
    Norinder, Maria
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    A person-centred approach to support family caregivers in specialised home care: The Carer Support Needs Assessment Tool Intervention2023Doktorsavhandling, sammanläggning (Övrigt vetenskapligt)
    Abstract [en]

    Family caregivers are crucial providers of support and care for patients with lifethreatening illness and many report unmet support needs. With the use of quantitative and qualitative methods this thesis aimed to evaluate the Carer Support Needs Assessment Tool (CSNAT) and explore experiences and potential effects of utilising the Carer Support Needs Assessment Tool Intervention (CSNAT-I) among family caregivers and registered nurses in the context of specialised home care. The results showed that the CSNAT tool was valid and reliable for use among family caregivers in specialised home care (I). Family caregivers reported most the need for additional support concerning “Knowing what to expect in the future” (I, II). They reported and described how higher levels of need for more support were associated with poorer quality of life (II). The intervention was effective in significantly increasing family caregivers’ preparedness for caregiving (p = 0.002) (IV). Participating nurses expressed that their everyday clinical practice changed while learning to use the CSNAT-I and they experienced professional and personal growth (III). Their assessments and supportive inputs shifted from reactive towards proactive and more in collaboration with family caregivers. When utilizing the CSNAT-I, family caregivers experienced their conversations with nurses as co-created, providing new perspectives and insights which increased their involvement and helped in finding solutions (V).

    In conclusion, this thesis gives further weight to the importance of addressing family caregivers' support needs as a part of nursing.

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  • 25.
    Högberg, Cecilia
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Wallin, Viktoria
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Kreicbergs, Ulrika
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Great Ormond Street Institute of Child health, University College London, United Kingdom.
    Alvariza, Anette
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Stockholms sjukhem; Palliativt kunskapscentrum.
    Närståendes erfarenheter av webbaserat stöd under pågående specialiserad hemsjukvård: ’Närstående.se’2023Konferensbidrag (Refereegranskat)
    Abstract [sv]

    Bakgrund Stöd till närstående är en grundläggande del av palliativ vård. Stödinterventioner som erbjudits i grupp in-real-life har utvärderats med positiva effekter. Det kan dock vara svårt för närstående att delta på grund av svårigheter att lämna den sjuke och formatet passar heller inte alla. Webbaserade lösningar kan möjliggöra för fler att ta del av stöd utifrån egna förutsättningar och behov. Olika alternativ finns men mer kunskap om webbaserat stöd behövs.

    Syfte Att undersöka närståendes erfarenheter av stöd i samband med deltagande i en webbaserad intervention ’Närstående.se’ under pågående specialiserad hemsjukvård.

    Metod Webbsidan ’Närstående.se’ är baserad på tidigare forskning och innehåller kortare filmer där vårdpersonal (autentisk) samtalar med närstående (skådespelare) om ämnen som ofta är angelägna för närstående. Filmerna kompletteras med fördjupande texter och på webbsidan finns ett modererat chattforum. Studien ingår i ett projekt med randomiserad kontrollerad design. Kvalitativa intervjuer genomfördes med 7 närstående varav 5 partners, 1 syskon och 1 dotter, mellan 46–80 år. Data analyserades med kvalitativ innehållsanalys.

    Resultat Möjligheten att vid behov och i lugn och ro ta del av stöd hemifrån uppskattades. Närstående uttryckte att det genom ’Närstående.se’ kunde vara lättare att närma sig frågor om svår sjukdom och död. Användning av webbsidan gav närstående igenkänning, bekräftelse och normaliserande av svåra känslor. Att ta del av webbsidan bidrog till att svåra ämnen hamnade i fokus vilket kunde underlätta samtal inom familjen. Webbsidan hade använts i olika omfattning men vetskapen om att ha tillgång till den upplevdes som en trygghet.

    Konklusion Närstående upplever att webbaserat stöd finns när de behöver det. Att närstående kan välja att ta del av specifikt stöd vid behov innebär att stödet blir personcentrerat och anpassat för deras behov.

  • 26.
    Schenell, Ramona
    et al.
    The Sahlgrenska Academy, Institute of health and care sciences, University of Gothenburg; Administration for the elderly, nursing and care, Department of Quality and development, The City of Gothenburg.
    Österlind, Jane
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Browall, Maria
    Faculty of caring sciences, work life and social welfare, department of caring sciences, University of Borås; Dep of Oncology, Inst of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg.
    Melin-Johansson, Christina
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Health Care Sciences/Nursing Sciences, Mid Sweden University, Östersund.
    Lundh Hagelin, Carina
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institutet.
    Hjorth, Elin
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Teaching to prepare undergraduate nursing students for palliative care: Nurse educators’ perspectives2023Ingår i: BMC Nursing, ISSN 1472-6955, E-ISSN 1472-6955, ISSN 1472-6955, Vol. 22, artikel-id 338Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background Education in palliative care for undergraduate nursing students is important for the competence of general nurses. Newly graduated nurses have reported challenges in coping with their own emotions when encountering dying persons. They express a wish for more education before they graduate, particularly in psychosocial and existential areas, such as having difficult conversations and supporting grieving persons. Despite awareness of the importance of palliative care education for nurses, there is a lack of knowledge on how to effectively convey this knowledge to students. The aim of the present study was to explore how teaching to prepare undergraduate nursing students for palliative care practice is conducted in Sweden.

    Methods Educators from 22 Bachelor of Science nursing programmes in Sweden were interviewed about how they conducted palliative care education, with a focus on teaching situations that have been successful or less successful. The interviews were transcribed and analysed using qualitative inductive content analysis.

    Results Educators described that they play a crucial role in preparing undergraduate nursing students to face death and dying and to care for persons at the end of life. In the main theme, “Transforming person-centred palliative care into student-centred education”, educators described how they incorporated the person-centred palliative approach into their teaching. Educators used a dynamic style of teaching where they let the students’ stories form the basis in a co-constructed learning process. The educators trusted the students to be active partners in their own learning but at the same time they were prepared to use their expert knowledge and guide the students when necessary. Discussion and reflection in small groups was described as being essential for the students to achieve a deeper understanding of palliative care and to process personal emotions related to encountering dying and grieving individuals.

    Conclusions This study suggests that palliative care education for undergraduate nursing students benefits from teaching in smaller groups with room for discussion and reflection. Furthermore, gains are described relating to educators taking the role of facilitators rather than traditional lecturers, being flexible and ready to address students’ emotions. Educators also draw on their experiences as palliative care nurses in their teaching practices.

  • 27.
    Granrud, Marie
    et al.
    Department of Social Sciences and Guidance, Faculty of Health and Social Sciences, Inland Norway University of Applied Sciences, Elverum, Norway.
    Grøndahl, Vigdis Abrahamsen
    Department of Nursing, Health and Laboratory Science, Faculty of Health, Welfare and Organization, Østfold University College, Halden, Norway.
    Helgesen, Ann Karin
    Department of Nursing, Health and Laboratory Science, Faculty of Health, Welfare and Organization, Østfold University College, Halden, Norway.
    Bååth, Carina
    Department of Nursing, Health and Laboratory Science, Faculty of Health, Welfare and Organization, Østfold University College, Halden, Norway; Department of Health Sciences, Faculty of Health Science and Technology, Karlstad University.
    Olsson, Cecilia
    Department of Health Sciences, Faculty of Health Science and Technology, Karlstad University; Department of Bachelor Education in Nursing, Lovisenberg Diaconal University College, Oslo, Norway.
    Tillfors, Maria
    Department of Social and Psychological Sciences, Faculty of Arts and Social Sciences, Karlstad University.
    Melin-Johansson, Christina
    Department of Health Sciences, Mid Sweden University, Östersund.
    Österlind, Jane
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Larsson, Maria
    Department of Health Sciences, Faculty of Health Science and Technology, Karlstad University.
    Hov, Reidun
    Centre of Development of Institutional and Home Care Services, Innland (Hedmark), Hamar Municipality, Norway.
    Sandsdalen, Tuva
    Department of Health and Nursing Sciences, Faculty of Health and Social Sciences, Inland Norway University of Applied Sciences, Elverum, Norway.
    Health Care Personnel’s Perspectives on Quality of Palliative Care During the COVID-19 Pandemic: A Cross-Sectional Study2023Ingår i: Journal of Multidisciplinary Healthcare, ISSN 1178-2390, E-ISSN 1178-2390, Vol. 16, s. 2893-2903Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Purpose: The provision of high-quality palliative care is challenging, especially during a pandemic like COVID-19. The latter entailed major consequences for health care systems and health care personnel (HCP) in both specialist and community health care services, in Norway and worldwide. The aim of this study was to explore how the HCP perceived the quality of palliative care in nursing homes, medical care units, and intensive care units during the COVID-19 pandemic.

    Methods: This study had a cross-sectional design. A total of 290 HCP from Norway participated in the study (RR = 25.8%) between October and December 2021. The questionnaire comprised items concerning respondents’ demographics and quality of care, the latter measured by the short form of the Quality from the Patient’s Perspective—Palliative Care instrument, adapted for HCP. The STROBE checklist was used.

    Results: This study shows that the HCP scored subjective importance as higher in all dimensions, items and single items than their perception of the actual care received. This could indicate a need for improvement in all areas. Information about medication, opportunity to participate in decisions about medical and nursing care and continuity regarding receiving help from the same physician and nurse are examples of areas for improvement.

    Conclusion: Study results indicate that HCP from nursing homes, medical care units, and intensive care units perceived that quality of palliative care provided was not in line with what they perceived to be important for the patient. This indicate that it was challenging to provide high-quality palliative care during the COVID-19 pandemic.

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  • 28.
    Gabrielsson, Hanna
    et al.
    Röda Korsets Högskola, Hälsovetenskapliga institutionen.
    Hjorth, Elin
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Wallin, Viktoria
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Pohlkamp, Lilian
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Övergången från att vara patient med cancer till person med erfarenhet av cancer: Civilsamhällets roll i rehabilitering2023Ingår i: Socialmedicinsk Tidskrift, ISSN 0037-833X, Vol. 100, nr 1, s. 165-178Artikel, forskningsöversikt (Refereegranskat)
    Abstract [sv]

    En avslutad cancerbehandling innebär inte automatiskt ett avslut på de utmaningar som följer med cancer. Behovet av cancerrehabilitering ökar i takt med fler som överlever cancer. Det råder viss otydlighet kring vilka rehabiliteringsinsatser som efterfrågas och vilka aktörer som erbjuder dessa. Denna studie har genom en litteraturöversikt satt ljuset på deltagares erfarenheter av cancerrehabilitering samt civilsamhällets roll i rehabilitering efter genomgången cancer i de nordiska länderna. Resultatet av litteraturöversikten visar att få studier finns publicerade om civilsamhällets roll i cancerrehabilitering. Personer som har genomgått en cancersjukdom har ofta behov av stöd under sin rehabilitering, där stöd från personer i liknande situation uppskattas av många. Resultatet visar även att organisationer i civilsamhället spelar en betydande roll. Studien har genomförts vid Centrum för civilsamhällesforskning, Marie Cederschiöld Högskola.

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  • 29.
    Norberg Wieslander, Kajsa
    et al.
    Uppsala universitet.
    Höglund, Anna T
    Uppsala universitet.
    Frygner-Holm, Sara
    Uppsala universitet.
    Godskesen, Tove
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Uppsala universitet.
    Research ethics committee members’ perspectives on paediatric research: A qualitative interview study2023Ingår i: Research Ethics, ISSN 1747-0161, E-ISSN 2047-6094, Vol. 19, nr 4, s. 494-518Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Research ethics committees (RECs) have a crucial role in protecting children in research. However, studies on REC members’ perspectives on paediatric research are scarce. We conducted a qualitative study to explore Swedish scientific REC members’ perspectives on ethical aspects in applications involving children with severe health conditions. The REC members considered promoting participation, protecting children and regulatory adherence to be central aspects. The results underscored the importance of not neglecting ill children’s rights to adapted information and participation. REC members supported a contextual and holistic approach to vulnerability and risk, which considers the child’s and parents’ psychological wellbeing and the child’s integrity, both short and long term. The ethical complexity of paediatric research requires continuous ethical competence development within RECs.

  • 30.
    O'Sullivan, Anna
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Undocumented migrants’ access to healthcare in Sweden, and the impact of Act 2013:4072023Ingår i: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background Research shows that undocumented migrants have difficulties in accessing healthcare. Act 2013:407 came into force in 2013 and entitled undocumented migrants to healthcare that cannot be deferred. To date, studies about undocumented migrants’ access to care in Sweden and the impact of Act 2013:407 are sparse. Hence, the aim of this study was to describe professionals’ experiences of access to healthcare for undocumented migrants in Sweden and the impact of Act 2013:407.

    Methods A qualitative design with semi-structured interviews was employed. Nine interviews were carried out in 2015 with nurses at two NGO healthcare centres for undocumented migrants – and an additional seven interviews in 2022 with staff at an NGO healthcare centre for undocumented migrants and personnel at a regional health and medical care administration. Interpretive description was used for the analyses.

    Ethical considerations Permission to carry out the study was obtained from managers at the participating NGOs and the regional health and medical care administration. Participants received verbal and written information about the study, and informed consent was obtained from all participants.

    Findings Six categories emerged from the analysis: Changes since the Act was introduced, General problems with healthcare access, Care for undocumented migrants – politics and social economy, Lack of knowledge, ‘Healthcare that cannot be deferred’ and Being an undocumented migrant.

    Conclusion Undocumented migrants’ social needs are as great as their needs for healthcare. Healthcare staff are burdened with healthcare cost considerations which affect their judgement of care provision and prioritization. Healthcare staff attitudes towards undocumented migrants affect their access to healthcare. Undocumented migrants in need of healthcare are especially vulnerable due to their legal status, being ill and the fear of being reported and deported. To assure undocumented migrants’ access to healthcare and maintain healthcare ethics, the only possible solution is to provide healthcare based on needs.

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  • 31.
    Norinder, Maria
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Capio Palliative Care, Dalen Hospital, Stockholm.
    Årestedt, Kristofer
    Faculty of Health and Life Sciences, Linnaeus University, Kalmar; Department of Research, Region Kalmar County.
    Axelsson, Lena
    Department of Nursing Science, Sophiahemmet University, Stockholm.
    Grande, Gunn
    Division of Nursing, Midwifery & Social Care, Faculty of Biology, Medicine and Health, University of Manchester, United Kingdom.
    Ewing, Gail
    Centre for Family Research, University of Cambridge, United Kingdom.
    Alvariza, Anette
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Research and Development Unit/Palliative Care, Stockholms Sjukhem, Stockholm.
    Increased preparedness for caregiving among family caregivers in specialized home care by using the Carer Support Needs Assessment Tool Intervention2023Ingår i: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, s. 1-7Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    OBJECTIVES: Family caregivers often feel insufficiently prepared for a caregiving role, experiencing challenges and demands related to care at home that may negatively affect their own quality of life. Supportive interventions have been shown to influence negative effects, but more studies are needed. Therefore, this study aims to explore potential effects of the Carer Support Needs Assessment Tool Intervention on preparedness, caregiver burden, and quality of life among Swedish family caregivers in specialized home care.

    METHODS: The study had a pre-post intervention design and was conducted at 6 specialized home care services in Sweden. Family caregivers who received the intervention completed a questionnaire, including the Preparedness for caregiving scale, Caregiver Burden Scale, and Quality of Life in Life-Threatening Illness - Family carer version, at 2 time points, baseline and follow up, about 5 weeks later. Data were analyzed using descriptive statistics and Wilcoxon signed-rank test.

    RESULTS: Altogether, 33 family caregivers completed the baseline and follow-up assessment. A majority were retired (n = 26, 81%) and women (n = 19, 58%) and two-fifths had a university degree (n = 13, 41%). The family caregivers had significantly increased their preparedness for caregiving between the baseline and follow-up assessment (Mdn = 18 vs. 20, p = 0.002). No significant changes were found on caregiver burden or quality of life.

    SIGNIFICANCE OF RESULTS: The results add to knowledge regarding the Carer Support Needs Assessment Tool Intervention's potential to improve family caregiver outcomes. Findings suggest that the intervention may be used to improve the preparedness for caregiving and support among family caregivers in specialized home care.

  • 32.
    Gaber, Sophie
    et al.
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap. Uppsala universitet.
    Klarare, Anna
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap. Uppsala universitet.
    Mattsson, Elisabet
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap. Uppsala universitet.
    Karlsson Rosenblad, Andreas
    Uppsala universitet.
    A comparison of perceptions of caring behaviours among women in homelessness, Registered Nurses and nursing students2023Ingår i: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 37, nr 4, s. 959-969Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    BACKGROUND: The population of women in homelessness in Europe is increasing and women in homelessness experience multiple healthcare needs. However, there is insufficient understanding about how perceptions of caring behaviours compare between women in homelessness as patients and nurses in their clinical practice.

    AIM: This study aimed to investigate perceptions of caring behaviours among women in homelessness, Registered Nurses and nursing students.

    METHODS: A cross-sectional design was used with convenience sampling to recruit groups of women in homelessness (n = 37), Registered Nurses (n = 92) and nursing students (n = 142) in Stockholm, Sweden. Between August 2019 and December 2020, data were collected through face-to-face interviews or online, using the Caring Behaviours Inventory-24 instrument. Data were analysed using descriptive statistics and group-comparing hypothesis tests.

    RESULTS: Overall, women in homelessness' perceptions of caring behaviours were significantly lower than nursing students (p < 0.001), who in turn scored significantly lower than Registered Nurses (p < 0.001). The Knowledge and Skill domain had the highest score, and the Connectedness domain had the lowest score in all three groups. The ranking of the individual items according to score varied between the groups. However, all three groups had the highest score for the Knowing how to give shots, IVs, etc., item and the lowest score for the Helping the patient to grow item.

    CONCLUSION: Healthcare providers and nurse educators should consider incongruences and congruences in caring behaviours to better prepare Registered Nurses and nursing students to contribute to increased health equity, and more targeted clinical practice for women in homelessness.

  • 33.
    Oelschlägel, Lina
    et al.
    Lovisenberg Diaconal University College, Norway; University of Oslo, Norway.
    Christensen, Vivi L.
    University of South-Eastern Norway, Norway.
    Moen, Anne
    University of Oslo, Norway.
    Heggdal, Kristin
    VID Specialized University, Norway.
    Österlind, Jane
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Dihle, Alfhild
    Oslo Metropolitan University, Norway.
    Steindal, Simen A.
    VID Specialized University, Norway; Lovisenberg Diaconal University College, Norway.
    Patients' experiences with a welfare technology application for remote home care: A longitudinal study2023Ingår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 32, nr 17-18, s. 6545-6558Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Aims  and  Objectives: To explore the longitudinal experiences using an application named remote home care for remote palliative care among patients with cancer living at home.

    Background: Introducing welfare technology in home- based care for patients with cancer in the palliative phase is internationally suggested as a measure to remotely support palliative care needs. However, little is known about the experiences of patients utilising welfare technology applications to receive home-based care from healthcare professionals in a community care context. Although living with cancer in the palliative phase often presents rapidly changing ailments, emotions and chal-lenges with patients' needs changing accordingly, no studies exploring the longitudinal experiences of patients were found.

    Design: A qualitative study with a longitudinal, exploratory design.

    Methods: Data were collected through individual interviews with 11 patients over 16 weeks. The data were analysed using qualitative content analysis. The COREQ checklist guided the reporting of the study.

    Results: Three themes were identified: (1) potential to facilitate self- governance of life-limiting illness in daily life, (2) need for interpersonal relationships and connections, and (3) experiences of increased responsibility and unclear utility of the Remote Home Care.

    Conclusion: The results showed that remote home care facilitated patients' daily routines, symptom control and improved illness- management at home. Interpersonal relationships with healthcare professionals were considered pivotal for satisfactory follow-up. Infrastructural glitches regarding data access, information sharing and lack of continuous adjustments of the application represented major challenges, with the potential to impose a burden on patients with cancer in the palliative phase.

    Relevance to Clinical Practice: By exploring the experiences of patients in palliative care over time as the disease progresses, this study provides constructive insights for the design and development of welfare technology applications and optimal care strategies.

    Patient or Public Contribution: The remote home care was developed by interdisciplinary healthcare professionals.

  • 34.
    Norinder, Maria
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Capio Palliative Care, Dalen Hospital, 121 87, Stockholm, Sweden.
    Axelsson, Lena
    Department of Nursing Science, Sophiahemmet University, Stockholm.
    Årestedt, Kristofer
    Faculty of Health and Life Sciences, Linnaeus University, Kalmar; Department of Research, Region Kalmar County, Kalmar.
    Grande, Gunn
    Division of Nursing, Midwifery & Social Care, Faculty of Biology, Medicine and Health, University of Manchester, Manchester, United Kingdom.
    Ewing, Gail
    Centre for Family Research, University of Cambridge, Cambridge, United Kingdom.
    Alvariza, Anette
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Research and Development / Palliative Care, Stockholms Sjukhem.
    Family caregivers’ experiences of discussing their needs with a nurse during specialised home care utilizing the carer support needs assessment tool intervention: A qualitative study2023Ingår i: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 66, artikel-id 102412Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Purpose The Carer Support Needs Assessment Tool Intervention (CSNAT-I) was designed to help family caregivers identify, reflect upon, and express their support needs in a conversation with a health care professional and gain tailored support. The CSNAT-I has shown positive effects for both nurses and family caregivers but for more comprehensive understanding this study aims to examine family caregivers' experiences of discussing their needs with a nurse during specialised home care, utilizing the CSNAT-I.

    Methods The study used an inductive qualitative descriptive design based on framework analysis. Data was collected using individual semi-structured telephone interviews with 10 family caregivers, with a median age of 66, from four specialised home care services.

    Results Family caregivers appreciated having scheduled meetings with nurses utilizing the CSNAT-I which gave them an opportunity to focus on what was important to them. Family caregivers experienced that the conversations were co-created with a flexible dialogue. The conversations provided new perspectives and insights which helped in finding possible solutions. Family caregivers felt empowered by the co-created conversation and took on a more active role in involving the rest of their family to find support to themselves and the patients.

    Conclusion The CSNAT-I can facilitate communication between family caregivers and nurses leading to adequate supportive inputs. The intervention gives family caregivers an increased opportunity to be involved in their own support, which may enhance their sense of security. According to family caregivers’ experiences, CSNAT-I may be an adequate way to support family caregivers to reflect and discuss their needs.

  • 35.
    Wijk, Ingrid
    et al.
    Department of Health Promoting Science, Sophiahemmet University, Stockholm.
    Amsberg, Susanne
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Andreassen Gleissman, Sissel
    Department of Nursing Science, Sophiahemmet University, Stockholm.
    Toft, Eva
    Department of Medicine, Ersta Hospital, Stockholm; Department of Clinical Sciences and Education, Södersjukhuset, Karolinska Institutet, Stockholm.
    Anderbro, Therese
    Department of Clinical Sciences, Danderyd Hospital, Karolinska Institutet, Stockholm; Department of Psychology, Stockholm University, Stockholm.
    Johansson, Unn-Britt
    Department of Health Promoting Science, Sophiahemmet University, Stockholm.
    Living with Type 1 Diabetes as Experienced by Adults with Prolonged Elevated HbA1c: A Qualitative Study2023Ingår i: Diabetes Therapy, ISSN 1869-6953, E-ISSN 1869-6961, Vol. 14, s. 1673-1684Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    INTRODUCTION: High HbA1c levels in type 1 diabetes (T1D) are associated with increased risk of micro- and macrovascular complications and severe diabetes distress. A more comprehensive understanding of the adult perspective of living with T1D can improve the quality of care. We aimed to describe experiences of living with T1D as an adult with prolonged elevated HbA1c.

    METHODS: Thirteen adults with T1D and HbA1c > 60 mmol/mol (7.6%) for at least 1 year were individually interviewed via a digital platform. The interviews were transcribed verbatim and analyzed using qualitative content analysis.

    RESULTS: The analysis identified an overarching theme, "a lifelong follower", and generated two main categories describing study participants' experience: constraining and manageable. Constraining experiences were explained in obligated control, loss of control, environmental impact, and consequences of diabetes. Manageable experiences were described in everyday life, approach to diabetes, and support in life. Diabetes knowledge in health care and in the general public, and individualized care were important factors in feeling understood, safe, and supported.

    CONCLUSIONS: The findings revealed the diverse experiences of adults with prolonged elevated HbA1c. Living with T1D, a lifelong non-chosen follower, could be perceived as constraining but manageable in different degrees. A person-centered care approach addressing both dimensions may be beneficial. Experiences of living with and managing diabetes are multifaceted and intertwined with life context and medical prerequisites.

  • 36.
    Bergstrand, Renée
    et al.
    Äldre samt vård- och omsorgsförvaltningen, Göteborgs stad.
    Goliath, Ida
    Stiftelsen Stockholms läns Äldrecentrum; Karolinska Institutet.
    Olsson, Åsa
    Enskede Årsta Vantör sdf/Sthlms stad; Karolinska Institutet.
    Österlind, Jane
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    AKADEMISKT SÄBO2023Konferensbidrag (Övrigt vetenskapligt)
    Abstract [sv]

    I den här sessionen presenterar vi akademisk SÄBO ur olika perspektiv. Vi kommer att berätta om: (x) samskapande, utveckling och uppbyggnad av akademisk SÄBO(x) att vara kommundoktorand och vägen dit. Vi kommer även att berätta om (x) att vara forskare på SÄBO och om (x) samverkan mellan forskning, utveckling och utbildning. I sessionen knyter vi an till palliativ vård genom våra olika exempel. Bland annat kommer vi att beskriva SÄBO som arena för utveckling, följeforskning och deltagarbaserad forskning.samt SÄBO som arena för strukturerade förbättringsarbeten och ett doktorandprojekt om förberedande samtal om livet och döden på SÄBO tillsammans med personal och chefer på SÄBO i Stockholm

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  • 37.
    Skedsmo, Karoline
    et al.
    Lovisenberg Diaconal University College, Oslo, Norway.
    Bingen, Hanne Maria
    Lovisenberg Diaconal University College, Oslo, Norway.
    Hofsø, Kristin
    Lovisenberg Diaconal University College, Oslo, Norway; Department of Postoperative and Intensive Care Nursing, Division of Emergencies and Critical Care, Oslo, University Hospital, Oslo, Norway.
    Steindal, Simen A.
    Institute of nursing, Faculty of Health Studies, VID Specialized University, Oslo, Norway; Lovisenberg Diaconal University College, Oslo, Norway.
    Lundh Hagelin, Carina
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Neurobiology, Care Sciences and Society, Division of Nursing, Karolinska Institute.
    Hilderson, Deborah
    Karel de Grote University College, Antwerpen, Belgium.
    Nes, Andréa Aparecida Gonçalves
    Lovisenberg Diaconal University College, Oslo, Norway.
    Smis, Dieter
    GZA hospitals, Antwerp, Belgium.
    Stenseth, Hege Vistven
    Lovisenberg Diaconal University College, Oslo, Norway.
    Olaussen, Camilla
    Lovisenberg Diaconal University College, Oslo, Norway.
    Postgraduate nursing students’ experiences with simulation-based learning in palliative care education: A qualitative study2023Ingår i: Nurse Education in Practice, ISSN 1471-5953, E-ISSN 1873-5223, Vol. 73, artikel-id 103832Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Aim: The aim of this study was to explore postgraduate palliative care nursing students' experiences with simulation-based learning focusing on communication skills, as a learning method in palliative care education.

    Background: Communication is one of several important competencies in palliative care and found to be challenging. Developing appropriate communication skills in palliative care requires education and practice. To provide postgraduate palliative care nursing students with the required knowledge and experience, practical and active learning approaches, such as simulation-based learning, can be applied. Several studies have explored undergraduate nursing students' experiences with simulation-based learning in palliative care. However, to our knowledge no studies have explored postgraduate palliative care nursing students` experiences with simulation-based learning focusing on communication skills in palliative care education.

    Design: An exploratory descriptive design.

    Methods: A qualitative method was employed. Three focus group interviews were conducted in May 2022 using videoconferencing (Zoom) with 11 postgraduate palliative care nursing students, eight of whom wrote reflective notes. Data were analysed using systematic text condensation.

    Results: Three categories were identified in the data analysis: 1) from uncertain expectations to the real experience of simulation-based learning; 2) being a skilled professional in everyday life versus being observed in the scenarios; and 3) the balance between self-confidence and challenges in experiencing professional development and mastery.

    Conclusions: Postgraduate palliative care nursing students seemed to experience anxiety towards simulation-based learning in palliative care education, as well as variable expectations for the approach. This could be due to their unfamiliarity with the learning method. The need for repetition was underlined and the students indicated that they would like to be able to participate in several simulation sessions to familiarise themselves with the approach. The contrast between being a skilled professional in everyday life and the pressure of being observed and judged in the scenarios was an important finding. Students outlined the desire to feel safe, but also highlighted the importance of being challenged to experience professional development and enhanced mastery. Generally, the findings indicate that academic and psychological safety should be a focus during simulation-based learning and instructors should understand that students may have varied learning strategies, divergent learning experiences and shifting beliefs in their own competencies.

  • 38.
    Lundberg, Tina
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Function Area in Social Work and Health, Karolinska University Hospital, Stockholm, Sweden.
    Årestedt, Kristofer
    Faculty of Health and Life Sciences, Linnaeus University, Kalmar, Sweden; Department of Research, Region Kalmar County, Kalmar, Sweden.
    Olsson, Mariann
    Function Area in Social Work and Health, Karolinska University Hospital, Stockholm, Sweden; Department of Neurobiology, Care Sciences and Society/Division of Family Medicine and Primary Care, Karolinska Institutet Huddinge, Stockholm, Sweden; Department of Research and Development/ Palliative Care, Stockholms Sjukhem, Stockholm, Sweden.
    Alvariza, Anette
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Research and Development/ Palliative Care, Stockholms Sjukhem, Stockholm, Sweden.
    Forinder, Ulla
    Department of Social Work and Psychology, Gävle University, Gävle, Sweden.
    Posttraumatic Growth After Struggling With the Loss of a Parent in Young Adulthood2023Ingår i: Omega, ISSN 0030-2228, E-ISSN 1541-3764Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    This study aims to examine posttraumatic growth and its associations with parental bereavement among adolescents and young adults. Fifty-five young adults who had lost a parent to cancer at least 2 months earlier and were about to attend a support group at a palliative care service were recruited. Data was collected through questionnaires before support group participation, about 5-8 months after the loss and at a 6-month follow-up, about 14-18 months after the loss. The result shows that the young adults experienced posttraumatic growth, mostly in the domains Personal strength and Appreciation of life. Posttraumatic growth was associated with bereavement outcomes, especially life satisfaction, a feeling of meaning in future life and psychological health. The result is of value for health care professionals as it adds information about the importance of supporting constructive rumination to enhance the possibility to positive psychological change after a parent's death.

  • 39.
    Österlind, Jane
    et al.
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    Östensson, Ann-Charlotte
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Bisholt, Birgitta
    Röda korset högskola.
    Pusa, Susanne
    Umeå universitet.
    Melin-Johansson, Christina
    Mittuniversitetet.
    Lundh Hagelin, Carina
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC.
    6 S-modellen för personcentrerad palliativ vård: En undersökning av personalens uppfattningar på vård-och omsorgsboende och i hemtjänst2023Konferensbidrag (Övrigt vetenskapligt)
    Abstract [sv]

    Bakgrund: Palliativ vård innebär en holistisk vård av personer i alla åldrar. Syftet är att lindra lidande av fysisk, psykologisk, social eller existentiell/andlig natur. Döendet och döden är ofta omgärdade av tystnad, både i samhället i stort och bland vårdpersonal. Vårdpersonal kan känna sig obekväma vid tanken på döden. Djupare existentiella frågor undviks ofta genom att äldre personer inom hälso- och sjukvården avleds genom att prata om mer lättsamma samtalsämnen. Framtidens palliativa vård äger till stor del rum i hemmen och inom äldreomsorgen. 

    Frågeställning: Studien är en del av en större interventionsstudie, EDUC-PC studien, och omfattar baslinjedata från 6S-enkäten med fokus på hur personal inom äldreomsorgen uppfattar att de arbetar enligt ett personcentrerat palliativt förhållningssätt.  

    Metod: En kvantitativ ansats antogs. Enkäten som innehåller nio frågor skickades till 266 anställda varav 136 svarade.  Resultaten redovisas som deskriptiv statistik i form av antal, procenttal, med median (md) som centralt mått. 

    Resultat: Resultaten visar att den vård som ges uppfattas som bra eller mycket bra av personalen men att uppfattningarna varierar mellan olika yrkesgrupper. Innehållet i självbild, självbestämmande, sociala relationer och symtomlindring får alla höga poäng, medan de två existentiellt inriktade S:en; syntes och strategier, visar en större spridning mot lägre poäng.  

    Konklusion: Obalansen mellan de olika innehållen i 6S omvårdnadsmodellen visar att det finns brister i den palliativa omvårdnaden inom äldreomsorgen. Detta är tydligast när   de två S:en symtomlindring och strategier jämförs. Resultaten visar på ett behov av fortsatt fokus på äldre personers existentiella frågor inom äldreomsorgen.

  • 40.
    Audulv, Åsa
    et al.
    Department of Nursing, Umeå University, Umeå, Sweden.
    Westergren, Thomas
    Department of Health and Nursing Science, University of Agder, Kristiansand, Norway; Department of Public Health, University of Stavanger, Stavanger, Norway.
    Ludvigsen, Mette Spliid
    Department of Clinical Medicine, Randers Regional Hospital, Aarhus University, Aarhus, Denmark; Faculty of Nursing and Health Sciences, Nord University, Bodø, Norway.
    Pedersen, Mona Kyndi
    Centre for Clinical Research, North Denmark Regional Hospital, Hjørring, Denmark; Department of Clinical Medicine, Aalborg University, Aalborg, Denmark.
    Fegran, Liv
    Department of Health and Nursing Science, University of Agder, Kristiansand, Norway.
    Hall, Elisabeth O. C.
    Faculty of Health, Aarhus University, Aarhus, Denmark; Faculty of Health Sciences and Nursing, University of Faroe Islands, Torshavn, Faroe Islands.
    Aagaard, Hanne
    Lovisenberg Diaconal University College, Oslo, Norway.
    Robstad, Nastasja
    Department of Health and Nursing Science, University of Agder, Kristiansand, Norway.
    Kneck, Åsa
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Marie Cederschiöld högskola.
    Time and change: A typology for presenting research findings in qualitative longitudinal research2023Ingår i: BMC Medical Research Methodology, E-ISSN 1471-2288, Vol. 23, artikel-id 284Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background Qualitative longitudinal research (QLR) is an emerging methodology used in health research. The method literature states that the change in a phenomenon through time should be the focus of any QLR study, but in empirical studies, the analysis of changes through time is often poorly described, and the emphasis on time/change in the findings varies greatly. This inconsistency might depend on limitations in the existing method literature in terms of describing how QLR studies can present findings. The aim of this study was to develop and describe a typology of alternative approaches for integrating time and/or change in QLR findings.

    Methods In this method study, we used an adapted scoping review design. Articles were identified using EBSCOhost. In total, methods and results sections from 299 QLR articles in the field of health research were analyzed with inspiration from content analysis.

    Results We constructed a typology of three types and seven subtypes. The types were based on the underlying structural principles of how time/change was presented: Type A) Findings have a low utilization of longitudinal data, Type B) Findings are structured according to chronological time, and Type C) Findings focus on changes through time. These types differed in 1) the way the main focus was on time, change or neither; 2) the level of interpretation in the findings; and 3) how theoretical understandings of time/change were articulated in the articles. Each type encompassed two or three subtypes that represented distinct approaches to the aim and results presentation of QLR findings.

    Conclusions This method study is the first to describe a coherent and comprehensive typology of alternative approaches for integrating time/change into QLR findings in health research. By providing examples of various subtypes that can be used for results presentations, it can help researchers make informed decisions suitable to their research intent.

  • 41.
    Landfeldt, Erik
    et al.
    IQVIA, Stockholm.
    Udo, Camilla
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Social Work, Stockholm University, Stockholm; School of Health and Welfare, Dalarna University, Falun; Center for Clinical Research Dalarna-Uppsala University, Falun.
    Lövgren, Malin
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Advanced Pediatric Home Care, Astrid Lindgren Children's Hospital, Karolinska University Hospital, Stockholm.
    Sejersen, Thomas
    Department of Neuropediatrics, Astrid Lindgren Children's Hospital, Karolinska University Hospital, Stockholm; Department of Women's and Children's Health, Karolinska Institutet, Stockholm.
    Kreicbergs, Ulrika
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Department of Women's and Children's Health, Karolinska Institutet, Stockholm.
    Health-related quality of life of children with spinal muscular atrophy in Sweden: A prospective cohort study in the era of disease-modifying therapy2023Ingår i: European journal of paediatric neurology, ISSN 1090-3798, E-ISSN 1532-2130, Vol. 46, s. 67-73Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The objective of this study was to estimate change over time in health-related quality of life (HRQoL) of children with spinal muscular atrophy (SMA) in Sweden. Children with SMA were identified via the National Patient Register by the National Board of Health and Welfare in Sweden. Patient HRQoL was caregiver proxy-assessed using the Pediatric Quality of Life Inventory 4.0 Generic Core Scales at baseline, as well as at 6, 12, and 18 months of follow-up. Results were stratified by SMA type. Mothers and fathers to 27 children with SMA (mean patient age: 9.17 years; 59% female) participated in the study. All patients received disease-modifying therapy. At baseline, across SMA types, the mean total score was estimated at between 52.68 and 59.19, Physical Functioning score at between 26.39 and 40.34, Emotional Functioning score at between 66.82 and 68.57, Social Functioning score at between 55.00 and 70.45, and School Functioning score at between 70.45 and 78.33. The mean annual total score change was estimated at −2.03 for SMA type I, 4.11 for SMA type II, and 1.12 for SMA type III. In conclusion, we show that SMA has a detrimental impact on HRQoL that extends above and beyond somatic disability. Children with SMA type II experienced a dramatic increase in HRQoL over time, predominantly related to improvement in physical and social functioning. Our data helps quantify the patient burden of disease and adds to the rapidly expanding body of evidence of the effectiveness of recently approved disease-modifying therapies for SMA.

  • 42.
    Lerner, Henrik
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Ingmar Persson: Out of the World: On the Point of Doing Philosophy. Library of Theoria № 28. Stockholm: Thales, 20212023Ingår i: Tidskrift för politisk filosofi, ISSN 1402-2710, E-ISSN 2002-3383, nr 2, s. 38-42Artikel, recension (Övrigt vetenskapligt)
  • 43.
    Wijk, Ingrid
    et al.
    Department of Health Promoting Science, Sophiahemmet University, Stockholm.
    Amsberg, Susanne
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Johansson, Unn-Britt
    Department of Health Promoting Science, Sophiahemmet University, Stockholm; Department of Clinical Sciences and Education, Södersjukhuset, Karolinska Institutet, Stockholm.
    Toft, Eva
    Department of Medicine, Karolinska Institutet, Stockholm, Huddinge; Department of Medicine, Karolinska Institutet, Ersta Hospital, Stockholm.
    Hagquist, Curt
    Department of Education and Special Education, University of Gothenburg.
    Anderbro, Therese
    Department of Clinical Sciences, Danderyd Hospital, Karolinska Institutet, Stockholm; Department of Psychology, Stockholm University.
    Psychometric Evaluation of the Swedish Acceptance and Action Diabetes Questionnaire: A Rasch Analysis2023Ingår i: Journal of Nursing Measurement, ISSN 1061-3749, E-ISSN 1945-7049Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background and purpose: The Acceptance and Action Diabetes Questionnaire (AADQ) is a tool for assessing the acceptance of thoughts and emotions related to diabetes in people living with the disease. This study aimed to examine the psychometric properties of the Swedish version of AADQ (Swe-AADQ) in a sample of adults with type 1 diabetes.

    Methods: To examine the psychometric properties of the Swe-AADQ, the Rasch model was used. Data for 120 individuals were included.

    Results: The Swe-AADQ showed an acceptable fit to the Rasch model. A sufficiently high value of the separation index indicated a capacity to distinguish between different levels of acceptance in the sample. The seven-point Likert scale was reduced to three categories suggesting an improvement in the ordering of the item thresholds.

    Conclusions: The Swe-AADQ possesses reasonable quality in terms of reliability and validity. However, there are some deficiencies regarding the categorization of the response rating that should be addressed.

  • 44.
    Hellström, Ingrid
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Older migrants and dementia2023Ingår i: Handbook on Migration and Ageing / [ed] Sandra Torres; Alistair Hunter, -- Välj ur listan --: Edward Elgar Publishing, 2023, s. 301-310Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 45.
    Bielsten, Therése
    et al.
    Jönköping University.
    Hellström, Ingrid
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Lasrado, Reena
    The University of Manchester.
    Hann, Mark
    The University of Manchester.
    Davies, Linda
    The University of Manchester.
    Schumm, James
    The University of Manchester.
    Keady, John
    The University of Manchester.
    Doing Things Together in the Neighbourhood: Developing and testing the ‘DemPower’ app2023Ingår i: Reconsidering neighbourhoods and living with dementia: Spaces, Places, and People / [ed] John Keady, Open University Press, 2023, s. 183-203Kapitel i bok, del av antologi (Övrigt vetenskapligt)
  • 46.
    Carlsson, Nina
    et al.
    Linnéuniversitetet; Internmedicin, Region Kalmar län.
    Alvariza, Anette
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Capio Palliativ vård Dalen.
    Bremer, Anders
    Linnéuniversitetet; Ambulanssjukvården, Region Kalmar län.
    Axelsson, Lena
    Sophiahemmet högskola.
    Årestedt, Kristofer
    Linnéuniversitetet; Forskningssektionen, Region Kalmar län.
    Symptoms of Prolonged Grief and Self-Reported Health Among Bereaved Family Members of Persons Who Died From Sudden Cardiac Arrest2023Ingår i: Omega, ISSN 0030-2228, E-ISSN 1541-3764, Vol. 87, nr 1, s. 66-86Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Sudden cardiac arrest is common and is one of the leading causes of death in the western world, and the sudden loss following cardiac arrest may have a significant impact on bereaved family members' health. Therefore, the aim of this study was to describe symptoms of prolonged grief and self-reported health among bereaved family members of persons who died from sudden cardiac arrest, with comparisons between spouses and non-spouses. This was a cross-sectional observation study with 108 adult family members who completed a questionnaire. A fifth of the family members reported prolonged grief, and problems with self-reported health were common, especially regarding anxiety. Spouses reported more problems with prolonged grief and self-reported health compared with non-spouses. The risk of these family members developing prolonged grief and health problems should be recognized, and professional support should be offered.

  • 47.
    Palmgren, Marianne
    et al.
    Karolinska Institutet; Mälardalens universitet.
    Rosenberg, Lena
    Jönköping University; Karolinska Institutet.
    Gaber, Sophie
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap. Karolinska Institutet.
    Johansson, Karin
    Karolinska Institutet.
    Family members' reasoning in relation to pleasant environments in nursing homes2023Ingår i: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 22, nr 1, s. 235-251, artikel-id 14713012221142474Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The physical environment plays an important role in how everyday life is shaped and experienced for persons living in nursing homes as well as for the residents' family and friends. Still, there is a scarcity of research exploring the perspectives of family members of residents regarding everyday life in common areas in nursing homes. In this study, we chose the term, 'a pleasant place', with the ambition of remaining open to various ideas and aspects that family members perceive as relevant when reasoning about the nursing home environment. The study aimed to explore how family members of nursing home residents reason in relation to pleasant places in nursing homes. Four focus group sessions were conducted with a total of 14 family members. Data were analysed using qualitative content analysis. The analysis resulted in four themes. 'A door ajar', highlighted the importance of a nursing home environment that provides potential opportunities for pleasurable everyday moments. 'Why does it have to be so ugly?', revealed how family members perceived institutional logics as guiding the design of the nursing homes, which were misaligned with the logics of a pleasant place. 'A place to care for?', emphasised the physical environment as an integrated aspect of care, in terms of being carefully arranged and used with sensitivity. Finally, 'allegiance to the place' showed that despite the family members' recognitions of shortcomings in the nursing home physical environments, their allegiance to the place provided a sense of the nursing home as a pleasant place. The study contributes knowledge regarding the perceived value of the design of the physical environment in nursing homes, particularly in common areas, as an integral aspect of care, and moves beyond the ideas of homelike and non-institutional nursing home environments.

  • 48.
    Akkawi El Edelbi, Ranaa
    et al.
    Karolinska Institutet; Karolinska universitetssjukhuset.
    Eksborg, Staffan
    Karolinska Institutet; Karolinska universitetssjukhuset.
    Kreicbergs, Ulrika
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Karolinska institutet.
    Lövgren, Malin
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap, Palliativt forskningscentrum, PFC. Karolinska institutet.
    Wallén, Klara
    Karolinska universitetssjukhuset.
    Ekman, Jennie
    Karolinska universitetssjukhuset.
    Lindemalm, Synnöve
    Karolinska universitetssjukhuset; Karolinska institutet.
    Parents' experiences of handling oral anticancer drugs at home: 'It all falls on me …'2023Ingår i: Journal of Evaluation In Clinical Practice, ISSN 1356-1294, E-ISSN 1365-2753, Vol. 29, nr 1, s. 94-100Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    AIM: The aim of this study was to describe the experiences of parents handling oral anticancer drugs in a home setting.

    METHODS: Parents of children with cancer were recruited from a paediatric oncology ward in Sweden to participate in an interview. The interviews were transcribed verbatim and subjected to qualitative content analysis.

    RESULTS: We found the following categories and subcategories: parents' views on the provided information-lack of, too little or contradictory information, and parents' preferences for information delivery; safety over time; correct drug dose; and drug administration. As time passed, most parents adapted to their child's illness, felt safer and found it easier to take in and process any given information. Parents preferred information in different formats (written, movie clips and orally) and in their mother tongue. Many parents were aware of the importance of giving an accurate dose to their child and described the process of drug administration as overwhelming.

    CONCLUSION: Parents need to be provided with accurate, timely, nonconflicting and repeated information-in different forms and in their mother tongue-on how to handle oral anticancer drugs at home.

  • 49.
    Åkeflo, Linda
    et al.
    Sahlgrenska akademin.
    Elmerstig, Eva
    Malmö universitet.
    Bergmark, Karin
    Sahlgrenska akademin.
    Dunberger, Gail
    Marie Cederschiöld högskola, Institutionen för vårdvetenskap.
    Barriers to and strategies for dealing with vaginal dilator therapy - Female pelvic cancer survivors' experiences: A qualitative study2023Ingår i: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 62, artikel-id 102252Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    PURPOSE: Vaginal changes, a frequently reported late effect among women treated with pelvic radiotherapy, can result in sexual dysfunction and distress. Women are recommended vaginal dilator therapy after completed radiotherapy; however, low adoption has been recognized. This study aims to provide insight into women's difficulties with carrying out vaginal dilator therapy and their experiences of information.

    METHODS: Face-to-face, semi-structured interviews were undertaken with 12 pelvic cancer survivors in a selected sample of women with difficulties adopting the therapy. Interviews were audio-recorded, transcribed and analyzed using qualitative content analysis.

    RESULTS: One overarching theme, Being unprepared, emerged from three identified categories relating to Experience of received information, Experience of performing the therapy, and Motivation to perform the therapy. The women experienced the information as unrealistic and insufficient, and requested clearer and earlier information. Bleeding, pain, fear of cancer recurrence, and recalling memories from treatments were experienced. Women described intestinal symptoms, fatigue, and feeling that the therapy was self-harm as barriers to performing the therapy. They described creating routines, breathing exercises, relaxation, pre-warming the dilator and performing therapy together with their partner as helpful strategies.

    CONCLUSIONS: Careful discussion, early and clear communication, psychoeducation and supportive follow-up of vaginal changes should be integrated into cancer treatment and follow up. Healthcare professionals should be aware of potential difficulties with vaginal dilator therapy and identify women in need of extended support. Research is required to investigate interventions that suit the needs of female pelvic cancer survivors.

  • 50.
    Wergeland, Daniel
    et al.
    Oslo University Hospital, Norway.
    Harsten, Kristine
    Oslo University Hospital, Norway.
    Klarare, Anna
    Ersta Sköndal Bräcke högskola, Institutionen för vårdvetenskap. Uppsala universitet.
    Steindal, Simen A
    Lovisenberg Diaconal University College, Norway; VID Specialized University, Norway.
    Title authors reply to letter to Editor 'Follow-up care after stem-cell transplant'2023Ingår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 32, nr 13-14, s. 4195-4196Artikel i tidskrift (Övrigt vetenskapligt)
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